scholarly journals Cultural Adaptations to Recruitment Strategies and Community-Based Interventions for Dementia Caregivers

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 485-486
Author(s):  
Lauren Parker ◽  
Katherine Marx ◽  
Maria Aranda
Keyword(s):  
African American ◽  
Minority Groups ◽  
Recruitment Strategies ◽  
Community Based Interventions ◽  
Community Based ◽  
Cultural Adaptations ◽  
Caregiver Support ◽  
Black African ◽  
Culturally Adapted ◽  
Participation In Research

Abstract Nearly 30 years after the 1993 National Institute of Health Revitalization Act, minority groups’ low participation in research remains (which required the inclusion of women and racial/ethnic minority groups into government-funded clinical trials). This is particularly the case for participation in research on Alzheimer’s Disease and related dementias (ADRD). Deeply rooted historical race-based mistreatment in research and in the health care system at large persist as barriers to low-participation of minorities (i.e. Black/African American, Hispanic/Latino) and immigrants in research studies, who remain at disparate risk for adverse ADRD health outcomes and expedited mortality. The use of culturally adapted approaches in recruitment strategies and community-based interventions might be helpful to encourage the participation of underrepresented groups into research. As such, this presentation highlights three studies that seek to use cultural adaptation to inform recruitment strategies and community-based interventions. First, Dr. Parker will present how tenets from Critical Race Theory can be used to inform culturally-adapted recruitment strategies of Black/African American caregivers into community-based research by drawing upon two ongoing studies: a randomized trial providing caregiver support through Adult Day Services (ADS) and the evaluation of impact of ADS on stress levels of Black/African American using biomarker measures. Next, Ms. Johnson will present results on cultural adaptions to the ADS-Plus Program for Spanish-speaking populations. Finally, Dr. Nkimbeng will present on the process of culturally-tailoring dementia education for African immigrants in Minnesota. Findings from this presentation identify opportunities for researchers to use cultural adaptations to encourage participation of underrepresented populations into ADRD research.

scholarly journals The Use of Critical Race Theory to Inform Culturally Adapted Recruitment Strategies for Community-Based Research

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 486-486
Author(s):  
Joseph Gaugler ◽  
Laura Gitlin ◽  
Lauren Parker
Keyword(s):  
African American ◽  
African Americans ◽  
Critical Race Theory ◽  
Recruitment Strategies ◽  
Critical Race ◽  
Race Theory ◽  
Community Based ◽  
Caregiver Support ◽  
Black African ◽  
Community Based Research

Abstract Black/African American participation in non-pharmacological randomized trials and community-based research on Alzheimer’s Disease and related dementias (ADRD) remains low. This presentation introduces Critical Race Theory (CRT), its tenets and how it can be used in tandem with national strategies to encourage participation of Black/African Americans in ADRD research. CRT is a transdisciplinary methodology that draws on anti-racist tenets to study and transform the relationships among race, racism, and power. We describe how CRT constructs (e.g., race consciousness, counter-storytelling) can be used to inform recruitment strategies to enroll Black/African American ADRD caregivers into community-based research by drawing upon two ongoing studies: a randomized trial providing caregiver support through Adult Day Services (ADS) and the evaluation of impact of ADS on stress levels of Black/African American using biomarker measures. In the spirit of CRT this presentation is a call for action and transformation of dementia care research to actively include Black/African Americans.

scholarly journals Examining The Effectiveness Of Interventions Designed To Increase Mammography Adherence Among African American Women

2011 ◽  
Vol 2 (2) ◽  
pp. 29-38 ◽  
Author(s):  
Adam P. Knowlden ◽  
Manoj Sharma
Keyword(s):  
African American ◽  
African American Women ◽  
The United States ◽  
Screening Mammography ◽  
Stepped Care ◽  
Inclusion Criteria ◽  
Theoretical Frameworks ◽  
Community Based Interventions ◽  
Community Based ◽  
American Women

The objective of this paper was to assess and synthesize the key findings, conclusions, and recommendations of mammography interventions targeting African American women conducted between 1999 and 2010. Collection of materials for this study included searches of academic databases using the following inclusion criteria: 1) publication in the English language, 2) between 1999 and 2010, 3) conducted in the United States, 4) targeting African American women. Titles and abstracts of identified studies were evaluated independently by two researchers. A total of 24 studies met the inclusion criteria. Interventions were categorized as either practice-based or community-based. Classifications were then sub-categorized based on the employment of targeted or tailored strategies. Culturally-appropriate tailored and targeted messages are an effective approach to increase screening mammography adherence. Community-wide interventions that employ lay health advisors were found to assist in offsetting issues related to trust and access. Interventions delivered in faith-based settings were effective mediums for increasing adherence to screening guidelines. Stepped-care interventions were an efficient, cost-effective method for increasing adherence among non-compliant populations. The majority of the identified studies relied upon theoretical frameworks to guide the intervention. Community-based interventions should progress from atheoretical to theory-based intervention frameworks.

Abstract 09: Technology Fluency is Not a Barrier to User Adoption of a Mobile Health (mHealth) Wrist-worn Physical Activity (PA) Monitor System: Observations From the Washington, D.C. Cardiovascular (CV) Health and Needs Assessment

Circulation ◽  
2016 ◽  
Vol 133 (suppl_1) ◽  
Author(s):  
Leah Yingling ◽  
Colby Ayers ◽  
Marlene Peters-Lawrence ◽  
Gwenyth Wallen ◽  
Valerie Mitchell ◽  
...  
Keyword(s):  
At Risk ◽  
African American ◽  
Data Collection ◽  
Monitoring System ◽  
Self Report ◽  
Community Based Interventions ◽  
Community Based ◽  
Faith Based ◽  
User Adoption ◽  
Technology Fluency

Background: Emerging mHealth technologies, like wrist worn PA monitors, offer potential for targeting CV health behaviors among at-risk groups in community-based interventions. It is unknown whether technology fluency impedes user adoption of such mHealth interventions. Methods: A CV health evaluation designed using community-based participatory research principles was conducted in African American, faith-based organizations in Washington D.C. wards with the highest obesity rates (NCT01927783). Participants (n=100) underwent a CV health assessment at a community church and were trained to use an mHealth PA monitor for the ensuing 30-day period. Participants wirelessly uploaded PA data weekly to a data collection hub at a participating church and accessed data online. Users were participants with ≥1 days of data; non-users had zero days of data. A validated Computer-Email-Web fluency self-report instrument captured technology fluency, with skill levels from 1 (no fluency) to 5 (high fluency). Results: Eighty-one participants were users (mean age=60, 78% female); 19 were non-users (mean age=57, 84% female). Users were more likely than non-users to report a lower household income (p=0.01). No differences were noted for computer access (94% vs 94%, p=0.2) or cell phone ownership (88% vs 89%, p=0.2). Technology fluency was similar, with all non-users and 95% of users reporting some level of technology fluency for the 17 surveyed skills (Table). Conclusions: In African-American, faith-based communities in at-risk Washington D.C. areas, lower technology fluency does not appear to impede adoption of this mHealth PA-monitoring system, despite lower socioeconomic status among users. This relationship is likely explained by similar technology access among users and non-users. These findings suggest that an mHealth PA monitoring system using a data collection hub may facilitate a future PA intervention for improved CV health in an at-risk African American community, independent of the population’s technology fluency.

scholarly journals A Review of Qualitative Research of Perception and Experiences of Dementia Among Adults From Black, African, and Caribbean Background: What and Whom Are We Researching?

2020 ◽  
Author(s):  
Moïse Roche ◽  
Paul Higgs ◽  
Jesutofunmi Aworinde ◽  
Claudia Cooper
Keyword(s):  
African American ◽  
Minority Groups ◽  
Black African ◽  
Black British ◽  
American Perspective ◽  
Majority Population ◽  
Diverse Backgrounds ◽  
African Caribbean ◽  
Design And Methods ◽  
The Impact

Abstract Background and Objectives Black, African, and Caribbean (BAC) families are disproportionately affected by dementia but engage less with services. Studies reporting their experiences of dementia have tended to aggregate people from diverse backgrounds, without considering the impact of this diversity, or researchers’ ethnicities. We investigated participants’ and researchers’ ethnic identities, exploring how this relates to findings. Research Design and Methods We searched electronic databases in September 2018, for qualitative studies exploring how participants of Black ethnicity understand and experience dementia and dementia care. We reported participants’ and researchers’ ethnicities, and meta-synthesized qualitative findings regarding how ethnicity influences experiences and understanding of dementia. Results Twenty-eight papers reported 25 studies; in United States (n = 17), United Kingdom (n = 7), and Netherlands (n = 1). 350/492 (71%) of participants were in U.S. studies and described as African American; participants in U.K. studies as Caribbean (n = 45), African/Caribbean (n = 44), African (n = 28), Black British (n = 7), or Indo-Caribbean (n = 1); and in Netherlands as Surinamese Creole (n = 17). 6/25 (24%) of studies reported involving recruiters/interviewers matching participants’ ethnicity; and 14/25 (56%) involved an author/advisor from a BAC background during analysis/procedures. We identified four themes: Dementia does not relate to me; Inappropriate and disrespectful services; Kinship and responsibility; Importance of religion. Discussion and Implications Studies were mostly from a U.S. African American perspective, by researchers who were not of BAC background. Themes of dementia diagnosis and services feeling less relevant to participants than the majority population resonated across studies. We caution against the racialization of these findings, which can apply to many differing minority groups.

HIV Prevention Revisited: African American Women's Response to Current Community-Based Interventions

2011 ◽  
Vol 10 (3) ◽  
pp. 265-289 ◽  
Author(s):  
Cathleen A. Lewandowski ◽  
John J. Holden ◽  
Man-Chun Chang ◽  
Tana James
Keyword(s):  
African American ◽  
Hiv Prevention ◽  
Community Based Interventions ◽  
Community Based

Historical Theoretical Perspectives to Consider in the Application of Community-Based Interventions for African Americans and Communities of Color

2021 ◽  
Vol 27 (1) ◽  
pp. 55-60
Author(s):  
Pandora Goode
Keyword(s):  
African American ◽  
Health Belief Model ◽  
Health Belief ◽  
Community Based Interventions ◽  
Community Based ◽  
Nursing Knowledge ◽  
Communities Of Color ◽  
Theoretical Perspectives ◽  
Belief Model ◽  
The Health Belief Model

Using theory as a framework for community-based interventions in African American members provides the principles and guidance needed to generate nursing knowledge. However, choosing an appropriate theoretical framework to guide community-based interventions can be challenging. The aim of this manuscript is to examine the use of three historical models or theories (the Health Belief Model, the Theory of Planned Behavior, and Bandura's Self-Efficacy Theory), which are still being used today, to better understand their applications in community-based interventions.

scholarly journals Culturally adapted mental healthcare: evidence, problems and recommendations

2015 ◽  
Vol 39 (4) ◽  
pp. 153-155 ◽  
Author(s):  
Sokratis Dinos
Keyword(s):  
Mental Health ◽  
Mental Health Services ◽  
Health Services ◽  
Mental Health Professionals ◽  
Minority Groups ◽  
Mental Health Problems ◽  
Mental Healthcare ◽  
Health Problems ◽  
Cultural Adaptations ◽  
Culturally Adapted

SummaryEvidence suggests disparities in the prevalence of mental health problems and access to mental healthcare for a number of minority groups. The main response from mental health services falls into two related categories: (a) cultural adaptations of existing evidence-based interventions (EBIs) and/or (b) cultural competence of mental health professionals. This editorial looks at the evidence on culturally adapted EBIs and argues that although such interventions can be effective, they also carry the risk of alienating members of the groups they are aimed at. Recommendations focus on identifying issues that pertain to being from a racial minority and/or possessing other stigmatised identities that can have an impact on mental health problems, which may be overlooked by mental health services by assuming an overarching predominant cultural identity.

Compliance and Acceptability of Maintaining a 6-Month Pedometer Diary in a Rural, African American Community-Based Walking Intervention

2009 ◽  
Vol 6 (4) ◽  
pp. 475-482 ◽  
Author(s):  
Jamie Zoellner ◽  
Alicia Powers ◽  
Amanda Avis-Williams ◽  
Murugi Ndirangu ◽  
Earline Strickland ◽  
...  
Keyword(s):  
African American ◽  
Time Frame ◽  
Daily Step ◽  
Community Based Interventions ◽  
Community Based ◽  
Step Counts ◽  
Walking Intervention ◽  
Physical Activity Interventions ◽  
Group Members ◽  
Walking Group

Background:Limited research has been done on the compliance and acceptability of maintaining pedometer diaries for an extensive time frame in community-based interventions targeting minority populations.Methods:Community “coaches” led participants in a 6-month community-based walking intervention that included wearing pedometers and maintaining pedometer diaries for the study duration. Descriptive statistics and ANOVA tests were used to evaluate compliance rates for maintaining diaries and daily step counts. After the intervention, focus groups were used to explore opinions regarding pedometers. Audiotapes were transcribed and evaluated using systematic content analysis.Results:The 8 coaches and 75 enrolled walking participants were primarily African American (98%) women (94%). Overall, the group (N = 83) submitted 85% of all possible pedometer diaries and recorded 73% of all possible daily step counts. Walking-group members were significantly (P < .01) more compliant if their coach was also compliant. Identified benefits of wearing pedometers and maintaining diaries outnumbered the barriers. Participants were enthusiastic about wearing the pedometers and indicated that the weekly diaries provided a source of motivation.Conclusions:This research suggests pedometer diaries are a viable intervention tool and research method for community-based physical activity interventions targeting African Americans and highlights the need for social support to promote pedometer diary compliance.

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