Diabetic self care practices in rural Mysuru, Southern Karnataka, India — A need for Diabetes Self Management Educational (DSME) program

2017 ◽  
Vol 11 ◽  
pp. S181-S186 ◽  
Author(s):  
K.M. Srinath ◽  
Madhu Basavegowda ◽  
Nandarula Sai Tharuni
Keyword(s):  
Self Care ◽  
Self Management ◽  
Care Practices

Diabetes self-care in-the-wild

2014 ◽  
Vol 27 (4) ◽  
pp. 397-420 ◽  
Author(s):  
Cristiano Storni
Keyword(s):  
Chronic Disease ◽  
Everyday Life ◽  
Self Care ◽  
Self Management ◽  
Self Monitoring ◽  
Content Type ◽  
In The Wild ◽  
Care Practices

Purpose – The purpose of this paper is to raise issues about the design of personal health record systems (PHRs) and self-monitoring technology supporting self-care practices of an increasing number of individuals dealing with the management of a chronic disease in everyday life. It discusses the results of an ethnographic study exposing to analysis the intricacies and practicalities of managing diabetes “in the wild”. It then describe and discuss the patient-centric design of a diabetes journaling platform that followed the analysis. Design/methodology/approach – The study includes ethnometodological investigation based on in depth interviews, observations in a support group for adults with type 1 diabetes, home visits, shadowing sessions and semi-structured interviews with a series of medical experts (endocrinologists, general practitioners and diabetes nurses). Findings informed the design of a proof-of-concept PHR called Tag-it-Yourself (TiY): a mobile journaling platform that enables the personalization of self-monitoring practices. The platform is thoroughly described along with an evaluation of its use with real users. Findings – The investigation sheds light on a series of general characters of everyday chronic self-care practices, and how they ask to re-think some of the assumptions and connotations of the current medical model and the traditional sick role of the patient – often unreflectively assumed also in the design of personal technologies (e.g. PHR) to be used by patients in clinically un-controlled settings. In particular, the analysis discusses: the ubiquitous nature of diabetes that is better seen as a lifestyle, the key role of lay expertises and different forms of knowledge developed by the patient in dealing with a disease on a daily basis, and the need of more symmetrical interactions and collaborations with the medical experts. Research limitations/implications – Reported discussions suggest the need of a more holistic view of self-management of chronic disease in everyday life with more attention being paid on the perspective of the affected individuals. Findings have potential implications on the way PHR and systems to support self-management of chronic disease in everyday life are conceived and designed. Practical implications – The paper suggests designers and policy makers to look at chronic disease not as a medical condition to be disciplined by a clinical perspective but rather as a complex life-style where the medical cannot be separated by other aspects of everyday life. Such shift in the perspective might suggest new forms of collaborations, new ways of creative evidence and new form of knowledge creation and validation in chronic self-care. Social implications – The paper suggests re-thinking the role of the patient in chronic-disease self-management. In particular, it suggests giving more room to the patient voice and concerns and suggest how these can enrich rather than complicate the generation of knowledge about self-care practices, at least in type 1 diabetes. Originality/value – The paper sheds light on everyday intricacies and practicalities of dealing with a chronic disease. Studies of self-care practices that shed light on the patient perspectives are sporadic and often assume a clinical perspective, its assumptions (e.g. biomedical knowledge is the only one available to improve health outcome, doctors know best) and implications (e.g. compliance, asymmetry between the specialist and the patient).

Factors influencing patients' hypertension self-management and sustainable self-care practices: a qualitative study

Public Health ◽  
2019 ◽  
Vol 173 ◽  
pp. 5-8
Author(s):  
H. M. Yatim ◽  
Y.Y. Wong ◽  
C.F. Neoh ◽  
S.H. Lim ◽  
M.A. Hassali ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Self Care ◽  
Self Management ◽  
Factors Influencing ◽  
Care Practices

Diabetes Self-Management Education and Association With Diabetes Self-Care and Clinical Preventive Care Practices

2022 ◽  
pp. 263501062110653
Author(s):  
Isabel Mendez ◽  
Elizabeth A. Lundeen ◽  
Magon Saunders ◽  
Alexis Williams ◽  
Jinan Saaddine ◽  
...  
Keyword(s):  
Preventive Care ◽  
Leisure Time Physical Activity ◽  
Diabetes Education ◽  
Self Care ◽  
Self Management ◽  
Clinical Practices ◽  
Glucose Testing ◽  
Care Visit ◽  
Health Care Visit ◽  
Care Practices

Purpose: The purpose of the study is to assess self-reported receipt of diabetes education among people with diabetes and its association with following recommended self-care and clinical preventive care practices. Methods: We analyzed data from the 2017 and 2018 Behavioral Risk Factor Surveillance System for 61 424 adults (≥18 years) with self-reported diabetes in 43 states and Washington, DC. Diabetes education was defined as ever taking a diabetes self-management class. The association of diabetes education with self-care practices (daily glucose testing, daily foot checks, smoking abstention, and engaging in leisure-time physical activity) and clinical practices (pneumococcal vaccination, biannual A1C test, and an annual dilated eye exam, influenza vaccination, health care visit for diabetes, and foot exam by a medical professional) was assessed. Multivariable logistic regression with predicted margins was used to predict the probability of following these practices, by diabetes education, controlling for sociodemographic factors. Results: Of adults with diabetes, only half reported receiving diabetes education. Results indicate that receipt of diabetes education is associated with following self-care and clinical preventive care practices. Those who did receive diabetes education had a higher predicted probability for following all 4 self-care practices (smoking abstention, daily glucose testing, daily foot check, and engaging in leisure-time physical activity) and all 6 clinical practices (pneumonia vaccination, biannual A1C test, and an annual eye exam, flu vaccination, health care visit, and medical foot exam). Conclusions: The prevalence of adults with diabetes receiving diabetes education remains low. Increasing receipt of diabetes education may improve diabetes-related preventive care.

scholarly journals Techno-social reconfigurations in diabetes (self-) care

2020 ◽  
Vol 50 (2) ◽  
pp. 198-220 ◽  
Author(s):  
Giada Danesi ◽  
Mélody Pralong ◽  
Francesco Panese ◽  
Bernard Burnand ◽  
Michèle Grossen
Keyword(s):  
Glucose Monitoring ◽  
Self Care ◽  
Self Management ◽  
Clinical Practices ◽  
Flash Glucose Monitoring ◽  
Freestyle Libre ◽  
Care Practices ◽  
Flash Glucose Monitoring System ◽  
Social Reconfigurations

This article focuses on the ways in which a flash glucose monitoring system, FreeStyle Libre®, is introduced and used by people living with type 1 diabetes, their relatives and healthcare professionals. It draws on a multi-sited ethnography in a variety of clinical and daily situations, and on interviews with caregivers and people living with diabetes. We explore how the users develop knowledge-in-practice, and consider the use of self-management technologies to be largely dependent on locally grounded and situated care acts, and resulting from the relational, pragmatic and creative maneuvering of technology-in-practice. Our findings show that adjustments between users, their bodies and the technology are required, and show the reflexive work and practices of patients and relatives who learn to use the device in a proper way. Moreover, we reveal that practitioners see this technology as a tool that not only improves self-care practices but also clinical practices, and that wearing and using this new medical device may become a moral injunction for self-improvement. Our results illustrate the techno-social reconfigurations at work and the development of new ways of feeling, thinking and acting in diabetes (self-) care.

614-P: Receiving Diabetes Self-Management Education Associated with Following Self-Care and Clinical Preventive Care Practices

Diabetes ◽  
2020 ◽  
Vol 69 (Supplement 1) ◽  
pp. 614-P
Author(s):  
ELIZABETH A. LUNDEEN ◽  
ISABEL MENDEZ ◽  
MAGON M. SAUNDERS ◽  
JINAN B. SAADDINE
Keyword(s):  
Preventive Care ◽  
Management Education ◽  
Self Care ◽  
Self Management ◽  
Care Practices

scholarly journals The barriers and challenges toward addressing the social and cultural factors influencing diabetes self-management in Indian populations

2017 ◽  
Vol 05 (02) ◽  
pp. 071-076 ◽  
Author(s):  
Saurav Basu ◽  
Suneela Garg
Keyword(s):  
Health Outcomes ◽  
Diabetes Management ◽  
Patient Adherence ◽  
Self Care ◽  
Self Management ◽  
Sociocultural Factors ◽  
Diabetic Patients ◽  
Familial Support ◽  
Factors Influencing ◽  
Care Practices

AbstractPatient adherence to recommended diabetes self-care practices reduces the risk of diabetic complications. However, most clinic-based approaches have proved inadequate in maintaining optimal diabetic self-management and the prevention of undesirable health outcomes at the population level among disadvantaged populations. Several sociocultural factors influence patient adherence to diabetic self-care practices which should be recognized and addressed by the health-care provider, especially in lower socioeconomic status and women patients. The lack of physician empathy and tendency to assign blame upon diabetic patients for the failure of adherence without recognizing the complex sociocultural factors influencing patient behavior can undermine the possibilities for better management. The enlistment of familial support when available is valuable for improving medical adherence and health outcomes in vulnerable diabetic patients with low health literacy. Young unmarried women with diabetes are particularly at risk of diabetes stigma eroding familial support and marital prospects require need effective health communication along with their family. Moreover, women with diabetes have a greater likelihood of compromising their dietary needs for the sake of their familial dietary preferences. The inability of patients to comply with recommended exercise regimen may be derived from environmental factors; primarily unsafe neighborhoods, lack of availability of nearby recreational facilities such as public parks, and cultural resistance in patriarchal social environments. Policy approaches for improving diabetes management in disadvantaged diabetic populations should consider mandatory registration, assured diabetic medication, and follow-up in case of missed appointments. Community mobilization for overcoming societal stigma against women with diabetes also persists as a formidable challenge.

Knowledge, Attitudes, and Self-Care Practices Associated with Age-Related Eye Disease in Saudi Arabia

2020 ◽  
pp. 1
Author(s):  
Abdullah Shammari ◽  
Abdullah Alotaibi ◽  
Athari Albalawi ◽  
Fayez Almedhadi ◽  
Rahaf Alruwaili ◽  
...  
Keyword(s):  
Saudi Arabia ◽  
Self Care ◽  
Eye Disease ◽  
Age Related ◽  
Care Practices

A patient-centered mobile intervention to promote self-management and improve patient outcomes in chronic heart failure: The ManageHF4Life trial (Preprint)

2020 ◽  
Author(s):  
Michael P. Dorsch ◽  
Karen B. Farris ◽  
Brigid E. Rowell ◽  
Scott L. Hummel ◽  
Todd M. Koelling
Keyword(s):  
Heart Failure ◽  
Mobile Application ◽  
Controlled Trial ◽  
Intervention Group ◽  
Self Care ◽  
Self Management ◽  
Control Group ◽  
Patient Centered ◽  
Self Monitoring ◽  
Heart Failure Questionnaire

BACKGROUND Successful management of heart failure (HF) involves guideline based medical therapy as well as self-care behavior. As a result, the management of HF is moving toward a proactive real-time technological model of assisting patients with monitoring and self-management. OBJECTIVE Evaluate the effectiveness of a mobile application intervention that enhances self-monitoring on health-related quality of life, self-management, and reduces HF readmissions. METHODS A single-center randomized controlled trial was performed. Patients greater than 45 years of age and admitted for acute decompensated HF or recently discharged in the past 4 weeks were included. The intervention group used a mobile application (App). The intervention prompted daily self-monitoring and promoted self-management. The control group (No App) received usual care. The primary outcome was the change in Minnesota Living with Heart Failure Questionnaire (MLHFQ) from baseline to 6 and 12 weeks. Secondary outcomes were the Self-Care Heart Failure Index (SCHFI) questionnaire and recurrent HF admissions. RESULTS Eighty-three patients were enrolled and completed all baseline assessments. Baseline characteristics were similar between groups with the exception of HF etiology. The App group had a reduced MLHFQ at 6 weeks (37.5 ± 3.5 vs. 48.2 ± 3.7, P=0.039) but not at 12 weeks (44.2 ± 4 vs. 45.9 ± 4, P=0.778) compared to No App. There was no effect of the App on the SCHFI at 6 or 12 weeks. The time to first HF admission was not statistically different between the App versus No App groups (HR 0.89, 95% CI 0.39-2.02, P=0.781) over 12 weeks. CONCLUSIONS The mobile application intervention improved MLHFQ at 6 weeks, but did not sustain its effects at 12 weeks. No effect was seen on HF self-care. Further research is needed to enhance engagement in the application for a longer period of time and to determine if the application can reduce HF admissions in a larger study. CLINICALTRIAL NCT03149510

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