When and how clinical nurses adjust nursing care at the end-of-life among patients with cancer: Findings from multiple focus groups

2020 ◽  
Vol 49 ◽  
pp. 101856
Author(s):  
Aura Alexandra Angheluta ◽  
Silvia Gonella ◽  
Caterina Sgubin ◽  
Valerio Dimonte ◽  
Alessandra Bin ◽  
...  
2018 ◽  
Vol 12 (02) ◽  
Author(s):  
Dewi Nurviana Suharto

ABSTRACT The prevalence of patients with cancer increase every year. Tongue cancer is a type of malignancy of the tongue, and almost 95% is squamous cell carcinoma. Tongue cancer is a cancer with high progression with bad prognosis so that the mortality rate is very high and often causes discomfort. Comfort is the starting point of various healing that will be achieved by the client. Improvements in client conditions will not be achieved if the need of comfort is not fulfilled. In nursing care the problems that arise in tongue cancer are chronic pain, nutrient imbalance: less than body needs, and ineffective breathing patterns. Analysis of residency practice processes shows that comfort theory can be applied to patients with malignancy cases in nursing care, as it can identify patients' holistic discomfort from the physical, psychospiritual, sociocultural and environmental aspects.Keyword : Comfort Theory, Tongue Cancer


2000 ◽  
Vol 8 (4) ◽  
pp. 172-177 ◽  
Author(s):  
Janet L. Cobb ◽  
Michael J. Glantz ◽  
Patrice K. Nicholas ◽  
Edward W. Martin ◽  
Alexandra Paul-Simon ◽  
...  

2021 ◽  
Vol 39 (15_suppl) ◽  
pp. 11021-11021
Author(s):  
Tianyi Zhang ◽  
Mekaleya Tilahun ◽  
Cynthia Perlis ◽  
Sam Brondfield

11021 Background: Clinicians frequently discuss death and dying with patients who have cancer. However, the doctor-patient hierarchy and the unfamiliar clinical environment may prevent these patients from discussing death and dying authentically. Patients may feel more comfortable expressing themselves when given the time and space to write at home. Firefly, an award-winning program at UCSF, facilitates written correspondence between patients with cancer and medical students over the course of one year. Firefly’s archive contains thousands of patient letters and constitutes a unique resource for analyzing authentic patient expression outside of the clinical context. The aim of the current study is to improve curricula pertaining to severe illness and end-of-life by providing educators with an analysis of authentic patient perspectives about death and dying expressed in these letters. Methods: We (two medical students, an expressive artist, and an oncologist) read all Firefly letters written by patients between 2014 and 2019 and identified 12 patients whose letters meaningfully discussed death or dying. We performed a thematic analysis of these letters using the Buckman three-stage model of dying as a reference. Results: Four themes emerged: turmoil; grief; making peace; and past, present and future. The first three themes aligned with the Buckman stages. The fourth theme—past, present and future—spanned the three stages and also elaborated the Buckman model by describing multiple paths that patients may take after passing through these stages. Conclusions: The authentic ways in which patients with cancer discussed death and dying in their letters provided deep insight into their coping process. The Buckman model appears useful for framing death and dying from the patient perspective but may not fully reflect modern oncologic care in which many patients live for years beyond a severe or terminal diagnosis. Educators can use the identified themes to shape medical school curricula pertaining to severe illness and end-of-life care.


2018 ◽  
Vol 24 (6) ◽  
pp. 366-382 ◽  
Author(s):  
Ruth Northway ◽  
Stuart Todd ◽  
Katherine Hunt ◽  
Paula Hopes ◽  
Rachel Morgan ◽  
...  

Background People with intellectual disability are believed to be at risk of receiving poor end-of-life care. Nurses, given their advocacy role and duty to provide compassionate end-of-life care, have the potential to change this situation but research regarding this aspect of their role is limited. Aims This paper thus seeks to answer the question ‘How and when are nurses involved in providing care at end of life for people with intellectual disability?’ Methods A total of 38 intellectual disability care providers in the UK providing support to 13,568 people with intellectual disability were surveyed. Data regarding 247 deaths within this population were gathered in two stages and subsequently entered into SPSSX for analysis. Results Findings revealed that the majority of deaths occurred between the ages of 50 and 69 years, the most commonly reported cause of death being respiratory problems. Both community and hospital-based nurses were involved in supporting individuals during their final 3 months of life, and sometimes more than one type of nurse provided support to individuals. Generally nursing care was rated positively, although room for improvement was also identified. Conclusions Nurses are involved in supporting people with intellectual disability at end of life and appropriate education is required to undertake this role. This may require change in curricula and subsequent research to determine the impact of such change on nursing support to this population.


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