Quality of life and associated factors in older people with dementia living in long-term institutional care and home care

Abstract Dementia is one of the most rapidly growing diseases in the United States. In 2018, the direct costs to American society of caring for older people with dementia was approximately $277 billion. Primary informal caregivers are mainly responsible for the care of older people with dementia including Alzheimer’s disease. Caregivers perform a myriad of duties ranging from shopping for their loved ones’ groceries, helping with medications, and managing finances. The caregiving role becomes more demanding as the disease progresses over time, and studies have shown that the quality-of-life (QoL) experienced by caregivers of older adults who have dementia is lower than the QoL of caregivers for older people who do not have dementia. To the best of our knowledge, there has been no research conducted to investigate whether lower caregiver QoL affects the level or quality of care that caregivers provide to persons with dementia. In the current study, we interviewed family caregivers living in Rochester, New York to inquire about their quality of life and the care provided to older people living with dementia. Further, caregivers completed the 36-item Short Form Health Survey (SF-36) as well as a draft questionnaire for measuring the quality of care provided to older people living with dementia. Both quantitative and qualitative findings from this study reveals important relationships between family caregiver QoL and the care provided, including the impact of social support and financial well-being. The study findings could have significant impact, particularly for the provision of much needed support for family caregivers.

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Identification of key long-term symptoms and associated factors affecting quality of life after esophagectomy; multi-center European LASER study

European Journal of Surgical Oncology ◽

10.1016/j.ejso.2020.11.210 ◽

2021 ◽

Vol 47 (2) ◽

pp. e25-e26

Author(s):

Sheraz Markar

Keyword(s):

Quality Of Life ◽

Associated Factors ◽

Factors Affecting

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Effects of Occupation-Based Intervention for Older People with Mild Dementia in the Institution

Environment-Behaviour Proceedings Journal ◽

10.21834/ebpj.v6i16.2727 ◽

2021 ◽

Vol 6 (16) ◽

pp. 119-125

Author(s):

Syamsul Anwar Sultan Ibrahim ◽

Akehsan Dahlan ◽

Ahmad Zamir Che Daud

Keyword(s):

Quality Of Life ◽

Older People ◽

Cognitive Functions ◽

Social Relationship ◽

Publishing House ◽

Control Group ◽

Mild Dementia ◽

People With Dementia ◽

Significant Difference

Older people with dementia always experience the cognitive difficulties that are believed to impact their daily life significantly. However, information regarding occupation-based intervention toward older people with mild dementia in the institution is inconclusive. The results of this randomized controlled trial indicate a significant difference in cognitive functions, social relationship, and the quality of life. Participants in the experimental group improved significantly compared to the participants in the control group. Engagement in occupational activities should be encouraged to older people with mild dementia in institution to facilitate the cognitive functions, social relationship, and quality of life. Keywords: older people; mild dementia; occupation-based; quality of life eISSN: 2398-4287© 2021. The Authors. Published for AMER ABRA cE-Bs by e-International Publishing House, Ltd., UK. This is an open access article under the CC BYNC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/). Peer–review under responsibility of AMER (Association of Malaysian Environment-Behaviour Researchers), ABRA (Association of Behavioural Researchers on Asians/Africans/Arabians) and cE-Bs (Centre for Environment-Behaviour Studies), Faculty of Architecture, Planning & Surveying, Universiti Teknologi MARA, Malaysia. DOI: https://doi.org/10.21834/ebpj.v6i16.2727

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Older People in Long-Term Care Institutions: A Case of Multidimensional Social Exclusion

International Perspectives on Aging - Social Exclusion in Later Life ◽

10.1007/978-3-030-51406-8_23 ◽

2021 ◽

pp. 297-309

Author(s):

Feliciano Villar ◽

Rodrigo Serrat ◽

Annette Bilfeldt ◽

Joe Larragy

Keyword(s):

Quality Of Life ◽

Older People ◽

Social Relationships ◽

Support Services ◽

Long Term Care ◽

Models Of Care ◽

Term Care ◽

The Impact

AbstractLiving in a long-term care (LTC) institution provides older people experiencing health and social problems with a comprehensive range of support services that address their quality of life. Despite access to such services, challenges arise in relation to their participation in key activities both within and outside the institution. This chapter examines such challenges, reviewing and describing ways to prevent exclusion along various domains, specifically social relationships, civic participation and socio-cultural life. Firstly, we discuss ways in which bio-medical models of care and the quality control systems, which are dominant in LTC services, standardise care, tending to put decisions exclusively in hands of staff, taking away residents’ autonomy, and ultimately curtailing rights and citizenship status. Secondly, we examine how LTC services might prevent such exclusion and promote older people’s participation in at least four respects: (1) prompting and supporting residents’ ability to take decisions on their own care, (2) favouring the maintenance and creation of social relationships, (3) enabling residents’ participation in the activities and management of the institution, and (4) guaranteeing residents’ rights and full access to citizenship. We discuss the impact and limitations of recent initiatives put into practice in these areas of practice.

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Use of parametric speaker for older people with dementia in a residential care setting: A preliminary study of two cases

Hong Kong Journal of Occupational Therapy ◽

10.1177/1569186118759611 ◽

2018 ◽

Vol 31 (1) ◽

pp. 30-35 ◽

Cited By ~ 1

Author(s):

Yuko Nishiura ◽

Minoru Hoshiyama ◽

Yoko Konagaya

Keyword(s):

Quality Of Life ◽

Older People ◽

Psychological Symptoms ◽

Personal Space ◽

Acoustic Environment ◽

People With Dementia ◽

Behavioural And Psychological Symptoms ◽

Technological Intervention ◽

Narrow Space

Objective/Background Older people with dementia often show behavioural and psychological symptoms of dementia such as agitation, aggression, and depression that affect their activities of daily living, and hence reduce the quality of life of their caregivers. The aim of this study was to investigate the effects of a new technological intervention—a parametric speaker, creating a narrow personal acoustic environment, which may reduce the manifestation of behavioural and psychological symptoms of dementia symptoms. Methods A parametric speaker was placed on the ceiling of a large day room, and personally selected pieces of music were provided in a narrow space just under the speaker during the intervention. Two older residents with behavioural and psychological symptoms of dementia participated in the experiment. Results Playing pieces of favorite music via the parametric speaker decreased their behavioural and psychological symptoms of dementia during the intervention. In addition, this intervention reduced the burden on caregivers. One of the advantages of using parametric speaker was being able to create a personal space in a common room. Conclusion We considered that the parametric speaker might be useful to reduce behavioural and psychological symptoms of dementia and the burden on caregivers, providing individualized rehabilitation for the improved quality of life of residents.

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The effect of music on quality of life and depression in older people with dementia: A randomized control trial

Alzheimer s & Dementia ◽

10.1016/j.jalz.2009.07.009 ◽

2009 ◽

Vol 5 (5) ◽

pp. e11-e11 ◽

Cited By ~ 4

Author(s):

M. Cooke ◽

W. Moyle ◽

D. Shum ◽

S. Harrison ◽

J. Murfield

Keyword(s):

Quality Of Life ◽

Older People ◽

Randomized Control Trial ◽

People With Dementia ◽

Randomized Control

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THE IMPACT OF A PARO INTERVENTION ON DEPRESSION AND WELL-BEING IN OLDER ADULTS WITH DEPRESSION

Innovation in Aging ◽

10.1093/geroni/igz038.1236 ◽

2019 ◽

Vol 3 (Supplement_1) ◽

pp. S341-S341

Author(s):

Shu-Chuan Chen ◽

Wendy Moyle ◽

Cindy Jones

Keyword(s):

Quality Of Life ◽

Older Adults ◽

Older People ◽

Long Term Care ◽

Well Being ◽

World Health ◽

Term Care ◽

Care Facilities

Abstract Aim: This study aimed to explore the effect of a social robot Paro intervention on depression and well-being in older adults with depression living in long-term care facilities in Taiwan. Methods: This study was adopted a single group and quasi-experimental with repeated measures design. Each participant participated in two stages: observation and Paro intervention stages. Stage 1 was an 8-week observation stage in long-term care facilities where the purpose was to observe the normal mood, behaviour and activities of older adults with depression. In stage 2, each participant was given a Paro by the researcher to keep for 24 hours for 7 days in for 8 weeks. Outcome measurements were obtained 4 times: a week before the intervention (T1), immediately the end of 8-week observation (T2), mid-point of Paro intervention (T3), and immediately the end of 8-week Paro intervention (T4). Instruments included the Geriatric Depression Scale, the UCLA Loneliness Scale version 3, and the World Health Organization Quality of Life Questionnaire-OLD. Results: There were 20 participants completed the study. The mean age of participants was 81.1years (SD = 8.2). After 8-week Paro intervention, statistically significant differences in changes were found on depression, loneliness, and quality of life from pre-intervention to post-intervention. Conclusion: This study was found that Paro intervention has beneficial effects on depression and mental well-being for older people with depression in long-term care facilities. Paro Intervention might be a suitable psychosocial intervention for older people with depression and should be considered as a useful tool in clinical practice.

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