scholarly journals Perspectives of patients and family members regarding psychological support using intensive care diaries: An exploratory mixed methods study

2017 ◽  
Vol 38 ◽  
pp. 263-268 ◽  
Author(s):  
Leanne M Aitken ◽  
Janice Rattray ◽  
Justin Kenardy ◽  
Alastair M Hull ◽  
Amanda J Ullman ◽  
...  
2014 ◽  
Vol 23 (11) ◽  
pp. 902-909 ◽  
Author(s):  
Audrey Lyndon ◽  
Carrie H Jacobson ◽  
Kelly M Fagan ◽  
Kirsten Wisner ◽  
Linda S Franck

2020 ◽  
Vol 59 ◽  
pp. 102831
Author(s):  
Marion Mitchell ◽  
Toni Dwan ◽  
Mari Takashima ◽  
Kellie Beard ◽  
Sean Birgan ◽  
...  

2018 ◽  
Vol 10 (1) ◽  
pp. 1-22 ◽  
Author(s):  
Deborah R. Gordon ◽  
Carmen Radecki Breitkopf ◽  
Marguerite Robinson ◽  
Wesley O. Petersen ◽  
Jason S. Egginton ◽  
...  

BMJ Open ◽  
2019 ◽  
Vol 9 (12) ◽  
pp. e032428 ◽  
Author(s):  
Hilary S Whitworth ◽  
Joyce Pando ◽  
Christian Hansen ◽  
Natasha Howard ◽  
Amen Moshi ◽  
...  

ObjectivesTo estimate the incidence of unintentional fatal drowning and describe associated risk factors among Lake Victoria fishing communities, and to assess perceived social, financial and other impacts among families and colleagues of persons who drowned.DesignA retrospective, observational mixed-methods study, conducted between September 2017 and February 2018.SettingEight Tanzanian fishing communities on Lake Victoria.ParticipantsPersons who drowned in the preceding 24 months were identified using an extensive community networking approach. Adult family members, colleagues or community members familiar with the habits and behaviours of people who drowned and/or circumstances of drowning incidents participated in surveys (n=44) and in-depth interviews (n=22).Main outcome measuresPooled drowning incidence, with sensitivity analyses allowing for uncertainties in population estimates. Risk factors were identified through the evaluation of behavioural characteristics of persons who drowned and circumstances of drowning incidents. Perceived socioeconomic impacts were assessed through semi-structured interviews with their family members and colleagues.ResultsThe estimated drowning incidence was 217/100 000 person-years (95% CI 118 to 425/100 000). Of 86 victims identified, 70 (81%) were fishermen (79% aged 18–40 years; all men) and 9 were children (all ≤10 years). All deaths occurred in the lake. Most adults (65/77; 84%) were fishing from a boat when they drowned; 57/77 (74%) died in the evening (from ~5 pm) or at night. Six children (67%) drowned while swimming/playing at the lakeshore unsupervised. Few victims (2/86; 2%) were wearing a life jacket at the time of death. Reported socioeconomic impacts of these deaths ranged from income loss to family break-up.ConclusionsDrowning is a significant risk in Tanzanian lakeside fishing communities, with estimated mortality exceeding national incidence rates of fatal malaria, tuberculosis or HIV, but preventative strategies appear uncommon. Socioeconomic impact at the family level may be substantial. Intervention strategies are required to reduce the drowning burden among this neglected at-risk population.


BMJ Open ◽  
2017 ◽  
Vol 7 (11) ◽  
pp. e018006 ◽  
Author(s):  
Wytske Geense ◽  
Marieke Zegers ◽  
Hester Vermeulen ◽  
Mark van den Boogaard ◽  
Johannes van der Hoeven

IntroductionDue to advances in critical care medicine, more patients survive their critical illness. However, intensive care unit (ICU) survivors often experience long-term physical, cognitive and mental problems, summarised as post-intensive care syndrome (PICS), impacting their health-related quality of life (HRQoL). In what frequency PICS occurs, and to what extent this influences ICU survivors’ HRQoL, is mostly unknown. The aims of this study are therefore to study the: (1) 5-year patient outcomes, (2) predictors for PICS, (3) ratio between HRQoL of ICU survivors and healthcare-related costs, and (4) care and support needs.MethodsThe MONITOR-IC study is a multicentre prospective controlled cohort study, carried out in ICUs in four Dutch hospitals. Patients will be included between July 2016 and July 2021 and followed for 5 years. We estimated to include 12000 ICU patients. Outcomes are the HRQoL, physical, cognitive and mental symptoms, ICU survivors’ care and support needs, healthcare use and related costs. A control cohort of otherwise seriously ill patients will be assembled to compare long-term patient-reported outcomes. We will use a mixed methods design, including questionnaires, medical data from patient records, cost data from health insurance companies and interviews with patients and family members.Ethics and disseminationInsights from this study will be used to inform ICU patients and their family members about long-term consequences of ICU care, and to develop prediction and screening instruments to detect patients at risk for PICS. Subsequently, tailored interventions can be developed and implemented to prevent and mitigate long-term consequences. Additionally, insights into the ratio between HRQoL of ICU patients and related healthcare costs during 5 years after ICU admission can be used to discuss the added value of ICU care from a community perspective. The study has been approved by the research ethics committee of the Radboud University Medical Center (2016-2724).Clinical trial registrationNCT03246334


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