Parenting stress and life participation among mothers of down syndrome and cerebral palsy: Functional skills effects

2021 ◽  
Vol 429 ◽  
pp. 119221
Author(s):  
Gokcen Akyurek ◽  
Ozgur Bektas
Keyword(s):  
Down Syndrome ◽  
Cerebral Palsy ◽  
Parenting Stress ◽  
Functional Skills

scholarly journals ICTs and Music in Generic Learning Disabilities

2017 ◽  
Vol 12 (04) ◽  
pp. 101 ◽  
Author(s):  
Paraskevi Theodorou ◽  
Athanasios Drigas
Keyword(s):  
Learning Disabilities ◽  
Down Syndrome ◽  
Cerebral Palsy ◽  
Disruptive Behavior ◽  
Information And Communication Technologies ◽  
Communication Technologies ◽  
Digital Music ◽  
Information And Communication ◽  
Role Of Information

The purpose of this paper is to review the most representative studies of the last decade (2006-2015) which deal with the combination of technology and music and concern individuals with Generic learning disabilities. Particularly, the areas of needs in this paper are divided to the following categories: Depression/ disruptive behavior, Down syndrome, Intellectual disa¬bilities, Cerebral palsy and Severe/Profound disa-bilities. It is also underlined the important role of Information and Communication Technologies (ICTs) and digital music tools in promoting musical participation and as-sisting students with the pre-referred disa-bilities.

scholarly journals Measures of Motor and Functional Skills for Children With Cerebral Palsy

2020 ◽  
Vol 32 (1) ◽  
pp. 12-25 ◽  
Author(s):  
Marina Ferre-Fernández ◽  
María Antonia Murcia-González ◽  
María Dolores Barnuevo Espinosa ◽  
José Ríos-Díaz
Keyword(s):  
Cerebral Palsy ◽  
Functional Skills ◽  
Children With Cerebral Palsy

Marital Intimacy in Parents of Exceptional Children

1989 ◽  
Vol 34 (6) ◽  
pp. 519-525 ◽  
Author(s):  
Sandra N. Fisman ◽  
Lucille C. Wolf ◽  
Samuel Noh
Keyword(s):  
Down Syndrome ◽  
Parenting Stress ◽  
Self Esteem ◽  
Autistic Children ◽  
Exceptional Children ◽  
Normal Children ◽  
Handicapped Children ◽  
Perceived Parenting ◽  
Marital Intimacy

The purpose of this study was to examine the role of perceived parenting stress and parental depression on marital intimacy between parents of handicapped children versus developmentally normal children, and to investigate discrepancies between husbands' and wives' reports of marital intimacy. The parents of 31 autistic children, 31 Down Syndrome children and 62 developmentally normal children, matched for both mental and chronological age were studied. Results indicated significantly greater stress and depression, as well as lower marital intimacy for mothers of autistic children than mothers of normal children, and significantly greater stress than mothers of Down Syndrome children who fell somewhere between other groups of parents in all three measures. Fathers of autistic children experienced significantly higher parenting stress than the other groups, as well as lower marital intimacy but there were no differences amongst fathers on measures of depression. Low scores on subscales of identity and compatibility for mothers implying low self esteem contributed significantly to the lowered perception of marital intimacy. Implications for intervention, based on these findings, are discussed.

scholarly journals Risk Factors With Intravenous Sedation for Patients With Disabilities

2013 ◽  
Vol 60 (4) ◽  
pp. 153-161 ◽  
Author(s):  
Fumihiro Yoshikawa ◽  
Yoh Tamaki ◽  
Hisa Okumura ◽  
Zenzo Miwa ◽  
Masaaki Ishikawa ◽  
...  
Keyword(s):  
Risk Factors ◽  
Down Syndrome ◽  
Cerebral Palsy ◽  
Mental Retardation ◽  
Odds Ratio ◽  
Recovery Period ◽  
Intravenous Sedation ◽  
Dental Patients ◽  
Increased Risk ◽  
Delayed Recovery

Abstract The purpose of this study was to identify the risk factors associated with low peripheral oxygen saturation (SpO2) and delayed recovery of dental patients with disabilities after intravenous sedation. A total of 1213 patients with disabilities were retrospectively investigated with respect to demographic parameters and sedation conditions. Multivariate logistic analyses were conducted for patients with an SpO2 <90% and a recovery period of >60 minutes to identify the risk factors for poor sedation conditions. A significant odds ratio related to decreased SpO2 was observed for age, sex, midazolam and propofol levels, concurrent use of nitrous oxide, cerebral palsy, Down syndrome, and mental retardation. The most problematic patients were those diagnosed with Down syndrome (odds ratio, 3.003–7.978; 95% confidence interval; P < .001). Decision tree analysis showed an increased risk of decreased SpO2 in males with Down syndrome or after administration of >0.493 mg/kg propofol in combination with midazolam. An increased risk of delayed awakening was seen in patients aged less than 21 years and in males administered >0.032 mg/kg of midazolam. Intravenous sedation for dental patients with disabilities, particularly those with cerebral palsy, Down syndrome, or mental retardation, increases the risk of decreased SpO2. In addition, delayed recovery is expected after midazolam administration.

Maternal parenting stress and its correlates in families with a young child with cerebral palsy

2009 ◽  
Vol 35 (1) ◽  
pp. 71-78 ◽  
Author(s):  
S. Glenn ◽  
C. Cunningham ◽  
H. Poole ◽  
D. Reeves ◽  
M. Weindling
Keyword(s):  
Cerebral Palsy ◽  
Young Child ◽  
Parenting Stress ◽  
Maternal Parenting ◽  
Maternal Parenting Stress

scholarly journals Effects of a Functional Therapy Program on Motor Abilities of Children With Cerebral Palsy

2001 ◽  
Vol 81 (9) ◽  
pp. 1534-1545 ◽  
Author(s):  
Marjolijn Ketelaar ◽  
Adri Vermeer ◽  
Harm't Hart ◽  
Els van Petegem-van Beek ◽  
Paul JM Helders
Keyword(s):  
Cerebral Palsy ◽  
Physical Therapy ◽  
Reference Group ◽  
Therapy Group ◽  
Self Care ◽  
The Self ◽  
Functional Skills ◽  
Gross Motor ◽  
Group Interactions ◽  
Motor Abilities

Abstract Background and Purpose. The purpose of this study was to determine whether the motor abilities of children with spastic cerebral palsy who were receiving functional physical therapy (physical therapy with an emphasis on practicing functional activities) improved more than the motor abilities of children in a reference group whose physical therapy was based on the principle of normalization of the quality of movement. Subjects. The subjects were 55 children with mild or moderate cerebral palsy aged 2 to 7 years (median=55 months). Methods. A randomized block design was used to assign the children to the 2 groups. After a pretest, the physical therapists for the functional physical therapy group received training in the systematic application of functional physical therapy. There were 3 follow-up assessments: 6, 12, and 18 months after the pretest. Both basic gross motor abilities and motor abilities in daily situations were studied, using the Gross Motor Function Measure (GMFM) and the self-care and mobility domains of the Pediatric Evaluation of Disability Inventory (PEDI), respectively. Results. Both groups had improved GMFM and PEDI scores after treatment. No time × group interactions were found on the GMFM. For the PEDI, time × group interactions were found for the functional skills and caregiver assistance scales in both the self-care and mobility domains. Discussion and Conclusion. The groups' improvements in basic gross motor abilities, as measured by the GMFM in a standardized environment, did not differ. When examining functional skills in daily situations, as measured by the PEDI, children in the functional physical therapy group improved more than children in the reference group.

Sign in / Sign up

Export Citation Format

Share Document