scholarly journals A First Step in the Development of an International Self-Report Instrument for Physical Functioning in Palliative Cancer Care: A Systematic Literature Review and an Expert Opinion Evaluation Study

2009 ◽  
Vol 37 (2) ◽  
pp. 196-205 ◽  
Author(s):  
Jorunn L. Helbostad ◽  
Jacob Chr. Hølen ◽  
Marit S. Jordhøy ◽  
Gerd Inger Ringdal ◽  
Line Oldervoll ◽  
...  
2016 ◽  
Vol 10 (6) ◽  
pp. 990-1011 ◽  
Author(s):  
Judith A. Meiklejohn ◽  
Alexander Mimery ◽  
Jennifer H. Martin ◽  
Ross Bailie ◽  
Gail Garvey ◽  
...  

2021 ◽  
Author(s):  
Lena Fanya Aeschbach ◽  
Sebastian Andrea Caesar Perrig ◽  
Lorena Weder ◽  
Klaus Opwis ◽  
Florian Brühlmann

Measuring theoretical concepts, so-called constructs, is a central challenge of Player Experience research. Building on recent work in HCI and psychology, we conducted a systematic literature review to study the transparency of measurement reporting. We accessed the ACM Digital Library to analyze all 48 full papers published at CHI PLAY 2020, of those, 24 papers used self-report measurements and were included in the full review. We assessed specifically, whether researchers reported What, How and Why they measured. We found that researchers matched their measures to the construct under study and that administrative details, such as number of points on a Likert-type scale, were frequently reported. However, definitions of the constructs to be measured and justifications for selecting a particular scale were sparse. Lack of transparency in these areas threaten the validity of singular studies, but further compromise the building of theories and accumulation of research knowledge in meta-analytic work. This work is limited to only assessing the current transparency of measurement reporting at CHI PLAY 2020, however we argue this constitutes a fair foundation to asses potential pitfalls. To address these pitfalls, we propose a prescriptive model of a measurement selection process, which aids researchers to systematically define their constructs, specify operationalizations, and justify why these measures were chosen. Future research employing this model should contribute to more transparency in measurement reporting. The research was funded through internal resources. All materials are available on https://osf.io/4xz2v/.


2014 ◽  
Vol 15 (3-4) ◽  
pp. 136-145 ◽  
Author(s):  
Yulia Watters ◽  
Jennifer Harsh ◽  
Cheyenne Corbett

2020 ◽  
Vol 29 (3) ◽  
pp. 1702-1715
Author(s):  
Sabine Heuer ◽  
Rebecca Willer

Purpose The purpose of this study was to determine how quality of life (QoL) is measured in people with dementia involved in interventions designed to improve well-being and to explore how those measures align with principles of person-centered care. Method A systematic literature review was conducted utilizing PsychInfo, CINAHL, and PubMed and combinations of the search terms: “dementia,” “outcome measure,” “creative engagement,” “creative intervention,” “TimeSlips,” “art,” “quality of life,” and “well-being.” The search was limited to studies published in peer-reviewed journals that reported outcomes for people with dementia in response to a creative intervention. Results Across the 24 reviewed studies, 30 different outcome measures were reported including eight self-reported, nine observational, and 13 proxy-reported measures. Self-report of QoL was elicited 16 times, observational measures were reported 17 times, and proxy-reported measures were used 28 times. All measures were used with participants across the dementia severity spectrum. Conclusion Current clinical practice of QoL evaluation does not align well with person-centered care principles of self-determination based on the low proportion of self-report. The previously reported limitations of proxy-report have been in part confirmed with this study. Implications of the findings for speech-language pathologists are discussed.


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