scholarly journals Decisional Control Preferences, Disclosure of Information Preferences, and Satisfaction Among Hispanic Patients With Advanced Cancer

2014 ◽  
Vol 47 (5) ◽  
pp. 896-905 ◽  
Author(s):  
Antonio Noguera ◽  
Sriram Yennurajalingam ◽  
Isabel Torres-Vigil ◽  
Henrique Afonseca Parsons ◽  
Eva Rosina Duarte ◽  
...  
Keyword(s):  
Advanced Cancer ◽  
Information Preferences ◽  
Decisional Control ◽  
Disclosure Of Information ◽  
Hispanic Patients

scholarly journals Decisional Control Preferences of Hispanic Patients With Advanced Cancer From the United States and Latin America

2013 ◽  
Vol 46 (3) ◽  
pp. 376-385 ◽  
Author(s):  
Sriram Yennurajalingam ◽  
Henrique A. Parsons ◽  
Eva Rossina Duarte ◽  
Alejandra Palma ◽  
Sofia Bunge ◽  
...  
Keyword(s):  
United States ◽  
Latin America ◽  
Advanced Cancer ◽  
The United States ◽  
Decisional Control ◽  
Hispanic Patients

Decision-making preferences of advanced cancer Hispanic patients from the United States and Latin America.

2012 ◽  
Vol 30 (15_suppl) ◽  
pp. 9063-9063
Author(s):  
Henrique Afonseca Parsons ◽  
Sriram Yennurajalingam ◽  
Eva Rosina Duarte ◽  
Alejandra Palma ◽  
Sofia Bunge ◽  
...  
Keyword(s):  
Decision Making ◽  
Latin America ◽  
Advanced Cancer ◽  
Family Involvement ◽  
Assessment Tool ◽  
The United States ◽  
Demographic Variables ◽  
The Family ◽  
The Us ◽  
Hispanic Patients

9063 Background: To determine whether preferences in frequency of passive decision making differ between Hispanic patients from Latin America (HLA) and Hispanic-American (HA) patients. Methods: We conducted a survey of advanced cancer Hispanic patients referred to outpatient palliative care clinics in the U.S, Chile, Argentina, and Guatemala. Information on demographic variables, PS,andMarin Acculturation Assessment Tool (only U.S. patients) was collected. Decision-making preference was evaluated by the decision-making assessment tool. Results: A total of 387 patients with advanced cancer were surveyed: 91 (24%) in the US, 100 (26%) in Chile, 94 (25%) in Guatemala, and 99 (26%) in Argentina. Median age was 59 years, and 61% were female. HLA preferred passive decision-making strategies significantly more frequently with regard to involvement of the family (24% versus 10%, p=0.009) or the physician (35% versus 26%, p<0.001), even after controlling for age and education (OR 3.8, p<0.001 for physician and 2.4, p=0.03 for family) (Table 1). 76/91 HA (83.5%), and 242/293 HLA (82%) preferred family involvement in decision-making (p=NS). No differences were found in decision-making preferences between low- and highly acculturated U.S. Hispanics. Conclusions: HA prefer more active decision-making as compared to HLA. Among HA, acculturation did not seem to play a role in decision-making preference determination. Our findings in this study confirm the importance of family participation in decision making in both HA and HLA. However, HA patients were much less likely to want family members or physicians to make decisions on their behalf. [Table: see text] [Table: see text]

scholarly journals Health Information Preferences and Curability Beliefs Among Patients With Advanced Cancer

2021 ◽  
Vol 61 (1) ◽  
pp. 121-127
Author(s):  
Rebecca M. Saracino ◽  
Laura C. Polacek ◽  
Allison J. Applebaum ◽  
Barry Rosenfeld ◽  
Hayley Pessin ◽  
...  
Keyword(s):  
Health Information ◽  
Advanced Cancer ◽  
Information Preferences

Predictors of aggressive end-of-life care among Hispanic and white advanced cancer patients

2009 ◽  
Vol 27 (15_suppl) ◽  
pp. 9538-9538 ◽  
Author(s):  
E. D. Trice ◽  
M. E. Nilsson ◽  
E. Paulk ◽  
S. DeSanto-Madeya ◽  
A. A. Wright ◽  
...  
Keyword(s):  
End Of Life ◽  
Religious Coping ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Advanced Cancer Patients ◽  
Hispanic Patients ◽  
Aggressive Care ◽  
Eol Care ◽  
To Receive ◽  
White Patients

9538 Background: Some ethnic/racial minority cancer patients (e.g. African Americans) have been shown to receive more life-prolonging care at the end-of-life (EOL) than white patients. Nevertheless, few studies have investigated whether Hispanic cancer patients receive more aggressive care than white patients and limited information exists on the predictors of aggressive care among Hispanic patients. The present study examined rates and predictors of aggressive EOL care among Hispanic and white cancer patients. Methods: Subjects participated in a US multi-site, prospective study between September 2002 - August 2008. Data were derived from interviews, conducted in English or Spanish, of 292 self-reported Hispanic (N=58) or white (N=234) stage IV cancer patients and their caregivers. Patients were followed until death, a median of 118.5 days later. Caregiver post-mortem interviews documented patient care in the last week of life. “Aggressive EOL care” was operationalized as cardiopulmonary resuscitation and/or ventilation and death in an intensive care unit. Aggressive EOL care was regressed on the following baseline, patient-reported, independent variables: a preference for life-prolonging care, EOL treatment discussion, do-not-resuscitate (DNR) order, terminal illness acknowledgement, and religious coping. Logistic regression models were stratified by ethnic status and controlled for significant confounds (e.g. socioeconomic status). Results: Hispanic and white advanced cancer patients were equally likely to receive aggressive EOL care (5.2% and 3.4%, respectively; p=0.878). Although religious coping and treatment preferences predicted aggressive EOL care for white patients (adjusted odds ratio 7.76 [p=0.025] and 13.20 [p=0.008]), they were not predictive among Hispanic patients. Hispanic patients were less likely than white patients to have DNR orders (22.4% vs 50.4%; p=0.007). For both white and Hispanic cancer patients, no patient who reported an EOL discussion or DNR order at baseline received aggressive EOL care. Conclusions: Given that EOL discussions and DNR orders may prevent aggressive EOL care among Hispanic cancer patients, further efforts to engage Hispanic patients and their caregivers in these activities may reduce aggressive EOL care. No significant financial relationships to disclose.

A multicenter study of patients decisional control preferences in patients with advanced cancer.

2016 ◽  
Vol 34 (15_suppl) ◽  
pp. 6578-6578 ◽  
Author(s):  
Sriram Yennu ◽  
Luis Fernando Rodrigues ◽  
Omar M. Shamieh ◽  
Columbe Tricou ◽  
Marilène Filbet ◽  
...  
Keyword(s):  
Advanced Cancer ◽  
Multicenter Study ◽  
Decisional Control

Patient’s Decisional Control Preferences of a Cohort of Patients With Advanced Cancer Receiving Palliative Care in India

2019 ◽  
Vol 34 (3) ◽  
pp. 175-180 ◽  
Author(s):  
Arunangshu Ghoshal ◽  
Anuja Damani ◽  
M. A. Muckaden ◽  
Sriram Yennurajalingam ◽  
Naveen Salins ◽  
...  
Keyword(s):  
Palliative Care ◽  
Advanced Cancer ◽  
Decisional Control

Decisional control preferences among patients with advanced cancer: An international multicenter cross-sectional survey

2017 ◽  
Vol 32 (4) ◽  
pp. 870-880 ◽  
Author(s):  
Sriram Yennurajalingam ◽  
Luis Fernando Rodrigues ◽  
Omar M Shamieh ◽  
Colombe Tricou ◽  
Marilène Filbet ◽  
...  
Keyword(s):  
Advanced Cancer ◽  
Odds Ratio ◽  
Performance Status ◽  
P Value ◽  
Advanced Cancer Patients ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Decisional Control ◽  
Decision Control ◽  
Actual Decision

Background: Understanding patients’ decision control preferences is important in providing quality cancer care. Patients’ decisional control preference can be either active (patients prefer to make decisions themselves), shared (collaborative between patient, their physician, and/or family), or passive (patients prefer that the decisions are made by either the physician and/or their family). Aim: To determine the frequency and predictors of passive decision control preferences among advanced cancer patients. We also determined the concordance between actual decision-making and decision control preferences and its association with patient satisfaction. Design: In this cross-sectional survey of advanced cancer patients referred to palliative care across 11 countries, we evaluated sociodemographic variables, Control Preference Scale, and satisfaction with the decisions and care. Results: A total of 1490 participants were evaluable. Shared, active, and passive decision control preferences were 33%, 44%, and 23%, respectively. Passive decision control preferences (odds ratio, p value) was more frequent in India (4.34, <0.001), Jordan (3.41, <0.001), and France (3.27, <0.001). Concordance between the actual decision-making and decision control preferences was highest in the United States ( k = 0.74) and lowest in Brazil (0.34). Passive decision control preference was significantly associated with (odds ratio per point, p value) better performance status (0.99/point, 0.017), higher education (0.64, 0.001), and country of origin (Brazil (0.26, <0.0001), Singapore (0.25, 0.0003), South Africa (0.32, 0.0002), and Jordan (2.33, 0.0037)). Conclusion: Passive decision control preferences were less common (23%) than shared and active decision control preference even among developing countries. Significant predictors of passive decision control preferences were performance status, education, and country of origin.

Sign in / Sign up

Export Citation Format

Share Document