scholarly journals Gaining actionable knowledge to improve local health-promoting capacities in long-term care support settings for people with intellectual disabilities

Author(s):  
K. Vlot-van Anrooij ◽  
J. Naaldenberg ◽  
T.I.M. Hilgenkamp ◽  
A. Overwijk ◽  
K. van der Velden ◽  
...  
Author(s):  
Owen Barr ◽  
Bob Gates

Nursing for people with intellectual disabilities has moved from a narrowly defined role, within long-term care, to a much broader role within the National Health Service and beyond. It is a health profession supported and endorsed by many as unique in its breadth of employment base, located as it is among the various sectors. The role of nurses for people with intellectual disabilities spans community support specialists, liaison nursing roles between services and agencies, and roles in secure or forensic health settings, and these roles offer support across all age ranges. With such exciting possibilities, in practice come challenges such as where to access up-to-date resources that will support nurses for people with intellectual disabilities and students in their practice. Where a student finds new resources for their jurisdiction, they may find it useful to append their own notes to the sections within this chapter; the layout of the book has been designed for students to make relevant notes on.


2017 ◽  
Vol 39 (4) ◽  
pp. 836-850 ◽  
Author(s):  
BRIDGET GARNHAM ◽  
LIA BRYANT ◽  
PAUL RAMCHARAN ◽  
NILAN YU ◽  
VALERIE ADAMS

ABSTRACTThe concurrent ageing of parental care-givers and people with intellectual disabilities is driving academic and social welfare concern for a post-parental care ‘crisis’. The ‘crisis’ typically pertains to a transition from primary care in the family home precipitated by the death or incapacity of older parents without a pre-planned pathway to post-parental care. This crisis is amplified in rural communities given low service engagement with families and a deficit of disability-supported accommodation and services. Academics, service providers and policy makers have responded through a problematisation of post-parental care planning. This focus continues to normalise informal care, burdens families with responsibility for planning, and diverts attention from structural deficits in the socio-political carescape. This paper attends to the Australian policy landscape in which long-term care-giving for families living with intellectual disability is enmeshed. It contends that the dyadic and didactic model of informal long-term care has profound implications for social service support and post-parental care planning. Problematisation of carers’ ‘need’ to relinquish primary care and for people with intellectual disabilities to transition to independent and supported living is necessary to unsettle the dominant policy and service discourse around the provision of services to sustain informal care-giving. Innovation is then needed to forge pathways of support for families in rural communities planning on continuing, transitioning and transforming care arrangements across the lifespan.


Author(s):  
Jeffrey Poss ◽  
Chi-Ling Sinn ◽  
Galina Grinchenko ◽  
Lialoma Salam-White ◽  
John Hirdes

ABSTRACTLong-stay home care clients mostly reside in private homes or retirement homes, and the type of residence may influence risk factors for long-term care placement. This multi-state analytic study uses RAI-Home Care and administrative data from the Hamilton Niagara Haldimand Brant Local Health Integration Network to model conceptualized states of risk at baseline through a 13-month follow-up period. Modifiable risk factors in these states were client loneliness or depressive symptoms, and caregiver distress. A higher adjusted likelihood of being discharged deceased was found for the lowest-risk clients in retirement homes. Adjusting for client, service, and caregiver characteristics, retirement home residency was associated with higher likelihood of placement in a long-term care home; reduced caregiver distress; and increased client loneliness/depression. As an alternative to private home settings as the location for aging in place among these long-stay home care clients, retirement home residency represents some trade-offs between client and informal caregiver.


2006 ◽  
Vol 2006 (0) ◽  
pp. _2A1-E28_1-_2A1-E28_4
Author(s):  
Tasuku Koseki ◽  
Takashi Kawakami ◽  
Takahumi Oohori ◽  
Masahiro Kinoshita

2016 ◽  
Vol 3 (2) ◽  
pp. 165-176 ◽  
Author(s):  
Stefan Schmidt ◽  
Steffi Kraehmer

Abstract Background In the period 2011 – 2013, 13 care support points were set up in Mecklenburg-West Pomerania. They are the joint responsibility of all health and long-term care insurance funds and local government. Method Between July and November 2013, data on organisation and personnel were collected in respect of the care support points and their advisory staff. Questions were asked about reasons for visiting a care support point, the subject matter of any counselling and demographic data on the users. Data were collected using questionnaires and interviews. Descriptive statistics were used to analyse quantitative data, the interviews were evaluated by analysis of their content. Results The results show a heterogenic picture of adviser training. Most users made contact with the care support points by telephone. General information on long-term care insurance was frequently sought. In 2015, care support points were consulted much more frequently than in 2014. The partners describe the networking involved as time-consuming; any synergy effects to date were estimated to be limited. Conclusions More network structures need to be created if those in need of care and assistance as supplied by care counselling based on case management are to be reached in future. What is called for are firm, written contracts with no personal bias, assigning care support points with the role of central actors at the regional level, able to produce neutral, independent organization and coordination of the necessary assistance. A guarantee of continuity of provision would fulfill the requirements of the kind of procedure involved in case management. Regardless of the number of professional providers and informal carers participating.


2007 ◽  
Vol 20 (3) ◽  
pp. 52-66 ◽  
Author(s):  
Katherine McGilton ◽  
Linda Hall ◽  
Veronique Boscart ◽  
Maryanne Brown

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