The Impact of Congenital Esophageal Atresia on the Family Functioning

2020 ◽  
Vol 50 ◽  
pp. e85-e90
Author(s):  
Anna Rozensztrauch ◽  
Robert Śmigiel ◽  
Michał Błoch ◽  
Dariusz Patkowski
2012 ◽  
Vol 3 ◽  
pp. 322-326
Author(s):  
Andrzej Kamiński ◽  
Aleksandra Jasińska ◽  
Barbara Antoniak ◽  
Krystyna Iwaszkiewicz ◽  
Anna Piotrowska ◽  
...  

1991 ◽  
Vol 18 (3) ◽  
pp. 318-331 ◽  
Author(s):  
BONNIE E. CARLSON ◽  
NEIL CERVERA

The impact of incarceration on the family was studied in 63 inmates and 39 wives, half of whom received conjugal visits through the Family Reunion Program (FRP). Interview data and standardized measures assessed family functioning. Families in both groups were cohesive but not adaptable, and FRP inmates reported feeling closer to their families than non-FRP inmates.


2019 ◽  
Vol 47 ◽  
pp. e75-e82 ◽  
Author(s):  
Aleksandra Kołtuniuk ◽  
Anna Rozensztrauch ◽  
Paulina Budzińska ◽  
Joanna Rosińczuk

2001 ◽  
Vol 35 (3) ◽  
pp. 345-351 ◽  
Author(s):  
Ann C. Davidson ◽  
David J. Mellor

Objective: The presence of posttraumatic stress disorder (PTSD) in trauma survivors has been linked with family dysfunction and symptoms in their children, including lower selfesteem, higher disorder rates and symptoms resembling those of the traumatized parent. This study aims to examine the phenomenon of intergenerational transfer of PTSD in an Australian context. Method: 50 children (aged 16–30) of 50 male Vietnam veterans, subgrouped according to their fathers’ PTSD status, were compared with an age-matched group of 33 civilian peers. Participants completed questionnaires with measures of self-esteem, PTSD symptomatology and family functioning. Results: Contrary to expectations, no significant differences were found between the selfesteem and PTSD symptomatology scores for any offspring groups. Unhealthy family functioning is the area in which the effect of the veteran's PTSD appears to manifest itself, particularly the inability of the family both to experience appropriate emotional responses and to solve problems effectively within and outside the family unit. Conclusion: Methodological refinements and further focus on the role of wives/mothers in buffering the impact of veterans’ PTSD symptomatology on their children are indicated. Further effort to support families of Veterans with PTSD is also indicated.


2021 ◽  
Vol 9 (11) ◽  
Author(s):  
Karlijn Vermeulen ◽  
Tjitske Kleefstra ◽  
Joost Janzing ◽  
Marloes Rietman ◽  
Linde Dongen ◽  
...  

The increasing presence of genetic neurodevelopmental disorders (NDDs) results in greater demands for counseling. Many studies focus on the characteristics of patients, but less on family functioning. The aim of this study is to objectify parental stress and to study its relationship with child characteristics and environmental factors across several syndromes. 56 individuals with NDD participated: 24 with Kleefstra Syndrome, 13 with Koolen-de Vries Syndrome, and 19 with other rare (mono) genetic disorders. Parents were asked to complete the General Functioning subscale of the Family Assessment Device (FAD-GF), the Child Behavioral Checklist, and a questionnaire about demographic parental data. 25.5% of the families scored above the cut-off for pathological stress (>2.17). The mean FAD–GF score was 1.84. There was no significant difference between mean FAD-score of the subgroups (p=0,70). (Para)medical counselors should address this high amount of parental stress during counseling and consider these genetic syndromes as complex chronical illnesses.


2020 ◽  
Vol 13 (4) ◽  
pp. 535-542
Author(s):  
Tessa K. Kritikos ◽  
Grayson N. Holmbeck

Research supports a resilience-disruption model of family functioning in families with a child with spina bifida. Guidelines are warranted to both minimize disruption to the family system and maximize family resilience and adaptation to multiple spina bifida-related and normative stressors. This article discusses the spina bifida family functioning guidelines from the 2018 Spina Bifida Association’s Fourth Edition of the Guidelines for the Care of People with Spina Bifida, and reviews evidence-based directions with the intention of helping individuals with spina bifida achieve optimal mental health throughout their lifespan. Guidelines address clinical questions pertaining to the impact of having a child with spina bifida on family functioning, resilience and vulnerability factors, parenting behaviors that may facilitate adaptive child outcomes, and appropriate interventions or approaches to promote family functioning. Gaps in the research and future directions are discussed.


Author(s):  
Nahema El Ghaziri ◽  
Jérémie Blaser ◽  
Joëlle Darwiche ◽  
Joan-Carles Suris ◽  
Javier Sanchis Zozaya ◽  
...  

Abstract Background The ongoing Syrian civil war has led to massive population displacements, leading to the reorganization of the asylum policies of several countries. Accordingly, like other European countries, the Swiss government has recently chosen to implement a specific resettlement program. This program is characterized by the fact that the whole nuclear family is granted a work and residence permit upon arrival, and benefits from enhanced integration services. The aim of the present project is to evaluate the effects of the Swiss resettlement program, with a special focus on mental health, while adopting a family perspective. Methods The outcomes of 15 Syrian families taking part in this program will be compared to those of 15 Syrian families that came to Switzerland through other means (i.e., following the usual asylum procedure, which is much more stressful and time consuming). Each family member above 8 years old will be invited to participate to a 3-wave longitudinal survey concerning the resettlement process: upon arrival in the collective shelters, six and 12 months later. Questionnaires will be used for the evaluation of participants’ mental health, risk behaviors, general health, romantic relationship, parent-child relationship, family functioning, parentification, social support, and social identities related to group belongingness. Discussion The findings of the present project will provide longitudinal information on Syrian refugees. A comprehensive approach will be adopted by screening potential difficulties that the sample may be faced with and potential strengths that participants may rely on. Accordingly, physical and mental health, as well as the quality of family functioning, the feeling of support and of belongingness to different groups will be evaluated. We will also compare the results of families who had the chance to immigrate through the Swiss resettlement program, to the results of families that did not. This comparison will allow the elaboration of hypotheses regarding adjusted asylum policies. Furthermore, it will enhance our knowledge regarding the impact of displacement on the family system. Indeed, although the role of the family for the well-being of adults and children has been established, surprisingly few studies have adopted this focus in the asylum field.


2019 ◽  
Vol 32 (Supplement_1) ◽  
Author(s):  
A Rozensztrauch ◽  
D Patkowski ◽  
R Śmigiel

Abstract Background Tracheoesophageal fistula (TEF) with esophageal atresia (EA) is seen in about 35,000 births. The impact of caring for children after surgical repair of EA is poorly understood and the literature regarding this area is scarce. Mortalities are now mostly attributable to any associated anomalies or prematurity, but morbidity and quality of life (QoL) are important to address. Objective This study aimed to investigate whether syndromic EA, feeding problems, and prematurity have a significant influence on the family of a child after surgical repair of EA. Methods Ethical approval was obtained. This cross-sectional study consisted of 73 participants (mean mothers’ age = 28, SD = 5 years; mean fathers’ age = 31, SD = 6 years) who were parents of children after surgery of EA. The impact of EA on families was assessed using an author-designed questionnaire (ADQ) to collect medical and sociodemographic background data as well as a standardized questionnaire, the PedsQLTM Family Impact Scale (PedsQL-FIM). Results Cardiac malformations associated with EA significantly (P = 0.037) affect the functioning of the family in the emotional domain. Skeletal malformations have the greatest impact on the family functioning. Three statistically significant correlations have been demonstrated: (P = 0.021) in the social domain; (P = 0.009) in the cognitive domain; and (P = 0.023) in the domain of communication. The families of patients with TEF had the statistically lower (P < 0.05) score of functioning in the emotional domain than those without TEF. Nonhealth factors frequently included changes in daily activities and deterioration of social position affected caregivers. Conclusions Difficulties with feeding and the presence of associated anomalies significantly affect the functioning of the family of the child with EA.


Author(s):  
Joseph Walsh

Family functioning is disrupted when a member develops schizophrenia. This thought disorder produces major changes in the person's ability to communicate with other members and participate in the family culture. However, although schizophrenia produces bizarre or impoverished thinking, it does not usually alter the individual's prior religious belief system. The family's religious tradition can provide a context within which to rebuild relationships between the relative who has schizophrenia and other members. The author presents theoretical bases of family systems and symbolic interactionism as frameworks to guide intervention.


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