scholarly journals The Impact of Rare Genetic Disorders on Family Functioning

2021 ◽  
Vol 9 (11) ◽  
Author(s):  
Karlijn Vermeulen ◽  
Tjitske Kleefstra ◽  
Joost Janzing ◽  
Marloes Rietman ◽  
Linde Dongen ◽  
...  
Keyword(s):  
Family Functioning ◽  
Parental Stress ◽  
Genetic Disorders ◽  
Genetic Syndromes ◽  
Family Assessment Device ◽  
Kleefstra Syndrome ◽  
Significant Difference ◽  
The Family ◽  
General Functioning ◽  
The Impact

The increasing presence of genetic neurodevelopmental disorders (NDDs) results in greater demands for counseling. Many studies focus on the characteristics of patients, but less on family functioning. The aim of this study is to objectify parental stress and to study its relationship with child characteristics and environmental factors across several syndromes. 56 individuals with NDD participated: 24 with Kleefstra Syndrome, 13 with Koolen-de Vries Syndrome, and 19 with other rare (mono) genetic disorders. Parents were asked to complete the General Functioning subscale of the Family Assessment Device (FAD-GF), the Child Behavioral Checklist, and a questionnaire about demographic parental data. 25.5% of the families scored above the cut-off for pathological stress (>2.17). The mean FAD–GF score was 1.84. There was no significant difference between mean FAD-score of the subgroups (p=0,70). (Para)medical counselors should address this high amount of parental stress during counseling and consider these genetic syndromes as complex chronical illnesses.

Effects of Family Coping and Resources on Family Adjustment and Parental Stress in the Acute Phase of the NICU Experience

2000 ◽  
Vol 19 (6) ◽  
pp. 27-37 ◽  
Author(s):  
Janet Pinelli
Keyword(s):  
Acute Phase ◽  
Parental Stress ◽  
The State ◽  
Family Adjustment ◽  
Family Coping ◽  
Family Assessment Device ◽  
The Family ◽  
General Functioning ◽  
First Time ◽  
The Relationship

Purpose: To determine the relationship between family coping and resources and family adjustment and parental stress in the acute phase of the NICU experience.Design: Correlational study based on the Resiliency Model of Family Stress, Adjustment, and Adaptation. Main study instruments included the State Anxiety scale of the State-Trait Anxiety Inventory, the Family Inventory of Resources for Management, the Family Crisis Oriented Personal Evaluation Scales, and the General Functioning subscale of the McMaster Family Assessment Device.Sample: Data collected from 124 mother and father pairs within two to four days of their infant’s admission to the NICU.Main Outcome Variables: Family adjustment and parental stress.Results: Adequate resources were more strongly related to positive adjustment and decreased stress than were either coping or being a first-time parent. The relationships among the variables were generally the same for both parents. Mothers utilized more coping strategies than did fathers.Practice Recommendations: Families with limited resources should be identified early to facilitate their adjustment to the NICU.

Contributions of Parenting Sense of Competence to Family Functioning in a Sample of Military-Connected Families Living in the Community

2019 ◽  
Vol 27 (4) ◽  
pp. 404-408
Author(s):  
Nita J. Makhija ◽  
Bonnie Y. Ohye ◽  
Rebecca J. Zakarian ◽  
Rafaella J. Jakubovic ◽  
Eric Bui
Keyword(s):  
Family Functioning ◽  
Psychological Symptoms ◽  
Military Family ◽  
Parental Distress ◽  
Family Assessment Device ◽  
Sense Of Competence ◽  
Sense Of Efficacy ◽  
The Family ◽  
Parenting Sense Of Competence ◽  
General Functioning

The purpose of this investigation was to examine the potential contributions of parenting sense of competence and parental psychological symptoms to family functioning in a sample of military-connected families attending public elementary school. Fifty-six parents (61.8% female; 92.9% White; 5.3% Hispanic; mean age = 38.5, SD = 7.03) completed the Depression, Anxiety, and Stress Scale (DASS), the Parenting Sense of Competence Scale (PSOC), and the General Functioning Scale of the Family Assessment Device (GF-FAD). Participants’ GF-FAD scores negatively correlated with their PSOC scores ( r = −.48, p < .001). A negative trend between the PSOC scores and DASS scores is observed ( r = −.25 p < .06). A multiple regression analysis indicates that both scores on PSOC (β = −.46, p < .001) and DASS (β = 0.3, p = .01) were independently associated with the GF-FAD scores. These results suggest that among military families, a sense of efficacy as a parent may influence family functioning above and beyond the effect of parental distress and that interventions designed to promote sense of parenting competence may improve military family functioning through a process different than that of interventions to alleviate psychological distress.

scholarly journals KEBERFUNGSIAN KELUARGA PADA KELUARGA DENGAN PASIEN SKIZOFRENIA RAWAT JALAN DI JAKARTA

2013 ◽  
Vol 2 (2) ◽  
pp. 80
Author(s):  
Sofiana Millati ◽  
Fellianti Muzdalifah
Keyword(s):  
Family Functioning ◽  
Sampling Technique ◽  
Self Report ◽  
Family Assessment Device ◽  
The Family ◽  
General Functioning ◽  
Quantitative Descriptive ◽  
June July ◽  
Almost All ◽  
And Behavior

Abstract The aim of this study is to analyze the family functioning among family with schizophrenic outpatient in Jakarta. The research was conducted in RSKD Duren Sawit and Komunitas Peduli Skizofrenia Indonesia during June-July 2013. This study used quantitative descriptive method. Incidental sampling was used as sampling technique. A total of 107 family members that lived with schizophrenic outpatient participated in this study. Family functioning assessed by self-report questionnaire Family Assessment Device (FAD) based on McMaster Model of Family Functioning. Statistical descriptive that used in this study were performed with SPSS 17.00 for windows. The result of this study showed that family functioning among family with schizophrenic outpatient was unhealthy based on general functioning dimension that assess the overall family functioning. Also found that almost all profiling dimensions of family functioning were unhealthy; communication, roles, affective involvement, and behavior control; except on problem solving and affective responsiveness dimensions were healthy. Keyword: family functioning, family, schizophrenia, outpatient

Die Erfassung des allgemeinen familiären Funktionsniveaus: Psychometrische Evaluation der deutschen Version der Brief Assessment of Family Functioning Scale

2021 ◽  
Author(s):  
Carsten Spitzer ◽  
Laura Lübke ◽  
Philipp Göbel ◽  
Sascha Müller ◽  
Diana Krogmann ◽  
...  
Keyword(s):  
Family Functioning ◽  
Family Assessment ◽  
Family Assessment Device ◽  
Brief Assessment ◽  
General Functioning

ZusammenfassungDie Funktionalität des Systems Familie spielt nicht nur in der Entwicklungspsychologie und Familienforschung, sondern auch bei vielen körperlichen Erkrankungen und psychischen Störungen eine zentrale Rolle. Trotz dieser hohen Relevanz existieren nur sehr wenige ultra-kurze, d. h. anwendungsökonomische Selbstbeurteilungsverfahren, die das allgemeine familiäre Funktionsniveau abbilden. Diese Lücke schließt die Brief Assessment of Family Functioning Scale (BAFFS), die aus drei Items der General Functioning Scale des international weit verbreiteten Family Assessment Device besteht. In dieser Studie wurde die deutsche Version der BAFFS erstmals an einer großen und repräsentativen Allgemeinbevölkerungsstichprobe (n=2463) psychometrisch evaluiert. Mittels Multigruppen-konfirmatorischen Faktorenanalysen konnte starke Messinvarianz für relevante Teilstichproben (Frauen vs. Männer; Probanden in Partnerschaften mit vs. ohne Kinder) bei guter Modellpassung gezeigt werden. Obwohl eines der drei Items, welches als einziges negativ formuliert ist, ungenügende psychometrische Itemkennwerte aufwies, lag die interne Konsistenz bei Cronbachs α=0,71. Als Hinweis auf eine adäquate Konstruktvalidität fanden sich hypothesenkonform Assoziationen des familiären Funktionsniveaus mit dem sozioökonomischen Status sowie mit aktueller Depressivität und Ängstlichkeit. Trotz ausstehender Anwendungserfahrungen und psychometrischer Analysen der Kurzskala Allgemeines Familiäres Funktionsniveau (KSAFF) als der deutschen Version der BAFFS in relevanten Zielgruppen und bei Patienten in Klinik und Forschung, kann das mit drei Items sehr anwendungsökonomische Verfahren zur orientierenden Erfassung des allgemeinen familiären Funktionsniveaus empfohlen werden, zumal es in der Allgemeinbevölkerung mit einigen Einschränkungen akzeptable bis gute psychometrische Kennwerte zeigte.

FAMILY FUNCTION LEVELS OF TURKISH FATHERS WITH CHILDREN AGED BETWEEN 0 – 6

2007 ◽  
Vol 35 (4) ◽  
pp. 429-442 ◽  
Author(s):  
Seher Balci Çelik
Keyword(s):  
Problem Solving ◽  
Behavior Control ◽  
Family Structures ◽  
Family Function ◽  
Family Assessment Device ◽  
Level Of Education ◽  
Significant Difference ◽  
The Family ◽  
And Behavior ◽  
Affective Involvement

Family function levels of fathers with children aged 0–6 in Samsun, Turkey were compared on the basis of length of marriage, level of education, family structure, and type of marriage. The sample consisted of 171 fathers aged between 24–36 (average age 29.2). The Family Assessment Device (Epstein, Baldwin, & Bishop, 1983) was used to measure family function levels of fathers and t-test and one way ANOVA were used to analyze the data. There was a significant difference in family function levels of the fathers, according to length of their marriage, in the subdimensions of problem solving, communication, affective involvement, behavior control and general functionings, according to their level of education. In all the subdimensions of affective involvement and behavior control, according to the family structures of fathers, significant differences were found between groups and total general points; according to fathers' types of marriage, a significant difference was found between the groups regarding problem solving, communication, affective involvement, behavior control and general total points.

scholarly journals The Effects of Family Psychoeducation Courses on Depression, Anxiety and Family Functioning in the Caregivers of Schizophrenic Patients

Health Scope ◽  
2021 ◽  
Vol In Press (In Press) ◽  
Author(s):  
Zahra Hashemi ◽  
Seyed Alireza Haj Seyed Javadi ◽  
Seyed Mohsen Zamir
Keyword(s):  
Family Functioning ◽  
Behavioral Control ◽  
Family Members ◽  
Training Session ◽  
P Value ◽  
Depression And Anxiety ◽  
Short Term ◽  
Family Psychoeducation ◽  
Family Assessment Device ◽  
The Family

Background: Schizophrenia is one of the most serious psychiatric diseases that affects the patient’s family members in addition to the patient himself. This disease can lead to depression and anxiety in the family members of the patient and even affect their functioning. Objectives: The present study was conducted to investigate the effect of a short-term family psychoeducation course on the depression and anxiety family functioning in caregivers Methods: In this before-after clinical trial, 163 first-degree family members of patients with schizophrenia were invited to participate in a short-term FPE course. A total of 65 of this group attended the first training session. Prior to the first session, the beck depression inventory (BDI), the beck anxiety inventory (BAI), and the family assessment device (FAD) were completed for the participants based on a family functioning model. Six months after the end of the FPE course, the 36 subjects who had completed the initial questionnaires and fully attended the sessions were invited to complete the questionnaires again. A total of 31 subjects completed the questionnaires again at this stage. The data were analyzed by SPSS-20 software using Mann–Whitney and Wilcoxon rank tests. Results: The mean age of the participants in both stages of questionnaire completion was 48.64 ± 11.85 years. Among them, 16 (51.6%) were female, and 15 (48.4%) were male. Also, six (19.4%) subjects had an education above high school, and mothers were the most frequent participating family members with a frequency of 11 (35.5%). The anxiety and depression scores of these subjects were 10.8 ± 5.14 and 6.9 ± 2.45 at baseline, respectively. These scores decreased significantly after six months to 5.03 ± 2.48 and 4.40 ± 1.9, respectively. In addition, among family functioning, Role and Behavioral control was significantly improved (P-value < 0.05). Conclusions: The results of this study showed that depression and anxiety levels decreased in the family members of the examined patients six months after an FPE course. This effect can be further investigated through studies conducted with control groups. These findings suggest that the integration and institutionalization of FPE programs in the healthcare system are essential for improving the status of patient caregivers with severe psychiatric illnesses and their families.

scholarly journals Impact of Family Pathology on Behavioural and Emotional Problems of Children

2017 ◽  
Vol 4 (4) ◽  
Author(s):  
Dr. Antara Ghosh ◽  
Pramita Chakraborty
Keyword(s):  
Problem Behavior ◽  
Significant Relationship ◽  
Emotional Problems ◽  
General Information ◽  
T Test ◽  
Age Group ◽  
Significant Difference ◽  
The Family ◽  
The Impact ◽  
Behavioural And Emotional Problems

The aim of the present study is to find out the impact of family pathology on behavioural and emotional problems of children. The data has been taken from the parents, both father and mother of 60 boys and 60 girls (120 children) between the age group of 9-12 years using the Family Pathology Scale (FPS) and Problem Behavior Checklist (PBCL) questionnaire along with a General Information Schedule . The data obtained from the sample was statistically analysis by using Frequency, Percentage, Mean, SD, Correlation and ‘t’-test. The obtained result showed that both of the boys (M-75) and girls (M-73.05) parents have moderate family pathology and mothers’ placed their children at moderate level (M-104.22) in PBCL but the fathers’ placed them at mild level (M-77.12) in PBCL. The analysis reveals that there is a significant difference between father of boys and girls (p<0.05, 3.92/(p>0.05, 2.53) as well as mother of boys and girls (p<0.05,12.38/(p>0.05, 20.2) in respective of FPS and PBCL. Finally the study reveals that there is a slightly significant relationship with family pathology (with father and children-0.06 and with mother and children-0.09) on the behavioural and emotional problems of children.

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