Dying at home of Covid-19: Meeting the need for home-based care

This ethnographic study examined the social context of home-based palliative caregiving. Data were composed of observation field notes, interviews, and textual documents, and were analyzed using constant comparative methods. Findings show that home-based palliative caregiving resulted in life-enriching experiences for many caregivers. However, assumptions about dying at home and health care reforms resulted in some caregivers feeling “pressured” to provide home care, and consequently, left them feeling their obligations to care were exploited by the health care system. Shifts toward providing care closer to home not only changed caregivers, but also changed the home setting where palliative care was provided. Findings indicate a need for interventions designed to improve support for caregivers at home, and to explore how assumptions influence and sometimes drive the provision of home health care.

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Acceptability of contact management and care of simple cases of COVID-19 at home: a mixed-method study in Senegal

10.1101/2021.03.10.21253266 ◽

2021 ◽

Author(s):

Mouhamadou Faly Ba ◽

Valéry Ridde ◽

Amadou Ibra Diallo ◽

Jean Augustin Diégane Tine ◽

Babacar Kane ◽

...

Keyword(s):

Health System ◽

Mixed Method ◽

National Level ◽

Mixed Method Study ◽

Quantitative Survey ◽

Modes Of Transmission ◽

Home Based ◽

The Government ◽

Home Based Care ◽

At Home

ABSTRACTIntroductionIn mid-2020, due to the health system challenges from increased COVID-19 cases, the Ministry of Health and Social Action in Senegal opted for contact management and care of simple cases at home. The study’s objective was to determine the acceptability of contact management, home care of simple cases of COVID-19, and its associated factors.MethodThis was a sequential mixed-method study. We collected data from June 11, 2020, to July 10, 2020, for the quantitative survey (N=813) and from August 24 to September 16, 2020, for the qualitative survey (N=30). We carried out a sampling strategy using marginal quotas at the national level. We collected data using a structured questionnaire in a telephone interview for the quantitative survey and using an interview guide formulated from the quantitative survey’s initial results for the qualitative data. We assessed acceptability using binomial logistic regression combined with content analysis.ResultsThe care of simple cases of COVID-19 at home was well accepted (78.5%). This result was justified for some (saturation of the health system) but not for others (risk of contamination). The use of home contact management was less accepted (51.4%), with risk limitation as the main reason given. The acceptability of home-based care for simple cases was positively associated with knowledge of the modes of transmission of the virus (ORaj: 1.55 [95%CI: 1.04,2.28]), regular research into COVID-19 (ORaj: 2.12 [95%CI: 1.45,3.12]), belief in the existence of treatment (ORaj: 1.82 [95%CI: 1.19,2.83]), and confidence in institutional information (ORaj: 2.10 [95%CI: 1.43,3.10]). The acceptability of home-based contact management was positively associated with knowledge of the modes of transmission of the virus (ORaj: 1.77 [95%CI: 1.27,2.48]), regular research for information on COVID-19 (ORaj: 2.39 [95%CI: 1.76,3.26]), and confidence in the government in the fight against the epidemic (ORaj: 1.51 [95%CI: 1.10,2.08]).ConclusionRegular information on the disease, knowledge of its mode of transmission and trust in institutions are factors in accepting COVID-19 management at the community level. Authorities should take these factors into account for better communication to improve the acceptability of home-based care.

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Levels of disability among the elderly in institutionalized and home-based care in Bahrain

Eastern Mediterranean Health Journal ◽

10.26719/1999.5.2.274 ◽

1999 ◽

Vol 5 (2) ◽

pp. 247-254

Author(s):

F. Al Nasir ◽

M. K. Al Haddad

Keyword(s):

Elderly People ◽

Physical Disabilities ◽

The Elderly ◽

Assessment Procedure ◽

Home Based ◽

Younger Age ◽

Home Based Care ◽

At Home

We compared the levels of disability between the elderly admitted to an institution and those cared for at home. Of the 74 elderly people in this study, 56 were institutionalized and 18 were living at home. The Clifton Assessment Procedure for the Elderly [CAPE]was used to assess and compare the behavioural disabilities between the two groups. In addition to their younger age, the home-cared elderly were less incontinent, more social, better communicators and less confused than the institutionalized group, despite the fact that they had more physical disabilities with regard to bathing and walking

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A Multidimensional Home-Based Care Coordination Intervention for Elders with Memory Disorders: The Maximizing Independence at Home (MIND) Pilot Randomized Trial

American Journal of Geriatric Psychiatry ◽

10.1016/j.jagp.2013.12.175 ◽

2014 ◽

Vol 22 (4) ◽

pp. 398-414 ◽

Cited By ~ 65

Author(s):

Quincy M. Samus ◽

Deirdre Johnston ◽

Betty S. Black ◽

Edward Hess ◽

Christopher Lyman ◽

...

Keyword(s):

Randomized Trial ◽

Care Coordination ◽

Memory Disorders ◽

Home Based ◽

Home Based Care ◽

With Memory ◽

At Home

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Women Caring for Children at Home: Challenges for family and child welfare practice

Children Australia ◽

10.1017/s1035077200012384 ◽

1991 ◽

Vol 16 (2) ◽

pp. 3-7 ◽

Cited By ~ 2

Author(s):

Sharon Moore

Keyword(s):

Social Work ◽

Child Welfare ◽

Children With Disabilities ◽

The Other ◽

Daily Experiences ◽

Home Based ◽

Central Activity ◽

Home Based Care ◽

At Home

Caring is the central activity for many women who care for children with disabilities and other dependent relatives and it circumscribes virtually all of the other activities they carry out. This paper will compare the daily experiences of such women (who have been participants in the author’s recent research into home-based care) with what has been written in social work literature about women who ‘care’.

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INNOVATION AND TELEMEDICINE: AN APPLIED PROJECT

International Journal of Developmental and Educational Psychology Revista INFAD de psicología ◽

10.17060/ijodaep.2016.n2.v1.560 ◽

2016 ◽

Vol 1 (2) ◽

pp. 277

Author(s):

Loreto Gesualdo ◽

Valeria Caggiano ◽

Andrea Bellezza ◽

Claudio Mastropaolo

Keyword(s):

Quality Of Life ◽

World Health ◽

Expert Advice ◽

Care Hospital ◽

Long Distance ◽

Home Based ◽

Hospital At Home ◽

Home Based Care ◽

At Home

Abstract.Telemedicine, defined by the World Health Organization as ‘integrative part of telecommunication systems in the promotion of public health’, generates different positive results: more efficiency, less costs, better patient’s quality of life. Thanks to the advances in diagnostic technologies, information technologies, remote monitoring and long-distance care, telemedicine have increased the viability of home-based care, even for patients with serious conditions. At the same time we observe the increase in the elderly population suffering from pluripatologyand chronic diseases, that causes an increasing recourse to medical and hospital care; but prolonged hospital stay can determine loss of function and psychophysical disorders. Telemedicine is 'the investigation, monitoring and management of patients and education of patients and staff using systems which allow ready access to expert advice and patient information, no matter where the patient or relevant information is located'. We are empowering in different areas new biomedical and information technology as a support to clinical practice. The goal is to make a case study and to use for future analysis. In the experimental phase 4 patients were followed on hemodialysis and 4 in peritoneal dialysis, previously evaluated for clinical, social, logistical and psychological conditions. It is estimated that today there are 50.000 patients on dialysis and about 10.000 new cases a year only in Italy. Naturally there are threats to solve because users face difficulties, in terms of interaction with robots, in their usual context of life.The right methodology needs to coordinate the entire hospital, different professionals, patients, providing tools for care givers that follow patients, training technicians, aligning data collection and communication.The project reached great results in relation to the indicators: efficiency in dialysis, compliance with health protocols, impact on patient quality of life. Telemedicine and telecardiology projects are active at the ‘Hospital at Home Service of Bari’.Key words: health, telemedicine, home-based care,hospital at home, robotics, ict.

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Social Networks and Dying at Home: Analysis of Outcomes From 13 Countries Using SHARE

Innovation in Aging ◽

10.1093/geroni/igaa057.2038 ◽

2020 ◽

Vol 4 (Supplement_1) ◽

pp. 604-604

Author(s):

Stipica Mudrazija ◽

Katherine Ornstein

Keyword(s):

Social Networks ◽

End Of Life ◽

Cultural Values ◽

Country Level ◽

Healthcare Needs ◽

Location Of Death ◽

Home Based ◽

Unmet Healthcare Needs ◽

Dying At Home ◽

At Home

Abstract Social networks are critical for end-of-life decision-making and hands on support and may also impact end-of-life outcomes including location of death. Yet we fail to consider these factors in the context of cultural values and variation in healthcare system financing and resources, e.g., availability of palliative care. Using SHARE, we examined the following factors for 6,391 decedents across 13 countries interviewed in the last year of life: family size, living alone, and size and characteristics of social networks. We compared these characteristics cross-nationally for persons dying at home as opposed to in hospital and other formal settings. While individuals with larger social networks are more likely to die at home, we find a cross-national gradient of higher unmet healthcare needs resulting in overall more home-based deaths. Our findings suggest that individual factors such as family availability must be considered in the context of country-level factors when examining quality end-of-life indicators.

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Research and Application of Internet of Things in the Field of Home-Based Care for the Aged

Advanced Materials Research ◽

10.4028/www.scientific.net/amr.926-930.2582 ◽

2014 ◽

Vol 926-930 ◽

pp. 2582-2585

Author(s):

Cheng Bo Yin ◽

Shou Qiang Sun ◽

Peng Ren

Keyword(s):

Internet Of Things ◽

Nuclear Families ◽

Aging Society ◽

Chinese Traditional Culture ◽

Open Policy ◽

Home Based ◽

Home Based Care ◽

Elderly Living ◽

Taking Care ◽

At Home

With the development of society, the problem of aging will be taken more and more seriously by every country. China has been entered into the aging society in the year of 2000. Children always felt helpless in taking care of the aged dues to the nuclear families become more and more prevalent since the reform and open policy. In order to prolong the Chinese traditional culture and answer for the security of elderly living at home possibly, looking for a new system of taking care of the aged has profound significance. In this paper, falling back on the intelligence of Internet of Things (IoT)[, a solution is introduced to solve the security problems of elderly living at home. The solution can contribute to a situation satisfied by elderly, children and society, due to that it cannot only disturb childrens work as little as possible but also ease the burden of country.

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