The need for end-of-life care training in nephrology: national survey results of nephrology fellows

AbstractEnd-of-life care training has gaps in helping students to develop attitudes toward caring for the dying. Valid and reliable assessment tools are essential in building effective educational programmes. The Frommelt Attitude Toward the Care Of the Dying scale (FATCOD-B) is widely used to measure the level of comfort/discomfort in caring for the dying and to test the effectiveness of end-of-life care training. However, its psychometric properties have been questioned and different proposals for refinement and shortening have been put forward. The aim of this study is to get to a definitive reduction of the FATCOD-B through a valid and parsimonious synthesis of the previous attempts at scale revision. Data were gathered from a sample of 220 medical students. The item response theory approach was used in this study. Of the 14 items selected from two previous proposals for scale revision, 3 had a weak correlation with the whole scale and were deleted. The resulting 11-item version had good fit indices and withstood a more general and parsimonious specification (rating scale model). This solution was further shortened to 9 items by deleting 2 of 3 items at the same level of difficulty. The final 9-item version was invariant for gender, level of religiosity and amount of experience with dying persons, free from redundant items and able to scale and discriminate the respondents.

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Decision making about medical interventions in the end-of-life care of people with intellectual disabilities: A national survey of the considerations and beliefs of GPs, ID physicians and care staff

Patient Education and Counseling ◽

10.1016/j.pec.2014.05.014 ◽

2014 ◽

Vol 96 (2) ◽

pp. 204-209 ◽

Cited By ~ 24

Author(s):

Nienke Bekkema ◽

Anke J.E. de Veer ◽

Annemieke M.A. Wagemans ◽

Cees M.P.M. Hertogh ◽

Anneke L. Francke

Keyword(s):

Decision Making ◽

Intellectual Disabilities ◽

End Of Life ◽

National Survey ◽

End Of Life Care ◽

Care Staff ◽

Life Care ◽

Medical Interventions ◽

People With Intellectual Disabilities

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Learning outcomes from an end of life care training programme

Primary Health Care ◽

10.7748/phc.26.3.25.s31 ◽

2016 ◽

Vol 26 (3) ◽

pp. 25-28

Author(s):

Emma Vincent

Keyword(s):

End Of Life ◽

Learning Outcomes ◽

End Of Life Care ◽

Training Programme ◽

Life Care ◽

Care Training

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End-of-Life Doulas: Documenting Their Backgrounds and Services

OMEGA - Journal of Death and Dying ◽

10.1177/00302228211047097 ◽

2021 ◽

pp. 003022282110470

Author(s):

Amy Dellinger Page ◽

Jonelle H. Husain

Keyword(s):

End Of Life ◽

End Of Life Care ◽

Qualitative Interviews ◽

Family Members ◽

Demographic Characteristics ◽

Life Care ◽

Healthcare Settings ◽

Survey Results ◽

Original Survey

This is an exploratory study to document the demographic characteristics, backgrounds, and services provided by trained and certified INELDA end-of-life doulas. Like birth doulas, end-of-life doulas represent a divergent, yet complementary form of care for dying persons. The purpose of end-of-life care is to facilitate comfort of the dying person and their closest family members. Surveys were completed by 618 end-of-life doulas regarding their demographic characteristics, employment backgrounds, services, and their experiences providing end of life care to dying persons and their closest family members. Follow-up qualitative interviews were also conducted with a subset of 39 respondents who completed the original survey. Results show that trained doulas are largely white (91.4%), female (90.4%), hold a Bachelor’s (32.3%) or Masters (32.4%) degree, and are employed outside of their EOLD work (70.1%). Qualitative data details services provided to dying persons and family members in addition to the benefits and challenges of working with traditional healthcare settings.

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