Young Stroke Survivors Face Barriers to Care

2007 ◽  
Vol 40 (20) ◽  
pp. 40-41
Author(s):  
SHARON WORCESTER
Keyword(s):  
Barriers To Care ◽  
Stroke Survivors ◽  
Young Stroke

Post-Stroke Seizures and the Risk of Dementia Among Young Stroke Survivors

2021 ◽  
Author(s):  
Alain Lekoubou ◽  
Djibril M. Ba ◽  
Clever Nguyen ◽  
Guodong Liu ◽  
Douglas L. Leslie ◽  
...  
Keyword(s):  
Stroke Survivors ◽  
Young Stroke ◽  
Post Stroke

Abstract 10: Strategies to Support Young Stroke Survivors

Stroke ◽  
2018 ◽  
Vol 49 (Suppl_1) ◽  
Author(s):  
Theresa L Hamm
Keyword(s):  
Stroke Survivors ◽  
Young Stroke

scholarly journals How information affects attributions for ambiguous behaviours resulting from stroke

2021 ◽  
Author(s):  
◽  
Jake Gallagher
Keyword(s):  
Stroke Survivor ◽  
Target Person ◽  
Stroke Survivors ◽  
Young Stroke ◽  
Behavioural Changes ◽  
Additional Information ◽  
Young Survivors

<p>Research has shown that when people see young survivors of stroke, they often misattribute the person’s symptoms to other factors (Wainwright et al., 2013). Consequently, these stroke survivors may suffer feelings of resentment towards, and from their acquaintances. They may also struggle to obtain or retain a job. This thesis examines whether these misattributions for stroke survivors’ symptoms are affected by the information people have about the stroke survivor and the rapidity of the change in their behaviours. Experiment 1 investigated if the stroke survivor’s age (72, 32 or unstated) and the level of information (no information, implied stroke or explicit stroke) for their behaviours influenced people’s attributions. Experiment 1 showed that people attributed the behavioural changes to factors other than stroke when no additional information is present, and they attributed the behaviours to stroke when stroke was explicitly described. When stroke was implied, participants rated stroke as the best explanation but only when the target person was 72. Experiment 2 manipulated the rapidity of the stroke survivor’s behavioural changes to assess the effect on attributions. Experiment 2 showed that people attributed the behaviours to stroke more if only one week had passed, and if the target person was 72, but not when he was 32. It was concluded that young stroke survivors may need to disclose their stroke in order for others to correctly attribute their behaviours, as this could improve their rehabilitation.</p>

Young Stroke Survivors' Preferred Methods of Meeting Their Unique Needs

Neurology ◽  
2021 ◽  
Vol 96 (13) ◽  
pp. e1701-e1710
Author(s):  
Jessica Keating ◽  
Karen Borschmann ◽  
Hannah Johns ◽  
Leonid Churilov ◽  
Julie Bernhardt
Keyword(s):  
Health Care ◽  
Health Care Professional ◽  
Online Survey ◽  
Care Setting ◽  
Alternative Methods ◽  
Stroke Survivors ◽  
Face To Face ◽  
Young Stroke ◽  
Traditional Health ◽  
Traditional Health Care

ObjectiveTo determine how young stroke survivors want their unmet needs to be addressed, we undertook an international online survey of people living with stroke.MethodsParticipants self-selected to complete an online survey that included a questionnaire on demographics and stroke-related characteristics, the Young Stroke Needs Screening Tool, and a questionnaire on how they wanted their needs to be met.ResultsOne hundred seventy-one responses were received (68% female respondents, mean age 45 years, interquartile range 36–51 years). Preferences for methods of meeting needs varied depending on the domain of need and participants' demographic and stroke-related characteristics. Face-to-face contact with a health care professional was a popular means of meeting needs, but methods outside of a traditional health care setting such as a succinct list of tips or peer support were widely acceptable and sometimes preferred.ConclusionThis work provides the impetus for developing alternative methods of meeting young stroke survivors' needs, many of which are not resource intensive or do not require an appointment with a health care professional.

Development and initial validation of a patient centered stroke outcome measure in young stroke survivors

2021 ◽  
Author(s):  
Nishanth Kodumuri ◽  
Amy Edmunds ◽  
Amy Seidel ◽  
Phil Fleming ◽  
Alexandra Vezzetti ◽  
...  
Keyword(s):  
Outcome Measure ◽  
Stroke Survivors ◽  
Stroke Outcome ◽  
Patient Centered ◽  
Young Stroke ◽  
Initial Validation

scholarly journals Young Women Stroke Survivors and Their Desire for Peer Support

ISRN Stroke ◽  
2014 ◽  
Vol 2014 ◽  
pp. 1-8
Author(s):  
Sharon-Dale Stone
Keyword(s):  
Peer Support ◽  
Young Women ◽  
Hemorrhagic Stroke ◽  
Well Being ◽  
Stroke Survivors ◽  
Psychological Well Being ◽  
Young Stroke ◽  
Widespread Access

The concerns of young stroke survivors are not well known. The aim of this paper is to draw on data from a larger study to show that young women who survived a hemorrhagic stroke desire access to peer support, but there is not widespread access to peer support. Open-ended interviews were conducted with an international sample of 28 women to learn about their poststroke experiences and were analyzed qualitatively for common issues and themes. A prominent theme across the interviews was the significance of age-similar peer support. Participants discussed feeling alone and misunderstood and wanting to have access to peer support. In conclusion, peer support may help to enhance psychological well-being, but the survivor’s own understanding of her peers must be centrally considered.

Abstract TP299: Development and Validation of a Patient Centered Young Stroke Outcome Measure Tool

Stroke ◽  
2017 ◽  
Vol 48 (suppl_1) ◽  
Author(s):  
Julian Duda ◽  
Viktoriya Duda ◽  
Erin Suttman ◽  
Nishanth Kodumuri ◽  
Lauren D Giamberardino ◽  
...  
Keyword(s):  
Healthcare Providers ◽  
Young Patients ◽  
Stroke Survivors ◽  
Patient Centered ◽  
Healthcare Resources ◽  
Young Stroke ◽  
Clinical Assessments ◽  
Development Framework ◽  
Long Term Impact ◽  
The Impact

Introduction: Stroke is a leading cause of adult disability that has long-term impact on outcome of patients. The current outcome measures are felt to be inadequate in measuring the impact of stroke in young patients (≤65) in midst of managing education, career, and family. Methods: This study assessed the reliability and discriminate validity of the young stroke questionnaire (YSQ). The development framework of the YSQ involved a two-step process. Initial feedback from stroke survivors and healthcare providers via multiple focus groups helped identify questions used to measure impact of stroke on 4 patient-centered domains: work and leisure, relationships, wellbeing, and healthcare resources. A subsequent focus group prioritized and refined items on the final YSQ. To determine the reliability and discriminate validity of YSQ, 25 young stroke survivors were consented at the Neurology Clinic. Standardized clinical assessments completed included the modified Rankin Scale (mRS), National Institutes of Health Stroke Scale (NIHSS), and the Stroke Impact Scale (SIS). Additionally, all patients were asked to complete the patient-centered questionnaire, YSQ. Results: Of 48 ischemic stroke patients screened, 25 (Mean age ± SD = 51 ± 9.2, 36% Males, 40% African-American, 56% White) patients qualified for enrollment into the young stroke questionnaire validation study. Using Levene’s test for equality of variance to compare YSQ and standardized clinical assessments, the YSQ was more likely to detect patient-centered disabilities post stroke in the following domains: relationships (α = 0.035) and healthcare resources (α = 0.027). Reliability of the summary measure was assessed using Cronbach’s alpha and found to be high (α = 0.903), indicating that the index created by summing the 4 dimensions is internally consistent and reproducible. Conclusions: Standardized clinical assessments are not sensitive to disabilities in young stroke survivors. When compared to standardized clinical assessments, the young stroke questionnaire is significantly capable of differentiating the young survivor perspective of the impact of stroke, specifically in area of relationships and healthcare resources.

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