Abstract TP299: Development and Validation of a Patient Centered Young Stroke Outcome Measure Tool

Stroke ◽  
2017 ◽  
Vol 48 (suppl_1) ◽  
Author(s):  
Julian Duda ◽  
Viktoriya Duda ◽  
Erin Suttman ◽  
Nishanth Kodumuri ◽  
Lauren D Giamberardino ◽  
...  

Introduction: Stroke is a leading cause of adult disability that has long-term impact on outcome of patients. The current outcome measures are felt to be inadequate in measuring the impact of stroke in young patients (≤65) in midst of managing education, career, and family. Methods: This study assessed the reliability and discriminate validity of the young stroke questionnaire (YSQ). The development framework of the YSQ involved a two-step process. Initial feedback from stroke survivors and healthcare providers via multiple focus groups helped identify questions used to measure impact of stroke on 4 patient-centered domains: work and leisure, relationships, wellbeing, and healthcare resources. A subsequent focus group prioritized and refined items on the final YSQ. To determine the reliability and discriminate validity of YSQ, 25 young stroke survivors were consented at the Neurology Clinic. Standardized clinical assessments completed included the modified Rankin Scale (mRS), National Institutes of Health Stroke Scale (NIHSS), and the Stroke Impact Scale (SIS). Additionally, all patients were asked to complete the patient-centered questionnaire, YSQ. Results: Of 48 ischemic stroke patients screened, 25 (Mean age ± SD = 51 ± 9.2, 36% Males, 40% African-American, 56% White) patients qualified for enrollment into the young stroke questionnaire validation study. Using Levene’s test for equality of variance to compare YSQ and standardized clinical assessments, the YSQ was more likely to detect patient-centered disabilities post stroke in the following domains: relationships (α = 0.035) and healthcare resources (α = 0.027). Reliability of the summary measure was assessed using Cronbach’s alpha and found to be high (α = 0.903), indicating that the index created by summing the 4 dimensions is internally consistent and reproducible. Conclusions: Standardized clinical assessments are not sensitive to disabilities in young stroke survivors. When compared to standardized clinical assessments, the young stroke questionnaire is significantly capable of differentiating the young survivor perspective of the impact of stroke, specifically in area of relationships and healthcare resources.

Stroke ◽  
2020 ◽  
Vol 51 (Suppl_1) ◽  
Author(s):  
Nishanth Kodumuri ◽  
Amy Edmunds ◽  
Brittiny McMillian ◽  
Alyson Grant ◽  
Phil Fleming ◽  
...  

Introduction: Stroke is a leading cause of disability affecting patients and their caregivers. Current outcome measures inadequately quantify the impact of stroke in young patients (≤65) in terms of managing education, career, and family. Methods: This study assessed the reliability and discriminate validity of the Young Stroke Questionnaire (YSQ) to further build upon the knowledge and understanding of young stroke patients and the specific needs for management and long-term outcomes relevant to young stroke survivors. The initial questionnaire evolved from a focus group comprised of 6 young stroke survivors and 6 stroke neurologists centralized around 4 patient-centered domains: work and leisure, relationships, wellbeing, and healthcare resources. To determine the reliability and discriminate validity of YSQ, 100 young stroke survivors were consented at the Neurology clinic. Standardized clinical assessments completed included the modified Rankin Scale (mRS). Additionally, all patients were asked to complete the patient-centered questionnaire, YSQ. Results: We enrolled 100 patients (Mean age ± SD = 49.2 ± 11.7, 42 Males, 53% African-American, 44% White) into the YSQ validation study. Cronbach’s α coefficients for the four domains and the total scale were calculated to measure the internal consistency of the YSQ. The α coefficients were found to be high (work & leisure α = 0.88, relationships α = 0.82, wellbeing α= 0.84, healthcare resources α= 0.75), indicating the scale with 4 subdomains is internally consistent and reproducible. The discriminant validity of the scale was assessed by comparing the means of each subdomain of YSQ among healthy subjects to the groups of stroke patients as defined by the mRS. YSQ was able to differentiate healthy subjects from subjects with varying degree of disability, as defined by the modified Rankin scale ( work and leisure p< 0.0001, relationships p< 0.0001, wellbeing p< 0.0001, Healthcare resources p= 0.017) Conclusions: Standardized clinical assessments are not sensitive to disabilities in young stroke survivors. When compared to standardized clinical assessments, the YSQ is significantly capable of differentiating the young survivor perspective of the impact of stroke in all the four subdomains.


Author(s):  
Nishanth Kodumuri ◽  
Amy Edmunds ◽  
Amy Seidel ◽  
Phil Fleming ◽  
Alexandra Vezzetti ◽  
...  

Author(s):  
Aicha Abdallah Mohamed Ahmed

Background: Globalization impacts several aspects of life including education. Medical education in Qatar is progressing and developing by the effort of multicultural teams that ensure the emergence of future healthcare providers that are patient-centered, well educated and well knowledgeable. Although having this multicultural teaching can be beneficial in some area, it can represent a challenge. This study aims to investigate the perception of Medical colleges’ faculty members at Qatar University (QU) about the impact of this diversity on the health education in specific and Qatar’s cultures and values in general. Methods: A mixed-methods design was followed, where two types of data were collected in a parallel manner; quantitative and qualitative data. A survey link (Quantitative) was sent to the health clusters faculty members at QU. The questions in the survey were based on a validated tool known as ‘’Multicultural Teaching Competence Scale’’. A focus group was conducted with the faculty members to access in depth their perception. Results: The total score of Multicultural Teaching Competence of all the participants was between 39 and 77 (The maximum in the tool is 80 and the minimum is 16), which is divided into total score of Multicultural Teaching Competence Skill of all the participants, where the higher score was 48 and the lowest score was 19 (The maximum is 60 and the minimum is 10), and total score of Multicultural Teaching knowledge, where the higher score was 30 and the lowest was 9 (The maximum is 36 and the minimum 9). The focus group was transcribed and divided into themes based on the interview with faculty members. Conclusion: In conclusion, both the qualitative and quantitative data showed a positive behavior toward the multicultural teaching. Therefore, this study shows that the faculty members in health cluster colleges at Qatar University are generally knowledgeable and skilled in relation to the multicultural teaching


2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 253-253
Author(s):  
Joanna Morales ◽  
Monica Bryant

253 Background: Nearly 10% of the U.S. population lacks health insurance coverage. Healthcare professionals are often asked by their patients about health insurance options. The Patient Protection and Affordable Care Act (ACA) has brought new health care options and consumer protections for people coping with cancer. Unfortunately, there is a plethora of misinformation about these changes. Healthcare professionals are uniquely positioned to provide patients with accurate, quality information, improving patient quality of life. Methods: The presentation will cover the implementation of the ACA at the federal and state levels and the impact of the ACA on the cancer community. Attendees will learn about new consumer protections and health insurance options, and receive concrete tools to conduct clinical assessments that address access to health insurance coverage and the subsequent impact on psychosocial needs. Results: Our surveys have found that 75% of oncology healthcare professional respondents were asked for guidance on how healthcare reform might affect their patients. However, only 7% of those surveyed felt “very comfortable” answering questions about the ACA. Therefore, there is an obvious gap between the knowledge level of healthcare professionals and what they are being asked by their patients. Oncology healthcare provider attendees will gain a better understanding of health insurance options available to their patients. Attendees will receive practical tools to answer questions and provide appropriate resources, thereby alleviating anxiety, and improving quality of life for patients. Conclusions: In order to effectively navigate patients through the cancer care continuum, oncology healthcare providers must be armed with up-to-date knowledge about health insurance options and protections, and given concrete tools for conducting clinical assessments that address a broad spectrum of psychosocial needs.


2019 ◽  
Vol 10 (12) ◽  
pp. 1183-1199
Author(s):  
Mohammed Alrouili ◽  

This study attempted to identify the impact of internal work environment on the retention of healthcare providers at Turaif General Hospital in the Kingdom of Saudi Arabia. In particular, the study aimed to identify the dimensions of work circumstances, compensation, and relationship with colleagues, professional growth, and the level of healthcare providers’ retention. In order to achieve the study goals, the researcher used the descriptive analytical approach. The researcher used the questionnaire as the study tool. The study population comprised all the healthcare providers at Turaif General Hospital. Questionnaires were distributed to the entire study sample that consisted of 220 individuals. The number of questionnaires valid for study was 183 questionnaires. The research findings were as follows: the participants’ estimate of the work circumstances dimension was high (3.64), the participants’ estimate of the compensation dimension was moderate (3.32), the participants’ estimate of the relationship with colleagues dimension was high (3.62), the participants’ estimate of the professional growth dimension was weak (2.39), and the participants’ estimate of healthcare providers’ retention level was intermediate (2.75). Accordingly, the researcher’s major recommendations are: the need to create the right atmosphere for personnel in hospitals, the interest of the hospital to provide the appropriate conditions for the staff in terms of the physical and moral aspects for building the work adjustment in the staff, and conducting training courses and educational lectures for personnel in hospitals on how to cope with the work pressures.


Coronaviruses ◽  
2020 ◽  
Vol 01 ◽  
Author(s):  
Yam Nath Paudel ◽  
Efthalia Angelopoulou ◽  
Bhupendra Raj Giri ◽  
Christina Piperi ◽  
Iekhsan Othman ◽  
...  

: COVID-19 has emerged as a devastating pandemic of the century that the current generations have ever experienced. The COVID-19 pandemic has infected more than 12 million people around the globe and 0.5 million people have succumbed to death. Due to the lack of effective vaccines against the COVID-19, several nations throughout the globe has imposed a lock-down as a preventive measure to lower the spread of COVID-19 infection. As a result of lock-down most of the universities and research institutes has witnessed a long pause in basic science research ever. Much has been talked about the long-term impact of COVID-19 in economy, tourism, public health, small and large-scale business of several kind. However, the long-term implication of these research lab shutdown and its impact in the basic science research has not been much focused. Herein, we provide a perspective that portrays a common problem of all the basic science researchers throughout the globe and its long-term consequences.


2015 ◽  
Vol 7 (4) ◽  
pp. 580-588 ◽  
Author(s):  
Fadya El Rayess ◽  
Roberta Goldman ◽  
Christopher Furey ◽  
Rabin Chandran ◽  
Arnold R. Goldberg ◽  
...  

ABSTRACT Background The patient-centered medical home (PCMH) is an accepted framework for delivering high-quality primary care, prompting many residencies to transform their practices into PCMHs. Few studies have assessed the impact of these changes on residents' and faculty members' PCMH attitudes, knowledge, and skills. The family medicine program at Brown University achieved Level 3 PCMH accreditation in 2010, with training relying primarily on situated learning through immersion in PCMH practice, supplemented by didactics and a few focused clinical activities. Objective To assess PCMH knowledge and attitudes after Level 3 PCMH accreditation and to identify additional educational needs. Methods We used a qualitative approach, with semistructured, individual interviews with 12 of the program's 13 postgraduate year 3 residents and 17 of 19 core faculty. Questions assessed PCMH knowledge, attitudes, and preparedness for practicing, teaching, and leading within a PCMH. Interviews were analyzed using the immersion/crystallization method. Results Residents and faculty generally had positive attitudes toward PCMH. However, many expressed concerns that they lacked specific PCMH knowledge, and felt inadequately prepared to implement PCMH principles into their future practice or teaching. Some exceptions were faculty and resident leaders who were actively involved in the PCMH transformation. Barriers included lack of time and central roles in PCMH activities. Conclusions Practicing in a certified PCMH training program, with passive PCMH roles and supplemental didactics, appears inadequate in preparing residents and faculty for practice or teaching in a PCMH. Purposeful curricular design and evaluation, with faculty development, may be needed to prepare the future leaders of primary care.


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