The problem of measuring change in individual health-related quality of life by postal questionnaire: use of the patient-generated index in a disabled population

1998 ◽  
Vol 7 (8) ◽  
pp. 761-769 ◽  
Author(s):  
C. Macduff ◽  
E. Russell
2020 ◽  
Vol 4 (1) ◽  
Author(s):  
Tom H. Oreel ◽  
Philippe Delespaul ◽  
Iris D. Hartog ◽  
José P. S. Henriques ◽  
Justine E. Netjes ◽  
...  

Abstract Background Measuring change in health-related quality-of-life (HRQoL) is important to assess the impact of disease and/or treatment. Ecological momentary assessment (EMA) comprises the repeated assessment of momentary HRQoL in the natural environment and is particularly suited to capture daily experiences. Our objective was to study whether change in momentary measures or retrospective measures of HRQoL are more strongly associated with criterion measures of change in HRQoL. Twenty-six coronary artery disease patients completed momentary and retrospective HRQoL questionnaires before and after coronary revascularization. Momentary HRQoL was assessed with 14 items which were repeatedly presented 9 times a day for 7 consecutive days. Each momentary assessment period was followed by a retrospective HRQoL questionnaire that used the same items, albeit phrased in the past tense and employing a one-week time frame. Criterion measures of change comprised the New York Heart Association functioning classification system and the Subjective Significance Change Questionnaire. Regression analysis was used to determine the association of momentary and retrospective HRQoL change with the criterion measures of change. Results Change according to momentary HRQoL items was more strongly associated with criterion measures of change than change according to retrospective HRQoL items. Five of 14 momentary items were significantly associated with the criterion measures. One association was found for the retrospective items, however, in the unexpected direction. Conclusion Momentary HRQoL measures better captured change in HRQoL after cardiac intervention than retrospective HRQoL measures. EMA is a valuable expansion of the armamentarium of psychometrically sound HRQoL measures.


2006 ◽  
Vol 1 (3) ◽  
pp. 209-235 ◽  
Author(s):  
M. Kamrul Islam ◽  
Juan Merlo ◽  
Ichiro Kawachi ◽  
Martin Lindström ◽  
Kristina Burström ◽  
...  

We test whether individual health status is related to area-level social capital measured by rates of voting participation in municipal political elections, controlling for personal characteristics, where health status is measured by mapping responses to interview survey questions into the generic health-related quality of life measure (HRQoL) the EQ-5D in order to derive the health state scores. The analysis is based on unbalanced panel data from Statistic Sweden's Survey of Living Conditions (the ULF survey) and a 3-level multilevel regression analysis, where level 1 consists of a total of 31,585 observations for 24,419 individuals at level 2 nested within 275 Swedish municipalities at level 3. We find that the health state scores increase significantly with municipality election rates. This result is robust to a number of measurement and specification issues explored in a sensitivity analysis. However, almost all variation in health status exists across individuals (more than 98%), which demonstrates that even if social capital (and other contextual variables) may be significant it is of less importance, at least at the municipality level in Sweden.


2012 ◽  
Vol 32 (4) ◽  
pp. 117-125 ◽  
Author(s):  
Kristina Lantz ◽  
Jan Marcusson ◽  
Ewa Wressle

This study explores how 85 year olds in Sweden perceive participation and autonomy in their life situations in relation to health-related quality of life and gender. A postal questionnaire included questions on sociodemographics, social network, assistive technology, community assistance, and the EQ-5D. During a home visit, an occupational therapist evaluated perceived participation and autonomy using the Impact on Participation and Autonomy Questionnaire. Most perceived their participation as sufficient. Women had greater limitations than men in indoor and outdoor autonomy. Only a few individuals reported many or severe problems with participation, mainly in mobility and leisure. Not having friends nearby, no close contact with neighbors, and living in community housing increased the risk of perceived problems. Sufficient participation was positively associated with higher health-related quality of life, and facilitating participation is an area of interest for occupational therapists.


2016 ◽  
Vol 12 (1) ◽  
pp. 124-124
Author(s):  
Thorbjörg Jonsdottir ◽  
Helga Jonsdottir ◽  
Sigridur Gunnarsdottir

Abstract Aims To investigate the use of Complimentary/Alternative therapy for chronic pain in nationwide sample. Methods In this cross-sectional study a postal questionnaire measuring socio-demographic variables (e.g. gender, education, income and residence), pain characteristics (severity and interference with daily life), health related quality of life and use of Complimentary/Alternative therapy for chronic pain, was sent to a sample of 4500 individuals randomly drawn from the national population of Iceland. The relationships between sociodemographic and pain related variables and pain related use Complimentary/Alternative therapy among participants reporting chronic pain (≥3 months) were tested. Results The prevalence of chronic pain (≥3 months) among respondents was 47.5%. Among participants reporting chronic pain, 45.5% (n = 343) reported having consulted some kind of Complimentary or Alternative therapy for their pain the previous six months and this was more prevalent among women than men. Most usual kind of therapists consulted was Acupuncturists (21.4%) and Chiropractors (18.3%). There were some gender differences in what kind of therapy people had consulted. Women were more likely than men to have consulted Acupuncturist while men consulted a Chiropractor more often than women. Logistic regression analysis showed that predictors for use of Complimentary/Alternative therapy for chronic pain were gender, urban residence and pain severity. The use of Complimentary/Alternative therapy was not related to education, family income or health related quality of life. Conclusions Women and urban residents are more likely than men and rural residents to seek Complimentary/Alternative therapy for chronic. People are more likely to seek Complimentary/Alternative care for chronic pain the more severe pain is.


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