Development of the Family Management Measure for Childhood Chronic Conditions

2009 ◽  
Author(s):  
Kathleen A. Knafl ◽  
Janet A. Deatrick ◽  
Agatha Gallo ◽  
Jane Dixon ◽  
Margaret Grey
Keyword(s):  
Chronic Conditions ◽  
Family Management ◽  
The Family ◽  
Management Measure ◽  
Childhood Chronic Conditions

The Family Management of Childhood Chronic Conditions: Measurement in a Turkish Sample

2019 ◽  
Vol 47 ◽  
pp. e16-e23 ◽  
Author(s):  
Ayse Ergun ◽  
Fatma Nevin Sisman ◽  
Saime Erol ◽  
Kamer Gur ◽  
Nurcan Kolac ◽  
...  
Keyword(s):  
Chronic Conditions ◽  
Family Management ◽  
The Family ◽  
Childhood Chronic Conditions

scholarly journals Validation of Family Management Measure for the Brazilian culture

2017 ◽  
Vol 70 (6) ◽  
pp. 1151-1158 ◽  
Author(s):  
Regina Szylit Bousso ◽  
Carolliny Rossi de Faria Ichikawa ◽  
Maira Deguer Misko ◽  
Maiara Rodrigues dos Santos ◽  
Michelle Freire Baliza ◽  
...  
Keyword(s):  
Family Life ◽  
Quantitative Research ◽  
Culture Method ◽  
Family Management ◽  
Management Ability ◽  
The Family ◽  
Management Measure ◽  
Management Effort ◽  
Childhood Chronic Conditions ◽  
Brazilian Culture

ABSTRACT Etjective: To validate the Family Management Measure (FaMM) for Brazilian culture. Method: Quantitative research excerpt, following the recommendations for validation studies. The data presented refer to the last stage of the process. Results: The internal consistency of the items was analyzed through Cronbach's alpha of the six domains: Child's Daily Life (0.78); Condition Management Effort (0.51); Condition Management Ability (0.55); Family Life Difficulty (0.86); View of Condition Impact (0.56); and Parental Mutuality (0.80). Exploratory factorial analysis of the instrument was carried out, obtaining an acceptable adjustment, according to validation standards. Conclusion: The FaMM presents evidence of validation and can be used in the Brazilian culture under the name of Instrumento de Medida de Manejo Familiar, which was adjusted in eight domains, providing varied aspects of family management and a good evaluation of the fundamental aspects of family life in the context of childhood chronic conditions.

scholarly journals Patterns of Family Management of Childhood Chronic Conditions and Their Relationship to Child and Family Functioning

2013 ◽  
Vol 28 (6) ◽  
pp. 523-535 ◽  
Author(s):  
Kathleen A. Knafl ◽  
Janet A. Deatrick ◽  
George J. Knafl ◽  
Agatha M. Gallo ◽  
Margaret Grey ◽  
...  
Keyword(s):  
Family Functioning ◽  
Chronic Conditions ◽  
Family Management ◽  
Childhood Chronic Conditions

scholarly journals Measurement of Family Management in Families of Individuals With Down Syndrome: A Cross-Cultural Investigation

2020 ◽  
pp. 107484072097516
Author(s):  
Marcia Van Riper ◽  
George J. Knafl ◽  
Maria do Céu Barbieri-Figueiredo ◽  
Maria Caples ◽  
Hyunkyung Choi ◽  
...  
Keyword(s):  
Down Syndrome ◽  
Internal Consistency ◽  
Internal Consistency Reliability ◽  
The United States ◽  
Cross Cultural ◽  
Family Management ◽  
Cultural Research ◽  
The Family ◽  
Cross Cultural Research ◽  
Management Measure

Down syndrome (DS) is the most common genetic cause of intellectual disability worldwide. The purpose of this analysis was to determine the internal consistency reliability of eight language versions of the Family Management Measure (FaMM) and compare family management of DS across cultures. A total of 2,740 parents of individuals with DS from 11 countries completed the FaMM. The analysis provided evidence of internal consistency reliability exceeding .70 for four of six FaMM scales for the entire sample. Across countries, there was a pattern of positive family management. Cross-cultural comparisons revealed parents from Brazil, Spain, and the United States had the most positive family management and respondents from Ireland, Italy, Japan, and Korea had the least positive. The rankings were mixed for the four remaining countries. These findings provide evidence of overall strong internal consistency reliability of the FaMM. More cross-cultural research is needed to understand how social determinants of health influence family management in families of individuals with DS.

scholarly journals Translation, cultural adaptation and preliminary psychometric evaluation of the “Family Management Measure” among Iranian families with a child with a chronic disease

10.19082/6942 ◽  
2018 ◽  
Vol 10 (6) ◽  
pp. 6942-6950 ◽  
Author(s):  
Masoomeh Mehmannavazan ◽  
Meimanat Hosseini ◽  
Jacqueline Vartanoosian ◽  
Mahsa Matbouei ◽  
Malihe Nasiri ◽  
...  
Keyword(s):  
Chronic Disease ◽  
Cultural Adaptation ◽  
Psychometric Evaluation ◽  
Family Management ◽  
The Family ◽  
Management Measure

scholarly journals Assessment of the Psychometric Properties of the Family Management Measure

2009 ◽  
Vol 36 (5) ◽  
pp. 494-505 ◽  
Author(s):  
Kathleen Knafl ◽  
Janet A. Deatrick ◽  
Agatha Gallo ◽  
Jane Dixon ◽  
Margaret Grey ◽  
...  
Keyword(s):  
Psychometric Properties ◽  
Family Management ◽  
The Family ◽  
Management Measure

scholarly journals Cultural adaptation of the Family Management Measure among families of children and adolescents with chronic diseases

2014 ◽  
Vol 22 (1) ◽  
pp. 115-122 ◽  
Author(s):  
Carolliny Rossi de Faria Ichikawa ◽  
Regina Szylit Bousso ◽  
Maira Deguer Misko ◽  
Ana Marcia Chiaradia Mendes-Castillo ◽  
Estela Regina Ferraz Bianchi ◽  
...  
Keyword(s):  
Children And Adolescents ◽  
Chronic Diseases ◽  
Cultural Adaptation ◽  
Brazilian Portuguese ◽  
Family Management ◽  
Expert Committee ◽  
Content Validation ◽  
The Family ◽  
Management Measure ◽  
Back Translation

OBJECTIVES: to perform the cultural adaptation of the Family Management Measure into the Brazilian Portuguese language. METHOD: the method complied with international recommendations for this type of study and was composed of the following steps: translation of the instrument into the Portuguese language; reaching consensus over the translated versions; assessment by an expert committee; back translation; and pretest. RESULTS: these stages enabled us to obtain conceptual, by-item, semantic, idiomatic, and operational equivalences, in addition to content validation. CONCLUSION: the Family Management Measure is adapted to the Brazilian Portuguese language and that version is named Instrumento de Medida de Manejo Familiar.

scholarly journals Tracing the Use of the Family Management Framework and Measure: A Scoping Review

2021 ◽  
pp. 107484072199433
Author(s):  
Kathleen A. Knafl ◽  
Janet A. Deatrick ◽  
Agatha M. Gallo ◽  
Beth Skelton
Keyword(s):  
United States ◽  
Scoping Review ◽  
The United States ◽  
Management Style ◽  
Health Conditions ◽  
Family Management ◽  
Management Framework ◽  
The Family ◽  
Management Measure ◽  
Adult Member

This article reports the results of a scoping review of research applications of the Family Management Style Framework (FMSF) and the Family Management Measure (FaMM). We identified 32 studies based on the FMSF and 41 studies in which the FaMM was used, 17 of which were based on the FMSF. Both the framework and measure have been used by investigators in multiple countries, with most applications of the FaMM outside the United States. Although the FMSF and FaMM were originally developed for use with families in which there was a child with a chronic physical condition, both have been applied to a broader range of health conditions and to studies focusing on families with an adult member facing a health challenge. Based on our findings, we make recommendations for how researchers can more fully address all aspects of the FMSF.

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