Holistic Communication Assessment for Young Children With Cleft Palate Using the International Classification of Functioning, Disability and Health:Children and Youth

2020 ◽  
Vol 51 (4) ◽  
pp. 914-938
Author(s):  
Anna Cronin ◽  
Sharynne McLeod ◽  
Sarah Verdon

Purpose Children with a cleft palate (± cleft lip; CP±L) can have difficulties communicating and participating in daily life, yet speech-language pathologists typically focus on speech production during routine assessments. The International Classification of Functioning, Disability and Health: Children and Youth Version (ICF-CY; World Health Organization, 2007 ) provides a framework for holistic assessment. This tutorial describes holistic assessment of children with CP±L illustrated by data collected from a nonclinical sample of seven 2- to 3-year-old children, 13 parents, and 12 significant others (e.g., educators and grandparents). Method Data were collected during visits to participants' homes and early childhood education and care centers. Assessment tools applicable to domains of the ICF-CY were used to collect and analyze data. Child participants' Body Functions including speech, language, and cognitive development were assessed using screening and standardized assessments. Participants' Body Structures were assessed via oral motor examination, case history questionnaires, and observation. Participants' Activities and Participation as well as Environmental and Personal Factors were examined through case history questionnaires, interviews with significant others, parent report measures, and observations. Results Valuable insights can be gained from undertaking holistic speech-language pathology assessments with children with CP±L. Using multiple tools allowed for triangulation of data and privileging different viewpoints, to better understand the children and their contexts. Several children demonstrated speech error patterns outside of what are considered cleft speech characteristics, which underscores the importance of a broader assessment. Conclusion Speech-language pathologists can consider incorporating evaluation of all components and contextual factors of the ICF-CY when assessing and working with young children with CP±L to inform intervention and management practices.

2020 ◽  
Author(s):  
Artur Lorens ◽  
Griet Mertens ◽  
Anja Kurz

Abstract Background: There is a need for a more holistic approach to treating hearing impairment, as it affects many aspects of a person’s life, not just their hearing. This article describes how The International Classification of Functioning, Disability and Health (ICF), particularly the ICF core sets for hearing loss, can be used to plan and evaluate the audiological (re)habilitation of cochlear implant (CI) recipients. Using the ICF core sets should help clinicians better address not only hearing impairment but also its consequences.Methods: The opinions of experts were gathered on their clinical experience about the most relevant ICF categories and codes to describe audiological rehabilitation after cochlear implantation. For the relevant ICF categories, the most commonly used audiological assessment tools and methods were identified.Results: The most relevant codes for Body Functions and Structures, Activity, and Participation were identified. These include: structure of the inner ear (s260), auditory nerve (s260), brainstem (s1105), midbrain (s1101), diencephalon (s1102), and cortical lobe (s110); sound detection (b2300); sound discrimination (b2301); localization of sound source (b2302); lateralization of sound (b2303); speech discrimination (b2304); listening (d115); communicating with – receiving – spoken messages (d310); handling stress and other psychological demands (d240); using communication devices and techniques (d360); conversation (d350); family relationships (d760); school education (d820); remunerative employment (d850); and community life (d910). The appropriate questionnaires as an assessment tools were proposed.Conclusions: Using the ICF can help target the holistic (re)habilitation of CI recipients and reduce hearing loss-induced deficits in function, activity, and participation.


Autism ◽  
2021 ◽  
pp. 136236132110368
Author(s):  
Emily D’Arcy ◽  
Kerry Wallace ◽  
Angela Chamberlain ◽  
Kiah Evans ◽  
Benjamin Milbourn ◽  
...  

Content validity describes the extent to which a measure represents, and is relevant to, the construct it aims to assess. The International Classification of Functioning, Disability and Health and derived Core/Code Sets (Sets) for autism, attention deficit-hyperactivity disorder, cerebral palsy and early developmental delay and disability are adequate to establish the content validity of measures aiming to assess functioning in young children with neurodevelopmental conditions (NDCs). This article aimed to assess the content validity of comprehensive assessments of functioning for young children with NDCs against these standards. Twenty-two common measures of functioning were evaluated for content validity against the International Classification of Functioning, Disability and Health at a domain level, with 10 measures analysed at the item-level and compared to the Sets relevant to young children with NDCs. Measures covered between 21% and 57% of the combined Set codes and 19% to 63% of codes from specific Sets. Much of this variation was between measures, with some variation due to differences between individual Sets. The percentages reflect that measures heavily focus on activities and participation areas, with environmental factors rarely assessed. These findings are useful for clinicians, policymakers, and researchers in identifying the most appropriate measures for assessing functioning in young children with neurodevelopmental conditions. Lay abstract Young children who have developmental delay, autism, or other neurodevelopmental conditions can have difficulties doing things in different areas of their life. What they can and cannot do is called their level of functioning. There are lots of assessment measures that aim to assess functioning. But, we are not sure if these measures assess all the things we need to know about these children’s functioning. Other research has identified lists of items (codes) that need to be assessed to understand functioning for young children with different neurodevelopmental conditions fully. These lists include body functions (the things a child’s body or brain can do), activities and participation (the activities and tasks a child does) and environmental factors (parts of the environment that can influence functioning). In this study, we looked at the items from these lists assessed by different functioning measures to see how they compared to what should be assessed. The measures that we looked at covered 21%–57% of all the codes and 19%–63% of the codes for lists specific to different conditions. Most of the measures focused on activity and participation codes, and they rarely assessed environmental factors. Knowing which codes and how much of the lists the measures assess can help researchers, clinicians and policymakers to choose measures that are more appropriate for young children with neurodevelopmental conditions.


2019 ◽  
Vol 25 (2) ◽  
pp. 122-137
Author(s):  
Deirdre O’Sullivan ◽  
Antoinette Cambria ◽  
Yi Xiao ◽  
Hsiao-Ying Vicki Chang

AbstractThe WHO’s (2001) International Classification of Functioning, Disability, and Health (ICF) model conceptualizes health from an ecological perspective. It has been implemented by many professionals as the standard health classification framework that guides providers’ decisions regarding assessment tools and targeted interventions. Despite this model’s prevalence among many healthcare providers, the ICF framework remains largely underutilized by many in the counseling fields. This conceptual paper provides an overview of the strengths of the ICF model and ICF-based measurements, and demonstrates its clinical, research, and educational value. A case study is presented to guide counselors and counselor educators through application of the ICF model in various contexts to encourage expanded use of the model. Use of the ICF model among counseling professionals, educators, and researchers is recommended as one way to enhance measurement of clinical outcomes.


Author(s):  
Felipe Heylan Nogueira de Souza ◽  
Edson Meneses da Silva Filho ◽  
Leandro Gonçalves Cezarino ◽  
Egmar Longo Araújo de Melo ◽  
Ênio Walker Azevedo Cacho

Introduction: Stroke is considered one of the leading causes of long-term disability worldwide. Physical, cognitive and psychological disabilities resulting from stroke can lead to a wide variety of activity limitations and participations restrictions. Objective: To verify the incidence of articles in the literature that used physiotherapy programs aimed at social participation and to analyze if these programs are based on domains of the International Classification of Functioning Disability and Health (ICF) in post-stroke people. Method: It was selected any type of study that presented post-stroke human sample over 18 years of age with no gender restriction, to be written in any language and year of publication, to have used physical rehabilitation as a form of treatment and social participation assessed by ICF as outcome. The descriptors and Boolean operators: stroke, rehabilitation, International Classification of Functioning Disability and Health, social participation, were used in the sample search strategy in database PEDro, PubMed, Web of Science and Scielo. Results: After applying the inclusion/exclusion criteria, five articles remaining. Assessment tools for participation in daily and social activities were not consensual in the range of areas that needed to be addressed in stroke rehabilitation. A single study used the ICF-based design model in its program. Conclusion: There are few studies that have measured the various characteristics of social participation using the ICF as a tool. More studies are needed to create an ideal standardization and strategy that direct interventions to improve specific aspects of social participation, including the involvement in activities that provide post-stroke individuals interaction with society.


2015 ◽  
Vol 27 (6) ◽  
pp. 1665-1670 ◽  
Author(s):  
Soraia Micaela Silva ◽  
Fernanda Ishida Corrêa ◽  
Christina Danielli Coelho de Morais Faria ◽  
Cássia Maria Buchalla ◽  
Paula Fernanda da Costa Silva ◽  
...  

2020 ◽  
Vol 57 (9) ◽  
pp. 1105-1116 ◽  
Author(s):  
Anna Cronin ◽  
Sharynne McLeod ◽  
Sarah Verdon

Objective: To evaluate how the practice of specialist speech-language pathologists (SLPs) working with young children with cleft palate ± cleft lip (CP±L) maps onto the International Classification of Functioning, Disability, and Health – Children and Youth version (ICF-CY) and consider the functionality of the categories of the ICF-CY for this specialist area of practice. Design: Cross-sectional, qualitative study. Setting: Semistructured face-to-face interviews were conducted with SLPs working in tertiary-level hospitals, universities, and public clinics. Participants: Six specialist SLPs with 17 to 39 years of experience working with young children with CP±L as researchers and clinicians in Australia, Brazil, Denmark, Ireland, New Zealand, and the United States. Main Outcome Measure(s): Specialists’ practices were captured using in-depth, semistructured interviews. Data collected were analyzed by directed content analysis applying the ICF-CY as a coding schema. Results: In total, 4077 data points were coded. Most mapped onto Body Structures (684, 16.8%), Body Functions (906, 22.2%), and Environmental Factors (1626, 39.9%) with less emphasis on Activities and Participation (560, 13.7%). A “best fit” approach was taken to topics that did not map exactly onto categories of the ICF-CY (eg, velopharyngeal insufficiency [VPI]); however, there was not always an ideally suitable category available. Conclusions: The current study revealed strengths and challenges in categorizing practice within the ICF-CY for children with CP±L, including collaboration with parents and significant others, specificity around speech, language, and articulation, and the different types of VPI. Therefore, future discussion around how best to use the framework with children with CP±L is needed.


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