scholarly journals The Safe and Effective Use of Shared Data Underpinned by Stakeholder Engagement and Evaluation Practice

2018 ◽  
Vol 27 (01) ◽  
pp. 025-028
Author(s):  
Andrew Georgiou ◽  
Farah Magrabi ◽  
Hannele Hyppönen ◽  
Zoie Wong ◽  
Pirkko Nykänen ◽  
...  
Keyword(s):  
Health Care ◽  
Medical Informatics ◽  
Stakeholder Engagement ◽  
Working Group ◽  
Large Scale ◽  
European Federation ◽  
Data Governance ◽  
Privacy And Security ◽  
Shared Data ◽  
Collaborative Models

Objectives: The paper draws attention to: i) key considerations involving the confidentiality, privacy, and security of shared data; and ii) the requirements needed to build collaborative arrangements encompassing all stakeholders with the goal of ensuring safe, secure, and quality use of shared data. Method: A narrative review of existing research and policy approaches along with expert perspectives drawn from the International Medical Informatics Association (IMIA) Working Group on Technology Assessment and Quality Development in Health Care and the European Federation for Medical Informatics (EFMI) Working Group for Assessment of Health Information Systems. Results: The technological ability to merge, link, re-use, and exchange data has outpaced the establishment of policies, procedures, and processes to monitor the ethics and legality of shared use of data. Questions remain about how to guarantee the security of shared data, and how to establish and maintain public trust across large-scale shared data enterprises. This paper identifies the importance of data governance frameworks (incorporating engagement with all stakeholders) to underpin the management of the ethics and legality of shared data use. The paper also provides some key considerations for the establishment of national approaches and measures to monitor compliance with best practice. Conclusion: Data sharing endeavours can help to underpin new collaborative models of health care which provide shared information, engagement, and accountability amongst all stakeholders. We believe that commitment to rigorous evaluation and stakeholder engagement will be critical to delivering health data benefits and the establishment of collaborative models of health care into the future.

scholarly journals Section 2: Patient Records: The Computerized Patient Record: Where Do We Stand?

2006 ◽  
Vol 15 (01) ◽  
pp. 29-39 ◽  
Author(s):  
P. Knaup ◽  
D. Schmidt ◽  
M. W. M. Jaspers
Keyword(s):  
Health Care ◽  
Medical Informatics ◽  
Evaluation Studies ◽  
Data Entry ◽  
Clinical Work ◽  
Patient Record ◽  
Support Functions ◽  
Privacy And Security ◽  
Computerized Patient Record ◽  
The Impact

SummaryTo provide an overview of trends in research, developments and implementations of the computerized patient record (CPR) of the last two years.We surveyed the medical informatics literature, spanning the years 2004-2005, focusing on publications on CPRs.The main trends revealed were: 1) the development of technologies to realize privacy and security goals or remote data entry and access to CPRs; 2) investigations into how to enhance the quality and reuse of CPR data; 3) the development and evaluation of decision support functions to be integrated with CPRs; 4) evaluations of the impact of CPRs on clinicians, patients, clinical work settings and patient outcomes; and 5) the further development and use of standards to move towards shared electronic health records (EHRs).The CPR is playing a growing part in medical informatics research and evaluation studies, but the goal of establishing a comprehensive lifelong EHR is still a long way off. In moving forward to EHRs, convergence of EHR standards seems required to realize true interoperability of health care applications. User acceptance of present-day CPRs (for all categories of users) and compatibility with work patterns has not been achieved yet, and can only be realized by giving these goals high priority. This will require substantial resources for in-depth work flow analysis, development and evaluation of CPRs. Besides this, the implementation of effective CPRs asks for health care organizations that are willing to invest in new developments and to contribute to evaluation studies, to further improve CPRs’ functionalities and enhance their use in practice.Haux R, Kulikowski C, editors. IMIA Yearbook of Medical Informatics 2006.

Recommendations of the International Medical Informatics Association (IMIA) on Education in Biomedical and Health Informatics

2010 ◽  
Vol 49 (02) ◽  
pp. 105-120 ◽  
Author(s):  
E. Ammenwerth ◽  
G. Demiris ◽  
A. Hasman ◽  
R. Haux ◽  
W. Hersh ◽  
...  
Keyword(s):  
Health Care ◽  
Medical Informatics ◽  
Health Care Professionals ◽  
Information Exchange ◽  
Health Informatics ◽  
Working Group ◽  
Task Force ◽  
Three Dimensional ◽  
Educational Needs ◽  
International Medical

Summary Objective: The International Medical Informatics Association (IMIA) agreed on revising the existing international recommendations in health informatics /medical informatics education. These should help to establish courses, course tracks or even complete programs in this field, to further develop existing educational activities in the various nations and to support international initiatives concerning education in biomedical and health informatics (BMHI), particularly international activities in educating BMHI specialists and the sharing of courseware. Method: An IMIA task force, nominated in 2006, worked on updating the recommendations’ first version. These updates have been broadly discussed and refined by members of IMIA’s National Member Societies, IMIA’s Academic Institutional Members and by members of IMIA’s Working Group on Health and Medical Informatics Education. Results and Conclusions: The IMIA recommendations center on educational needs for health care professionals to acquire knowledge and skills in information processing and information and communication technology. The educational needs are described as a three-dimensional framework. The dimensions are: 1) professionals in health care (e.g. physicians, nurses, BMHI professionals), 2) type of specialization in BMHI (IT users, BMHI specialists), and 3) stage of career progression (bachelor, master, doctorate). Learning outcomes are defined in terms of knowledge and practical skills for health care professionals in their role a) as IT user and b) as BMHI specialist. Recommendations are given for courses /course tracks in BMHI as part of educational programs in medicine, nursing, health care management, dentistry, pharmacy, public health, health record administration, and informatics /computer science as well as for dedicated programs in BMHI (with bachelor, master or doctor degree).To support education in BMHI, IMIA offers to award a certificate for high-quality BMHI education. It supports information exchange on programs and courses in BMHI through its Working Group on Health and Medical Informatics Education.

scholarly journals Managing Pandemic Responses with Health Informatics – Challenges for Assessing Digital Health Technologies

2021 ◽  
Author(s):  
Farah Magrabi ◽  
Elske Ammenwerth ◽  
Catherine K. Craven ◽  
Kathrin Cresswell ◽  
Nicolet F. De Keizer ◽  
...  
Keyword(s):  
Complex Systems ◽  
Medical Informatics ◽  
Technology Assessment ◽  
Health Informatics ◽  
Working Group ◽  
Value Of Information ◽  
New Technologies ◽  
Digital Health ◽  
European Federation ◽  
Health Technologies

Objectives: To highlight the role of technology assessment in the management of the COVID-19 pandemic. Method: An overview of existing research and evaluation approaches along with expert perspectives drawn from the International Medical Informatics Association (IMIA) Working Group on Technology Assessment and Quality Development in Health Informatics and the European Federation for Medical Informatics (EFMI) Working Group for Assessment of Health Information Systems. Results: Evaluation of digital health technologies for COVID-19 should be based on their technical maturity as well as the scale of implementation. For mature technologies like telehealth whose efficacy has been previously demonstrated, pragmatic, rapid evaluation using the complex systems paradigm which accounts for multiple sociotechnical factors, might be more suitable to examine their effectiveness and emerging safety concerns in new settings. New technologies, particularly those intended for use on a large scale such as digital contract tracing, will require assessment of their usability as well as performance prior to deployment, after which evaluation should shift to using a complex systems paradigm to examine the value of information provided. The success of a digital health technology is dependent on the value of information it provides relative to the sociotechnical context of the setting where it is implemented. Conclusion: Commitment to evaluation using the evidence-based medicine and complex systems paradigms will be critical to ensuring safe and effective use of digital health technologies for COVID-19 and future pandemics. There is an inherent tension between evaluation and the imperative to urgently deploy solutions that needs to be negotiated.

scholarly journals eHealth in Europe – Status and Challenges

2013 ◽  
Vol 22 (01) ◽  
pp. 59-63 ◽  
Author(s):  
W. O. Hackl ◽  
J. Hofdijk ◽  
L. Van Gemert-Pijnen ◽  
E. Ammenwerth ◽  
P. Nykänen ◽  
...  
Keyword(s):  
Health Care ◽  
Organizational Change ◽  
Health System ◽  
Medical Informatics ◽  
European Federation ◽  
Technological Infrastructure ◽  
Further Development

Summary Objectives: To present European reflections on the concept of eHealth and emerging challenges related to further development of eHealth in Europe. Methods: A survey with 10 questions was distributed to representatives of the national member associations of the European Federation of Medical Informatics (EFMI). Results: The results document a shift from a constricting ICT-orientation to development of the entire health system where eHealth strategies, organizational change, and appropriate technological infrastructure are singled out as important aspects. Conclusion: There are urgent needs to ensure that eHealth strategies and policies for further design and deployment of eHealth applications support sociable services and innovations in health care.

scholarly journals Ethics Certification of Health Information Professionals

2018 ◽  
Vol 27 (01) ◽  
pp. 037-040 ◽  
Author(s):  
Eike-Henner Kluge ◽  
Paulette Lacroix ◽  
Pekka Ruotsalainen
Keyword(s):  
Health Care ◽  
Information Systems ◽  
Health Information ◽  
Working Group ◽  
Ethical Issues ◽  
Care Delivery ◽  
Health Data ◽  
Sensitive Information ◽  
Security Issue ◽  
Privacy And Security

Objectives: To provide a model for ensuring the ethical acceptability of the provisions that characterize the interjurisdictional use of eHealth, telemedicine, and associated modalities of health care delivery that are currently in place. Methods: Following the approach initiated in their Global Protection of Health Data project within the Security in Health Information Systems (SiHIS) working group of the International Medical Informatics Association (IMIA), the authors analyze and evaluate relevant privacy and security approaches that are intended to stem the erosion of patients' trustworthiness in the handling of their sensitive information by health care and informatics professionals in the international context. Results: The authors found that while the majority of guidelines and ethical codes essentially focus on the role and functioning of the institutions that use EHRs and information technologies, little if any attention has been paid to the qualifications of the health informatics professionals (HIPs) who actualize and operate information systems to deal with or address relevant ethical issues. Conclusion: The apparent failure to address this matter indicates that the ethical qualification of HIPs remains an important security issue and that the Global Protection of Health Data project initiated by the SiHIS working group in 2015 should be expanded to develop into an internationally viable method of certification. An initial model to this effect is sketched and discussed.

scholarly journals Building a Privacy, Ethics, and Data Access Framework for Real World Computerised Medical Record System Data: A Delphi Study

2016 ◽  
Vol 25 (01) ◽  
pp. 138-145 ◽  
Author(s):  
H. Liyanage ◽  
S.-T. Liaw ◽  
C. T. Di Iorio ◽  
C. Kuziemsky ◽  
R. Schreiber ◽  
...  
Keyword(s):  
Health Care ◽  
Medical Informatics ◽  
Health Research ◽  
Delphi Study ◽  
Data Access ◽  
Integrated Approach ◽  
Ethical Principles ◽  
European Federation ◽  
Delphi Consensus ◽  
Record System

Summary Background: Privacy, ethics, and data access issues pose significant challenges to the timely delivery of health research. Whilst the fundamental drivers to ensure that data access is ethical and satisfies privacy requirements are similar, they are often dealt with in varying ways by different approval processes. Objective: To achieve a consensus across an international panel of health care and informatics professionals on an integrated set of privacy and ethics principles that could accelerate health data access in data-driven health research projects. Method: A three-round consensus development process was used. In round one, we developed a baseline framework for privacy, ethics, and data access based on a review of existing literature in the health, informatics, and policy domains. This was further developed using a two-round Delphi consensus building process involving 20 experts who were members of the International Medical Informatics Association (IMIA) and European Federation of Medical Informatics (EFMI) Primary Health Care Informatics Working Groups. To achieve consensus we required an extended Delphi process. Results: The first round involved feedback on and development of the baseline framework. This consisted of four components: (1) ethical principles, (2) ethical guidance questions, (3) privacy and data access principles, and (4) privacy and data access guidance questions. Round two developed consensus in key areas of the revised framework, allowing the building of a newly, more detailed and descriptive framework. In the final round panel experts expressed their opinions, either as agreements or disagreements, on the ethics and privacy statements of the framework finding some of the previous round disagreements to be surprising in view of established ethical principles. Conclusion: This study develops a framework for an integrated approach to ethics and privacy. Privacy breech risk should not be considered in isolation but instead balanced by potential ethical benefit.

Health Informatics: Handle with Caution

1997 ◽  
Vol 36 (02) ◽  
pp. 79-81
Author(s):  
V. Leroy ◽  
S. Maurice-Tison ◽  
B. Le Blanc ◽  
R. Salamon
Keyword(s):  
Health Care ◽  
Data Management ◽  
Medical Informatics ◽  
Health Care Professionals ◽  
Data Security ◽  
Health Informatics ◽  
The Other ◽  
Inappropriate Use

Abstract:The increased use of computers is a response to the considerable growth in information in all fields of activities. Related to this, in the field of medicine a new component appeared about 40 years ago: Medical Informatics. Its goals are to assist health care professionals in the choice of data to manage and in the choice of applications of such data. These possibilities for data management must be well understood and, related to this, two major dangers must be emphasized. One concerns data security, and the other concerns the processing of these data. This paper discusses these items and warns of the inappropriate use of medical informatics.

Health and Medical Informatics Education

1994 ◽  
Vol 33 (03) ◽  
pp. 246-249 ◽  
Author(s):  
R. Haux ◽  
F. J. Leven ◽  
J. R. Moehr ◽  
D. J. Protti
Keyword(s):  
Health Care ◽  
Health Information ◽  
Medical Informatics ◽  
Health Informatics ◽  
Information Science ◽  
Management Program ◽  
Science Program ◽  
Special Issue ◽  
Academic Degree ◽  
The University

Abstract:Health and medical informatics education has meanwhile gained considerable importance for medicine and for health care. Specialized programs in health/medical informatics have therefore been established within the last decades.This special issue of Methods of Information in Medicine contains papers on health and medical informatics education. It is mainly based on selected papers from the 5th Working Conference on Health/Medical Informatics Education of the International Medical Informatics Association (IMIA), which was held in September 1992 at the University of Heidelberg/Technical School Heilbronn, Germany, as part of the 20 years’ celebration of medical informatics education at Heidelberg/Heilbronn. Some papers were presented on the occasion of the 10th anniversary of the health information science program of the School of Health Information Science at the University of Victoria, British Columbia, Canada. Within this issue, programs in health/medical informatics are presented and analyzed: the medical informatics program at the University of Utah, the medical informatics program of the University of Heidelberg/School of Technology Heilbronn, the health information science program at the University of Victoria, the health informatics program at the University of Minnesota, the health informatics management program at the University of Manchester, and the health information management program at the University of Alabama. They all have in common that they are dedicated curricula in health/medical informatics which are university-based, leading to an academic degree in this field. In addition, views and recommendations for health/medical informatics education are presented. Finally, the question is discussed, whether health and medical informatics can be regarded as a separate discipline with the necessity for specialized curricula in this field.In accordance with the aims of IMIA, the intention of this special issue is to promote the further development of health and medical informatics education in order to contribute to high quality health care and medical research.

The medical informatics in health care of Russia

2018 ◽  
Vol 26 (6) ◽  
Author(s):  
Zarubina T. V. ◽  
◽  
Kobrinsky B. A. ◽  
Kudrina V. G. ◽  
◽  
...  
Keyword(s):  
Health Care ◽  
Medical Informatics
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