scholarly journals German tariffs for the ICECAP-Supportive Care Measure (ICECAP-SCM) for use in economic evaluations at the end of life

2021 ◽  
Author(s):  
J Dams ◽  
J Stein ◽  
SG Riedel-Heller ◽  
C Brettschneider ◽  
HH König
Keyword(s):  
Supportive Care ◽  
End Of Life ◽  
Economic Evaluations ◽  
Care Measure

scholarly journals Valuing end-of-life care: translation and content validation of the ICECAP-SCM measure

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Uta Gühne ◽  
Marie Dorow ◽  
Jessica Grothe ◽  
Janine Stein ◽  
Margrit Löbner ◽  
...  
Keyword(s):  
Supportive Care ◽  
End Of Life ◽  
Content Validity ◽  
End Of Life Care ◽  
Economic Evaluations ◽  
Life Care ◽  
Content Validation ◽  
The Uk ◽  
Care Measure

Abstract Background The evaluation of care strategies at the end of life is particularly important due to the globally increasing proportion of very old people in need of care. The ICECAP-Supportive Care Measure is a self-complete questionnaire developed in the UK to evaluate palliative and supportive care by measuring patient’s wellbeing in terms of ‘capability’. It is a new measure with high potential for broad and international use. The aims of this study were the translation of the ICECAP-Supportive Care Measure from English into German and the content validation of this version. Methods A multi-step and team-based translation process based on the TRAPD model was performed. An expert survey was carried out to assess content validity. The expert panel (n = 20) consisted of four expert groups: representative seniors aged 65+, patients aged 65+ living in residential care, patients aged 65+ receiving end-of-life care, and professionals in end-of-life care. Results The German version of the ICECAP-Supportive Care Measure showed an excellent content validity on both item- and scale-level. In addition, a high agreement regarding the length of the single items and the total length of the questionnaire as well as the number of answer categories was reached. Conclusions The German ICECAP-SCM is a valid tool to assess the quality of life at the end of life that is suitable for use in different settings. The questionnaire may be utilized in multinational clinical and economic evaluations of end-of-life care.

scholarly journals Hospice patients’ participation in choice experiments to value supportive care outcomes

2018 ◽  
pp. bmjspcare-2018-001582
Author(s):  
Cara Bailey ◽  
Philip Kinghorn ◽  
Alistair Hewison ◽  
Christina Radcliffe ◽  
Terry Nicholas Flynn ◽  
...  
Keyword(s):  
Economic Evaluation ◽  
Supportive Care ◽  
End Of Life ◽  
Thematic Analysis ◽  
Task Difficulty ◽  
Qualitative Data ◽  
Best Worst Scaling ◽  
Hospice Patients ◽  
Care Outcomes ◽  
Care Measure

BackgroundValues used in economic evaluation are typically obtained from the general public, which is problematic when measures are to be used with people experiencing a life-course stage such as the end of life.ObjectiveTo assess the feasibility of obtaining values for the ICECAP-Supportive Care Measure (SCM) from patients receiving advanced supportive care through a hospice.MethodsParticipants completed eight best-worst scaling questions in a think-aloud interview to explain choices in different hypothetical end-of-life scenarios. Three independent raters identified errors in completion of the best-worst scaling task, and thematic analysis of associated qualitative data was undertaken to explore task difficulty and choices.ResultsTwelve hospice patients were recruited. Most were able to complete the task and prioritise aspects of supportive care with either no difficulty (n=50%) or difficulty in just one of the eight scenarios (n=25%). Two patients (n=17%) were unable to comprehend the hypothetical nature of the task. The qualitative data confirmed there was good engagement with the task and identified the importance the respondents attached to maintaining dignity.ConclusionThe findings suggest that people at the end of life will be able to complete a short, interviewer-administered, best-worst scaling task. To maximise engagement, it is recommended that the task is short and initiated with an example. Scenarios are best presented on show-cards in large print. A full evaluation of the ICECAP-SCM with those at the end of life is feasible.

scholarly journals Values for the ICECAP-Supportive Care Measure (ICECAP-SCM) for use in economic evaluation at end of life

2017 ◽  
Vol 189 ◽  
pp. 114-128 ◽  
Author(s):  
Elisabeth Huynh ◽  
Joanna Coast ◽  
John Rose ◽  
Philip Kinghorn ◽  
Terry Flynn
Keyword(s):  
Economic Evaluation ◽  
Supportive Care ◽  
End Of Life ◽  
Care Measure

Long COVID and breathlessness: an overview

2021 ◽  
Vol 26 (9) ◽  
pp. 438-443
Author(s):  
Patricia Robinson
Keyword(s):  
Supportive Care ◽  
End Of Life ◽  
Respiratory Symptoms ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Underlying Pathophysiology

This article offers a review of what is known so far about post-acute covid-19 and the underlying pathophysiology related to this condition. The main focus will be on the respiratory symptoms. It will then explore how community nurses can monitor and support patients with symptoms of breathlessness with a supporting discussion of the current recommendations for the management and treatment of patients presenting with symptoms of breathlessness. Palliation of symptoms will be highlighted but managing the supportive care needs for patients affected by COVID-19 and nearing the end of life is outside the scope of this article.

Coordination of Care and Care Transitions With Primary Care Clinicians, Specialty Palliative Care, and Hospice

2020 ◽  
pp. 211-219
Author(s):  
Areeba Jawed ◽  
Joseph D. Rotella
Keyword(s):  
Primary Care ◽  
Chronic Kidney Disease ◽  
Palliative Care ◽  
Kidney Disease ◽  
Supportive Care ◽  
End Of Life ◽  
Care Coordination ◽  
Care Transitions ◽  
Healthcare Teams ◽  
Primary Care Clinicians

Patients with chronic kidney disease typically have needs that cut across a range of services, including nephrology, other specialties, primary care, and palliative care. This chapter proposes a model of integrated supportive care from diagnosis to end of life that coordinates the efforts and maximizes the benefits of different healthcare teams. Supportive care teams can learn primary kidney supportive care skills to manage symptoms, provide emotional support, and facilitate conversations that focus on what matters most to patients and families. Applying best practices of care coordination, they can facilitate seamless transitions as the patient’s condition evolves.

The Supportive Care Plan: a tool to improve communication in end-of-life care

2009 ◽  
Vol 15 (5) ◽  
pp. 250-255 ◽  
Author(s):  
Jane Thompson-Hill ◽  
Claire Hookey ◽  
Emily Salt ◽  
Trish O’Neill
Keyword(s):  
Supportive Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Care Plan ◽  
Life Care

Palliative and Supportive Care: Introducing a new international journal; The “Care” Journal of Palliative Medicine

2003 ◽  
Vol 1 (1) ◽  
pp. 1-2 ◽  
Author(s):  
William Breitbart
Keyword(s):  
Palliative Care ◽  
Supportive Care ◽  
End Of Life ◽  
Palliative Medicine ◽  
Continuum Of Care ◽  
Educational Resource ◽  
Delivery Of Care ◽  
Life Threatening

We are extremely proud and gratified to present the inaugural issue of our new international palliative care journal, Palliative & Supportive Care (P&SC). P&SC is the first international journal of palliative medicine that focuses on the psychiatric, psychosocial, spiritual, existential, ethical, philosophical, and humanities aspects of palliative care. The journal's aim is to serve as an educational resource for practitioners from a wide array of disciplines engaged in the delivery of care to those with life-threatening illnesses along the entire continuum of care, from diagnosis to the end of life. The journal also seeks to both stimulate and provide a forum for research in the psychiatric, psychosocial, and spiritual components of palliative care.

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