scholarly journals A review of the instruments used to assess the quality of life of adult patients with chronic intestinal failure receiving parenteral nutrition at home

2005 ◽  
Vol 94 (5) ◽  
pp. 633-638 ◽  
Author(s):  
Janet P. Baxter ◽  
Peter M. Fayers ◽  
Alastair W. McKinlay
Keyword(s):  
Quality Of Life ◽  
Parenteral Nutrition ◽  
Daily Life ◽  
Intestinal Failure ◽  
Home Parenteral Nutrition ◽  
Established Method ◽  
Validated Questionnaires ◽  
Formal Tool ◽  
Life Impact

Home parenteral nutrition is an established method of supporting patients with intestinal failure, but this treatment may be life long and imposes severe restrictions on daily life. Impact on quality of life is an important outcome when considering the management of home parenteral nutrition patients. This paper reviews studies in which the quality of life of patients receiving home parenteral nutrition has been assessed. A systematic search of electronic databases and relevant publications was undertaken to identify generic or treatment-specific questionnaires used with home parenteral nutrition patients. Many of the thirty-four reports discovered were small studies. Nineteen used non-specific generic instruments, eight used non-validated questionnaires, four used a combination of both, and three did not use any formal tool. Few systematic patterns emerged. There are few available data on the quality of life of home parenteral nutrition patients, and there is a need for standardised, scientifically validated, treatment-specific instruments to measure quality of life in this population.

Home parenteral nutrition in neuroendocrine tumour intestinal failure: improved quality of life and longevity

2020 ◽  
pp. bmjspcare-2020-002562
Author(s):  
Vandana M Sagar ◽  
Tahir Shah ◽  
Hardip Malhi ◽  
Sharmalie Parkinson ◽  
Shishir Shetty ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Parenteral Nutrition ◽  
Neuroendocrine Tumour ◽  
Intestinal Failure ◽  
Case Series ◽  
Home Parenteral Nutrition ◽  
Hydration Status ◽  
Term Survival ◽  
Gastrointestinal Complications

BackgroundNeuroendocrine tumours (NETs) are neoplastic yet behave differently to typical cancers. Despite often being slow growing, they can lead to significant gastrointestinal complications including intestinal failure (IF). The use of home parenteral nutrition (HPN) in neoplastic conditions is rising, primarily for palliation and bridging through treatments for cancer, but remains a challenging decision with a paucity of high-grade evidence-based guidance.MethodsA retrospective analysis of patients with NET on HPN was performed. Data collected included the cause of IF, complications encountered with HPN and changes in nutritional assessments.ResultsEight patients were identified, all with metastatic NET. Median weight improved following HPN commencement and line sepsis was the sole complication. All patients had stabilisation and optimisation of nutritional and hydration status.ConclusionsHPN is commenced to improve or maintain patients’ nutritional status during often lifelong treatment. The principle aim in providing HPN was to improve survival and quality of life. While NETs are cancers, our case series demonstrates the potential of HPN to actively support longer term survival in the subgroup of patients who develop IF.

scholarly journals Nutritional Status and Quality of Life in Hospitalised Cancer Patients Who Develop Intestinal Failure and Require Parenteral Nutrition: An Observational Study

Nutrients ◽  
2020 ◽  
Vol 12 (8) ◽  
pp. 2357
Author(s):  
Marina Plyta ◽  
Pinal S. Patel ◽  
Konstantinos C. Fragkos ◽  
Tomoko Kumagai ◽  
Shameer Mehta ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Observational Study ◽  
Nutritional Status ◽  
Parenteral Nutrition ◽  
Cancer Patients ◽  
Screening Tool ◽  
Intestinal Failure ◽  
Normal Body Mass Index ◽  
The Impact

(1) Background: Malnutrition in cancer patients impacts quality of life (QoL) and performance status (PS). When oral/enteral nutrition is not possible and patients develop intestinal failure, parenteral nutrition (PN) is indicated. Our aim was to assess nutritional status, QoL, and PS in hospitalised cancer patients recently initiated on PN for intestinal failure. (2) Methods: The design was a cross-sectional observational study. The following information was captured: demographic, anthropometric, biochemical and medical information, as well as nutritional screening tool (NST), patient-generated subjective global assessment (PG-SGA), functional assessment of cancer therapy-general (FACT-G), and Karnofsky PS (KPS) data. (3) Results: Among 85 PN referrals, 30 oncology patients (56.2 years, 56.7% male) were identified. Mean weight (60.3 ± 16.6 kg) corresponded to normal body mass index values (21.0 ± 5.1 kg/m2). However, weight loss was significant in patients with gastrointestinal tumours (p < 0.01). A high malnutrition risk was present in 53.3–56.7% of patients, depending on the screening tool. Patients had impaired QoL (FACT-G: 26.6 ± 9.8) but PS indicated above average capability with independent daily activities (KPS: 60 ± 10). (4) Conclusions: Future research should assess the impact of impaired NS and QoL on clinical outcomes such as survival, with a view to encompassing nutritional and QoL assessment in the management pathway of this patient group.

scholarly journals How good is quality-of-life for children receiving home parenteral nutrition? – A pilot study

2019 ◽  
Vol 29 ◽  
pp. 119-124 ◽  
Author(s):  
Léa Chantal Tran ◽  
Gill Lazonby ◽  
Remy Morello ◽  
Dominique Pham ◽  
Donna Ellis ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Parenteral Nutrition ◽  
Home Parenteral Nutrition

An Exploration of Quality of Life and the Experience of Living With Home Parenteral Nutrition

2010 ◽  
Vol 34 (4) ◽  
pp. 395-407 ◽  
Author(s):  
Marion F. Winkler ◽  
Elizabeth Hagan ◽  
Terri Wetle ◽  
Carol Smith ◽  
Julie O’Sullivan Maillet ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Parenteral Nutrition ◽  
Home Parenteral Nutrition
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