Looking beyond the optimism surrounding new treatments: Issues for HIV service providers and people living with HIV

1999 ◽  
Vol 52 (3) ◽  
pp. 31-36 ◽  
Author(s):  
Andrew Lowth ◽  
Sarah Yallop ◽  
Jeff Reid ◽  
Maureen Fitzgerald
Keyword(s):  
Service Providers ◽  
People Living With Hiv ◽  
Hiv Service Providers ◽  
New Treatments ◽  
Living With Hiv

Differences in perceptions on sexual and reproductive health between service providers and people living with HIV: A qualitative elicitation study

2008 ◽  
Vol 13 (5) ◽  
pp. 516-528 ◽  
Author(s):  
Christiana Maria Nöstlinger ◽  
Victoria Gordillo ◽  
Ruth Borms ◽  
Cynthia Murphy ◽  
Johannes Bogner ◽  
...  
Keyword(s):  
Reproductive Health ◽  
Sexual And Reproductive Health ◽  
Service Providers ◽  
People Living With Hiv ◽  
Elicitation Study ◽  
Living With Hiv

scholarly journals Strategies Employed by Community-Based Service Providers to Address HIV-Associated Neurocognitive Challenges: A Qualitative Study

2019 ◽  
Vol 18 ◽  
pp. 232595821882233
Author(s):  
Renato M. Liboro ◽  
Sean B. Rourke ◽  
Francisco Ibañez-Carrasco ◽  
Andrew Eaton ◽  
Daniel Pugh ◽  
...  
Keyword(s):  
Mental Health ◽  
Social Support ◽  
Support Groups ◽  
Service Providers ◽  
Developed Countries ◽  
Service Organizations ◽  
People Living With Hiv ◽  
Organizational Strategies ◽  
Community Based ◽  
Living With Hiv

Background: HIV-associated neurocognitive disorders and other causes of neurocognitive challenges experienced by people living with HIV (PLWH) persist as public health concerns in developed countries. Consequently, PLWH who experience neurocognitive challenges increasingly require social support and mental health services from community-based providers in the HIV sector. Methods: Thirty-three providers from 22 AIDS service organizations across Ontario, Canada, were interviewed to determine the strategies they used to support PLWH experiencing neurocognitive difficulties. Thematic analysis was conducted to determine key themes from the interview data. Results: Three types of strategies were identified: (a) intrapersonal, (b) interpersonal, and (c) organizational. Intrapersonal strategies involved learning and staying informed about causes of neurocognitive challenges. Interpersonal strategies included providing practical assistance, information, counseling, and/or referrals to PLWH. Organizational strategies included creating dedicated support groups for PLWH experiencing neurocognitive challenges, partnering with other organizations with services not available within their own organization, and advocating for greater access to services with expertise and experience working with PLWH. Conclusion: Through concerted efforts in the future, it is likely that empirically investigating, developing, and customizing these strategies specifically to address HIV-associated neurocognitive challenges will yield improved social support and mental health outcomes for PLWH.

More cautious, more optimistic: Australian people living with HIV/AIDS, 1997–1999

2001 ◽  
Vol 12 (10) ◽  
pp. 670-676 ◽  
Author(s):  
Jeffrey Grierson ◽  
Richard de Visser ◽  
Michael Bartos
Keyword(s):  
Well Being ◽  
Survey Study ◽  
People Living With Hiv ◽  
The Social ◽  
Clinical Profiles ◽  
New Treatments ◽  
Study Participants ◽  
Living With Hiv ◽  
Self Administered Questionnaire ◽  
Hiv Aids

The aim of this study was to assess whether the lives of Australian people living with HIV/AIDS (PLWHA) have improved to the extent hoped for following the introduction of new antiretroviral (ARV) drugs for HIV. In 1997, 925 Australian PLWHA completed the first national survey of the social impacts of HIV/AIDS. In 1999, 924 Australian PLWHA were recruited for a repeat of the survey. Study participants completed an anonymous self-administered questionnaire. The data revealed that although new ARV drugs have improved the clinical profiles of many PLWHA, there have not been corresponding improvements in the physical well-being, levels of employment, or financial circumstances of many PLWHA. Nevertheless, PLWHA express favourable attitudes toward ARV drugs. Australian PLWHA have a complex relationship with their ARV medication that is likely to change over time as their HIV disease progresses and new treatments become available.

A Qualitative Approach to the Mental Health Care Needs of People Living with HIV/AIDS in Victoria

2002 ◽  
Vol 8 (3) ◽  
pp. 30
Author(s):  
Maria Teresa Dawson ◽  
Paul Grech ◽  
Brendan Hyland ◽  
Fiona Judd ◽  
John Lloyd ◽  
...  
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Mental Health Services ◽  
Health Services ◽  
Service Providers ◽  
People Living With Hiv ◽  
Health Care Needs ◽  
Care Needs ◽  
Living With Hiv ◽  
Hiv Aids

This article reports on the findings of the qualitative stage of a larger project on the mental care needs of people with HIV/AIDS and mental illness (Tender T1176 Department of Human Services, Mental Health Branch, Victoria - Research on the Mental Health Care Needs of People with HIV/AIDS and Mental Illness). The purpose of the larger research was to evaluate the needs and treatment requirements of persons with HIV/AIDS, who also suffer from mental health problems, with a view to developing proposals for improving existing service delivery in Victoria, Australia. The qualitative stage was designed to complement and elucidate data obtained through the quantitative stages of the project. Thirty in-depth open-ended interviews were carried out with service providers including HIV physicians, general practitioners, psychiatrists, clinical and managerial staff of Area Mental Health Services, Contact Tracers and forensic mental health services staff, as well as representatives of community groups such as People Living with HIV/AIDS and Positive Women and carers. The interviews explored the perspective of both service providers and users of such services with respect to needs for psychiatric care and service delivery, ease of access or barriers to mental health services, and the perceived strengths and weaknesses in current service provision. This paper presents the main findings and recommendations submitted to the funding body.

The Micro Dynamics of Support Seeking

2013 ◽  
Vol 647 (1) ◽  
pp. 83-101 ◽  
Author(s):  
Celeste Watkins-Hayes
Keyword(s):  
Social Support ◽  
Middle Class ◽  
Low Income ◽  
Service Providers ◽  
Hiv Positive ◽  
People Living With Hiv ◽  
Women Living With Hiv ◽  
Hiv Positive Women ◽  
Living With Hiv ◽  
Hiv Aids

Previous literature suggests that AIDS Service Organizations (ASOs) play an important support role in the lives of impoverished women living with HIV. Less is known about the dynamics of institutional support for middle-class women living with HIV/AIDS, who are assumed to possess a broader base of resources to address their diagnosis. Using qualitative data collected from a racially and economically diverse group of HIV-positive women in Chicago, this article compares how low-income and middle-class women utilize ASOs and reveals how the women’s divergent approaches to availing themselves of institutional resources have important implications for their social and economic coping. For example, associating with ASOs can be status-improving for impoverished women and status-diminishing for middle-class women. As a result, middle-class women report a less robust network of social service providers and people living with HIV/AIDS on whom they rely for HIV-related information and social support, making them vulnerable to HIV-specific social isolation. In sum, the ways that HIV-positive women deploy institutional ties to negotiate their HIV/AIDS status differs markedly depending on socioeconomic status, suggesting that the role of class in gathering social support may be more complex than previously understood.

Changing access to mental health care and social support when people living with HIV/AIDS become service providers

AIDS Care ◽  
2014 ◽  
Vol 27 (2) ◽  
pp. 176-181 ◽  
Author(s):  
Alan Tai-Wai Li ◽  
Joshua Wales ◽  
Josephine Pui-Hing Wong ◽  
Maureen Owino ◽  
Yvette Perreault ◽  
...  
Keyword(s):  
Mental Health ◽  
Social Support ◽  
Health Care ◽  
Mental Health Care ◽  
Service Providers ◽  
People Living With Hiv ◽  
Living With Hiv ◽  
Hiv Aids

scholarly journals Learning, Doing and Teaching Together: Reflecting on our Arts Based Approach to Research, Education and Activism with and for Women Living with HIV

2019 ◽  
Vol 5 (2) ◽  
pp. 263-273
Author(s):  
Saara Greene ◽  
Marvelous Muchenje ◽  
Jasmine Cotnam ◽  
Kristin Dunn ◽  
Peggy Frank ◽  
...  
Keyword(s):  
Service Providers ◽  
Body Mapping ◽  
Life Project ◽  
Research Education ◽  
National Team ◽  
Women Living With Hiv ◽  
Aids Stigma ◽  
Hiv Service Providers ◽  
Living With Hiv ◽  
The Impact

Body Mapping has been used for thousands of years by people who want to achieve a better understanding of themselves, their bodies and the world they live in. Artist Jane Solomon and psychologist Jonathan Morgan transformed Body Mapping for the “Long Life Project”, during the Médecins Sans Frontières (MSF) roll-out of antiretrovirals in Khayelitsha township, South Africa in 2001. Body mapping enables participants to tell their stories in the face of intense HIV/AIDS stigma. We adapted Body Mapping for the Women, Art and Criminalizaton of HIV Non-Disclosure (WATCH) study, a community arts based research (CBR) approach to better understand the impact that Canadian laws criminalizing HIV non-disclosure have on women living with HIV. Our national team includes women living with HIV, service providers, and researchers. This reflection illustrates our collective and iterative process of learning, teaching and doing body mapping workshops with women living with HIV in Canada. We share our experiences of coming to Body Mapping as an arts-based approach to CBR, how our roles as researchers stretched to include community-based education, advocacy, and group facilitation, and how we embodied the artist-researcher identity as we disseminate our research in ways that actively engage the general public on laws criminalizing HIV nondisclosure laws vis-à-vis Body Mapping galleries.

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