The Everyday Cognition Scale in Parkinson's Disease

The purpose of this study was to explore the illness experience of persons living with Parkinson’s disease. Using the visual elicitation method, Photovoice, we asked participants to take a series of photographs that for them, represented the everyday challenges related to the disease. The photos served as starting and reference points for the individual narratives provided by each participant as they engaged in a follow-up dialogical interview with the researcher. Using thematic analysis of the interview data, the research team, together with the participants, identified one overarching theme, “staying determined,” and five sub-themes “staying active,” “finding purpose and meaning,” “finding joy,” “keeping it private,” and “staying connected despite a loss.” We were able to gain important insights into how participants perceived their disease, including the “inward” and “outward” coping strategies they used in their daily lives. We believe that through this visual elicitation participatory, action-oriented data collection method the participants also gained new insights into their lives through their photographs and the related interviews, and were empowered as a result.

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Feasibility and Acceptability of Computerised Cognitive Training of Everyday Cognition in Parkinson’s Disease

Parkinson s Disease ◽

10.1155/2019/5258493 ◽

2019 ◽

Vol 2019 ◽

pp. 1-11

Author(s):

S. J. Smith ◽

I. McMillan ◽

I. Leroi ◽

C. L. Champ ◽

S. Barr ◽

...

Keyword(s):

Quality Of Life ◽

Parkinson’S Disease ◽

Parkinson's Disease ◽

Cognitive Training ◽

Training Session ◽

Real Life ◽

Training Period ◽

Attention Task ◽

Everyday Cognition

Objectives. We piloted a computerised cognitive training battery in a group of participants with Parkinson’s disease without dementia to investigate the relevance of the training to daily life and the feasibility and the acceptability of the tasks. Previous studies of CT have had limited success in the benefits of training, extending to improvements in everyday function. By taking a pragmatic approach and targeting training to the cognitive skills affected by Parkinson’s disease (planning, attention, and recollection), whilst using tasks that emulated real-life scenarios, we sought to understand whether participants perceived the training to be effective and to identify the elements of the training that elicited beneficial effects. Methods. Four participants completed a cognitive training session comprising three distinct tasks 5 days a week over two weeks. Participants completed baseline questionnaires examining health-related quality of life, everyday cognition, and apathy before the training period, after the last session, and two weeks after the last session. An interview was held after participants had completed the training. Results. The findings indicated that participants felt the training was acceptable, enhanced their awareness, and encouraged them to monitor their thinking abilities. The group interview indicated that the training was feasible; participants felt the tasks had potential to improve everyday performance, but more supporting information should be provided to facilitate this transfer. Responses to the questionnaires reflected these findings, indicating improvement for some participants’ cognition and quality of life. Objective measures supported the subjective reports; there were improvements in some but not all domains. Performance on the planning and recollection tasks improved over the training period, and the evidence for improvement on the attention task was mixed. Conclusion. This study has found that pragmatic computer-based training with real-life outcomes is both feasible and acceptable and should be evaluated more extensively using controlled methods.

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Utility of the Spanish version of the Everyday Cognition scale in the diagnosis of mild cognitive impairment and mild dementia in an older cohort from the Argentina-ADNI

Aging Clinical and Experimental Research ◽

10.1007/s40520-018-0899-8 ◽

2018 ◽

Vol 30 (10) ◽

pp. 1167-1176 ◽

Cited By ~ 2

Author(s):

María Julieta Russo ◽

G. Cohen ◽

P. Chrem Mendez ◽

J. Campos ◽

M. E. Martín ◽

...

Keyword(s):

Cognitive Impairment ◽

Mild Cognitive Impairment ◽

Spanish Version ◽

Mild Dementia ◽

Everyday Cognition ◽

The Everyday ◽

Cognition Scale

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Identification of Pre-Dominant Coping Types in Patients with Parkinson’s Disease: An Abductive Content Analysis of Video-Based Narratives

Journal of Parkinson s Disease ◽

10.3233/jpd-202217 ◽

2020 ◽

pp. 1-13

Author(s):

Trine Hørmann Thomsen ◽

Lene Bastrup Jørgensen ◽

Troels Wesenberg Kjær ◽

Kristian Winge ◽

Anita Haahr

Keyword(s):

Parkinson’S Disease ◽

Parkinson's Disease ◽

Content Analysis ◽

Everyday Life ◽

Qualitative Content Analysis ◽

Symptom Experience ◽

Symptom Profile ◽

The Everyday ◽

Disease Experience ◽

Psychoeducational Interventions

Background: People with Parkinson’s disease suffer from a range of various symptoms. Altered movement patterns frequently represent the prevailing symptom experience and influence the everyday life of the affected persons. Objective: This qualitative study explores how persons with Parkinson‘s disease experience everyday life with a complex symptom profile and how they manage the consequential challenges in their daily life, as well as the motivation and consequences of these coping behaviours. Methods: Thirty-four patients with Parkinson’s disease were interviewed as an integrated part of the method Video-based Narrative. The interviews were analysed by means of qualitative content analysis according to Graneheim & Lundman. Results: The analysis identified six predominant coping types with different behavioural traits: The convincing behaviour, The economizing behaviour, The encapsulating behaviour, The evasive behaviour, The adaptable behaviour, and The dynamic behaviour. The strategies embedded in each of the six types are diverse, but all participants seek to maintain their integrity in different ways leading to the main motivation “To stay the same person”. Conclusion: Healthcare professionals should be aware of the patients‘ various coping behaviour in order to offer a person-centred approach. Psychoeducational interventions to promote coping skills may be essential in incorporating disease-related changes in the conduct of everyday life with Parkinson’s disease to maintain integrity.

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Effects of repetitive transcranial magnetic stimulation on voice and speech in Parkinson's disease

The Journal of Laryngology & Otology ◽

10.1017/s0022215106002787 ◽

2005 ◽

pp. 1

Keyword(s):

Parkinson’S Disease ◽

Parkinson's Disease ◽

Transcranial Magnetic Stimulation ◽

Magnetic Stimulation ◽

Repetitive Transcranial Magnetic Stimulation ◽

Voice And Speech

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Emerging Drugs and Targets for Parkinson's Disease

10.1039/9781849737357 ◽

2013 ◽

Cited By ~ 3

Keyword(s):

Parkinson’S Disease ◽

Parkinson's Disease

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Evaluation of Efferent Auditory System and Hearing Quality in Parkinson's Disease: Is the Difficulty in Speech Understanding in Complex Listening Conditions Related to Neural Degeneration or Aging?

Journal of Speech Language and Hearing Research ◽

10.1044/2020_jslhr-20-00337 ◽

2020 ◽

pp. 1-9

Author(s):

Nuriye Yıldırım Gökay ◽

Bülent Gündüz ◽

Fatih Söke ◽

Recep Karamert

Keyword(s):

Parkinson’S Disease ◽

Parkinson's Disease ◽

Auditory System ◽

Otoacoustic Emissions ◽

Pure Tone ◽

Pure Tone Audiometry ◽

Auditory Pathway ◽

Normal Hearing ◽

System Function ◽

Distortion Product

Purpose The effects of neurological diseases on the auditory system have been a notable issue for investigators because the auditory pathway is closely associated with neural systems. The purposes of this study are to evaluate the efferent auditory system function and hearing quality in Parkinson's disease (PD) and to compare the findings with age-matched individuals without PD to present a perspective on aging. Method The study included 35 individuals with PD (mean age of 48.50 ± 8.00 years) and 35 normal-hearing peers (mean age of 49 ± 10 years). The following tests were administered for all participants: the first section of the Speech, Spatial and Qualities of Hearing Scale; pure-tone audiometry, speech audiometry, tympanometry, and acoustic reflexes; and distortion product otoacoustic emissions (DPOAEs) and contralateral suppression of DPOAEs. SPSS Version 25 was used for statistical analyses, and values of p < .05 were considered statistically significant. Results There were no statistically significant differences in the pure-tone audiometry thresholds and DPOAE responses between the individuals with PD and their normal-hearing peers ( p = .732). However, statistically significant differences were found between the groups in suppression levels of DPOAEs and hearing quality ( p < .05). In addition, a statistically significant and positive correlation was found between the amount of suppression at some frequencies and the Speech, Spatial and Qualities of Hearing Scale scores. Conclusions This study indicates that medial olivocochlear efferent system function and the hearing quality of individuals with PD were affected adversely due to the results of PD pathophysiology on the hearing system. For optimal intervention and follow-up, tasks related to hearing quality in daily life can also be added to therapies for PD.

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