Affiliative and “self-as-doer” identities: Relationships between social identity, social support, and emotional status amongst survivors of acquired brain injury (ABI)

2014 ◽  
Vol 25 (4) ◽  
pp. 555-573 ◽  
Author(s):  
R. Stephen Walsh ◽  
Orla T. Muldoon ◽  
Stephen Gallagher ◽  
Donal G. Fortune
Keyword(s):  
Social Support ◽  
Brain Injury ◽  
Social Identity ◽  
Acquired Brain Injury ◽  
Emotional Status

scholarly journals Predictive Factors of Self-Reported Quality of Life in Acquired Brain Injury: One-Year Follow-Up

2021 ◽  
Vol 18 (3) ◽  
pp. 927
Author(s):  
Alba Aza ◽  
Miguel Á. Verdugo ◽  
María Begoña Orgaz ◽  
Antonio M. Amor ◽  
María Fernández
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Brain Injury ◽  
Community Integration ◽  
Acquired Brain Injury ◽  
Self Awareness ◽  
Calidad De Vida ◽  
One Year

Background: The sequelae and disabilities that follow an acquired brain injury (ABI) may negatively affect quality of life (QoL). The main objective of the study is to describe the QoL after an ABI and identify the predictors of a better QoL. Methods: Prospective cohort study with follow-up measurement after one-year. The sample comprised 203 adults with ABIs (64% male) aged 18–86 years (M = 53.01, SD = 14.44). Stroke was the main etiology of the injury (55.7%), followed by a TBI (32.8%), and the average time since injury was 8 years (M = 8.25, SD = 7.83, range = 0.5–47.5). Patients assessed their QoL through the scale Calidad de Vida en Daño Cerebral (CAVIDACE self-reported version; “quality of life in brain injury” in English), an ABI-specific tool based on the eight-domain QoL model. Other variables measured were: depression, self-awareness, community integration, resilience, and social support at baseline and one-year follow-up. Results: The studied factors showed few significant changes over time. The analyses showed statistically significant differences in QoL scores in several sociodemographic (age, civil status, education, legal capacity, and dependency), injury-related (time, location, and comorbidity), rehabilitation, and personal-social variables (self-awareness, depression, social support, resilience, and community integration). The levels of dependency, depression, and satisfaction with social support were independent predictors of the total QoL score one-year follow-up. Conclusions: QoL after ABI depends on multiple elements that must be considered. There are factors such as satisfaction with social support, depression, community integration, and resilience that must be monitored throughout the rehabilitation process.

Understanding Social Support and Friendship: Implications for Intervention After Acquired Brain Injury

2000 ◽  
Vol 1 (2) ◽  
pp. 151-164 ◽  
Author(s):  
Allison Rowlands
Keyword(s):  
Social Support ◽  
Brain Injury ◽  
Social Inclusion ◽  
Support Systems ◽  
Acquired Brain Injury ◽  
Social Consequences ◽  
Human Right ◽  
Network Building ◽  
The Social ◽  
Wide Range

AbstractThis article reviews current literature on social support and friendship, loneliness and social isolation, and discusses these in the context of disability and specifically acquired brain injury. The examination provides a backdrop for considering interventions which aim to promote or regenerate friendships in the lives of people with this injury. The social consequences for individuals who have sustained an acquired brain injury have been well documented and are briefly reviewed. An understanding of the social support and friendship literature, reviewed in this article, is helpful for practitioners in designing interventions in the lives of this group of people, whose limited friendship and social support systems compromise quality of life and inclusion in the community. The article describes interventions that have been attempted to facilitate network building and friendship development for vulnerable or disadvantaged people in a wide range of contexts. The role of informal support systems is also discussed. A critique of these interventions is also presented and the conclusion reached is that while such models are not perfect and are often not rigorously evaluated, it is critical to provide assistance in order to achieve genuine social inclusion of people with acquired brain injury. It is their human right.

scholarly journals Social Support, Identity, and Meaning: A Phenomenological Analysis of Post-Concussion Syndrome

2021 ◽  
Author(s):  
Gary Senecal ◽  
Patrick Whitehead
Keyword(s):  
Social Support ◽  
Brain Injury ◽  
Brain Injuries ◽  
Acute Stress ◽  
Acquired Brain Injury ◽  
Phenomenological Analysis ◽  
Clinical Psychologist ◽  
Injury Rehabilitation ◽  
Post Concussion Syndrome ◽  
Psychological Sense

After a traumatic blow to the head, it is common to experience difficulty focusing, disorientation, dizziness, nausea, sensitivity to light and sound, and often loss of consciousness. These symptoms often persist for several weeks following the concussion before diminishing completely. Post-concussion syndrome (PCS) refers to the persistence of concussion symptoms beyond the normal two-week window. For some, symptoms can continue for several months to several years, even further manifesting into depression, anxiety, and substance abuse in time. Though the American Psychiatric Association’s (APA) Diagnostic and Statistical Manual of Mental Disorders (DSM) has continued to grow with each new version, PCS has not been included in its most recent iteration. An acquired brain injury rehabilitation specialist can be recommended for TBI, and a clinical psychologist or psychiatrist can be recommended for Acute Stress Disorder. The authors commend this reclassification because it recognizes that brain injuries are to be studied by neurologists and other medical specialists while transformations to one’s existence are to be studied by psychologists. Nevertheless, while the present analysis aims at PCS in the latter (psychological) sense, it is worth mentioning that acquired brain injury (ABI) specialists have found it appropriate and even necessary to adopt an existential-phenomenological perspectives to more fully conceptualize this phenomenon. This study utilized the Interpretive Phenomenological Analysis (IPA) and arranged case studies with three athletes who had been forced to retire from sport due to major TBI’s and prolonged PCS. Authors identified common themes across each interview and used free imaginative variation to describe the dimensions of the PCS experience. Specifically, the way participants were able to cope with the loss of identity and meaning after sport, as well as their perceived level of social support in the aftermath of TBI and PCS, played major roles in ameliorating and/or exacerbating both somatic and psychological difficulties associated with TBI and PCS.

scholarly journals Social cure and social curse: Social identity resources and adjustment to acquired brain injury

2019 ◽  
Vol 49 (6) ◽  
pp. 1272-1282 ◽  
Author(s):  
Orla T. Muldoon ◽  
R. Stephen Walsh ◽  
Mariah Curtain ◽  
Lorraine Crawley ◽  
Elaine L. Kinsella
Keyword(s):  
Brain Injury ◽  
Social Identity ◽  
Acquired Brain Injury

Assessing emotional status following acquired brain injury: The clinical potential of the depression, anxiety and stress scales

Brain Injury ◽  
2008 ◽  
Vol 22 (11) ◽  
pp. 858-869 ◽  
Author(s):  
Tamara Ownsworth ◽  
Trudi Little ◽  
Ben Turner ◽  
Anna Hawkes ◽  
David Shum
Keyword(s):  
Brain Injury ◽  
Acquired Brain Injury ◽  
Emotional Status ◽  
Clinical Potential

Training-the-Trainer on Assistive Technology for Cognition (ATC): Current Practices

2013 ◽  
Vol 23 (2) ◽  
pp. 90-94 ◽  
Author(s):  
Laurie Ehlhardt Powell ◽  
Tracey Wallace ◽  
Michelle ranae Wild
Keyword(s):  
Brain Injury ◽  
Assistive Technology ◽  
Acquired Brain Injury ◽  
Online Training ◽  
Evidence Based ◽  
Train The Trainer ◽  
Rehabilitation Professionals ◽  
Remote Locations ◽  
Training Package ◽  
And Training

Research shows that if clinicians are to deliver effective, evidence-based assistive technology for cognition (ATC) services to clients with acquired brain injury (ABI), they first need opportunities to gain knowledge and experience with ATC assessment and training practices (O'Neil-Pirozzi, Kendrick, Goldstein, & Glenn, 2004). This article describes three examples of train the trainer materials and programs to address this need: (a) a toolkit for trainers to learn more about assessing and training ATC; (b) a comprehensive, trans-disciplinary program for training staff to provide ATC services in a metropolitan area; and (c) an overview of an on-site/online training package for rehabilitation professionals working with individuals with ABI in remote locations.

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