scholarly journals Social-emotional aspects of quality of life in multiple sclerosis

2017 ◽  
Vol 23 (4) ◽  
pp. 411-423 ◽  
Author(s):  
Heidemarie Lex ◽  
Sara Weisenbach ◽  
Jacob Sloane ◽  
Sana Syed ◽  
Eva Rasky ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Social Emotional ◽  
Emotional Aspects

ALEMTUZUMAB IMPROVES 3-YEAR QUALITY OF LIFE IN CARE-MS II

2015 ◽  
Vol 86 (11) ◽  
pp. e4.9-e4
Author(s):  
Alasdair Coles ◽  
Gavin Giovannoni ◽  
Thibault Moreau ◽  
Eva Havrdova ◽  
David Margolin ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Short Form ◽  
Extension Study ◽  
Prior Therapy ◽  
Link Type ◽  
Relapsing Remitting ◽  
Emotional Aspects ◽  
Relapsing Remitting Multiple Sclerosis

In the 2-year, phase 3 CARE–MS II study (NCT00548405) of relapsing-remitting multiple sclerosis (RRMS) patients with inadequate efficacy response to prior therapy, alemtuzumab demonstrated superior efficacy and quality-of-life (QoL) improvements versus subcutaneous interferon beta-1a, with manageable safety. Here, QoL outcomes are examined in alemtuzumab-treated patients at Year 3 in an ongoing extension study (NCT00930553). 393 of 435 alemtuzumab 12 mg-treated patients entered the extension study; 80 received as-needed alemtuzumab retreatment during Year 3. Mean Functional Assessment of multiple sclerosis total score (scale 0–176) improved from baseline to year 3 (119.1 vs 124.8; P<0.0001), with 5 of 6 subscales significantly improved. Mean Short-Form 36–Item survey physical and mental component summary scores (scale 1–100) rose from baseline to Year 3 (42.7 vs 44.7; P<0.0001, and 44.9 vs 46.5; P=0.042, respectively), with 6 of 8 subscales improved, and 82% and 73% of patients, respectively, having a stable or improved score at Year 3. EuroQol 5–dimensional visual analogue scale score improved from baseline to Year 3 (70.1 vs 73.0; P=0.0045). Overall sustained improvement in physical, mental, and emotional aspects of QoL were observed through 3 years in this population of alemtuzumab-treated RRMS patients, even though most patients received only 2 alemtuzumab treatment courses.

A Family-Centered Approach to Feeding Disorders in Children (Birth to 5-Years)

2013 ◽  
Vol 22 (4) ◽  
pp. 161-171 ◽  
Author(s):  
Diane Bahr ◽  
Nina Johanson
Keyword(s):  
Quality Of Life ◽  
Feeding Disorders ◽  
Early Feeding ◽  
Social Emotional ◽  
Emotional Aspects ◽  
The Many ◽  
Feeding Development ◽  
Family Centered ◽  
Positive Quality

Good feeding development and nutrition are necessary for a positive quality of life. Part I of this article discusses the value of tracking and facilitating early feeding development. Part II covers the many complex social-emotional aspects of feeding. Numerous suggestions for effectively working with parents and caregivers in a family-centered feeding approach are found within this article.

scholarly journals Social-Emotional Aspects of Quality of Life in Multiple Sclerosis

2017 ◽  
Author(s):  
Heidemarie Lex ◽  
Sara Weisenbach ◽  
Jacob Sloane ◽  
Sana Syed ◽  
Eva Rasky ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Statistical Tests ◽  
Family Relations ◽  
Qualitative Interviews ◽  
Personal Characteristics ◽  
The United States ◽  
Structured Interviews ◽  
Social Emotional

Multiple sclerosis (MS) is an inflammatory auto-immune disease of the central nervous system. It leads to many impairments including physical, cognitive, psychological, and social challenges. Our study examined gender and cultural associations with quality of life (QoL), personal characteristics, and benefits from having MS among those with MS.The study was conducted in Austria and the United States. The sample included 128 participants, 64 in each country, of whom 78 were women and 50 were men aged between 20 and 57 years. We used standard statistical tests, including analyses of covariance (ANCOVA) and partial correlations for the analysis of quantitative data. For the qualitative part of the survey we used semi-structured interviews, which we transcribed and coded to identify categories in the answers for qualitative analyses.Austrian participants with MS perceived a higher social-emotional QoL in comparison to American participants. American participants expressed a higher self-esteem in comparison to Austrian participants. Men reported a lower ability to express love than women. Independent of sex/gender and nationality, participants reported benefits through the disease, especially with regard to improved compassion, mindfulness, improved family relations and lifestyle gains. The qualitative interviews revealed additional gender differences for coping with the illness; and in experiences, expectations, and challenges related to MS.These insights can be used to develop targeted psychological and social support interventions aimed toward improving social-emotional QoL for persons with MS.

scholarly journals Effectiveness of massage therapy on fatigue and pain in patients with multiple sclerosis: A systematic review and meta-analysis

2021 ◽  
Vol 7 (2) ◽  
pp. 205521732110227
Author(s):  
Shahin Salarvand ◽  
Mohammad Eghbal Heidari ◽  
Kazem Farahi ◽  
Erfan Teymuri ◽  
Mohammad Almasian ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Systematic Review ◽  
Massage Therapy ◽  
Pharmacological Therapy ◽  
Mean Difference ◽  
Cochrane Library ◽  
Clinical Value ◽  
Significant Trial

Background Fatigue and pain are prevalent symptoms of multiple sclerosis (MS) and frequent complaint in MS patients, which reduce their quality of life. This study aimed to assess the effect of massage therapy on pain and fatigue in MS Patients. Method The original and Persian databases were searched included PubMed, web of science, embase, ovid, scopus, and the Cochrane Library, SID, and Iranedex from inception to November 2020. Studies that reported the effect of massage on fatigue and pain were included. Two investigators extracted all relevant data, independently. For deriving analysis, mean difference (MD) and standardized mean difference (SMD) were used. Result Ten studies were eligible acoording criteria. The effect of massage on fatigue showed significant improvement (−1.62; 95% CL −2.40, −0.83; p < .00001), also results of the systematic review showed a significant reduction in pain severity. Conclusion Massage as a complementary and non-pharmacological therapy might have been associated with alleviating fatigue and pain in M.S. patients. Based on the current study, massage intervention for MS patients could have possible clinical value for palliating pain and fatigue and improving quality of life; however, this matter needs further and more significant trial studies.

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