Information for dementia patients and their caregivers: What information does a memory clinic pass on, and to whom?

2003 ◽  
Vol 7 (1) ◽  
pp. 34-38 ◽  
Author(s):  
M. J. F. J. Vernooij-Dassen ◽  
H. P. J. Van Hout ◽  
K. L. M. Hund ◽  
W. H. L. Hoefnagels ◽  
R. P. T. M. Grol
Keyword(s):  
Memory Clinic ◽  
Dementia Patients

scholarly journals Characteristics of Young-Onset and Late-Onset Dementia Patients at a Remote Memory Clinic

2020 ◽  
Vol 47 (3) ◽  
pp. 320-327
Author(s):  
Jennifer F. W. Wong ◽  
Andrew Kirk ◽  
Landon Perlett ◽  
Chandima Karunanayake ◽  
Debra Morgan ◽  
...  
Keyword(s):  
Late Onset ◽  
Remote Memory ◽  
Memory Clinic ◽  
Rural And Remote ◽  
Caregiver Support ◽  
Young Onset ◽  
Highly Educated ◽  
Dementia Patients ◽  
Patient Groups ◽  
Late Onset Dementia

ABSTRACT:Background:Young-onset dementia (YOD) is defined as the onset of dementia symptoms before the age of 65 years and accounts for 2–8% of dementia. YOD patients and their caregivers face unique challenges in diagnosis and management. We aimed to compare the characteristics of rural YOD and late-onset dementia (LOD) patients at a rural and remote memory clinic in Western Canada.Methods:A total of 333 consecutive patients (YOD = 61, LOD = 272) at a rural and remote memory clinic between March 2004 and July 2016 were included in this study. Each patient had neuropsychological assessment. Health, mood, function, behaviour and social factors were also measured. Both groups were compared using χ2 tests and independent sample tests.Results:YOD patients were more likely to be married, employed, current smokers and highly educated. They reported fewer cognitive symptoms, but had more depressive symptoms. YOD patients were less likely to live alone and use homecare services. YOD caregivers were also more likely to be a spouse and had higher levels of distress than LOD caregivers. Both YOD and LOD patient groups were equally likely to have a driver’s licence.Conclusions:Our findings indicate YOD and LOD patients have distinct characteristics and services must be modified to better meet YOD patient needs. In particular, the use of homecare services and caregiver support may alleviate the higher levels of distress found in YOD patients and their caregivers. Additional research should be directed to addressing YOD patient depression, caregiver distress and barriers to services.

scholarly journals P.011 Standardized Processes for Addressing Driving Cessation in the Memory Clinic

2021 ◽  
Vol 48 (s3) ◽  
pp. S22-S23
Author(s):  
A Henri-Bhargava ◽  
C Bell ◽  
D Thompson ◽  
M Bibok ◽  
J Nikolejsin ◽  
...  
Keyword(s):  
Road Safety ◽  
Cognitive Disorders ◽  
Driving Ability ◽  
Accurate Information ◽  
Memory Clinic ◽  
Driving Cessation ◽  
Dementia Patients ◽  
License Revocation

Background: Discussions around driving cessation between clinicians and dementia patients are challenging. Patients view giving up their license as losing their independence. We sought to develop a tool that enables standardized and consistent driving messaging across clinicians working in a specialist memory clinic, across the span of cognitive disorders Methods: We developed a driving recommendations generator that allows clinicians to produce information handouts personalized to individual patient capabilities and needs. Clinicians select from a list of established recommendations that were developed with neurologist and geriatrician input, and consistent with provincial requirements. Recommendations cover patients’ current driving ability, road safety examinations, alternate transportation, and license revocation. Early driving retirement is emphasized and encouraged, to proactively support patients’ choices, safety and independence. Recommendation and handouts are printed for the patients. Results: Patients reported that the recommendations were easy to read and understand, and helped them to implement physician suggestions. All surveyed clients recommended continuing to provide such recommendations to future patients and families. Clinicians agreed that the tool helped them to save time, and simplified the process of finding accurate information to provide patients. Conclusions: Clinicians have found the system timesaving and useful for simplifying the process of providing helpful, informative resources for patients.

scholarly journals Less Education Predicts Anticholinesterase Discontinuation in Dementia Patients

2013 ◽  
Vol 40 (5) ◽  
pp. 684-690 ◽  
Author(s):  
Solin Saleh ◽  
Andrew Kirk ◽  
Debra G. Morgan ◽  
Chandima Karunanayake
Keyword(s):  
Logistic Regression ◽  
Cholinesterase Inhibitor ◽  
Formal Education ◽  
Remote Memory ◽  
Outcome Variable ◽  
Drug Discontinuation ◽  
Memory Clinic ◽  
Dementia Patients ◽  
Functional Factors ◽  
Institutionalized Patients

Abstract:Objective:We investigated patient socio-demographic, clinical and functional factors predicting cholinesterase inhibitor discontinuation by patients presenting to a memory clinic in Saskatoon, Saskatchewan.Methods:Data collection began in March 2004 at the Rural and Remote Memory Clinic where family physicians referred their non-institutionalized patients. Neurological and neuropsychological assessment, patient and caregiver questionnaires provided the socio-demographic, clinical and functional variables. Univariate logistic regression analysis was used to examine possible associations between each independent variable and the binary outcome variable of treatment discontinuation. Multivariate logistic regression was used to determine predictors of cholinesterase inhibitor discontinuation within six months of drug initiation.Results:Our sample consisted of the first 63 patients (60.3% female) for whom we prescribed a cholinesterase inhibitor. The mean age at clinic day was 74.56 years (SD=7.78). We found that years of formal education was the only variable significantly associated with cholinesterase inhibitor discontinuation by six months. The more years of formal education, the lower the rate of drug discontinuation by six months.Conclusions:Likelihood of cholinesterase inhibitor discontinuation by six months was predicted by fewer years of formal education.

scholarly journals Dementia in Southeast Asia: influence of onset-type, education, and cerebrovascular disease

2021 ◽  
Vol 13 (1) ◽  
Author(s):  
Ashwati Vipin ◽  
Vaynii Satish ◽  
Seyed Ehsan Saffari ◽  
Wilbur Koh ◽  
Levinia Lim ◽  
...  
Keyword(s):  
Southeast Asia ◽  
Cerebrovascular Disease ◽  
Late Onset ◽  
Age At Onset ◽  
Consecutive Series ◽  
Memory Clinic ◽  
Onset Type ◽  
Dementia Patients ◽  
Common Diagnosis ◽  
Global Cognition

Abstract Background Southeast Asia represents 10% of the global population, yet little is known about regional clinical characteristics of dementia and risk factors for dementia progression. This study aims to describe the clinico-demographic profiles of dementia in Southeast Asia and investigate the association of onset-type, education, and cerebrovascular disease (CVD) on dementia progression in a real-world clinic setting. Methods In this longitudinal study, participants were consecutive series of 1606 patients with dementia from 2010 to 2019 from a tertiary memory clinic from Singapore. The frequency of dementia subtypes stratified into young-onset (YOD; <65 years age-at-onset) and late-onset dementia (LOD; ≥65 years age-at-onset) was studied. Association of onset-type (YOD or LOD), years of lifespan education, and CVD on the trajectory of cognition was evaluated using linear mixed models. The time to significant cognitive decline was investigated using Kaplan-Meier analysis. Results Dementia of the Alzheimer’s type (DAT) was the most common diagnosis (59.8%), followed by vascular dementia (14.9%) and frontotemporal dementia (11.1%). YOD patients accounted for 28.5% of all dementia patients. Patients with higher lifespan education had a steeper decline in global cognition (p<0.001), with this finding being more pronounced in YOD (p=0.0006). Older patients with a moderate-to-severe burden of CVD demonstrated a trend for a faster decline in global cognition compared to those with a mild burden. Conclusions There is a high frequency of YOD with DAT being most common in our Southeast Asian memory clinic cohort. YOD patients with higher lifespan education and LOD patients with moderate-to-severe CVD experience a steep decline in cognition.

Preferences regarding disclosure of a diagnosis of dementia: a systematic review

2014 ◽  
Vol 26 (10) ◽  
pp. 1603-1618 ◽  
Author(s):  
Pim van den Dungen ◽  
Lisa van Kuijk ◽  
Harm van Marwijk ◽  
Johannes van der Wouden ◽  
Eric Moll van Charante ◽  
...  
Keyword(s):  
Systematic Review ◽  
Cognitive Impairment ◽  
Response Rate ◽  
Meta Analysis ◽  
Empirical Studies ◽  
Random Effects Model ◽  
Memory Clinic ◽  
Dementia Patients ◽  
Diagnosis Of Dementia ◽  
Memory Clinics

AbstractBackground:Studies in memory clinics suggest that the majority of patients would like to know of a diagnosis of dementia. It is less clear what preferences are in the community. Our objective was to review the literature on preferences regarding disclosure of a diagnosis of dementia and to assess key arguments in favor of and against disclosure.Methods:Systematic search of empirical studies was performed in Pubmed, Embase, and Psycinfo. We extracted preferences of individuals without cognitive impairment (general population; relatives of dementia patients; and physicians) and preferences of individuals referred to a memory clinic or already diagnosed with dementia. A meta-analysis was done using a random effects model. Our main conclusions are based on studies with a response rate ≥75%.Results:We included 23 articles (9.065 respondents). In studies with individuals without cognitive impairment, the pooled percentage in favor of disclosure was 90.7% (95%CI: 83.8%–97.5%). In studies with patients who were referred to a memory clinic or already diagnosed with dementia, the pooled percentage that considered disclosure favorable was 84.8% (95%CI: 75.6%–94.0%). The central arguments in favor of disclosure pertained to autonomy and the possibility to plan one's future. Arguments against disclosure were fear of getting upset and that knowing has no use.Conclusions:The vast majority of individuals without and with cognitive impairment prefers to be informed about a diagnosis of dementia for reasons pertaining to autonomy.

P4-105: A study of the prevalence of APOE-ϵ4 genotype among dementia patients attending a geriatric unit memory clinic in Singapore

2008 ◽  
Vol 4 ◽  
pp. T699-T700
Author(s):  
Dennis Seow ◽  
Philip Yap ◽  
Hui Ling Chionh ◽  
Sue-Anne Khoo ◽  
T.P. Ng
Keyword(s):  
Memory Clinic ◽  
Dementia Patients ◽  
Geriatric Unit

scholarly journals P.003 Differences between younger and older dementia patients at a rural and remote memory clinic

2019 ◽  
Vol 46 (s1) ◽  
pp. S14
Author(s):  
J Wong ◽  
A Kirk ◽  
L Perlett ◽  
C Karunanayake ◽  
D Morgan ◽  
...  
Keyword(s):  
Late Onset ◽  
Remote Memory ◽  
Caregiver Distress ◽  
Memory Clinic ◽  
Rural And Remote ◽  
Caregiver Support ◽  
Highly Educated ◽  
Dementia Patients ◽  
Barriers To Services ◽  
Late Onset Dementia

Background: Young-onset dementia (YOD) patients and their caregivers face unique challenges in diagnosis and management. We aimed to compare the characteristics of rural YOD and late-onset dementia (LOD) patients. Methods: A total of 333 consecutive patients (YOD=61, LOD=272) at a rural and remote memory clinic between March 2004 and July 2016 were included in this study. Each patient had neuropsychological assessment. Health, mood, function, behaviour, and social factors were also measured. Both groups were compared using χ2 tests and independent sample tests. Results: YOD patients were more likely to be married, employed, current smokers, and highly educated. They reported fewer cognitive symptoms, but had more depressive symptoms. YOD patients were less likely to live alone and use homecare services. YOD caregivers were also more likely to be a spouse and had higher levels of distress than LOD caregivers. Conclusions: Our findings indicate YOD and LOD patients have distinct characteristics and services must be modified to better meet YOD patient needs. In particular, the use of homecare services and caregiver support may alleviate the higher levels of distress found in YOD patients and their caregivers. Additional research should be directed to addressing YOD patient depression, caregiver distress, and barriers to services.

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