Leisure education in chronic disease self-management: a case study and lessons learned

Purpose Although self-management is not a new phenomenon, there is a lack of understanding about how to transform organizations towards self-managing teams (SMTs). The purpose of this paper is to propose a guiding framework for how the empowerment process can be managed. Design/methodology/approach The paper sets out 12 guidelines on how to address the transition towards SMTs based on a case study at a large Dutch healthcare organization. The lessons are drawn from observations, documents and more than 55 interviews with key informants. Findings This paper provides a holistic overview of lessons learned from the transformation process towards SMTs. The 12 recommendations are targeted at four stakeholder groups, namely, the management/board, HRM department, coach-managers and members of the SMTs. Originality/value The originality lies in the systematic approach including lessons learned for all levels of the organization.

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Complex self-management interventions in chronic disease unravelled: a review of lessons learned from an individual patient data meta-analysis

Journal of Clinical Epidemiology ◽

10.1016/j.jclinepi.2017.01.004 ◽

2017 ◽

Vol 83 ◽

pp. 48-56 ◽

Cited By ~ 8

Author(s):

Nini H. Jonkman ◽

Rolf H.H. Groenwold ◽

Jaap C.A. Trappenburg ◽

Arno W. Hoes ◽

Marieke J. Schuurmans

Keyword(s):

Chronic Disease ◽

Individual Patient Data ◽

Meta Analysis ◽

Patient Data ◽

Lessons Learned ◽

Self Management ◽

Management Interventions

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Knowledge exchange systems for youth health and chronic disease prevention: a tri-provincial case study

Chronic Diseases and Injuries in Canada ◽

10.24095/hpcdp.33.4.07 ◽

2013 ◽

Vol 33 (4) ◽

pp. 257-266 ◽

Cited By ~ 2

Author(s):

D Murnaghan ◽

W Morrison ◽

EJ Griffith ◽

BL Bell ◽

LA Duffley ◽

...

Keyword(s):

Chronic Disease ◽

Disease Prevention ◽

Study Design ◽

Program Planning ◽

Knowledge Exchange ◽

Lessons Learned ◽

Chronic Disease Prevention ◽

Youth Health ◽

Case Study Design

Introduction The research teams undertook a case study design using a common analytical framework to investigate three provincial (Prince Edward Island, New Brunswick and Manitoba) knowledge exchange systems. These three knowledge exchange systems seek to generate and enhance the use of evidence in policy development, program planning and evaluation to improve youth health and chronic disease prevention. Methods We applied a case study design to explore the lessons learned, that is, key conditions or processes contributing to the development of knowledge exchange capacity, using a multi-data collection method to gain an in-depth understanding. Data management, synthesis and analysis activities were concurrent, iterative and ongoing. The lessons learned were organized into seven "clusters". Results Key findings demonstrated that knowledge exchange is a complex process requiring champions, collaborative partnerships, regional readiness and the adaptation of knowledge exchange to diverse stakeholders. Discussion Overall, knowledge exchange systems can increase the capacity to exchange and use evidence by moving beyond collecting and reporting data. Areas of influence included development of new partnerships, expanded knowledge-sharing activities, and refinement of policy and practice approaches related to youth health and chronic disease prevention.

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Establishing a new model of integrated primary and secondary care based around general practice: a case study of lessons learned and challenges

Australian Health Review ◽

10.1071/ah16147 ◽

2018 ◽

Vol 42 (3) ◽

pp. 299 ◽

Cited By ~ 2

Author(s):

Claire L. Jackson ◽

Maria Donald ◽

Anthony W. Russell ◽

H. David McIntyre

Keyword(s):

Chronic Disease ◽

Business Models ◽

Contextual Information ◽

Models Of Care ◽

Lessons Learned ◽

Policy And Practice ◽

Reform Agenda ◽

Clinical Models ◽

Complex Diabetes

This case study describes the development and implementation of an innovative integrated primary–secondary model of care for people with complex diabetes. The aim of the paper is to present the experiences of clinicians and researchers involved in implementing the ‘Beacon’ model by providing a discussion of the contextual factors, including lessons learned, challenges and solutions. Beacon-type models of community care for people with chronic disease are well placed to deliver on Australia’s health care reform agenda, and this commentary provides rich contextual information relevant to the translation of such models into policy and practice. What is known about the topic? Better integrated clinical models of care with close cooperation between hospital-based specialists and general practitioners (GPs) is fundamental to chronic disease management. What does this paper add? A real world example of the challenges faced in implementing models of integrated care across diverse settings and business models. What are the implications for clinicians? Practice, organisational and external factors including energy clinician leadership and resourcing are critical for translation of evidence into ongoing practice.

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Challenges of Recruiting Caregiver and Care Receiver Dyads for a Randomized Clinical Trial

Innovation in Aging ◽

10.1093/geroni/igaa057.1147 ◽

2020 ◽

Vol 4 (Supplement_1) ◽

pp. 356-357

Author(s):

Christine Fruhauf ◽

Arlene Schmid ◽

Neha Prabhu ◽

Laura Swink ◽

Jennifer Portz ◽

...

Keyword(s):

Clinical Trial ◽

Chronic Disease ◽

Strong Support ◽

Lessons Learned ◽

Care Recipient ◽

Self Management ◽

Care Utilization ◽

Clinical Trial Research ◽

Recruitment Challenges ◽

Challenges And Opportunities

Abstract The recruitment of participants for chronic disease clinical trial research is often challenging. Further complicating participant recruitment occurs when the intervention is dyadic (i.e., simultaneously includes both care receivers and caregivers or recruiting pairs of people). Despite the strong support in favor of dyadic interventions for certain chronic diseases (e.g., among cancer and stroke survivors and their caregivers), researchers have not systematically shared challenges and opportunities for dyadic recruitment. During the recruitment for a yoga and self-management education intervention for people with chronic pain and their caregivers, several steps were taken to recruit and screen potential participants for the study. In this presentation, we will provide an overview of common recruitment challenges for physical activity and chronic disease self-management studies as well as the actual challenges encountered and our procedures for overcoming these obstacles. We will present our consort figure with attention toward inclusion and exclusion criteria of both care receivers and caregivers. Additional discussion will include specific challenges encountered when recruiting and screening caregivers (i.e., after the care receiver has been screened). The need for innovative clinical trial research with caregivers and care recipient dyads is essential as new care practices continue to evolve and demands on health care utilization increase. Lessons learned from this study may prove useful for future researchers as they embark on developing and testing dyadic interventions among adults with chronic disease and their caregivers.

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Lessons learned implementing and managing the DIVERT-CARE trial: practice recommendations for a community-based chronic disease self-management model

BMC Geriatrics ◽

10.1186/s12877-021-02248-0 ◽

2021 ◽

Vol 21 (1) ◽

Author(s):

Darly Dash ◽

Connie Schumacher ◽

Aaron Jones ◽

Andrew P. Costa

Keyword(s):

Chronic Disease ◽

Home Care ◽

Management Practices ◽

Pragmatic Trial ◽

Lessons Learned ◽

Management Model ◽

Self Management ◽

Local Context ◽

Trial Management ◽

Community Based

Abstract Background Chronic disease management models of care provide an opportunity to assist home care clients to manage their disease burden. However, pragmatic trial management practices and lessons learned from such models are poorly illustrated in the literature. Methods We describe the processes of implementing a community-based cardiorespiratory self-management model, known as DIVERT-CARE, across the home care programs of three health regions in Canada. The DIVERT-CARE model is a multi-component complex intervention that identifies home care clients at the highest risk of deterioration and provides them with resources and capacity to manage their conditions. We conducted a retrospective analysis of baseline participant characteristics, needs assessments, reviewed findings from site visits and a national workshop with study partners, and examined other study documentation. Results Three home care regions in Canada participated in the study. A robust and data-driven review of each site was necessary to understand the local context, home care caseloads, structure of local systems, and intensity of resources, which influenced study processes. The creation of an intervention framework highlighted the need to adapt the intervention in a way that was sensitive to the local context while maintaining intervention outcomes. Conclusion Our detailed review showcases the relevant activities and on-the-ground steps needed to manage and conduct a multi-site pragmatic trial in home care. This example can help other researchers in implementing multi-disciplinary and multi-component care models for practice-based research.

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Using the Replicating Effective Programs Framework to Adapt a Heart Health Intervention

Health Promotion Practice ◽

10.1177/1524839918775740 ◽

2018 ◽

Vol 20 (5) ◽

pp. 760-769 ◽

Cited By ~ 2

Author(s):

Jessica E. Ramsay ◽

Mary R. Janevic ◽

Cainnear K. Hogan ◽

Dominique L. Edwards ◽

Cathleen M. Connell

Keyword(s):

Older Adults ◽

Heart Disease ◽

Chronic Disease ◽

Low Income ◽

The United States ◽

Lessons Learned ◽

Self Management ◽

Management Support ◽

Management Intervention ◽

Effective Programs

Heart disease is the leading cause of death in the United States. African Americans and people of low socioeconomic status suffer disproportionately from heart disease–related morbidity and mortality. In Detroit, Michigan, a primarily African American and low-income urban area, heart disease mortality is at twice the national rate. Despite evidence for the effectiveness of self-management support interventions in reducing chronic disease burden for older adults, few are adapted for communities most in need. This article describes the process of adapting Take PRIDE, an evidence-based heart disease self-management intervention, for older adults in Detroit via the Replicating Effective Programs (REP) framework. Working within a community–academic partnership, we found REP useful in facilitating the identification of diverse stakeholders, core versus adaptable elements of the intervention and barriers to implementation. We also made several modifications to the REP framework in order to better fit our project needs. Overall, we found REP to be an effective, flexible tool that allowed us to successfully adapt a disease-management intervention for this setting. Processes, lessons learned, and recommendations offered in this article may help researchers and practitioners working to expand access to self-management support for populations most affected by chronic disease.

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