scholarly journals Social media use by patients in health care: A scoping review

Author(s):  
Poonam Gupta ◽  
Asma Khan ◽  
Amit Kumar
2021 ◽  
Vol 7 ◽  
pp. 205520762199687
Author(s):  
Louisa Walsh ◽  
Nerida Hyett ◽  
Nicole Juniper ◽  
Chi Li ◽  
Sophie Rodier ◽  
...  

Background Health-related social media use is common but few health organisations have embraced its potential for engaging stakeholders in service design and quality improvement (QI). Social media may provide new ways to engage more diverse stakeholders and conduct health design and QI activities. Objective To map how social media is used by health services, providers and consumers to contribute to service design or QI activities. Methods The scoping review was undertaken using the Joanna Briggs Institute methodology. An advisory committee of stakeholders provided guidance throughout the review. Inclusion criteria were studies of any health service stakeholders, in any health setting, where social media was used as a tool for communications which influenced or advocated for changes to health service design or delivery. A descriptive numerical summary of the communication models, user populations and QI activities was created from the included studies, and the findings were further synthesised using deductive qualitative content analysis. Results 40 studies were included. User populations included organisations, clinical and non-clinical providers, young people, people with chronic illness/disability and First Nations people. Twitter was the most common platform for design and QI activities. Most activities were conducted using two-way communication models. A typology of social media use is presented, identifying nine major models of use. Conclusion This review identifies the ways in which social media is being used as a tool to engage stakeholders in health service design and QI, with different models of use appropriate for different activities, user populations and stages of the QI cycle.


CHEST Journal ◽  
2016 ◽  
Vol 149 (4) ◽  
pp. A234
Author(s):  
Lauren Quisenberry ◽  
Zoya Surani ◽  
Saherish Surani ◽  
Sivakumar Sudhakaran ◽  
Salim Surani

BMJ Open ◽  
2013 ◽  
Vol 3 (5) ◽  
pp. e002819 ◽  
Author(s):  
Michele P Hamm ◽  
Annabritt Chisholm ◽  
Jocelyn Shulhan ◽  
Andrea Milne ◽  
Shannon D Scott ◽  
...  

2015 ◽  
Vol 95 (3) ◽  
pp. 406-414 ◽  
Author(s):  
Kendra Gagnon ◽  
Carla Sabus

Since the beginning of the millennium, there has been a remarkable change in how people access and share information. Much of this information is user-generated content found on social media sites. As digital technologies and social media continue to expand, health care providers must adapt their professional communication to meet the expectations and needs of consumers. This adaptation may include communication on social media sites. However, many health care providers express concerns that professional social media use, particularly interactions with patients, is ethically problematic. Social media engagement does not create ethical dissonance if best practices are observed and online communication adheres to terms of service, professional standards, and organizational policy. A well-executed social media presence provides health care providers, including physical therapists, the opportunity—and perhaps a professional obligation—to use social media sites to share or create credible health care information, filling a consumer void for high-quality online information on fitness, wellness, and rehabilitation. This perspective article provides a broad review of the emergence of social media in society and health care, explores policy implications of organizational adoption of health care social media, and proposes individual opportunities and guidelines for social media use by the physical therapy professional.


2020 ◽  
Author(s):  
Louisa Walsh ◽  
Nerida Hyett ◽  
Nicole Juniper ◽  
Chi Li ◽  
Sophie Rodier ◽  
...  

BACKGROUND Health-related social media use by health consumers and organisations is increasingly common but few health organisations have embraced its potential for engaging stakeholders in health service design and quality improvement (QI) activities. Social media has the potential to engage a broader range of stakeholders and could provide new ways to gather data to inform QI and design activities within health services. OBJECTIVE The objective of this scoping review is to examine and map the research on how social media is being used by health services, providers and consumers to contribute to service design or QI activities. METHODS Following the development of a protocol, the review was undertaken in line with the Joanna Briggs Institute methodology for scoping reviews. An advisory committee of stakeholders (including patients, carers and health providers) provided guidance and feedback throughout the review process. Inclusion criteria for the review were studies of any health service stakeholders, in any health service or health policy setting, where social media was used as a tool for communications which influenced or advocated for changes to health service design or delivery. A descriptive numerical summary of the communication models, user populations and QI activities was created from the included studies, and the findings were further synthesised using deductive qualitative content analysis. Features of social media use were mapped to identify a typology of uses. RESULTS 40 studies were included, with the majority from high income countries. A variety of user populations, including organisations, clinical and non-clinical service providers, young people, people with chronic illness/disability and First Nations people were involved in the health service design and QI activities. Twitter was the most commonly used social media platform for health service design and QI activities. Most activities were conducted using two-way communication models, and health organisations were most frequently responsible for hosting and managing the social media spaces. A typology of social media use in health service QI is presented and identifies nine major models of use. The typology demonstrates how different social media platforms and communication models can be used to engage different user populations in a variety of QI and design activities. CONCLUSIONS This review identifies the range of ways in which social media is being used as a tool to engage stakeholders in health QI and service design activities, with different models of use being appropriate for different types of activities, user populations and stages of the QI cycle. Diverse communication approaches are presented which create opportunities for innovation in designing and trialling new ways of engaging stakeholders in QI and health service design that were previously not available to health organisations, service providers and consumers. CLINICALTRIAL n/a


2019 ◽  
Author(s):  
Justine Dol ◽  
Perri R Tutelman ◽  
Christine T Chambers ◽  
Melanie Barwick ◽  
Emily K Drake ◽  
...  

BACKGROUND Health researchers are increasingly using social media in a professional capacity, and the applications of social media for health researchers are vast. However, there is currently no published evidence synthesis of the ways in which health researchers use social media professionally, and uncertainty remains as to how best to harness its potential. OBJECTIVE This scoping review aimed to explore how social media is used by health researchers professionally, as reported in the literature. METHODS The scoping review methodology guided by Arksey and O’Malley and Levac et al was used. Comprehensive searches based on the concepts of health research and social media were conducted in MEDLINE, EMBASE, CINAHL, PsycINFO, ERIC, and Web of Science databases, with no limitations applied. Articles were screened at the title and abstract level and at full text by two reviewers. One reviewer extracted data that were analyzed descriptively to map the available evidence. RESULTS A total of 8359 articles were screened at the title and abstract level, of which 719 were also assessed at full text for eligibility. The 414 articles identified for inclusion were published in 278 different journals. Studies originated from 31 different countries, with the most prevalent being the United States (52.7% [218/414]). The health discipline of the first authors varied, with medicine (33.3% [138/414]) being the most common. A third of the articles covered health generally, with 61 health-specific topics. Papers used a range of social media platforms (mean 1.33 [SD 0.7]). A quarter of the articles screened reported on social media use for participant recruitment (25.1% [104/414]), followed by practical ways to use social media (15.5% [64/414]), and use of social media for content analysis research (13.3% [55/414]). Articles were categorized as <italic>celebratory</italic> (ie, opportunities for engagement, 72.2% [299/414]), <italic>contingent</italic> (ie, opportunities and possible limitations, 22.7% [94/414]) and <italic>concerned</italic> (ie, potentially harmful, 5.1% [21/414]). CONCLUSIONS Health researchers are increasingly publishing on their use of social media for a range of professional purposes. Although most of the sentiment around the use of social media in health research was celebratory, the uses of social media varied widely. Future research is needed to support health researchers to optimize their social media use.


10.2196/21418 ◽  
2020 ◽  
Vol 22 (12) ◽  
pp. e21418
Author(s):  
Danny Valdez ◽  
Marijn ten Thij ◽  
Krishna Bathina ◽  
Lauren A Rutter ◽  
Johan Bollen

Background The COVID-19 pandemic led to unprecedented mitigation efforts that disrupted the daily lives of millions. Beyond the general health repercussions of the pandemic itself, these measures also present a challenge to the world’s mental health and health care systems. Considering that traditional survey methods are time-consuming and expensive, we need timely and proactive data sources to respond to the rapidly evolving effects of health policy on our population’s mental health. Many people in the United States now use social media platforms such as Twitter to express the most minute details of their daily lives and social relations. This behavior is expected to increase during the COVID-19 pandemic, rendering social media data a rich field to understand personal well-being. Objective This study aims to answer three research questions: (1) What themes emerge from a corpus of US tweets about COVID-19? (2) To what extent did social media use increase during the onset of the COVID-19 pandemic? and (3) Does sentiment change in response to the COVID-19 pandemic? Methods We analyzed 86,581,237 public domain English language US tweets collected from an open-access public repository in three steps. First, we characterized the evolution of hashtags over time using latent Dirichlet allocation (LDA) topic modeling. Second, we increased the granularity of this analysis by downloading Twitter timelines of a large cohort of individuals (n=354,738) in 20 major US cities to assess changes in social media use. Finally, using this timeline data, we examined collective shifts in public mood in relation to evolving pandemic news cycles by analyzing the average daily sentiment of all timeline tweets with the Valence Aware Dictionary and Sentiment Reasoner (VADER) tool. Results LDA topics generated in the early months of the data set corresponded to major COVID-19–specific events. However, as state and municipal governments began issuing stay-at-home orders, latent themes shifted toward US-related lifestyle changes rather than global pandemic-related events. Social media volume also increased significantly, peaking during stay-at-home mandates. Finally, VADER sentiment analysis scores of user timelines were initially high and stable but decreased significantly, and continuously, by late March. Conclusions Our findings underscore the negative effects of the pandemic on overall population sentiment. Increased use rates suggest that, for some, social media may be a coping mechanism to combat feelings of isolation related to long-term social distancing. However, in light of the documented negative effect of heavy social media use on mental health, social media may further exacerbate negative feelings in the long-term for many individuals. Thus, considering the overburdened US mental health care structure, these findings have important implications for ongoing mitigation efforts.


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