scholarly journals Rethinking MS in Europe: Prioritizing integrated services for people with multiple sclerosis

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
M A Battaglia ◽  
M Pugliatti ◽  
P Soelberg Sørensen ◽  
C Tiu ◽  
P Carrascal ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Lifestyle Modification ◽  
Healthy Lifestyle ◽  
Interdisciplinary Approach ◽  
Lifestyle Factors ◽  
Care Process ◽  
Coordinated Care ◽  
Timely Diagnosis

Abstract Background Multiple sclerosis (MS) is a chronic disease of the central nervous system. Over 750,000 people are affected across Europe. The European Brain Council initiated in 2018 a project RETHINKING MS, calling for change in MS care. Methods The research framework included desk research data mapping and expert interviews. A series of clinical and patient-oriented benchmarks along the care process were developed. Data were analysed in collaboration with experts from across Europe to build an interdisciplinary consensus around practical and sustainable policy responses to MS in Europe. Results Results indicate that a timely diagnosis is important to enable a prompt initiation of specific drugs and symptomatic treatment which, in turn, can prevent potentially irreversible disability. Care must be individualised to each person and their specific symptoms and needs. Regular monitoring is key to personalise care and provide adequate support but there are often delays to diagnosis and limitations to treatment personalisation due to inadequate access to diagnostic facilities and MS specialists. Access to therapies can also be extremely challenging. The interdisciplinary approach is essential; disease management includes aspects of lifestyle modification, as many 'brain healthy' lifestyle factors may delay progression and relapses. Finally, social care can greatly improve quality of life for people with MS, social workers and occupational therapists can also support people with MS in their professional and daily lives. Conclusions Conclusions link timely diagnosis and coordinated care, long-term adaptable support to better quality of life. Primary prevention modification of lifestyle factors Key messages Policies for multiple sclerosis in Europe have to be changed. Primary and secondary prevention are possible.

scholarly journals Associations between Lifestyle Behaviors and Quality of Life Differ Based on Multiple Sclerosis Phenotype

2021 ◽  
Vol 11 (11) ◽  
pp. 1218
Author(s):  
Nupur Nag ◽  
Maggie Yu ◽  
George A. Jelinek ◽  
Steve Simpson-Yap ◽  
Sandra L. Neate ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Physical Activity ◽  
Multiple Sclerosis ◽  
Healthy Lifestyle ◽  
Lifestyle Behaviors ◽  
Omega 3 ◽  
Cross Sectional ◽  
Supplement Use ◽  
Relapsing Remitting

Multiple sclerosis (MS), a neuroinflammatory disorder, occurs as non-progressive or progressive phenotypes; both forms present with diverse symptoms that may reduce quality of life (QoL). Adherence to healthy lifestyle behaviors has been associated with higher QoL in people with MS; whether these associations differ based on MS phenotype is unknown. Cross-sectional self-reported observational data from 1108 iConquerMS participants were analysed. Associations between lifestyle behaviors and QoL were assessed by linear regression, and phenotype differences via moderation analyses. Diet, wellness, and physical activity, but not vitamin D or omega-3 supplement use, were associated with QoL. Specifically, certain diet types were negatively associated with QoL in relapsing-remitting MS (RRMS), and positively associated in progressive MS (ProgMS). Participation in wellness activities had mixed associations with QoL in RRMS but was not associated in ProgMS. Physical activity was positively associated with QoL in RRMS and ProgMS. Phenotype differences were observed in diet and wellness with physical QoL, and physical activity with most QoL subdomains. Our findings show lifestyle behaviors are associated with QoL and appear to differ based on MS phenotype. Future studies assessing timing, duration, and adherence of adopting lifestyle behaviors may better inform their role in MS management.

Wellness for People Living with Multiple Sclerosis Begins on Day One—With Comprehensive, Coordinated Care that is Our Shared Responsibility

US Neurology ◽  
2016 ◽  
Vol 12 (02) ◽  
pp. 78 ◽  
Author(s):  
Rosalind Kalb ◽  
Keyword(s):  
Multiple Sclerosis ◽  
Psychosocial Support ◽  
Healthy Lifestyle ◽  
Shared Responsibility ◽  
Lifestyle Behaviors ◽  
Coordinated Care ◽  
Slow Disease Progression ◽  
Living Well ◽  
Wellness Strategies

Living well with multiple sclerosis (MS) requires the integration of neurologic and primary care, psychosocial support and wellness strategies from diagnosis onward. Promotion of healthy lifestyle behaviors and management of co-morbidities may help to improve quality of life, slow disease progression, reduce hospitalizations and prolong life. The National MS Society’s new Wellness Discussion Guide is available to facilitate conversations with patients as well as shared decision-making around wellness strategies.

Epidemiology of concurrent headache and sleep problems in Denmark

Cephalalgia ◽  
2014 ◽  
Vol 34 (10) ◽  
pp. 833-845 ◽  
Author(s):  
Nunu Lund ◽  
Maria Lurenda Westergaard ◽  
Mads Barloese ◽  
Charlotte Glümer ◽  
Rigmor Højland Jensen
Keyword(s):  
Quality Of Life ◽  
Lifestyle Modification ◽  
Sleep Problems ◽  
High Stress ◽  
Lifestyle Factors ◽  
Pathophysiological Mechanism ◽  
Depression And Anxiety ◽  
Unhealthy Lifestyle ◽  
Cross Sectional

Aims There are no previous epidemiologic studies on concurrent headache and sleep problems (HSP). This cross-sectional study aimed to determine the prevalence of HSP in Denmark, broadly characterize those with HSP, and examine associations between HSP and socioeconomic/lifestyle factors. Methods A total of 129,150 randomly selected individuals were invited to participate in the Danish National Health Survey 2010. Respondents were asked about headache, sleep problems, depression and anxiety in the last two weeks, health-related lifestyle and quality of life (SF-12). Socioeconomic data were retrieved from national registers. Prevalence proportions were adjusted for stratified sampling and non-response. Regression analyses examined associations between HSP and socioeconomic/lifestyle factors. Results Of 68,518 respondents, 16.3% reported only headache, 21.1% only sleep problems, and 18.1% HSP with 2.6% being severely affected. Prevalence was higher among women and the middle-aged. Severe HSP was associated with low socioeconomic position, non-Western ethnicity, unhealthy lifestyle, high stress and anxiety/depression. Those with HSP had substantially reduced quality of life; more so than those having only headache or only sleep problems. Conclusions HSP is a highly prevalent condition. Lifestyle modification, stress reduction, and screening for concurrent depression and anxiety may play important roles in management. The high prevalence of HSP suggests a common pathophysiological mechanism.

Critical issues of the biopsychosocial treatment of Parkinson’s disease

2015 ◽  
Vol 156 (12) ◽  
pp. 472-478 ◽  
Author(s):  
Péter Kincses ◽  
Norbert Kovács ◽  
Kázmér Karádi ◽  
János Kállai
Keyword(s):  
Quality Of Life ◽  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Psychological Health ◽  
Interdisciplinary Approach ◽  
Cognitive Status ◽  
Psychological Burden ◽  
Her Family ◽  
Critical Issues

This paper is a summary report on the basic questions of the biopsychosocial approach to Parkinson’s disease. It deals with cognitive, affective and psychological health issues which significantly influence the outcome of the physical rehabilitation. In spite of the unchanged cognitive status, the psychological burden of the changes in the quality of life, the obstruction, the change in the affective tone, and the shrinking ability to fulfil social roles decrease the patient’s quality of life. An interdisciplinary approach is best suited for mitigating these effects. Not only the patient but also his/her family and environment is seriously affected by the disease and its consequences. Treatment and rehabilitation options for increasing or maintaining the quality of life of the affected patients are diverse, and significantly depend on the features of the health care system. The authors believe that the following review emphasizing health psychological principles may contribute to the work of professionals working in clinical and rehabilitational fields and through them may increase the quality of life of patients and their family. Orv. Hetil., 2015, 156(12), 472–478.

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