scholarly journals Using survey data on population health literacy for developing a National Action Plan in Germany

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
E Berens ◽  
D Schaeffer

Abstract Promoted by the results of the European Health Literacy survey, the first representative German Health Literacy Survey (HLS-GER) was conducted in 2014. The results showed that every second individual in Germany (54.3 %) has limited health literacy. Thus, a majority of the German population is confronted with difficulties in finding, understanding, appraising, and applying health information. Particularly, vulnerable groups as people with migration background, low education attainment, and in older age as well as chronically ill have even more problems in processing health information and thus are confronted with challenges to maintain health, prevent diseases and use the healthcare system. Based on the initial research findings of the HLS-GER and the increasing attention and discussions arising with its results, the National Action Plan Health Literacy was developed by a group of experts to systematically improve and strengthen health literacy in Germany. After agreements with representatives of politics and society, health professions and patient and citizen organizations it was published in 2018. It includes 15 specific recommendations in four areas of action and focusses on fostering health literacy in daily life, creating a user-friendly and health literate healthcare system, HL and chronic illness and expanding health literacy research. Five underlying key principles are mentioned to consider in implementing the National Action Plan. The HLS-GER survey data were further used to discuss some recommendations within specialized workshops leading to more detailed strategy papers. The current political and practical developments and discussions initiated by National Action Plan, will be picked up in the second German Health Literacy Survey (HLS-GER2), which is part of HLS19. By repeatedly assessing population HL in Germany the implementation of the National Action Plan can be monitored and further specified, thus survey data help to create policy.

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
D Schaeffer ◽  
E Berens ◽  
S Gille ◽  
K Hurrelmann ◽  
U Bauer

Abstract Background In Germany, the development of the National Action Plan on Health Literacy (NAP) was triggered by results of the HLS-GER, the first representative study on HL in Germany, showing that more than half of the German population perceive great problems in processing health information. In response to this, a group of 15 experts from academia, practice and policy worked together on a first draft of the NAP, which was refined based on various stakeholder consultations and finally published in 2018. The plan focuses on four areas of action and initially presents 15 specific recommendations to strengthen health literacy in Germany following five key principles. After the delivery to the Federal Minister of Health in 2018, it quickly became clear that the action plan and its recommendations need additional tools for implementation. Therefore, a systematic implementation strategy was developed. Methods Core elements of the implementation strategy were a systematic dissemination of the plan as well as workshops with important stakeholders from policy, associations, patient and self-help organisations. The aim of the workshops was it to concretise single recommendations of the NAP and to develop additional tools to implement them in specific fields of actions. The workshops led to policy papers, which were consented by a group of stakeholders and again disseminated broadly. Results Through numerous publications and presentations in different contexts the NAP received great attention. Furthermore, seven workshops and one international symposium were conducted focussing on single recommendations of the NAP, each leading to policy papers. The workshops and policy papers contributed to identification with the NAP and motivated the development of tools to promote health literacy. Conclusions The implementation strategy was effective as many stakeholders could be involved. It is also resource and time consuming which needs to be considered in project planning.


2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
L Griese ◽  
D Schaeffer ◽  
E Berens ◽  
P Nowak ◽  
J Pelikan

Abstract Background Complex and intransparent structures are the main reasons why it is difficult for patients to navigate the healthcare system. Thus, patients need specific competencies to deal with health information related to orientation and finding the right pathways through the healthcare system. The aim was therefore to develop an internationally applicable instrument for measuring Navigation Health Literacy (N-HL) within the European Health Literacy Survey 2019 (HLS19). Methods Item development was conducted by a working group within the HLS19 consortium. It consisted of a scoping review on definitions, concepts and instruments, development of a definition of N-HL, a concept mapping and first item formation. The items were further developed by an evaluation by 6 experts, 4 focus group discussions, and feedback from members of the HLS19 Consortium. Finally, the feedback was integrated into the instrument and pretested in 33 interviews. Results 10 publications providing concepts and instruments assessing navigational aspects were identified, but the process of dealing with information was scarcely considered. Therefore, based on the HL definition by Sørensen et al. (2012) N-HL was defined as difficulties in finding, understanding, appraising and applying health information for navigating the healthcare system. In total, 10 tasks at system, organization and interaction level emerged within this definition, on which the final instrument is based. Of 15 initial items, 3 items were assessed as not relevant by experts. The feedback from focus group and HLS19 discussions lead to further revision and addition of items. The final instrument consists of 12 items which proved to be applicable in the pretest. Conclusions The instrument can be used to assess N-HL in international population studies and has been used within the HLS19 study to generate internationally comparable data on N-HL for the first time. By that it can form a basis for intervention development and monitoring. Key messages An instrument for measuring navigation health literacy (N-HL) is important to assess and monitor difficulties of patients to navigate the healthcare system and to underpin intervention development. The N-HL instrument of HLS19 can be used to assess N-HL in international population studies and provides internationally comparable data.


2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
◽  

Abstract Health literacy (HL) has become an important topic in many countries. As HL - meaning the ability to access, understand, appraise and apply health information (Sørensen et al. 2012) - is important to make sound health decisions, to promote health and to take an active part in managing health and illness in everyday life and navigating the health care system. In the modern digital knowledge society, HL is also indispensable for orienting oneself in the abundance of mostly digital health information, including incorrect and false information, for locating reliable information and for assessing the trustworthiness and quality of information. However, available studies show that HL is insufficient in many countries. Low HL has - as many studies show - negative social consequences ranging from unhealthy behaviour, higher risk for diseases, less self-care and deficits in coping with illness and chronicity, to over- and misuse (extensive use) of health care. The promotion of HL is therefore an important public health task. An increasing number of population studies and policy documents currently underline this. The WHO has therefore included HL into many of its strategies, like the declarations of Shanghai (2016) and Astana (2018), and has published several publications focusing on HL, like the Solid Facts (2013), the 57th Health Evidence Network Report (2018) or the Roadmap for Implementing Health Literacy Activities (2019). In many countries, strategies and national action plans to improve HL have been developed in response to the political call for action, e.g. in Scotland, Germany and recently also in Portugal. Other countries and regions are currently working on the development of a HL action plan, e.g. Belgium and the WHO European Region action plan on HL. The development and especially the implementation strategies of action plans in different countries and the experiences gained will be discussed comparatively in the workshop. Following an introduction (10'), two countries, which already have action plans will introduce their implementation strategy in one presentation each: Germany and Portugal (30'). This will be followed by two presentations of countries/regions in which action plans are currently being developed: Belgium and WHO Europe (30'). Afterwards the participants will have the opportunity to ask questions and discuss on the different strategies (20'). The workshop will help other initiatives to successfully develop and implement policy plans and strategies in different fields of public health. Key messages Strategies and national action plans to improve HL have been developed in different countries/regions. It is important to reflect on the chosen development and implementation strategies and to discuss their effects, successes and barriers.


2019 ◽  
Vol 66 (1) ◽  
pp. 10-22 ◽  
Author(s):  
Pauline Katharina Mantell ◽  
Annika Baumeister ◽  
Hildegard Christ ◽  
Stephan Ruhrmann ◽  
Christiane Woopen

Background: Health literacy (HL) is considered a key concept to positively address relevant decisions concerning physical and mental health. According to an integrated model of a European Consortium, the process to access, understand, appraise and apply health information is at the centre of practising HL. Aim: In this study, we examine HL in a population with an early onset of a mental disorder (MD). Methods: Results are based on a cross-sectional survey among people with MD ( n = 310) who sought help at an early detection centre for MD in Cologne, Dresden or Munich. Help-seekers filled out the European Health Literacy Survey questionnaire (HLS-EU-Q) on perception-based HL, socio-demographic data and general health status. Psychopathology was assessed separately by trained specialists. Data are compared with a representative sample of the German population. Results: Overall, HL was lower in a sample with MD compared with the general population. Disease-specific limitations were present in accessing, appraising and applying health information, whereas understanding was perceived fairly easy. Statistical analysis of limited HL revealed correlations with the diagnosis of affective disorders and anxiety disorders, an increase of depressive symptoms as well as the presence of more than one MD. In line with these findings, low levels of HL were associated with a worse general health status. Conclusion: In a population with MD, accessing, appraising and applying health information seemed to be particularly challenging. Therefore, educational programmes that mainly focus on increasing knowledge might not be sufficient for improving the HL in people with MD. Further research should concentrate on context-specific HL to foster behavioural change and improve overall health.


Author(s):  
Gabriela Rolova ◽  
Beata Gavurova ◽  
Benjamin Petruzelka

This mixed methods research paper explores health literacy (HL) in individuals with alcohol addiction by using the 47-item version of the European Health Literacy Survey Questionnaire (HLS-EU-Q47) and semi-structured interviews concerning health-related competencies (access, understand, appraise, and apply health information), and determines the limitations of the HLS-EU-Q47 when used under specific conditions of clinical practice. The questionnaire survey and the interviews were conducted with individuals of different health literacy levels who were undergoing inpatient alcohol addiction treatment. The findings indicate that individuals with alcohol addiction might require different types of health information according to their health literacy level in terms of quantity and quality of information to recover from alcohol addiction and improve their overall health. The implications for the clinical practice of addiction treatment as well as recommendations for national and regional policy are also discussed.


Author(s):  
Saskia Maria De Gani ◽  
Daniela Nowak-Flück ◽  
Dunja Nicca ◽  
Dominique Vogt

Dealing with health information and taking care of one’s own health are key aspects of health literacy and a difficulty for nearly half of the population in Europe. Limited health literacy often results in poorer health outcomes. Health literacy is a fundamental health determinant, and its improvement provides great potential for addressing public health challenges. Health care organizations play an important role in improving population’s health literacy. Health literate health care organizations facilitate access, understanding and use of health information and decrease the demands and complexities of the health care system. Few efforts have been taken so far to promote organizational health literacy, especially in German-speaking countries. This project aimed at developing a self-assessment tool, which enables primary care organizations to assess and improve their level of health literacy. The self-assessment tool was developed and evaluated with general practitioners and community care organizations in Switzerland. Here the participative development process, outcomes and the three modules of the self-assessment tool are presented: (1) manual with detailed introduction and instruction, (2) checklist for self-assessment of organizational health literacy and (3) handbook with measures for improvement. The aim of this tool is that organizations are able to identify the need for action, plan and implement improvement measures.


2021 ◽  
Author(s):  
Kazuhiro Nakayama ◽  
Yuki Yonekura ◽  
Hitomi Danya ◽  
Kanako Hagihara

Abstract Background Health literacy in Japanese people is often low because people find it difficult to evaluate health information and make informed decisions. Clarifying the association between health literacy and the skills to evaluate information and make appropriate decisions (not necessarily limited to health information) would inform efforts to improve health literacy. Therefore, the study objectives were to investigate the following issues using a nationwide survey in Japan: 1) When obtaining information, to what extent do people appropriately evaluate whether the information is reliable, and when making decisions, to what extent do they seek out available options and compare pros and cons based on their own values? 2) How strongly are these skills associated with health literacy and demographic characteristics? 3) What opportunities are available to learn these skills? Methods An online questionnaire survey was conducted using a Japanese Internet research company; 3,914 valid responses were received. The measures comprised health literacy (European Health Literacy Survey Questionnaire), five items on information evaluation, four items on the decision-making process, and items on the availability and location of learning opportunities. Pearson correlations were calculated to explore the association of health literacy with information-evaluation and decision-making skills. Multivariate analyses were also conducted using these factors as dependent variables. Results Less than half of respondents always or often evaluated information and engaged in the decision-making process. Health literacy was significantly correlated with information evaluation and the decision-making process (.26 and .30, respectively). More than 40% of respondents had no learning opportunities. Respondents who did have learning opportunities learned on their own, rather than at school or work, using sources such as the Internet and television. Conclusions Both information-evaluation and decision-making skills were associated with health literacy. However, these skills are not sufficiently widespread in Japan, because there are few opportunities to learn them. More research is needed to raise awareness of the importance of these skills for improving health literacy, and to provide appropriate learning opportunities. Additionally, an environment must be created in which all individuals can easily receive support at any time, so that they can make appropriate decisions based on reliable information.


2018 ◽  
Vol 28 (suppl_4) ◽  
Author(s):  
D Vogt ◽  
D Schaeffer ◽  
U Bauer ◽  
K Koplatzik ◽  
K Hurrelmann

Author(s):  
Doris Schaeffer ◽  
Svea Gille ◽  
Dominique Vogt ◽  
Klaus Hurrelmann

Abstract Aim Health literacy has gained increasing importance worldwide. As a result of several studies indicating low health literacy levels in large parts of the population, strategies and action plans promoting health literacy were developed in many countries. The article analyses the origin, development and structure of the German Health Literacy Action Plan. Subject and methods In 2016, a civil society initiative was formed, aiming at developing a national action plan in an expert-based and collaborative manner. A group of 15 experts elaborated the core elements of the action plan, based on a literature review on existing health literacy approaches, action plans and empirical evidence. These core elements were further developed collaboratively in workshops with key stakeholders, self-help and patient organizations and individual consultation meetings. Afterwards, the National Action Plan was reviewed and previously formulated recommendations were refined before being published. Results and conclusion The National Action Plan Health Literacy in Germany presents 15 recommendations in four areas of action for promoting health literacy in Germany. This bottom-up strategy and the expert-based yet at the same time collaborative approach have proved to be successful when developing a national action plan.


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