scholarly journals Relational Approaches in Patient-Oriented Research During the COVID-19 Pandemic

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 389-389
Author(s):  
Lillian Hung
Keyword(s):  
Older People ◽  
Research Team ◽  
Patient Involvement ◽  
Knowledge Exchange ◽  
Research Progress ◽  
Relational Approach ◽  
People With Dementia ◽  
Diverse Backgrounds ◽  
Set Up ◽  
Oriented Research

Abstract The COVID-19 pandemic has exposed the fragile state of patient involvement in research. The involvement of the most vulnerable population (older people with dementia) in research was even more challenging. This presentation outlines challenges my research team encountered in patient-led projects (older people with dementia) and describes how we found creative strategies to set up and complete research during the time of pandemic. I will describe how the team applied collaborative participatory principles to engage a team with diverse backgrounds in the lockdown time to maintain research progress. Patient partners in my research team actively led recruitment, research planning and decision-making, team analysis and knowledge exchange. University students in our research team helped to make technology easy to use for our patient partners. The friendly, flexible and accessible exchange between students and patient partners reinforced the importance of a respectful relational approach in patient-oriented research.

Liaison old age psychiatry

2013 ◽  
Author(s):  
John Holmes
Keyword(s):  
Mental Health ◽  
Older People ◽  
General Hospital ◽  
Health Assessment ◽  
Cost Savings ◽  
Liaison Psychiatry ◽  
People With Dementia ◽  
Wide Range ◽  
Part Time ◽  
Set Up

About one-third of general hospital beds are occupied by older people with dementia, delirium or depression. All these conditions bring poorer outcomes for individuals and organisations alike. In response to this, liaison psychiatry services for older people have evolved in order to provide timely mental health assessment, ongoing treatment and signposting to other mental health services. They also provide teaching and training for general hospital colleagues from a wide range of disciplines. There is wide variation in liaison service configurations and activity, from a part-time nurse to a large multidisciplinary team but the best evidence for effectiveness is for the latter. Liaison services can be difficult to set up, requiring agreement from all stakeholders, but once established they can bring improvements in quality as well as cost savings. This chapter explains the case of need for these services, considers different service models, examines service activities and support needs and helps the reader understand how local services can be evaluated.

scholarly journals Virtual connection between older people with dementia and families during COVID-19 pandemic

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 961-962
Author(s):  
Lillian Hung
Keyword(s):  
Older People ◽  
Technology Implementation ◽  
Future Research ◽  
Research Approach ◽  
Support Person ◽  
Staff Members ◽  
People With Dementia ◽  
Care Workers ◽  
Barriers To Implementation ◽  
Oriented Research

Abstract People staying in hospitals need more support to cope with the lockdown and visitor restriction during the COVID-19 pandemic, especially for older people with cognitive or physical impairment. Everyday technology such as a touchscreen tablet has great potential to support person-centred care. We aimed to support the adoption of tablets for hospitalized people with dementia to connect with families and friends. A patient-oriented research approach was employed to co-produce the toolkit. We are a transdisciplinary team, including a medical student, physicians, nurses, patients, and family partners. We facilitated staff focus groups (n=3), and conducted stakeholders’ interviews (n=4) to gain a more comprehensive understanding of users’ needs. The sample included ten patients, ten family members, 40 staff members, nurses, care workers, physicians, and unit clerks (n=40). The Consolidated Framework for Implementation Research (CFIR) guided the research design and qualitative analysis. A toolkit was developed based on participants’ perspectives on what needs to be in place to support successful adoption. We developed a mobile tablet with one mechanical arm and one leg on wheels. Participants reported impacts: (a) it puts a smile on the patient’s face, (b) it alleviates anxiety and worries on both sides, and (c) it reduces responsive behaviors. The conceptual framework CFIR provides helpful guidance in identifying barriers to implementation. Working with users including patient and family partners to explore possible solutions was key to our success. Future research should engage patient and family partners to seek proactive strategies to address obstacles to advance the science of technology implementation.

scholarly journals Understanding the Link between Family Caregiver Quality of Life and the Care Provided to Older People With Dementia

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 153-154
Author(s):  
Afeez Hazzan
Keyword(s):  
Quality Of Life ◽  
Quality Of Care ◽  
Older People ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Well Being ◽  
The United States ◽  
People With Dementia ◽  
The Impact

Abstract Dementia is one of the most rapidly growing diseases in the United States. In 2018, the direct costs to American society of caring for older people with dementia was approximately $277 billion. Primary informal caregivers are mainly responsible for the care of older people with dementia including Alzheimer’s disease. Caregivers perform a myriad of duties ranging from shopping for their loved ones’ groceries, helping with medications, and managing finances. The caregiving role becomes more demanding as the disease progresses over time, and studies have shown that the quality-of-life (QoL) experienced by caregivers of older adults who have dementia is lower than the QoL of caregivers for older people who do not have dementia. To the best of our knowledge, there has been no research conducted to investigate whether lower caregiver QoL affects the level or quality of care that caregivers provide to persons with dementia. In the current study, we interviewed family caregivers living in Rochester, New York to inquire about their quality of life and the care provided to older people living with dementia. Further, caregivers completed the 36-item Short Form Health Survey (SF-36) as well as a draft questionnaire for measuring the quality of care provided to older people living with dementia. Both quantitative and qualitative findings from this study reveals important relationships between family caregiver QoL and the care provided, including the impact of social support and financial well-being. The study findings could have significant impact, particularly for the provision of much needed support for family caregivers.

scholarly journals Quality of Care Provided by Family Caregivers of Older People With Dementia: Measurement and Interpretations

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 152-152
Author(s):  
Afeez Hazzan
Keyword(s):  
Quality Of Care ◽  
Older People ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Primary Reason ◽  
People With Dementia ◽  
High Level ◽  
The Impact ◽  
The Relationship

Abstract Family caregivers of older people living with dementia are relatives, friends, or neighbors who provide assistance related to this condition, but who are unpaid for the services they provide. Although caregiving could be personally rewarding, many caregivers report a high level of strain. Compared to caregivers of older adults who do not have dementia, family caregivers of older people living with dementia report lower quality-of-life (QoL). In a published systematic review examining the relationship between family caregiver QoL and the quality of care provided, only one study was found to be somewhat relevant. The study suggested that the primary reason for an absence of research into the link between family caregiver QoL and quality of care was the absence of a questionnaire for measuring quality of care in dementia. Therefore, any attempt to investigate the impact of caregiver QoL on the care provided to older people with dementia must first address the lack of an instrument to measure quality of care. To address this issue, we interviewed approximately 20 family caregivers in order to elicit feedback on measurements and interpretation of the quality of care provided by family caregivers of older people living with dementia. Content analysis of the interview transcripts revealed that the quality of relationships with family, caregiver availability to provide or supervise care, and availability of paid or volunteer help are important for the quality of care provided. These results have important implications, particularly for the development of an instrument to measure quality of care in dementia.

scholarly journals Effectiveness of the Validation Method in Work Satisfaction and Motivation of Nursing Home Care Professionals: A Literature Review

2020 ◽  
Vol 18 (1) ◽  
pp. 201
Author(s):  
Iván Sánchez-Martínez ◽  
Raül Vilar ◽  
Javier Irujo ◽  
Duna Ulsamer ◽  
Dolors Cano ◽  
...  
Keyword(s):  
Job Satisfaction ◽  
Literature Review ◽  
Older People ◽  
Single Case ◽  
Case Series ◽  
Nursing Home Care ◽  
Validation Method ◽  
People With Dementia ◽  
Cochrane Database ◽  
Quasi Experimental

The purpose of this study was to carry out a literature review on the effectiveness of the validation method (VM) in job satisfaction and motivation of care professionals working with older people in nursing homes. The review was carried out in specialised databases: Scopus, PsychINFO, PubMed, Web of Science (WOS), Google Scholar, Scielo, and Cochrane Database of Systematic Reviews. 9046 results were obtained, out of which a total of 14 studies met the inclusion criteria: five quantitative, four qualitative, one single case series, two quasi-experimental and two mixed methods studies. The results of the analysed studies report that the VM can be an effective tool that facilitates communication and interaction in care, reducing levels of stress and job dissatisfaction among care professionals. The VM facilitates communication between professionals and older people with dementia, and improves the management of complex situations that may arise in care, directly influencing a reduction in work stress and increasing job satisfaction.

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