scholarly journals Caring for a Family Member Living With Dementia When Adult Day Services Close

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 111-111
Author(s):  
Katherine Marx ◽  
Lauren Parker ◽  
Joseph Gaugler ◽  
Holly Dabelko-Schoeny ◽  
Laura Gitlin
Keyword(s):  
Mental Health ◽  
Physical Health ◽  
Family Member ◽  
Family Caregivers ◽  
Community Services ◽  
Time Range ◽  
Adult Day Services ◽  
Day Services ◽  
At Home

Abstract Adult Day Service (ADS) centers play an important role in community services that help families keep a person living with dementia (PLWD) at home. We interviewed 33 family caregivers about their experience during the COVID-19 Pandemic and the shutdown of the ADS centers where the PLWD attends. All 33 (100%) reported that the ADS center was shut for a period of time (range: 2 weeks – remain closed). Caregivers reported a decline in their physical health (33%,n=11) and mental health (52%,n=17) and an increase in feelings of loneliness (48%,n=16). For the PLWD, the caregivers noted, a decline in physical (48%,n=16) and mental (55%,n=18) health and an increase in behaviors (39%,n=13). The shutdown of most ADS centers across the country due to the COVID-19 pandemic has had implications not only for the ADS sites but for the families that entrust them with the care for a family member.

Family caregivers require mental health specialists for end‐of‐life psychosocial problems at home: a nationwide survey in Japan

2015 ◽  
Vol 25 (6) ◽  
pp. 641-647 ◽  
Author(s):  
Makoto Kobayakawa ◽  
Hitoshi Okamura ◽  
Akemi Yamagishi ◽  
Tatsuya Morita ◽  
Shohei Kawagoe ◽  
...  
Keyword(s):  
Mental Health ◽  
End Of Life ◽  
Family Caregivers ◽  
Psychosocial Problems ◽  
Nationwide Survey ◽  
At Home

scholarly journals The Interdependence of Advanced Cancer Patients’ and Their Family Caregivers’ Mental Health, Physical Health, and Self-Efficacy over Time

2015 ◽  
Vol 49 (6) ◽  
pp. 901-911 ◽  
Author(s):  
Trace Kershaw ◽  
Katrina R. Ellis ◽  
Hyojin Yoon ◽  
Ann Schafenacker ◽  
Maria Katapodi ◽  
...  
Keyword(s):  
Mental Health ◽  
Physical Health ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Self Efficacy ◽  
Advanced Cancer Patients ◽  
Over Time

scholarly journals Use of Adult Day Services: Improving the Lives of Family Caregivers

2020 ◽  
Vol 21 (8) ◽  
pp. 20
Author(s):  
Theresa A. Kessler ◽  
Lynette Rayman
Keyword(s):  
Family Caregivers ◽  
Adult Day Services ◽  
Day Services

scholarly journals Temporal Patterns of Daily Behavioral and Psychological Symptoms of Dementia Throughout the Day

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 53-54
Author(s):  
Caitlin Connelly ◽  
Kyungmin Kim ◽  
Yin Liu ◽  
Steven Zarit
Keyword(s):  
Family Caregivers ◽  
Stress Responses ◽  
Stress Reactivity ◽  
Psychological Symptoms ◽  
Temporal Patterns ◽  
Adaptive Intervention ◽  
Adult Day Services ◽  
Lower Reactivity ◽  
Day Services ◽  
Behavioral And Psychological Symptoms

Abstract Behavioral and psychological symptoms of dementia (BPSD) are taxing for both the person with dementia (PWD) and their family caregivers. Yet, little is known about how BPSD fluctuates throughout the day (i.e., morning, daytime, evening, and night; e.g., sundowning) and how caregivers perceive BPSD at different times of the day. Using 8-day daily diary data from 173 family caregivers whose relatives were using Adult Day Services (ADS), this study investigated temporal patterns of BPSD and caregivers’ stress responses to BPSD throughout the day. Overall, the number of BPSD was highest in the evening, and caregivers’ stress reactivity to BPSD increased throughout the phases of the day (i.e., most stressful at night). However, caregivers showed lower reactivity to BPSD in the mornings and at night on days when the PWD used ADS. Our findings about fluctuations of (caregiver reactions to) BPSD throughout the day suggest target windows for just-in-time adaptive intervention.

scholarly journals Daily Cortisol Total Output Mediated Sleep and Affect Among Dementia Family Caregivers

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 180-180
Author(s):  
Daniel Fleming ◽  
Elizabeth Fauth ◽  
Yin Liu
Keyword(s):  
Family Caregivers ◽  
Quality Care ◽  
High Stress ◽  
Area Under The Curve ◽  
Total Output ◽  
Night Time ◽  
Wake Time ◽  
Adult Day Services ◽  
Time In Bed ◽  
Day Services

Abstract Cortisol is a primary stress hormone associated with sleep. We examined daily cortisol as the potential mechanism linking prior night’s sleep and daily mood among 173 dementia family caregivers (M (SD) age = 61.97 (10.66)) who used adult day services (ADS) at least two days a week. Caregivers self-reported sleep characteristics (bed and wake time, sleep quality, care receiver’s night-time problems) and affect (anxiety, depressive symptoms) across eight consecutive ADS/non-ADS days. Salivary cortisol was collected five times each day. Multilevel mediation analysis suggested that daily cortisol total output (assessed as “area under the curve”) mediated prior nights’ total time in bed and daily anxiety, but only on high-stress (non-ADS) days. Mediation was non-significant on low-stress (ADS) days, and at the between-person level. ADS use is respite from a chronically stressful role. Reducing exposure to stress via respite may protect against harmful processes related to sleep, cortisol reactivity, and daily anxiety.

scholarly journals ADULT DAY SERVICES IN A RURAL REGION: CHALLENGES AND OPPORTUNITIES

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S154-S155
Author(s):  
Sandra S Butler ◽  
Jennifer Crittenden ◽  
Dyan Walsh ◽  
Lenard Kaye
Keyword(s):  
Older Adults ◽  
Family Caregivers ◽  
Service Providers ◽  
Positive Impact ◽  
Private Insurance ◽  
Insurance Coverage ◽  
Adult Day Services ◽  
Challenges And Opportunities ◽  
Day Services ◽  
Intergenerational Programming

Abstract Adult day services (ADS) programs provide stimulation and socialization for older adults with cognitive and physical disabilities, and much needed respite for family caregivers. Like many services for older adults, ADS programs are far less available in rural regions of the country than in more urban settings. This paper reports on a needs assessment for an ADS program in a small city, which serves as a health and human services hub for a large rural area; a particular focus of the study was to assess the feasibility and interest in intergenerational programming. Family caregivers were surveyed (n = 84) about their use and knowledge of and interest in ADS. Less than one in five respondents were using or had ever used ADS. Cost (20%) and ignorance of such programs (20%) were primary reasons for not using ADS; reduction of stress was the most frequently cited reason for using ADS (73%). Ten in-person interviews were conducted with ADS program directors and service providers who refer clients to ADS. Funding issues emerged as the key challenge given lack of private insurance coverage and poor reimbursement levels from public insurance programs. Challenges around transportation, stigma, and marketing of services also surfaced in the interviews. Nonetheless, all ten informants spoke of the positive impact of ADS for both consumers and their caregivers, and generally endorsed intergenerational activities, though with caveats. Implications will be discussed, including the need for greater financial support for this valuable aspect of our long-term supports and services system.

Sign in / Sign up

Export Citation Format

Share Document