Mental health and physical health of family caregivers for persons with dementia: A comparison of African American and white caregivers

2007 ◽  
Vol 11 (5) ◽  
pp. 538-546 ◽  
Author(s):  
B. G. Knight ◽  
C. V. Flynn Longmire ◽  
J. Dave ◽  
J. H. Kim ◽  
S. David
Keyword(s):  
Mental Health ◽  
African American ◽  
Physical Health ◽  
Family Caregivers ◽  
White Caregivers

Evaluation of the Caregiver Preparedness Scale in African American and White Caregivers of Persons With Dementia During Post-Hospitalization Transition

2021 ◽  
pp. JNM-D-20-00087
Author(s):  
Ashley Kuzmik ◽  
Marie Boltz ◽  
Barbara Resnick ◽  
Rhonda BeLue
Keyword(s):  
African American ◽  
Family Caregivers ◽  
Measurement Invariance ◽  
Factor Structure ◽  
Predictive Validity ◽  
White Family ◽  
White Caregivers ◽  
Structure Measurement

Background and PurposeThe Preparedness for Caregiving Scale (PCS) is a widely used instrument to measure caregiver preparedness. The purpose was to evaluate the PCS in African American and White caregivers of patients with dementia upon discharge from the hospital.MethodsFactor structure, measurement invariance, and predictive validity of the PCS were assessed in a sample of 292 family caregivers/patient dyads.ResultsOne-factor structure of the PCS and measurement invariance by race was fully supported. Predicative validity revealed significant association between the PCS and anxiety (β = −.41, t = −7.61(287), p < .001), depression (β = −.44, t = −8.39(287), p < .001), and strain (β = −.48, t = −9.29(287), p < .001).ConclusionThe PCS is a valid and meaningful tool to measure preparedness in African American and White family caregivers of persons with dementia during post-hospitalization transition.

Introduction

2018 ◽  
Author(s):  
Helen K. Black ◽  
John T. Groce ◽  
Charles E. Harmon
Keyword(s):  
African American ◽  
Physical Health ◽  
Family Caregivers ◽  
Large Data ◽  
Large Data Sets ◽  
Care Work ◽  
Advanced Technology ◽  
Data Sets ◽  
History Of ◽  
Male Caregivers

Chapter One offers a brief history of the rise in awareness of the vast numbers of informal, family caregivers caring for aged, demented, and impaired loved ones in the home. The importance of informal caregivers to the healthcare system, both financially and emotionally, emerged in studies exploring the numbers of home caregivers and the nature of their care work. Early studies also focused on the sense of burden caregivers experienced due to caregiving. Since the 1980s, caregiving studies have been a constant in research, and have become increasingly complex in the use of large data sets and advanced technology to study the number of caregivers, their characteristics and labors, and the outcomes of caregiving on their emotional and physical health. Few studies have focused solely on the experience of caregiving in African-American elder male caregivers, and in the way we accomplish here.

scholarly journals The Interdependence of Advanced Cancer Patients’ and Their Family Caregivers’ Mental Health, Physical Health, and Self-Efficacy over Time

2015 ◽  
Vol 49 (6) ◽  
pp. 901-911 ◽  
Author(s):  
Trace Kershaw ◽  
Katrina R. Ellis ◽  
Hyojin Yoon ◽  
Ann Schafenacker ◽  
Maria Katapodi ◽  
...  
Keyword(s):  
Mental Health ◽  
Physical Health ◽  
Cancer Patients ◽  
Family Caregivers ◽  
Advanced Cancer ◽  
Self Efficacy ◽  
Advanced Cancer Patients ◽  
Over Time

scholarly journals Caring for a Family Member Living With Dementia When Adult Day Services Close

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 111-111
Author(s):  
Katherine Marx ◽  
Lauren Parker ◽  
Joseph Gaugler ◽  
Holly Dabelko-Schoeny ◽  
Laura Gitlin
Keyword(s):  
Mental Health ◽  
Physical Health ◽  
Family Member ◽  
Family Caregivers ◽  
Community Services ◽  
Time Range ◽  
Adult Day Services ◽  
Day Services ◽  
At Home

Abstract Adult Day Service (ADS) centers play an important role in community services that help families keep a person living with dementia (PLWD) at home. We interviewed 33 family caregivers about their experience during the COVID-19 Pandemic and the shutdown of the ADS centers where the PLWD attends. All 33 (100%) reported that the ADS center was shut for a period of time (range: 2 weeks – remain closed). Caregivers reported a decline in their physical health (33%,n=11) and mental health (52%,n=17) and an increase in feelings of loneliness (48%,n=16). For the PLWD, the caregivers noted, a decline in physical (48%,n=16) and mental (55%,n=18) health and an increase in behaviors (39%,n=13). The shutdown of most ADS centers across the country due to the COVID-19 pandemic has had implications not only for the ADS sites but for the families that entrust them with the care for a family member.

End of Life Care and Reactions to Death in African-American and White Family Caregivers of Relatives with Alzheimer's Disease

2001 ◽  
Vol 43 (4) ◽  
pp. 349-361 ◽  
Author(s):  
Jason E. Owen ◽  
Kathryn T. Goode ◽  
William E. Haley
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
African American ◽  
End Of Life ◽  
Family Caregivers ◽  
Ethnic Differences ◽  
End Of Life Care ◽  
The United States ◽  
Life Care ◽  
White Caregivers

Family caregivers for relatives with Alzheimer's Disease (AD) often experience significant stress-related problems in mental and physical health. Patients with AD often survive for protracted periods of time, placing an extensive burden of care on the caregiver prior to the patient's death. The present study addresses ethnic differences in the experience of AD caregivers around the time of their loved one's death, including life-sustaining treatment decisions and reactions to death. The results showed that, in our sample, more patients died in their homes than has been reported for deaths in the United States. African-American and White caregivers differed substantially in their reports of end of life care and subjective reactions to the death. Compared with White caregivers, African-American caregivers were less likely to make a decision to withhold treatment at the time of death, less likely to have their relative die in a nursing home, and reported less acceptance of the relative's death and greater perceived loss. Results suggest that death after AD caregiving deserves further study, and that ethnic differences in end of life care and bereavement may be of particular importance.

Racial discrimination, racism-specific support, and self-reported health among African American couples

2019 ◽  
Vol 37 (3) ◽  
pp. 779-799 ◽  
Author(s):  
Shardé McNeil Smith ◽  
Lillie D. Williamson ◽  
Hafeezah Branch ◽  
Frank D. Fincham
Keyword(s):  
Mental Health ◽  
African American ◽  
African Americans ◽  
Physical Health ◽  
Lived Experience ◽  
Racial Discrimination ◽  
General Health ◽  
Specific Support ◽  
African American Couples ◽  
Mental And Physical Health

Racial discrimination is a part of the lived experience for African Americans, and it is widely found to have damaging consequences to their mental and physical health; yet, we know less about how romantic partners influence the degree to which racial discrimination can impinge on health outcomes. Using a dyadic approach with heterosexual African American couples ( N = 487), the current study examined the compensatory and stress-buffering effects of racism-specific support (RSS) from the partner on the associations between racial discrimination and one’s own and one’s partner’s self-reported mental, physical, and general health. We found that perceptions of RSS from the partner were associated with better mental and physical health for husbands and better physical and general health for wives, independent of the effects of their own and their partner’s racial discrimination. However, wives showed compromised mental health when their husbands perceived high levels of RSS. Furthermore, among wives who reported low levels of RSS from their partner, wives’ and husbands’ experiences of racial discrimination were associated with wives’ lowered mental health. These findings suggest that couple-level interventions for African Americans should pay specific attention to wives who may carry the burden of their own and their husbands’ experiences of racial discrimination.

Physical Health, Mental Health, and Life Changes Among Family Caregivers of Patients With Lung Cancer

2012 ◽  
Vol 40 (1) ◽  
pp. 53-61 ◽  
Author(s):  
Catherine E. Mosher ◽  
Tamilyn Bakas ◽  
Victoria L. Champion
Keyword(s):  
Mental Health ◽  
Lung Cancer ◽  
Physical Health ◽  
Family Caregivers ◽  
Life Changes
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