scholarly journals Older People With Dementia Running a Pop-Up Restaurant: How to Use Reality Shows to Reduce the Stigma of Dementia

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 181-181
Author(s):  
Wenqian Xu
Keyword(s):  
Risk Factor ◽  
Older People ◽  
Family Caregivers ◽  
Social Engagement ◽  
Signs And Symptoms ◽  
Later Life ◽  
Personal Goals ◽  
Family Carers ◽  
Reality Show ◽  
People With Dementia

Abstract The present study focused on a Chinese reality show, Forget Me Not Café, which brought together five older people (aged 65 and older) living with dementia to run a pop-up restaurant and intended to reduce the stigma of dementia. The study aims to explore how the reality-show participants describe dementia in older people and how their views relate to the macrosocial context of dementia and older people. This study performed a thematic discourse analysis on the written and spoken content about dementia in older people (or later life) presented in the reality show. Four discursive themes were identified including: (1) age is a risk factor for dementia; (2) early signs and symptoms of dementia in older people deserve attention; (3) putting pressure on family caregivers of people with dementia; (4) expectations to maintain social engagement and slow down the development of dementia. This study also found that the views of the reality-show participants highlight the capability of older people with dementia to communicate effectively and live with the condition, their personal goals of sustaining a happy, meaningful and sociable life, as well as their actions to positively influence personal circumstances. The results of this study indicate that this reality show might help reduce the stigma of dementia and empower older people living with dementia, while it also tends to stress the responsibility for care on family carers and shift the responsibility of managing the dementia-related challenges to older people living with dementia.

scholarly journals Understanding the Link between Family Caregiver Quality of Life and the Care Provided to Older People With Dementia

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 153-154
Author(s):  
Afeez Hazzan
Keyword(s):  
Quality Of Life ◽  
Quality Of Care ◽  
Older People ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Well Being ◽  
The United States ◽  
People With Dementia ◽  
The Impact

Abstract Dementia is one of the most rapidly growing diseases in the United States. In 2018, the direct costs to American society of caring for older people with dementia was approximately $277 billion. Primary informal caregivers are mainly responsible for the care of older people with dementia including Alzheimer’s disease. Caregivers perform a myriad of duties ranging from shopping for their loved ones’ groceries, helping with medications, and managing finances. The caregiving role becomes more demanding as the disease progresses over time, and studies have shown that the quality-of-life (QoL) experienced by caregivers of older adults who have dementia is lower than the QoL of caregivers for older people who do not have dementia. To the best of our knowledge, there has been no research conducted to investigate whether lower caregiver QoL affects the level or quality of care that caregivers provide to persons with dementia. In the current study, we interviewed family caregivers living in Rochester, New York to inquire about their quality of life and the care provided to older people living with dementia. Further, caregivers completed the 36-item Short Form Health Survey (SF-36) as well as a draft questionnaire for measuring the quality of care provided to older people living with dementia. Both quantitative and qualitative findings from this study reveals important relationships between family caregiver QoL and the care provided, including the impact of social support and financial well-being. The study findings could have significant impact, particularly for the provision of much needed support for family caregivers.

scholarly journals Quality of Care Provided by Family Caregivers of Older People With Dementia: Measurement and Interpretations

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 152-152
Author(s):  
Afeez Hazzan
Keyword(s):  
Quality Of Care ◽  
Older People ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Primary Reason ◽  
People With Dementia ◽  
High Level ◽  
The Impact ◽  
The Relationship

Abstract Family caregivers of older people living with dementia are relatives, friends, or neighbors who provide assistance related to this condition, but who are unpaid for the services they provide. Although caregiving could be personally rewarding, many caregivers report a high level of strain. Compared to caregivers of older adults who do not have dementia, family caregivers of older people living with dementia report lower quality-of-life (QoL). In a published systematic review examining the relationship between family caregiver QoL and the quality of care provided, only one study was found to be somewhat relevant. The study suggested that the primary reason for an absence of research into the link between family caregiver QoL and quality of care was the absence of a questionnaire for measuring quality of care in dementia. Therefore, any attempt to investigate the impact of caregiver QoL on the care provided to older people with dementia must first address the lack of an instrument to measure quality of care. To address this issue, we interviewed approximately 20 family caregivers in order to elicit feedback on measurements and interpretation of the quality of care provided by family caregivers of older people living with dementia. Content analysis of the interview transcripts revealed that the quality of relationships with family, caregiver availability to provide or supervise care, and availability of paid or volunteer help are important for the quality of care provided. These results have important implications, particularly for the development of an instrument to measure quality of care in dementia.

Quality of life and the associated factors among family caregivers of older people with dementia in Thailand

2020 ◽  
Vol 22 (4) ◽  
pp. 913-920
Author(s):  
Linchong Pothiban ◽  
Chomphoonut Srirat ◽  
Nahathai Wongpakaran ◽  
Orawan Pankong
Keyword(s):  
Quality Of Life ◽  
Older People ◽  
Family Caregivers ◽  
Associated Factors ◽  
People With Dementia

A Pilot Study on the Efficacy of Stress Relief Programs for Family Caregivers of Older People with Dementia

2020 ◽  
Vol 41 (9) ◽  
pp. 824-831 ◽  
Author(s):  
Pi-Lan Tsai ◽  
Shu-Min Chan ◽  
Ru Shang Jiang ◽  
Shwu-Hua Lee ◽  
Jung Lung Hsu
Keyword(s):  
Pilot Study ◽  
Older People ◽  
Family Caregivers ◽  
Stress Relief ◽  
People With Dementia

Factors Affecting the Level of Depression and Life Satisfaction of Family Caregivers of Frail Older People in Korea

2006 ◽  
Vol 5 (3) ◽  
pp. 399-408 ◽  
Author(s):  
Soo Young Kim ◽  
So Young Min
Keyword(s):  
Older People ◽  
Family Caregivers ◽  
Well Being ◽  
Family Carers ◽  
Frail Older People ◽  
Family Structures ◽  
Factors Affecting ◽  
Aged Society ◽  
Major Factors

South Korea is rapidly becoming an aged society and with changing family structures there is increasing concern about the care of older people. This paper considers the well being of family carers of older people who suffer from dementia or a stroke. One hundred and sixty eight family caregivers, who were caring for elderly relatives, were selected and the major factors affecting their psychological well-being and proposals to improve their quality of life are identified and discussed.

scholarly journals A LIFE MORE ORDINARY: CREATING DEMENTIA-FRIENDLY SPACES THROUGH THE PERFORMATIVE ARTS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S535-S535
Author(s):  
Christine Milligan
Keyword(s):  
Older People ◽  
Sense Of Belonging ◽  
Qualitative Evaluation ◽  
Family Carers ◽  
Micro Scale ◽  
Everyday Activities ◽  
Meaningful Participation ◽  
The Arts ◽  
People With Dementia ◽  
The City

Abstract The concept of dementia friendly communities emerged from the ‘age-friendly’ movement that has been supported by the WHO for some time. This recognizes that like most older people, those with dementia desire to remain in their own homes, and their own communities, for as long as possible. But it also recognizes the significant socio-environmental challenges this can present. Transforming attitudes to dementia, supporting family and friend caregivers, and promoting meaningful participation for all in the community are essential to the success of any such movement. This paper draws on a qualitative evaluation of one such programme that has sought to develop innovative dementia friendly spaces through the arts and arts performance. Focusing on the Dukes Theatre in Lancaster, UK and its partner theatres and cinemas, I discuss how these venues have, over a three year period, developed spaces in which both people with dementia and their family carers can continue to meaningfully participate in ordinary everyday activities that can be crucial to maintaining the sense of belonging and partnership that is often lost as the dementia journey progresses. Whilst efforts to implement change at the city and community level are laudable, I suggest that it is perhaps at the micro-scale of individual places that we are most likely to successfully stimulate change.

Service-related needs of older people with dementia: perspectives of service users and their unpaid carers

2013 ◽  
Vol 25 (7) ◽  
pp. 1107-1114 ◽  
Author(s):  
Sylwia Górska ◽  
Kirsty Forsyth ◽  
Linda Irvine ◽  
Donald Maciver ◽  
Susan Prior ◽  
...  
Keyword(s):  
Older People ◽  
Lived Experience ◽  
Service Provision ◽  
Social Engagement ◽  
Diagnostic Procedures ◽  
Political Agenda ◽  
People With Dementia ◽  
Health And Social Care ◽  
The Impact ◽  
Diagnostic Support

ABSTRACTBackground: Dementia is a major cause of disability among older people and constitutes one of the greatest challenges currently facing families and health and social care services in the developed world. In response to trends in dementia prevalence and the impact the condition has on peoples’ lives, dementia care has been placed high on the public and political agenda in the United Kingdom. However, despite significant public resources being allocated to combat the impact of the disease, recent evidence indicates that numerous challenges in relation to service provision remain. This study aimed to develop a deeper understanding of the lived experience of people with dementia regarding their service-related needs.Method: The study made use of data gathered through individual semi-structured, narrative interviews conducted with persons with experience of dementia and their unpaid carers.Results: Although participants were generally satisfied with the services they received, a number of unmet needs related to service provision were identified. In terms of diagnostic procedures the findings of this study indicate the need for early diagnosis delivered through a comprehensive assessment package. The participants also highlighted the need for well-coordinated post-diagnostic support, greater continuity of care concerning the personnel involved, and enhanced access to non-pharmacological interventions to support identity and social engagement.Conclusion: This study contributes to a better understanding of service-related needs of people with dementia in relation to diagnostic procedures and post-diagnostic support.

Sign in / Sign up

Export Citation Format

Share Document