scholarly journals Community-Engaged Research With Indigenous Communities to Improve Elder Health and Well-Being

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 233-233
Author(s):  
Jordan Lewis

Abstract Much of the past research conducted with tribal communities was coined "helicopter research," because researchers would enter the community, gather data, and leave the community, never to inform communities how the data was used or published, creating mistrust. Community Based Participatory Research (CBPR) is a research approach conducted as an equal partnership between community members, organizational representatives, and researchers that serve as guidelines for researchers working collaboratively with communities. This symposium will offer a panel of presentations highlighting research studies with tribal communities that honor and respect tribal sovereignty in addressing health and wellbeing among their older adults. The panel presentations will consist of presentations on dementia caregiving, generativity and successful aging, social support and diabetes management, elder-centered research methods.

2021 ◽  
Vol 6 (8) ◽  
pp. e006370
Author(s):  
Tanvir Chowdhury Turin ◽  
Nashit Chowdhury ◽  
Sarika Haque ◽  
Nahid Rumana ◽  
Nafiza Rahman ◽  
...  

Primary healthcare access is one of the crucial factors that ensures the health and well-being of a population. Immigrant/racialised communities encounter a myriad of barriers to accessing primary healthcare. As global migration continues to grow, the development and practice of effective strategies for research and policy regarding primary care access are warranted. Many studies have attempted to identify the barriers to primary care access and recommend solutions. However, top-down approaches where the researchers and policy-makers ‘prescribe’ solutions are more common than community-engaged approaches where community members and researchers work hand-in-hand in community-engaged research to identify the problems, codevelop solutions and recommend policy changes. In this article, we reflect on a comprehensive community-engaged research approach that we undertook to identify the barriers to equitable primary care access among a South Asian (Bangladeshi) immigrant community in Canada. This article summarised the experience of our programme of research and describes our understanding of community-engaged research among an immigrant/racialised community that meaningfully interacts with the community. In employing the principles of community-based participatory research, integrated knowledge translation and human centred design, we reflect on the comprehensive community-engaged research approach we undertook. We believe that our reflections can be useful to academics while conducting community-engaged research on relevant issues across other immigrant/racialised communities.


2021 ◽  
Vol 48 (3) ◽  
pp. 361-370
Author(s):  
Vincent Werito ◽  
Lorenda Belone

Purpose. Indigenous ( Diné) communities have long endured high rates of behavioral and mental health diseases like depression, drug and alcohol dependency, and suicide due to historical trauma and posttraumatic stress disorders. Western research methods used to address these issues have often failed to provide sufficient understanding of the culturally nuanced dynamics underpinning these health disparities in Indigenous contexts. As a result, Indigenous health disparities have actually increased and complex culture-based relationships that influence health outcomes are underconceptualized. Aim. For the first time a community-based participatory research approach from a Diné perspective is introduced to three Navajo communities in New Mexico to collaboratively explore their perspectives about community-engaged research and community well-being from a Diné lens. The overarching research question was: Can a community-based participatory research approach embedded within a Diné research paradigm be utilized to develop a culturally centered intervention approach? Methods. The study utilized a mixed method approach that included surveys and focus groups. Results. Six overarching themes emerged that underscored the important role of utilizing a community-based participatory Diné-centered approach to define community well-being and increase community agency to address their own health disparities. Conclusion. Indigenous-centered community-engaged research can potentially become an intervention approach for informing Indigenous communities’ understandings of well-being by drawing upon local cultural Indigenous knowledge. This study demonstrated that developing an effective community-engaged research partnership to address health disparities in a Diné context must be informed by a Diné paradigm grounded in local community cultural knowledge.


Museum Worlds ◽  
2013 ◽  
Vol 1 (1) ◽  
pp. 136-152 ◽  
Author(s):  
Laura Peers

Access to heritage objects in museum collections can play an important role in healing from colonial trauma for indigenous groups by facilitating strengthened connections to heritage, to ancestors, to kin and community members in the present, and to identity. This article analyzes how touch and other forms of sensory engagement with five historic Blackfoot shirts enabled Blackfoot people to address historical traumas and to engage in ‘ceremonies of renewal’, in which knowledge, relationships, and identity are strengthened and made the basis of well-being in the present. The project, which was a museum loan and exhibition with handling sessions before the shirts were placed on displays, implies the obligation of museums to provide culturally relevant forms of access to heritage objects for indigenous communities.


Autism ◽  
2020 ◽  
Vol 24 (5) ◽  
pp. 1246-1259 ◽  
Author(s):  
Gary Yu Hin Lam ◽  
Emily Holden ◽  
Megan Fitzpatrick ◽  
Linda Raffaele Mendez ◽  
Karen Berkman

Past research has largely focused on the negative aspects of well-being of autistic young adults during the post-school transition. Research that meaningfully includes autistic individuals and captures their perspectives of positive well-being is essential for stakeholders to better understand how to provide services that respond to the needs and wants of the autistic community. In the current study, 14 autistic young adults in a post-school transition program participated in a Photovoice project and used photos to express their ideas about well-being. A participatory action research approach was used to support participants’ active engagement in the research processes and to encourage meaningful expression of their first-person perspectives. Results revealed an account of well-being reflecting expressions of individuality and growth, the significance of having close relationships, and a sense of connection with the community. This study has implications for research and practice that promotes well-being among the autistic community using approaches that are ethically informed and inclusive of autistic voices. Lay abstract Past research has mainly focused on autistic people’s deficits and poor outcomes compared to other groups of people. Little is known about their positive life experiences, and how to support them to achieve a higher quality of life. It is important to include autistic individuals in research so that they can influence how their voices are represented in a meaningful way and how the research results will be useful to them. In this study, a university researcher collaborated with 14 autistic young adults in a post-school transition program to design and run the research, collect and analyze the data, and use the results to create a presentation to the community. Specifically, the participants took photos in daily life and discussed their ideas about what a good life means to them. Results showed that these young adults described themselves as uniquely and different, but they were eager to learn and adapt. They also valued their relationships with their families, friends, and animals around them, as well as the community at large. This research shows that autistic individuals have important perspectives to share and knowledge to contribute when they are given the opportunities to participate in different aspects of research. The findings will be useful in developing services and influencing policies that promote well-being among autistic adults.


Affilia ◽  
2018 ◽  
Vol 33 (3) ◽  
pp. 379-394 ◽  
Author(s):  
Felicia M. Mitchell

Historical accounts of research conducted in American Indian (AI) communities have shown that research activities have not always been in the best interest of tribes. In some instances, research conducted with tribes has been harmful and resulted in unnecessary trauma and distress. In response to past wrongdoings, many researchers now seek to engage tribal communities in research that is collaborative, respectful, and reciprocal. Community-based participatory research (CBPR) is one such “epistemological orientation” that has the potential to address the “oppressive, exploitive legacy of research done on Indigenous people.” This article details the author’s experience of engaging in CBPR during their dissertation study of the significance of water and its relationship to AI health and well-being. The author reflects on their firsthand account of developing and implementing the study in partnership with a local tribe. Particular attention is given to the processes of CBPR through an illustrative case example that took place on an AI reservation located in the Midwestern United States. The case example is informed by “counter storytelling” and is critically reviewed using the principle tenants of CBPR. The article concludes with implications for doctoral education and research with AI communities.


2020 ◽  
Vol 12 (18) ◽  
pp. 7472 ◽  
Author(s):  
Hsing-Sheng Tai

While the notion of social-ecological system resilience is widely accepted and applied, the issue of “resilience for whom” is clearly ignored. This phenomenon has also occurred in Taiwan. This article explores the roots of, and a possible solution to, this issue through a case study in the context of Taiwan’s indigenous peoples. The Danungdafu area, the focal social-ecological system, was studied. Qualitative research methods and an action-oriented research approach were employed. For a long period, the central government shaped the political, economic, social, institutional, and ecological contexts; dominated resilience discourses and determined the problem-framing and problem-solving agenda; defined the scale and levels at which social-ecological system governance issues were addressed; and determined the knowledge system used to define and solve problems. After 2011, a new participatory governance regime emerged. Multiple stakeholders, including indigenous communities, began to contribute to resilience discourses and influenced governance and trade-offs among differing governance goals. However, under the established structures dominated by Han people, indigenous views, rights, and well-being continue to be ignored. Affirmative action is required to recognize and safeguard indigenous rights. A practical institutional pathway is available to facilitate the transformation from “resilience for mainstream society” to “resilience for indigenous people” in indigenous territories.


2019 ◽  
Vol 3 (s1) ◽  
pp. 96-96
Author(s):  
Karen D. Calhoun ◽  
Kent Key ◽  
E. Yvonne Lewis ◽  
Susan J Woolford ◽  
E. Hill DeLoney ◽  
...  

OBJECTIVES/SPECIFIC AIMS: o To review the community’s recommendations on how to rebuild trust in the Flint community. o To review effective community engagement strategies utilized with the Flint Special Projects for project conceptualization, participant recruitment, data analysis, project oversight, and dissemination. METHODS/STUDY POPULATION: The study population includes nearly two hundred residents representing seniors, youth and diverse ethnicities recruited to participate in eleven focus group meetings. The population also represents the general public who attended informational meetings in Flint, Michigan to learn about the crisis and allow residents to voice their opinions and concerns during the onset of the crisis. The project is a mixed methods community based participatory research effort that utilized community decision making in all phases of the effort such as pre-conception, implementation, dissemination and advocacy to encourage the community’s recommendations are adopted at policy and institutional responsiveness levels. It includes three community engaged research efforts: (project 1) A qualitative analysis of community sentiment provided during 17 recorded legislative, media and community events, and (projects 2-3) two mixed methods efforts utilizing purposive sampling of stakeholders whose voice may not have been heard. RESULTS/ANTICIPATED RESULTS: The project presents a qualitative analysis of the community’s voice during the onset of the man-made disaster when the community first became aware of the emergency manager’s plans to switch the water source. It also reflects current perspectives of community voice since the projects are scheduled to end late February 2019. Findings from a trust measure administered to nearly two hundred residents will be presented, along with a qualitative analysis of focus group findings among segments of the population (seniors, youth, and diverse ethnicities) who may have been left out of narratives on the water crisis. Finally, the project will compare empowerment and resiliency approaches being utilized in Flint, Michigan to recover from the disaster with other approaches grounded in literature and theory. DISCUSSION/SIGNIFICANCE OF IMPACT: Communities of color often experience social determinants of health which negatively impact their health, well-being and human rights. Some Flint citizens are experiencing negative health consequences (i.e., rashes, brain and behavioral sequelle, fertility, etc.) as a result of the disaster, and are uncertain of health outcomes in the future. This is the first project to rigorously document and analyze levels of trust and mistrust in the city of Flint since the water disaster occurred. The qualitative research will guide future clinical research that will benefit this traumatized community experiencing high levels of mistrust (i.e., government, elected officials, etc.). The community engaged methodology involved residents and study participants in all phases of the project including project oversight, validating and analyzing data, and dissemination. This methodology will contribute to existing literature and theory on community based participatory research, community engaged research, team science and citizen science. The approaches empowered a call to action among residents, for example, seniors who attended two senior focus group sessions shared “they are hopeful and have a purpose,” resulting in the creation of a council (with officers) at their housing complex to advocate for the well-being of seniors during the recovery process. Recruitment methodologies were extremely successful due to resident level trust in community leaders and community partner organizations. Finally, the project’s examination of approaches encouraging empowerment and resiliency will provide lessons learned for other communities challenged with crisis.


2020 ◽  
Vol 15 (2) ◽  
pp. 75-83
Author(s):  
Rachel S Purvis ◽  
Leah R Eisenberg ◽  
Christopher R Trudeau ◽  
Christopher R Long ◽  
Pearl A McElfish

Background The Pacific Islander population is the second fasting growing population in the United States and Arkansas is home to the largest Marshallese population in the continental US. The Marshallese community have significant health disparities with high prevalence of diabetes, heart disease, and obesity compared to the general US population. Using a community-based participatory research approach, researchers and Marshallese community stakeholders identified diabetes as the top health issue for research. Methods From 2014 to 2018, a randomized control trial was conducted comparing standard diabetes management education with a culturally adapted family model of standard diabetes management education delivered in participants’ homes by Marshallese community health workers and certified diabetes educators. Interviews were held with Marshallese participants to document their experiences with and perceptions of the informed consent process for this randomized control trial. Results Participants provided feedback on the process of enrolling in the study, describing barriers and facilitators to giving informed consent from their perspective, and offering recommendations for improving the informed consent process. Conclusion Findings suggest that informed consent with underserved communities, including immigrant and migrant populations who do not speak English or have limited English proficiency, is possible, and that using a community-based participatory research approach can help facilitate the informed consent process.


2021 ◽  
Vol 3 ◽  
pp. 11
Author(s):  
Nadina R Luca ◽  
Marsha Smith ◽  
Sally Hibbert

‘Social eating initiatives’ are a specific type of community-based food service that provides opportunities for people to eat together in local spaces using surplus food. These initiatives provide a meal that is fresh, affordable and more environmentally friendly than fast or convenience foods. In this research, we build upon the food well-being model to explore how food consumption is experienced in these community settings and the role of social eating projects in shaping the different dimensions of people’s foodscapes. We adopted a community-based participatory approach and engaged in a series of dialogues with staff volunteers and coordinators at four ‘social eating initiatives’. We also conducted 45 interviews with service users and volunteers at three sites in the Midlands region.   The role of community-based food initiatives responding to hunger by utilising surplus food to feed local populations is often conceptualised critically. The conjoining of food insecurity and surplus food appears to instrumentally feed customers and reduce food wastage, but in ways that are stigmatising, and which position customers as passive recipients of food charity. However, closer attention to the experiences of staff, volunteers and customers at these spaces, reveals them as sites where knowledge and experience of food is being developed with this contributing to a sense of well-being beyond nutrition. Shared food practices and eating together contribute to social capital and are important dimensions of food well-being that are significantly restricted by food insecurity. The ‘food well-being’ model envisages a shift in focus from health, defined as the absence of illness, towards well-being as a positive relationship with food at the individual and societal level. In the concluding remarks of this article, it is suggested that this holistic conception is required to understand the role and function of social eating initiatives.


Author(s):  
Rob McMahon ◽  
Tim Whiteduck ◽  
Arline Chasle ◽  
Shelley Chief ◽  
Leonard Polson ◽  
...  

Community-engaged digital literacies initiatives can greatly benefit from knowledge and practices developed by Indigenous peoples. In this paper, we describe a research project to develop digital literacies with two Algonquin First Nations in Quebec: Timiskaming and Long Point. This project reflects a First Mile approach to Community Informatics, informed by the theoretical framework of Indigenous resurgence and by engaged research methodologies. In telecommunications and broadband terminology, communities are typically framed as the ‘last mile’ of development. The First Mile approach challenges this situation by encouraging projects that emerge from the locally determined needs of collaborating communities, who gain ownership and control of processes and outcomes. Drawing on community-engaged research methodologies, university-based researchers facilitate this work while community-based researchers integrate data collection, analysis, and public outreach activities into the lived realities of community members. We discuss how digital literacies projects can benefit from the theoretical framework of Indigenous resurgence, which stresses the daily practices that support the continual renewal of Indigenous communities.


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