THE DEMENTIA SYMPTOM MANAGEMENT AT HOME PROGRAM: IMPROVING PATIENT AND CAREGIVER QUALITY OF LIFE

BackgroundThe treatment of children with cancer is associated with significant burden for the entire family. Frequent clinic visits and extended hospital stays can negatively affect quality of life for children and their families.Methods Here, we describe the development of a Hospital at Home program (H@H) that delivers therapy to pediatric hematology, oncology, and blood and marrow transplant (bmt) patients in their homes. The services provided include short infusions of chemotherapy, supportive-care interventions, antibiotics, post-chemotherapy hydration, and teaching.Results From 2013 to 2015, the H@H program served 136 patients, making 1701 home visits, for patients mainly between the ages of 1 and 4 years. Referrals came from oncology in 82% of cases, from hematology in 11%, and from bmt in 7%. Since inception of the program, no adverse events have been reported. Family surveys suggested less disruption in daily routines and appreciation of specialized care by hematology and oncology nurses. Staff surveys highlighted a perceived benefit of H@H in contributing to early discharge of patients by supporting out-of-hospital monitoring and teaching.Conclusions The development of a H@H program dedicated to the pediatric hematology, oncology, or bmt patient appears feasible. Our pilot program offers a potential contribution to improvement in patient quality of life and in cost–benefit for parents and the health care system.

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Neuroticism, problem-solving abilities, and family caregiver quality of life

PsycEXTRA Dataset ◽

10.1037/e626342010-001 ◽

2010 ◽

Author(s):

Neeta A. Ramkumar ◽

Timothy R. Elliott ◽

Carly E. McLaughlin ◽

Dennis Zgaljardic ◽

Norma Erosa

Keyword(s):

Quality Of Life ◽

Problem Solving ◽

Family Caregiver ◽

Caregiver Quality

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Primary care management of childhood asthma: addressing caregiver quality of life using asthma action plans with preschool-aged children

10.24124/2016/1233 ◽

2016 ◽

Author(s):

Megan Ireland

Keyword(s):

Quality Of Life ◽

Primary Care ◽

Childhood Asthma ◽

Care Management ◽

Action Plans ◽

Caregiver Quality ◽

Asthma Action Plans ◽

Primary Care Management ◽

Preschool Aged Children

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The Hospice Advanced Dementia Symptom Management and Quality of Life Trial (HAS-QOL) Stepped Wedge Trial

Case Medical Research ◽

10.31525/ct1-nct04175977 ◽

2019 ◽

Author(s):

Keyword(s):

Quality Of Life ◽

Symptom Management ◽

Advanced Dementia ◽

Stepped Wedge ◽

Stepped Wedge Trial

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Cognitive determinants of community functioning and quality of life in homeless adults with mental illness: 6-year follow-up from the At Home/Chez Soi Study Toronto site

Psychological Medicine ◽

10.1017/s0033291721001550 ◽

2021 ◽

pp. 1-9

Author(s):

K. M. Gicas ◽

C. Mejia-Lancheros ◽

R. Nisenbaum ◽

R. Wang ◽

S. W. Hwang ◽

...

Keyword(s):

Quality Of Life ◽

Mental Health ◽

Functional Outcomes ◽

Verbal Learning ◽

Subjective Quality ◽

Subjective Quality Of Life ◽

Homeless Adults ◽

Community Functioning ◽

At Home

Abstract Background High rates of physical and mental health comorbidities are associated with functional impairment among persons who are homeless. Cognitive dysfunction is common, but how it contributes to various functional outcomes in this population has not been well investigated. This study examines how cognition covaries with community functioning and subjective quality of life over a 6-year period while accounting for the effects of risk and protective factors. Methods Participants were 349 homeless adults (mean age = 39.8) recruited from the Toronto site of the At Home/Chez Soi study, a large Canadian randomized control trial of Housing First. Participants completed up to four clinical evaluations over 6 years. Factor scores were created to index verbal learning and memory (vLM) and processing speed-cognitive flexibility (PSCF). The primary outcomes were community functioning and subjective quality of life. Risk factors included lifetime homelessness, mental health diagnoses, medical comorbidity, and childhood adversity. Linear mixed-effects models were conducted to examine cognition-functional outcome associations over time, with resilience as a moderator. Results Better vLM (b = 0.787, p = 0.010) and PSCF (b = 1.66, p < 0.001) were associated with better community functioning, but not with quality of life. Resilience conferred a protective effect on subjective quality of life (b = 1.45, p = 0.011) but did not moderate outcomes. Conclusions Our findings suggest a need to consider the unique determinants of community functioning and quality of life among homeless adults. Cognition should be prioritized as a key intervention target within existing service delivery models to optimize long-term functional outcomes.

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Acceptability, Feasibility and Preliminary Evaluation of a Novel, Personalised, Home-Based Physical Activity Intervention for Chronic Heart Failure (Active-at-Home-HF): a Pilot Study

Sports Medicine - Open ◽

10.1186/s40798-019-0216-x ◽

2019 ◽

Vol 5 (1) ◽

Cited By ~ 2

Author(s):

Nduka C. Okwose ◽

Leah Avery ◽

Nicola O’Brien ◽

Sophie Cassidy ◽

Sarah J. Charman ◽

...

Keyword(s):

Quality Of Life ◽

Physical Activity ◽

Heart Failure ◽

Pilot Study ◽

Chronic Heart Failure ◽

Physical Activity Intervention ◽

Step Count ◽

Home Based ◽

At Home

Abstract Purpose Less than 10% of heart failure patients in the UK participate in cardiac rehabilitation programmes. The present pilot study evaluated feasibility, acceptability and physiological effects of a novel, personalised, home-based physical activity intervention in chronic heart failure. Methods Twenty patients (68 ± 7 years old, 20% females) with stable chronic heart failure due to reduced left ventricular ejection fraction (31 ± 8 %) participated in a single-group, pilot study assessing the feasibility and acceptability of a 12-week personalised home-based physical activity intervention aiming to increase daily number of steps by 2000 from baseline (Active-at-Home-HF). Patients completed cardiopulmonary exercise testing with non-invasive gas exchange and haemodynamic measurements and quality of life questionnaire pre- and post-intervention. Patients were supported weekly via telephone and average weekly step count data collected using pedometers. Results Forty-three patients were screened and 20 recruited into the study. Seventeen patients (85%) completed the intervention, and 15 (75%) achieved the target step count. Average step count per day increased significantly from baseline to 3 weeks by 2546 (5108 ± 3064 to 7654 ± 3849, P = 0.03, n = 17) and was maintained until week 12 (9022 ± 3942). Following completion of the intervention, no adverse events were recorded and quality of life improved by 4 points (26 ± 18 vs. 22 ± 19). Peak exercise stroke volume increased by 19% (127 ± 34 vs. 151 ± 34 m/beat, P = 0.05), while cardiac index increased by 12% (6.8 ± 1.5 vs. 7.6 ± 2.0 L/min/m2, P = 0.19). Workload and oxygen consumption at anaerobic threshold also increased by 16% (49 ± 16 vs. 59 ± 14 watts, P = 0.01) and 10% (11.5 ± 2.9 vs. 12.8 ± 2.2 ml/kg/min, P = 0.39). Conclusion The Active-at-Home-HF intervention is feasible, acceptable and effective for increasing physical activity in CHF. It may lead to improvements in quality of life, exercise tolerance and haemodynamic function. Trial Registration www.clinicaltrials.gov NCT0367727. Retrospectively registered on 17 September 2018.

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