Social Participation of Burn Survivors and the General Population in Work and Employment: A Life Impact Burn Recovery Evaluation (LIBRE) Profile Study

2019 ◽  
Vol 40 (5) ◽  
pp. 669-677 ◽  
Author(s):  
Cayla J Saret ◽  
Pengsheng Ni ◽  
Molly Marino ◽  
Emily Dore ◽  
Colleen M Ryan ◽  
...  
Keyword(s):  
General Population ◽  
Posttraumatic Growth ◽  
Social Participation ◽  
Burn Injury ◽  
Response Shift ◽  
Sample Mean ◽  
Burn Survivors ◽  
Life Impact ◽  
Work Integration ◽  
Work And Employment

AbstractIntroductionWork integration and retention after burn injury is a key outcome. Little is known about how burn survivors reintegrate into the workplace. This article compares scores on the Life Impact Burn Recovery Evaluation (LIBRE) Profile, a burn-specific measure of social participation, between burn survivors and general population samples, focusing on the Work and Employment domain.MethodsConvenience samples of burn survivors and the U.S. population were obtained. Differences in demographic and clinical characteristics and LIBRE Profile scores were assessed. To examine work and employment, we compared family and friends, social activities, and social interactions scores among working vs nonworking burn survivors.ResultsSix hundred and one burn survivors (320 employed) and 2000 U.S. residents (1101 employed) were surveyed. The mean age (P = .06), distributions of sex (P = .35), and Hispanic ethnicity (P = .07) did not differ significantly. Distributions of race (P < .01) and education (P = .01) differed significantly. The burn survivor sample had higher scores, demonstrating higher participation, for work and employment (mean = 49.5, SD = 9.42) than the general sample (mean = 46.94, SD = 8.94; P < .0001), which persisted after adjusting for demographic characteristics. Scores on the three domains administered to all respondents were higher (P < .001) for working than nonworking burn survivors.ConclusionDistributions indicated higher social participation in the burn survivor sample than the general sample. Possible explanations include sample bias; resilience, posttraumatic growth, or response-shift of survivors; and limitations of using items in the general sample. Working burn survivors scored higher than those not working. Future work can explore factors that mediate higher scores and develop interventions.

scholarly journals Interpreting Life Impact Burn Recovery Evaluation Profile Scores for Use by Clinicians, Burn Survivors, and Researchers

2020 ◽  
Author(s):  
Mary D Slavin ◽  
Colleen M Ryan ◽  
Jeffrey C Schneider ◽  
Amy Acton ◽  
Flor Amaya ◽  
...  
Keyword(s):  
Social Participation ◽  
Burn Injury ◽  
Sexual Relationships ◽  
Cut Points ◽  
Delphi Approach ◽  
Patient Reported ◽  
Burn Survivors ◽  
Life Impact ◽  
Four Levels ◽  
Different Levels

Abstract The Life Impact Burn Recovery Evaluation (LIBRE) Profile is a patient-reported outcome measure developed to assess social participation in adult burn survivors. This study identified numeric score cut-points that define different levels of social participation ability and described each level. An expert panel identified numeric score cut-points that distinguish different levels of social participation for the six LIBRE Profile domains. Methods employed an iterative, modified-Delphi approach, and bookmarking to review calibrated item banks. Analyses (using calibration sample data and repeated in a validation sample) examined means, SDs, and sample distributions for each level. Analyses of variance examined score differences between levels. The panel developed descriptions for each established level. Initial cut-points resulted in four levels for five domains (Social Activities, Social Interactions, Romantic Relationships, Sexual Relationships, and Work & Employment) and five levels for the sixth domain (Relationships with Family & Friends). Comparisons demonstrated significant differences between level mean scores for all domains (P &lt; .05) except Relationships with Family & Friends. Based on follow-up surveys, Relationships with Family & Friends score cut-points were adjusted to identify four levels with significant score differences between all levels. Panelists reached consensus for level descriptions. Score cut-points and descriptions identify different levels of social participation, providing a relevant context for interpreting LIBRE Profile numeric scores. LIBRE Profile Social Participation levels will help clinicians and persons with burn injury interpret LIBRE Profile numeric scores and promote use of this important new assessment.

833 The Importance of Trajectory Curves for the Implementation of Outcome Benchmarks in a Clinical Setting

2020 ◽  
Vol 41 (Supplement_1) ◽  
pp. S254-S255
Author(s):  
Brian M Kelter ◽  
Audrey E Wolfe ◽  
Mary D Slavin ◽  
Lewis Kazis ◽  
Colleen M Ryan ◽  
...  
Keyword(s):  
Risk Assessment ◽  
Literature Review ◽  
Social Participation ◽  
Burn Injury ◽  
Patient Specific ◽  
Clinical Settings ◽  
Patient Reported ◽  
Burn Survivors ◽  
Analytical Approaches ◽  
Over Time

Abstract Introduction The creation of individualized treatment plans that address social participation in burn survivors requires an understanding of the expected changes over time from the original burn injury. The Life Impact Burn Recovery Evaluation (LIBRE) Profile is a patient-reported outcome measure for social participation after burn injury. Visual representation of expected change over time of a population is achieved through the development of trajectory curves (TCs), serving as benchmarks for recovery. In order to optimize the implementation of LIBRE Profile TCs, a literature review was conducted to examine utilization of TCs in other clinical settings. Methods A review of studies published from 2014–2019, demonstrating TCs as growth or treatment models in clinical settings, was performed. Literature was identified by searching “trajectory curves,” “trajectory models,” and “clinic” or “clinical” in PubMed. Articles focusing on three areas of inquiry were included: 1) measuring individual patient growth; 2) comparing progress for similar patient cohorts to provide contextualized reference for personal growth; 3) predictive medicine/risk assessment for interventional care in various conditions. Results The initial literature review identified 141 manuscripts. A total of 107 were excluded and 34 manuscripts were reviewed and categorized based on the three areas of inquiry (Figure 1; Table 1). Positive results from TCs in all areas of inquiry were noted in 22 of the 34 the chosen studies. General trends for each area of inquiry include: an increased ability for parents and clinicians to track individual patient progress in what was primarily anthropometric studies; articles relating to comparative cohort tracking show that trajectory-driven analytical approaches offer displays of progress across similar clinical groups of recovery for given conditions. Use of TCs in predictive care or risk assessment typically relate to acute conditions such as asthma, traumatic brain injury, or degenerative conditions (neurocognitive or musculoskeletal). For the most part, these diagnoses depict a positive trend for clinicians to identify future outcomes using fitted trajectories. Conclusions These findings support the clinical use of trajectory curves to present patient-specific, cohort-relative, and predictive treatment for outcome-based results post-burn for burn survivors. Applicability of Research to Practice Future research will assess the use of LIBRE Profile recovery trajectories as benchmarks for optimization of social participation outcomes.

Development of the life impact burn recovery evaluation (LIBRE) profile: assessing burn survivors’ social participation

2017 ◽  
Vol 26 (10) ◽  
pp. 2851-2866 ◽  
Author(s):  
Lewis E. Kazis ◽  
Molly Marino ◽  
Pengsheng Ni ◽  
Marina Soley Bori ◽  
Flor Amaya ◽  
...  
Keyword(s):  
Social Participation ◽  
Burn Survivors ◽  
Life Impact

Trajectory Curves for Purposes of Benchmarking and Predicting Clinical Outcomes: A Scoping Review

2022 ◽  
Author(s):  
Brian M Kelter ◽  
Audrey E Wolfe ◽  
Lewis E Kazis ◽  
Colleen M Ryan ◽  
Amy Acton ◽  
...  
Keyword(s):  
Social Participation ◽  
Scoping Review ◽  
Burn Injury ◽  
Clinical Settings ◽  
Effective Strategies ◽  
Patient Health Status ◽  
Patient Health ◽  
Life Impact ◽  
Pubmed Search ◽  
Future Outcomes

Abstract Trajectory curves are valuable tools to benchmark patient health status and predict future outcomes. A longitudinal study is underway to examine social participation after burn injury using the Life Impact Burn Recovery Evaluation (LIBRE) Profile with the goal of developing trajectory curves for specific domains that focus on social re-integration. We conducted a scoping review to inform and understand trajectory curves applied in clinical settings to compare outcomes for an individual to a matched cohort of comparable patients or predicted expected outcomes over time. This scoping review utilized a PubMed search from January 2014 to August 2019 for the following terms: “trajectory curves” or “trajectory models” and “clinic” or “clinical.” Only articles that specifically referenced longitudinal and clinical research designs were included in the scoping review. Articles were assessed using standard scoping review methods and categorized based on clinical application of trajectory curves for either benchmarking or prediction. The initial literature review identified 141 manuscripts and 34 met initial inclusion criteria. The reviewed articles support the clinical use of trajectory curves. Findings provide insight into several key determinants involved with the successful development and implementation of trajectory curves in clinical settings. These findings will inform efforts to use the LIBRE Profile to model social participation recovery and assist in developing effective strategies using trajectory curves to promote social reintegration after burn injury.

scholarly journals The Phenomenon of Community Reintegration for Veterans with Burn Injury: Supportive Communities and Future-Oriented Thinking

2019 ◽  
Author(s):  
Sarah J Murray ◽  
Leopoldo C Cancio
Keyword(s):  
Posttraumatic Growth ◽  
Peer Support ◽  
Meaning In Life ◽  
Military Service ◽  
Burn Injury ◽  
Qualitative Inquiry ◽  
Burn Injuries ◽  
Community Reintegration ◽  
Burn Survivors

Abstract Combat missions in the Middle East have resulted in approximately 52,000 U.S. veterans who have been wounded in action, with 10% of whom suffered burn injuries. More than 90% of the wounded survived, but many were unable to return to military service. The purpose of this study was to investigate the factors that impacted reintegration of veterans with combat burn injuries. Using a mixed-methods approach and analysis, we asked veterans with combat burns “What was your experience reintegrating into the civilian community?” Additionally, we administered the Community Reintegration of Injured Service Members (CRIS) tool to measure the current level of reintegration. Six veterans with combat burn injury identified two major themes: supportive communities and future-oriented thinking. Supportive communities are defined as communities that are veteran-specific, provide long-term burn/injury care, are financially beneficial, and support hobbies, education, and work opportunities. Future-oriented thinking is defined as thinking in which a veteran experiences a turning point in recovery, has a desire to serve others, develops new meaning in life, and experiences posttraumatic growth. In both themes, peer support was a key component. Community reintegration was enhanced by future-oriented thinking and a supportive community, both of which can be buoyed by peer support. These findings are similar to other studies noting the importance of peer support for veterans. Studies of civilians burn survivors describe similar reintegration issues. These two factors may also be applicable to those survivors. Further qualitative inquiry into peer support in the burn community at large may reveal more actionable evidence which could enable burn survivors to meet the long-term goal of community reintegration.

scholarly journals The Associations of Gender With Social Participation of Burn Survivors: A Life Impact Burn Recovery Evaluation Profile Study

2018 ◽  
Vol 39 (6) ◽  
pp. 915-922 ◽  
Author(s):  
Benjamin Levi ◽  
Casey T Kraft ◽  
Gabriel D Shapiro ◽  
Nhi-Ha T Trinh ◽  
Emily C Dore ◽  
...  
Keyword(s):  
Social Participation ◽  
Burn Survivors ◽  
Life Impact ◽  
Profile Study

Posttraumatic growth among burn survivors 2 years after the 2015 Formosa Fun Coast Water Park explosion in Taiwan.

2020 ◽  
Vol 12 (1) ◽  
pp. 11-19 ◽  
Author(s):  
Yi-Jen Su ◽  
Chia-Chi Chow ◽  
Cheng-I. Yen ◽  
Shiow-Shuh Chuang
Keyword(s):  
Posttraumatic Growth ◽  
Burn Survivors

scholarly journals 502 Adapting to COVID19: Can Virtual Burn Camp be as Impactful as Last Year’s In-person Camp?

2021 ◽  
Vol 42 (Supplement_1) ◽  
pp. S98-S98
Author(s):  
Jessica Banks ◽  
Matt Ferdock ◽  
Jennifer Nagle
Keyword(s):  
Burn Injury ◽  
Summer Camp ◽  
Sense Of Self ◽  
Age Groups ◽  
Self Esteem ◽  
Summer Program ◽  
Critical Question ◽  
Camp Counselors ◽  
Positive Effects ◽  
Burn Survivors

Abstract Introduction Skin is not the only casualty following a burn accident. Many children suffer long term, debilitating emotional effects from their burn injury (Abdullah et al. 1994; Kornhaber et al. 2018). Armstrong-James et al. (2018) and Maslow and Lobato (2010) found that summer camps explicitly designed for burn survivor children can positively impact children’s adaptability to stares and comments and improve their sense of self-esteem. Camp Susquehanna has been a summer camp for burn survivors for the past 25+ years. When the COVID19 pandemic closed many businesses, we decided to transition our in-person camp to 100% online. Researchers demonstrated the positive effects of summer camp for burn survivors (Maslow & Lobato, 2010; Bakker et al. 2011). However, the effects of a 100% online camp are not known. Our concern was, are we able to transition and be as impactful as it is face to face at camp? What will the schedule and activities look like in this new format? How will we ensure all children participating will have access to online and the supplies necessary? Methods We opted to select a three-week format with two sessions a day divided into two age groups. We ensured every child had internet access then mailed out a “camp in the box.” It contained all the things needed for each planned activity. The critical question remained, however, will we be as impactful? The current research looks at quantitative and qualitative measures of self-esteem, happiness, and satisfaction following participation in a three-week summer program held in July 2020. We make comparisons to previous years’ results. The authors expected that self-esteem, happiness, and satisfaction levels matched or exceeded last years’ levels. Results We collected data from 42 campers and 22 volunteer camp counselors. Results show that campers were able to receive the support they needed, not only from the staff but also from their peers. Conclusions The delivery method was indeed different this year, but the positive effect on our campers remained the same.

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