The Associations of Gender With Social Participation of Burn Survivors: A Life Impact Burn Recovery Evaluation Profile Study

AbstractIntroductionWork integration and retention after burn injury is a key outcome. Little is known about how burn survivors reintegrate into the workplace. This article compares scores on the Life Impact Burn Recovery Evaluation (LIBRE) Profile, a burn-specific measure of social participation, between burn survivors and general population samples, focusing on the Work and Employment domain.MethodsConvenience samples of burn survivors and the U.S. population were obtained. Differences in demographic and clinical characteristics and LIBRE Profile scores were assessed. To examine work and employment, we compared family and friends, social activities, and social interactions scores among working vs nonworking burn survivors.ResultsSix hundred and one burn survivors (320 employed) and 2000 U.S. residents (1101 employed) were surveyed. The mean age (P = .06), distributions of sex (P = .35), and Hispanic ethnicity (P = .07) did not differ significantly. Distributions of race (P < .01) and education (P = .01) differed significantly. The burn survivor sample had higher scores, demonstrating higher participation, for work and employment (mean = 49.5, SD = 9.42) than the general sample (mean = 46.94, SD = 8.94; P < .0001), which persisted after adjusting for demographic characteristics. Scores on the three domains administered to all respondents were higher (P < .001) for working than nonworking burn survivors.ConclusionDistributions indicated higher social participation in the burn survivor sample than the general sample. Possible explanations include sample bias; resilience, posttraumatic growth, or response-shift of survivors; and limitations of using items in the general sample. Working burn survivors scored higher than those not working. Future work can explore factors that mediate higher scores and develop interventions.

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Development of the life impact burn recovery evaluation (LIBRE) profile: assessing burn survivors’ social participation

Quality of Life Research ◽

10.1007/s11136-017-1588-3 ◽

2017 ◽

Vol 26 (10) ◽

pp. 2851-2866 ◽

Cited By ~ 18

Author(s):

Lewis E. Kazis ◽

Molly Marino ◽

Pengsheng Ni ◽

Marina Soley Bori ◽

Flor Amaya ◽

...

Keyword(s):

Social Participation ◽

Burn Survivors ◽

Life Impact

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Interpreting Life Impact Burn Recovery Evaluation Profile Scores for Use by Clinicians, Burn Survivors, and Researchers

Journal of Burn Care & Research ◽

10.1093/jbcr/iraa100 ◽

2020 ◽

Author(s):

Mary D Slavin ◽

Colleen M Ryan ◽

Jeffrey C Schneider ◽

Amy Acton ◽

Flor Amaya ◽

...

Keyword(s):

Social Participation ◽

Burn Injury ◽

Sexual Relationships ◽

Cut Points ◽

Delphi Approach ◽

Patient Reported ◽

Burn Survivors ◽

Life Impact ◽

Four Levels ◽

Different Levels

Abstract The Life Impact Burn Recovery Evaluation (LIBRE) Profile is a patient-reported outcome measure developed to assess social participation in adult burn survivors. This study identified numeric score cut-points that define different levels of social participation ability and described each level. An expert panel identified numeric score cut-points that distinguish different levels of social participation for the six LIBRE Profile domains. Methods employed an iterative, modified-Delphi approach, and bookmarking to review calibrated item banks. Analyses (using calibration sample data and repeated in a validation sample) examined means, SDs, and sample distributions for each level. Analyses of variance examined score differences between levels. The panel developed descriptions for each established level. Initial cut-points resulted in four levels for five domains (Social Activities, Social Interactions, Romantic Relationships, Sexual Relationships, and Work & Employment) and five levels for the sixth domain (Relationships with Family & Friends). Comparisons demonstrated significant differences between level mean scores for all domains (P < .05) except Relationships with Family & Friends. Based on follow-up surveys, Relationships with Family & Friends score cut-points were adjusted to identify four levels with significant score differences between all levels. Panelists reached consensus for level descriptions. Score cut-points and descriptions identify different levels of social participation, providing a relevant context for interpreting LIBRE Profile numeric scores. LIBRE Profile Social Participation levels will help clinicians and persons with burn injury interpret LIBRE Profile numeric scores and promote use of this important new assessment.

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833 The Importance of Trajectory Curves for the Implementation of Outcome Benchmarks in a Clinical Setting

Journal of Burn Care & Research ◽

10.1093/jbcr/iraa024.406 ◽

2020 ◽

Vol 41 (Supplement_1) ◽

pp. S254-S255

Author(s):

Brian M Kelter ◽

Audrey E Wolfe ◽

Mary D Slavin ◽

Lewis Kazis ◽

Colleen M Ryan ◽

...

Keyword(s):

Risk Assessment ◽

Literature Review ◽

Social Participation ◽

Burn Injury ◽

Patient Specific ◽

Clinical Settings ◽

Patient Reported ◽

Burn Survivors ◽

Analytical Approaches ◽

Over Time

Abstract Introduction The creation of individualized treatment plans that address social participation in burn survivors requires an understanding of the expected changes over time from the original burn injury. The Life Impact Burn Recovery Evaluation (LIBRE) Profile is a patient-reported outcome measure for social participation after burn injury. Visual representation of expected change over time of a population is achieved through the development of trajectory curves (TCs), serving as benchmarks for recovery. In order to optimize the implementation of LIBRE Profile TCs, a literature review was conducted to examine utilization of TCs in other clinical settings. Methods A review of studies published from 2014–2019, demonstrating TCs as growth or treatment models in clinical settings, was performed. Literature was identified by searching “trajectory curves,” “trajectory models,” and “clinic” or “clinical” in PubMed. Articles focusing on three areas of inquiry were included: 1) measuring individual patient growth; 2) comparing progress for similar patient cohorts to provide contextualized reference for personal growth; 3) predictive medicine/risk assessment for interventional care in various conditions. Results The initial literature review identified 141 manuscripts. A total of 107 were excluded and 34 manuscripts were reviewed and categorized based on the three areas of inquiry (Figure 1; Table 1). Positive results from TCs in all areas of inquiry were noted in 22 of the 34 the chosen studies. General trends for each area of inquiry include: an increased ability for parents and clinicians to track individual patient progress in what was primarily anthropometric studies; articles relating to comparative cohort tracking show that trajectory-driven analytical approaches offer displays of progress across similar clinical groups of recovery for given conditions. Use of TCs in predictive care or risk assessment typically relate to acute conditions such as asthma, traumatic brain injury, or degenerative conditions (neurocognitive or musculoskeletal). For the most part, these diagnoses depict a positive trend for clinicians to identify future outcomes using fitted trajectories. Conclusions These findings support the clinical use of trajectory curves to present patient-specific, cohort-relative, and predictive treatment for outcome-based results post-burn for burn survivors. Applicability of Research to Practice Future research will assess the use of LIBRE Profile recovery trajectories as benchmarks for optimization of social participation outcomes.

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Long-Term Social Reintegration Outcomes for Burn Survivors With and Without Peer Support Attendance: A Life Impact Burn Recovery Evaluation (LIBRE) Study

Archives of Physical Medicine and Rehabilitation ◽

10.1016/j.apmr.2017.10.007 ◽

2020 ◽

Vol 101 (1) ◽

pp. S92-S98 ◽

Cited By ~ 12

Author(s):

Brian Grieve ◽

Gabriel D. Shapiro ◽

Lucy Wibbenmeyer ◽

Amy Acton ◽

Austin Lee ◽

...

Keyword(s):

Peer Support ◽

Social Reintegration ◽

Burn Survivors ◽

Life Impact

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Social participation, social support, and body image in the first year of rehabilitation in burn survivors: A longitudinal, three-wave cross-lagged panel analysis using structural equation modeling

Burns ◽

10.1016/j.burns.2018.03.018 ◽

2018 ◽

Vol 44 (5) ◽

pp. 1141-1150 ◽

Cited By ~ 5

Author(s):

Fardin Ajoudani ◽

Madineh Jasemi ◽

Mojgan Lotfi

Keyword(s):

Social Support ◽

Body Image ◽

Structural Equation Modeling ◽

Social Participation ◽

Structural Equation ◽

Equation Modeling ◽

First Year ◽

Panel Analysis ◽

Burn Survivors

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Trajectory Curves for Purposes of Benchmarking and Predicting Clinical Outcomes: A Scoping Review

Journal of Burn Care & Research ◽

10.1093/jbcr/irab245 ◽

2022 ◽

Author(s):

Brian M Kelter ◽

Audrey E Wolfe ◽

Lewis E Kazis ◽

Colleen M Ryan ◽

Amy Acton ◽

...

Keyword(s):

Social Participation ◽

Scoping Review ◽

Burn Injury ◽

Clinical Settings ◽

Effective Strategies ◽

Patient Health Status ◽

Patient Health ◽

Life Impact ◽

Pubmed Search ◽

Future Outcomes

Abstract Trajectory curves are valuable tools to benchmark patient health status and predict future outcomes. A longitudinal study is underway to examine social participation after burn injury using the Life Impact Burn Recovery Evaluation (LIBRE) Profile with the goal of developing trajectory curves for specific domains that focus on social re-integration. We conducted a scoping review to inform and understand trajectory curves applied in clinical settings to compare outcomes for an individual to a matched cohort of comparable patients or predicted expected outcomes over time. This scoping review utilized a PubMed search from January 2014 to August 2019 for the following terms: “trajectory curves” or “trajectory models” and “clinic” or “clinical.” Only articles that specifically referenced longitudinal and clinical research designs were included in the scoping review. Articles were assessed using standard scoping review methods and categorized based on clinical application of trajectory curves for either benchmarking or prediction. The initial literature review identified 141 manuscripts and 34 met initial inclusion criteria. The reviewed articles support the clinical use of trajectory curves. Findings provide insight into several key determinants involved with the successful development and implementation of trajectory curves in clinical settings. These findings will inform efforts to use the LIBRE Profile to model social participation recovery and assist in developing effective strategies using trajectory curves to promote social reintegration after burn injury.

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