Palliative Wound, Ostomy, and Continence Care

2019 ◽  
pp. 251-284
Author(s):  
Charles P. Tilley ◽  
Mei R. Fu ◽  
Jana M. Lipson
Keyword(s):  
Quality Of Life ◽  
Symptom Management ◽  
Functional Performance ◽  
Well Being ◽  
Nursing Interventions ◽  
Evidence Based ◽  
Patient Centered ◽  
Evidence Based Guidelines ◽  
Care Nursing

Palliative wound, ostomy, and continence care is a nascent area of palliative care nursing, with little research and few evidence-based guidelines to guide practice. The majority of patients at end of life will suffer from a wound, ostomy, or continence malady, requiring specialist-level consultation with a wound, ostomy, and continence nurse (WOC nurse). Palliative wound, ostomy, and continence care emphasizes an interprofessional, patient-centered approach to alleviate suffering and promote well-being and quality of life through the preservation or restoration of functional performance. A combination of evidence-based wound, ostomy, and continence nursing interventions and advanced symptom management science is the hallmark of this nursing specialty.

Palliative wound and ostomy care

2021 ◽  
pp. 622-647
Author(s):  
Charles P. Tilley ◽  
Mei R. Fu ◽  
Janet H. Van Cleave ◽  
Allison R. Most ◽  
Christopher Comfort
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
End Of Life ◽  
Symptom Management ◽  
Functional Performance ◽  
Well Being ◽  
Management Science ◽  
Evidence Based ◽  
Evidence Based Guidelines

Palliative wound and ostomy care is a nascent area of palliative care, with little research and few evidence-based guidelines to guide practice. Many patients at the end of life will suffer from a wound or ostomy malady, requiring an interprofessional approach led by specialist-level, palliative care clinicians in consultation with a wound, ostomy, and continence nurse. Palliative wound and ostomy care emphasizes an interprofessional, patient-centred approach to alleviate suffering and promote well-being and quality of life through expert symptom management and preservation or restoration of functional performance. A combination of evidence-based wound and ostomy interventions and advanced symptom management science is the hallmark of this specialty.

Improving the Perception of Patient-Centered Wellness in a Virtual Population During the COVID-19 Pandemic

2021 ◽  
pp. JDNP-D-20-00078
Author(s):  
Sybilla Myers ◽  
Christopher Kennedy
Keyword(s):  
Quality Of Life ◽  
Decision Making ◽  
Shared Decision Making ◽  
Cognitive Theory ◽  
Well Being ◽  
Mobile App ◽  
Shared Decision ◽  
Patient Centered ◽  
The Social

BackgroundPerceived health-related quality of life (HRQOL) is fundamental to well-being and is a meaningful way to measure physical and mental health.Local ProblemNo standard method exists for measuring perceived HRQOL during the COVID-19 pandemic in participants as they attempt to improve their self-determined wellness goals. An implementation plan that considers the social distancing limitations imposed can be used to predict an individual’s likelihood of long-term success.MethodsDuring the four, 2-week plan-do-study-act (PDSA) cycles, the Social Cognitive Theory model informed the implementation of the four core interventions. To guide iterative changes, the data was analyzed through Excel and run charts.InterventionsThe four core interventions were the shared decision-making tool (SDMT), health mobile app tool (HMAT), wellness tracker tool (WTT), and the team engagement plan.ResultsAmong 28 participants, perceived quality of life increased by 70%, engagement in shared decision-making increased to 82%, app use and confidence increased to 85%, and goal attainment reached 81%.ConclusionsThe SDMT, health app, and wellness tracker created a methodical plan of accountability for increasing participant wellness. The contextual barrier of the COVID-19 pandemic added a negative wellness burden which was mitigated by creating a patient-centered culture of wellness.

Integrative Oncology

2021 ◽  
pp. 470-478
Author(s):  
Santhosshi Narayanan ◽  
Gabriel Lopez ◽  
Jun J. Mao ◽  
Wenli Liu ◽  
Lorenzo Cohen
Keyword(s):  
Symptom Management ◽  
Care Plan ◽  
Integrative Approach ◽  
Evidence Based ◽  
Patient Centered ◽  
Open Communication ◽  
Patients With Cancer ◽  
Comprehensive Plan ◽  
Body Practices

Patients with cancer often seek an integrative approach to their care in hope of a cure or symptom management. The integrative care plan requires a patient-centered approach that involves attention to their concerns and developing a comprehensive plan involving physical, mind-body, and social modalities in collaboration with the patient’s main oncology team and colleagues in palliative care, pain management, psychiatry, and rehabilitation. A personalized symptom management strategy utilizing an evidence-based application of conventional and nonconventional therapies can help improve quality of life and optimize treatment outcomes. Recommendation of modalities such as acupuncture, massage, and mind-body practices, as well as open communication and discussion on herbs and supplements, their safety, and interactions with cancer and chemotherapy, is critical to achieve optimal clinical outcomes.

Treatment Goals for Patients with Schizophrenia — A Narrative Review of Physician and Patient Perspectives

2020 ◽  
Author(s):  
Gerhard Gründer ◽  
Philipp Bauknecht ◽  
Stefan Klingberg ◽  
Karolina Leopold ◽  
Michael Paulzen ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Well Being ◽  
Narrative Review ◽  
Patient Perspectives ◽  
Treatment Goals ◽  
Patient Centered ◽  
Symptom Resolution ◽  
Patient Subgroups ◽  
Physician’S Perspective

Abstract Introduction There are many possible treatment goals for patients with schizophrenia. Two major perspectives on treatment goals are the patient’s and the physician’s perspective. Patient-centered treatment mandates that an individual patient’s treatment goals are taken into account when treatment is planned. In this narrative review, we address the commonalities and differences of the patient’s and physician’s perspectives. Methods We searched for literature on treatment goals for patients with schizophrenia from the last 10 years. Results Fifty-two relevant records were identified, 4 of which directly compare patient’s and physician’s perspectives. Two further articles used the same set of goals to ask patients or physicians for their assessment. Discussion Agreement between patients and physicians regarding valuation of treatment goals was high. However, physicians tended to put more emphasis on the classical “textbook” goals of symptom resolution and functioning, while patients stressed well-being and quality of life more. Results on treatment goals from patients are difficult to generalize, since recruiting representative patient samples is challenging and patient subgroups may have differing priorities.

We’re All in This Together

2018 ◽  
Author(s):  
Cheryl Krauter
Keyword(s):  
Quality Of Life ◽  
Cancer Care ◽  
Well Being ◽  
Work Life ◽  
Personal Meaning ◽  
Evidence Based ◽  
Professional Lives ◽  
Survivorship Care ◽  
Life Balance

This chapter highlights and endorses a focus on continued progress in the area of integrative cancer care that assists the needs of the patients and also includes attention to the well-being of clinicians in cancer survivor care. Introducing a simple, relational structure that allows for both patients and clinicians to create a healing connection is one workable solution to the issues of quality survivorship care that can provide meaning and satisfaction to all concerned. The chapter provides evidence-based material on the vital importance of providing clinicians with meaningful support in their professional lives. It addresses their work–life balance and the importance of restoring their sense of personal meaning and quality of life to prevent burnout.

Fatigue and HIV

2017 ◽  
Author(s):  
William Breitbart ◽  
Anna L. Dickerman
Keyword(s):  
Quality Of Life ◽  
Treatment Adherence ◽  
Symptom Management ◽  
Treatment Strategies ◽  
Hiv And Aids ◽  
Evidence Based ◽  
Important Condition ◽  
Evidence Based Treatment ◽  
The Past

Fatigue is commonly reported by persons with HIV and AIDS and is associated with impaired physical function, reduced quality of life, and suboptimal treatment adherence. Patients regard fatigue as an important condition to be addressed because it is disabling and distressing. In the past, fatigue was overlooked and undertreated by physicians, but clinicians caring for persons with HIV and AIDS have been giving more attention to symptom management and patients’ quality of life. Increased attention to symptom management in HIV and AIDS warrants familiarity with major issues in evaluation and treatment of fatigue. This chapter reviews the definition and assessment of fatigue, prevalence of fatigue in HIV/AIDS and its impact on patients, medical and psychological causes of fatigue, and evidence-based treatment strategies.

scholarly journals Effect of myofunctional therapy on orofacial functions and quality of life in individuals undergoing orthognathic surgery

2017 ◽  
pp. 60-76
Author(s):  
Renata Migliorucci ◽  
◽  
Dagma Abramides ◽  
Raquel Rosa ◽  
Marco Bresaola ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Orthognathic Surgery ◽  
Functional Performance ◽  
Well Being ◽  
Study Groups ◽  
Significance Level ◽  
Myofunctional Therapy ◽  
The Impact

INTRODUCTION: Some proposals of myofunctional therapy directed to individuals undergoing orthognathic surgery have been presented which promote the orofacial myofunctional balance, enhancing the treatment stability. OBJECTIVE: To verify the effect of myofunctional therapy on orofacial functions and quality of life in individuals undergoing orthognathic surgery. METHOD: A total of 24 individuals, with mean age of 26.5 years, participated in the study. They were divided into two groups, namely with myofunctional therapy (N=12) and without myofunctional therapy (N=12). Breathing, chewing, swallowing, and speech were evaluated from tests established by the MBGR Orofacial Myofunctional Evaluation, using the scores specified in the protocol. The quality of life (QL) was evaluated using the Oral Health Impact Profile-OHIP-14 questionnaire, which comprises 14 questions that measure the individual´s perception of the impact of their oral conditions on their well-being in recent months. The evaluations were carried out before and 3 months after orthognathic surgery. The myofunctional therapy was initiated 30 days after surgery, with exercises aimed at improving orofacial mobility, tone and sensitivity, as well as the training of normal physiological patterns of orofacial functions. The comparisons between orofacial functions and the study groups were verified by the Mann-Whitney test, using a significance level of 5%. RESULTS: After surgery, the individuals without myofunctional therapy presented with an improvement in breathing and oral health-related quality of life (p<0.05), while in the group undergoing myofunctional therapy there was improvement in all aspects investigated (p<0.05). Comparison between the study groups showed better performance in breathing (p=0.002), chewing (p=0.012), swallowing (p=0.002) and speech (0.034) in individuals who underwent myofunctional therapy. CONCLUSION: The orthognathic surgery alone improved breathing and quality of life. However, the surgical procedure associated with myofunctional treatment, besides improving all oral functions investigated and quality of life, provided better functional performance in breathing, chewing, swallowing and speech. This study’s participants demonstrated the effectiveness of the orofacial myofunctional intervention.

Utilizing design theory to create a patient-centered palliative care model in cancer survisorship care.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 164-164
Author(s):  
Erika Lauren Tribett ◽  
Jordan Chavez ◽  
Alison Morris
Keyword(s):  
Quality Of Life ◽  
Symptom Management ◽  
Participatory Design ◽  
Design Theory ◽  
Large Scale ◽  
Relationship Building ◽  
Services Research ◽  
Patient Centered ◽  
Complex Needs

164 Background: Palliative medicine (PM) is an essential component of survivorship care from point of diagnosis. While PM is philosophically committed to supporting patient and family survivorship goals, very few programs incorporate patient and family input into the formation of a patient-centered model of care for symptom management and quality of life. We utilized design theory to develop novel interventions for primary and specialist PM delivery. Methods: Baseline data collected in Fall 2014 revealed a need for assistance navigating support services as well as barriers to PM integration including branding, lack of primary palliative skills, and poor understanding of outcomes of PM integration. In February 2015, we convened a multidisciplinary group of 25 patients, family members, oncology clinicians and experts in patient experience and health services research, to evaluate current state data and formulate ideas for optimizing PM to support symptom management and quality of life. During a 1-day workshop, the group generated interventions for primary and specialist PM. Small teams were assigned to pilot projects based on these recommendations. Proposed solutions are being tested from July - October 2015. Results: The design team generated five focus areas for meeting patient needs and overcoming barriers: standard processes for access to PM, education on primary PM, rapid reporting of outcomes, relationship-building with referring clinicians, and improved access to primary and specialist palliative resources. Three interventions are being developed to address these: 1. A subspecialist “hub” that allows single referrals and streamlined access to supportive care, 2. a novel two-question probe about goals conducted by the oncologist, and 3. a peer support system between PM social work and nursing staff to proactively manage patients with complex needs. Conclusions: Patient and family-centered PM mandates a novel approach. Design theory allows for clear delineation of problem areas, generation of multiple solution sets, and rapid testing and refinement prior to large-scale adoption. A participatory design approach emphasizes user values and limitations and creates values-based solutions.

Sign in / Sign up

Export Citation Format

Share Document