Pain Characteristics and Their Association With Quality of Life and Self-concept in Children With Hemiplegic Cerebral Palsy Identified From a Population Register

2008 ◽  
Vol 24 (4) ◽  
pp. 335-342 ◽  
Author(s):  
Remo N. Russo ◽  
Michelle D. Miller ◽  
Eric Haan ◽  
Ian D. Cameron ◽  
Maria Crotty
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Self Concept ◽  
Population Register ◽  
Hemiplegic Cerebral Palsy ◽  
Pain Characteristics

Self-Esteem, Self-Concept, and Quality of Life in Children with Hemiplegic Cerebral Palsy

2008 ◽  
Vol 153 (4) ◽  
pp. 473-477.e2 ◽  
Author(s):  
Remo N. Russo ◽  
Emma J. Goodwin ◽  
Michelle D. Miller ◽  
Eric A. Haan ◽  
Tim M. Connell ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Self Esteem ◽  
Self Concept ◽  
Hemiplegic Cerebral Palsy

Assessment of Quality of Life Needs of Children With Mild Hemiplegic Cerebral Palsy

2010 ◽  
Vol 39 (2) ◽  
pp. 157-171 ◽  
Author(s):  
Laura J. Spincola Moore ◽  
John P. Allegrante ◽  
Michael Palma ◽  
Jennifer Lewin ◽  
Michelle G. Carlson
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Hemiplegic Cerebral Palsy

scholarly journals EFFECTIVENESS OF SPECIALIZED KINESITHERAPY IN CHILDREN WITH SPASTIC HEMIPLEGIC CEREBRAL PALSY

2021 ◽  
Vol 27 (3) ◽  
pp. 3842-3846
Author(s):  
Margarita Avramova ◽  
◽  
◽  
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Control Group ◽  
Muscle Spasticity ◽  
Hemiplegic Cerebral Palsy ◽  
Level Of Significance ◽  
Experimental Group

Purpose: The aim of this study was to investigate the effect of Doman-Delacato and Perfetti methods in addition to routine kinesitherapy for children with spastic hemiplegic cerebral palsy (CP). Material and Methods: 60 children with a spastic hemiplegic CP were randomly divided into two groups – the control group (CG) received routine kinesitherapy method, and the experimental group (EG) received, in addition, specialized neurodevelopmental methods of Doman-Delacato and Perfetti. For children in both groups, kinesitherapy was applied three times a week for 50 min each procedure. Assessment was done using Ashworth Modified Scale, the Holt and Hoskins - Squires Test and GMFM – 88. The study period ran from April 2018 to November 2018. The evaluation was done before and 8 months later. Data were analyzed using GraphPad Prism version 3.0 andSPSS 19.0. The level of significance was accepted as p<0.05. Results: 60children, 27 girls and 33 boys managed (X±SD) for EG 4.8±1.3 and for CG 5.06±1.4 were included. Muscle spasticity in EG children decreases much earlier and more than in children in CG. Man Witney criteria show statistically significant differences at the end of the treatment (р=0,03<α=0,05). Hottest and GMFM-88dataobtainedalsoreceivedstatisticallysignificantdifferencesof t – criteria between initial and final measurements in EG. Conclusions: EG children improvement is better and occurs much earlier. Therefore, we could assert that our methodology optimizes the treatment of children with CPD and improves their quality of life.

scholarly journals Determinants of participation and quality of life of young adults with cerebral palsy: longitudinal approach and comparison with the general population – SPARCLE 3 study protocol

BMC Neurology ◽  
2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Catherine Arnaud ◽  
Carine Duffaut ◽  
Jérôme Fauconnier ◽  
Silke Schmidt ◽  
Kate Himmelmann ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Cerebral Palsy ◽  
Young People ◽  
General Population ◽  
Transition Period ◽  
Well Being ◽  
Personal Factors ◽  
The Impact

Abstract Background Effective inclusion in society for young people with disabilities is increasingly seen as generating opportunities for self-development, and improving well-being. However, significant barriers remain in the vast majority of activities meaningful for young adults. Research argues that various personal (disabilities, health) and environmental (access to the resources needed, accessible environment, discrimination, lack of personal economic independence) factors contribute to limited participation. However, previous studies conducted in young people with cerebral palsy (CP) mainly investigated the transition period to adulthood, and did not fully consider the whole range of impairment severity profiles or environmental barriers. In this study, we will use the follow-up of the SPARCLE cohort and a comparison group from the general population (1) to investigate the impact of the environment on participation and quality of life of young adults with CP, (2) to determine predictors of a successful young adulthood in educational, professional, health and social fields, (3) to compare quality of life and frequency of participation in social, work and recreational activities with the general population, (4) to document on participation and quality of life in those with severe disabilities. Methods The SPARCLE3 study has a combined longitudinal and cross-sectional design. Young adults with CP aged 22 to 27 years in 6 European regions previously enrolled in the SPARCLE cohort or newly recruited will be invited to self-complete a comprehensive set of questionnaires exploring participation (daily life and discretionary activities), health-related quality of life, body function, personal factors (health, personal resources), and contextual factors (availability of needed environmental items, family environment, services provision) during home visits supervised by trained researchers. Proxy-reports or adapted questionnaires will be used for those with the most severe impairments. The recruitment of a large group from the general population (online survey) will enable to identify life areas where the discrepancies between young people with CP and their able-bodied peers are the most significant. Discussion This study will help identify to what extent disabilities and barriers in environment negatively affect participation and quality of life, and how previous valued experiences during childhood or adolescence might modulate these effects.

scholarly journals Pain Symptomatology and Management in Pediatric Ehlers–Danlos Syndrome: A Review

Children ◽  
2020 ◽  
Vol 7 (9) ◽  
pp. 146
Author(s):  
Estée C. H. Feldman ◽  
Daniel P. Hivick ◽  
P. Maxwell Slepian ◽  
Susan T. Tran ◽  
Pradeep Chopra ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psychological Interventions ◽  
Pediatric Pain ◽  
Connective Tissue Disorders ◽  
Ehlers Danlos Syndrome ◽  
Major Criterion ◽  
Pain Characteristics ◽  
The Relationship ◽  
Danlos Syndrome

Ehlers–Danlos syndromes (EDS) are a group of connective tissue disorders that manifest with hyperextensibility of joints and skin, and general tissue fragility. While not a major criterion for clinical diagnosis, pain is a frequently endorsed symptom across subtypes of EDS. As such, the present review aims to summarize research to date on pain characteristics and management, and the relationship between such pain symptomatology and quality of life in pediatric EDS. Characteristics of pain, including theorized etiology, relative intensity and extent of pain are described, as well as descriptions of frequently endorsed pain sites (musculoskeletal, and non-musculoskeletal). Interventions related to the management of musculoskeletal (e.g., pharmaceutical intervention, physical therapy) and non-musculoskeletal pain (e.g., pharmaceutical and psychological interventions) are discussed, highlighting the need for additional research related to pediatric pain management in the context of hypermobility syndromes. In addition, the relationship between pain in pediatric EDS and quality of life is described. Finally, limitations of literature to date are described and recommendations for future lines of research are outlined.

Impact of a paediatric cardiac rehabilitation programme upon patient quality of life

2021 ◽  
pp. 1-8
Author(s):  
Kristin H. Kroll ◽  
Joshua R. Kovach ◽  
Salil Ginde ◽  
Roni M. Jacobsen ◽  
Michael Danduran ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cardiac Rehabilitation ◽  
Exercise Capacity ◽  
Psychosocial Functioning ◽  
Rehabilitation Programme ◽  
Self Concept ◽  
Cardiac Rehabilitation Programme ◽  
Patient Reported ◽  
Related Quality

Abstract Introduction: Cardiac rehabilitation programmes for paediatric patients with congenital heart disease (CHD) have been shown to promote emotional and physical health without any associated adverse events. While prior studies have demonstrated the effectiveness of these types of interventions, there has been limited research into how the inclusion of psychological interventions as part of the programme impacts parent-reported and patient-reported quality of life. Materials and methods: Patients between the ages of 7 and 24 years with CHD completed a cardiac rehabilitation programme that followed a flexible structure of four in person-visits with various multidisciplinary team members, including paediatric psychologists. Changes in scores from the earliest to the latest session were assessed regarding exercise capacity, patient functioning (social, emotional, school, psychosocial), patient general and cardiac-related quality of life, patient self-concept, and patient behavioural/emotional problems. Results: From their baseline to final session, patients exhibited significant improvement in exercise capacity (p = 0.00009). Parents reported improvement in the patient’s emotional functioning, social functioning, school functioning, psychosocial functioning, cognitive functioning, communication, and overall quality of life. While patients did not report improvement in these above areas, they did report perceived improvement in certain aspects of cardiac-related quality of life and self-concept. Discussion: This paediatric cardiac rehabilitation programme, which included regular consultations with paediatric psychologists, was associated with divergent perceptions by parents and patients on improvement related to quality of life and other aspects of functioning despite improvement in exercise capacity. Further investigation is recommended to identify underlying factors associated with the differing perceptions of parents and patients.

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