scholarly journals Adaptive Leadership Framework for Chronic Illness

2015 ◽  
Vol 38 (2) ◽  
pp. 83-95 ◽  
Author(s):  
Ruth A. Anderson ◽  
Donald E. Bailey ◽  
Bei Wu ◽  
Kirsten Corazzini ◽  
Eleanor S. McConnell ◽  
...  
2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 171-171
Author(s):  
Ashley Leak Bryant ◽  
Anna Beeber ◽  
Bei Wu

Abstract The carepartner is an essential member of the team to facilitate and assist in maximizing the independence of the older adult. The four papers in this symposium applies The Adaptive Leadership Framework for Chronic Illness (ALFCI) at the point of design, as well as an analytic framework for literature synthesis, intervention design, and analysis of existing data. In the first paper, a qualitative metasummary of a scoping review synthesizes qualitative findings about fatigue adaptation and challenges for stroke survivors, care partners, and healthcare professionals. The second paper describes the use of the ALFCI in an intervention study to manage symptom challenges in older adults with acute myeloid leukemia. The third paper shares staff’s experiences of providing direct care for older residents with advanced dementia in long-term care facilities. The fourth paper describes use of the carepartner–assisted intervention to improve oral hygiene of older adults with cognitive impairment. The ALFCI is a useful framework for intervention design 1) this framework provides a comprehensive way to examine the context of symptoms/behaviors (not just the symptom/behavior in isolation), 2) the framework guides “collaborative work”, 3) analytically it can help guide development of shared meaning of communication and “collaborative work” of dyads (family caregivers, long-term care staff and older adults), and 4) helps understand process of staff utilizing their strengths and doing adaptive work to facilitate interactions and communication, managing older residents’ behavioral and psychological symptoms of dementia, and improving their care provision and work life.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 171-171
Author(s):  
Stephanie Becantur ◽  
Ya-Ning Chan ◽  
Rachel Hirschey ◽  
Marianne Baernholdt ◽  
Ruth Anderson ◽  
...  

Abstract Our study addresses symptoms and functional management early in acute myeloid leukemia treatment using a PAlliative and Collaborative Care inTervention (PACT) delivered by clinical staff. PACT is an interdisciplinary nurse-led intervention of nursing [RN], occupational therapy [OT], physical therapy [PT] for adults ≥ 60 years of age at time of initial treatment. Finding from our preliminary qualitative work led to use of the Adaptive Leadership Framework for Chronic Illness to guide optimal engagement of the patient in self-management of symptoms and functional activities to address QOL outcomes. We share lessons learned of how the ALFCI was applied to the PACT intervention to empower patients with self-management skills to reduce symptoms and optimize function. In summary, the team and patient identify and address emotional, motivational, attitudinal barriers so that the patient can do the work required for self- management to reduce symptoms and avoid functional decline.


2021 ◽  
Vol 34 (4) ◽  
pp. 405-412
Author(s):  
Donald E. Bailey ◽  
Andrew J. Muir ◽  
Michael P. Cary ◽  
Natalie Ammarell ◽  
Sarah Seaver ◽  
...  

The authors describe a family’s adaptive challenges and adaptive work during a family member’s treatment for Chronic Hepatitis C. We audiorecorded index and final clinical visits and interviewed participants (patients and providers) following the visits. We interviewed by telephone and reviewed medical records over the course of treatment. Transcripts were analyzed using directed content analysis. Three themes were identified: family adaptive challenges, patient-described aspects of family members’ adaptive challenges, and family adaptive work. There were four subthemes related to family adaptive work. The adaptive leadership framework for chronic illness provided direction for future family intervention.


2014 ◽  
Vol 55 (4) ◽  
pp. 616-627 ◽  
Author(s):  
Kirsten Corazzini ◽  
Jack Twersky ◽  
Heidi K. White ◽  
Gwendolen T. Buhr ◽  
Eleanor S. McConnell ◽  
...  

2012 ◽  
pp. 83 ◽  
Author(s):  
Donald Bailey ◽  
Docherty ◽  
Adams ◽  
Carthron ◽  
Corazzini ◽  
...  

SAGE Open ◽  
2019 ◽  
Vol 9 (1) ◽  
pp. 215824401882446 ◽  
Author(s):  
Donald E. Bailey ◽  
Andrew J. Muir ◽  
Judith A. Adams ◽  
N. Marcus Thygeson ◽  
Hants Williams ◽  
...  

Chronic hepatitis C (CHC) is the most common blood-borne infection in the United States. Patients with CHC undergoing treatment face many challenges including adherence to medications and management of symptoms; health care practitioners are well positioned to facilitate patients’ ability to address these challenges. We used the Adaptive Leadership for Chronic Illness Framework to investigate the difficulties inherent in affecting behavior change in patients undergoing treatment. We enrolled 11 patient participants and 10 provider participants. We used data from the first clinical encounter between patients and providers during which treatment was discussed. We found examples of adaptive leadership and categorized these behaviors into three themes: support for medication, coping with family/home life, and strategizing to manage employment. We also saw examples of what we termed missed opportunities for adaptive leadership. This study illustrates the contributions of adaptive leadership behaviors by health care providers and the potential risk to patients in their absence.


2013 ◽  
Vol 1 (2) ◽  
pp. 417 ◽  
Author(s):  
Elizabeth Neglia ◽  
Ruth Anderson ◽  
Debra Brandon ◽  
Sharron Docherty

Objective: Effective provider and caregiver communication is central to quality care during treatment for life-threatening illnesses. The study aim was to analyze communication patterns between providers and a parent of an infant with a life-threatening disease using the Adaptive Leadership Framework, which is an activity that involves mobilizing others to adapt to a difficult situation.Method: A secondary analysis was conducted using 23 interviews of providers and mother with an infant diagnosed with Hurler’s syndrome. The interviews focused on decision-making challenges in regard to the infant’s treatment and were conducted over a 1-year period (pre-transplant, study entry, monthly, after a life-threatening event or substantial change in treatment and at 1-year post enrollment). Content analysis was used to identify and categorize communication patterns using concepts from the Adaptive Leadership Framework.Results:  Infant illness events and parent-provider caregiving were chronicled across a 1-year trajectory.  Despite the life-threatening nature of Hurler’s disease, the parent and providers did not discuss palliative care or end-of-life. The parent sought direction and answers from the providers. The Adaptive Leadership Framework suggested how communication approaches were often mismatched with the apparent needs of the parent. Discussion:  The results of the study accentuate the need to improve communication between provider and parents about end-of-life for their child. Adaptive Leadership illuminates how providers can influence a parent’s behavior when facing a challenging situation. This study suggests that Adaptive Leadership is a useful framework to guide research about healthcare communication in dealing with challenging issues.


Sign in / Sign up

Export Citation Format

Share Document