An Exploration of Factors Related to Quality of Life in Indonesian Care Workers in Home-Based Care Settings

There are 15,000 new cases of spinal cord injury per year in India. The majority of persons survive due to improved quality of acute care compared to the past. Survival impacts Quality of Life. In developed countries quadriplegia is associated with a poor QOL on average. South Asian QOL on average is lower than in developed countries so those with diseases are worse off. A large part of expenditure is on early surgery and subsequent home based therapy. Most are managed at centers without medical rehabilitation units. Once stabilized the patient is discharged for home based care. The net impact leads to lost follow-up or succumbing to associated life-threatening complications. It is established that multidisciplinary rehabilitation improves outcomes in this population. Interventions to improve function thereby QOL may prove cost-effective in the long run. There is no Indian data on the impact on QOL comparing acute inpatient rehabilitation to early home based care in tetraplegia. In this study we report the long-term impact of acute medical rehabilitation with follow-up on Quality of Life in Chronic SCI. We specically report this in Chronic SCI patients greater than 1 year from injury using the EQ5DL3, and VAS.

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Music Playlists for People with Dementia: Trialing A Guide for Caregivers

Journal of Alzheimer s Disease ◽

10.3233/jad-200457 ◽

2020 ◽

Vol 77 (1) ◽

pp. 219-226

Author(s):

Sandra Garrido ◽

Laura Dunne ◽

Catherine J. Stevens ◽

Esther Chang

Keyword(s):

Quality Of Life ◽

Music Programs ◽

Control Group ◽

Residential Care Facilities ◽

Music Therapist ◽

People With Dementia ◽

Home Based ◽

Waitlist Control Group ◽

Home Based Care

Background: Music programs have the potential to provide an effective non-pharmacological tool for caregivers to reduce depression and agitation and increase quality of life in people with dementia. However, where such programs are not facilitated by a trained music therapist, caregivers need greater access to information about how to use music most effectively in response to key challenges to care, and how to pre-empt and manage adverse responses. Objective: This study reports on the trial of a Guide for use of music with 45 people with dementia and their caregivers in residential care facilities and home-based care. Methods: The study used a pre-post experimental design in which participants were randomly allocated to a treatment group or a waitlist control group. Results: Improvements to quality of life were found in the experimental group over the 6-week period. Significant increases in Interest, Responsiveness, Initiation, Involvement, and Enjoyment were reported for individual listening sessions. Conclusion: The Guide can provide an effective protocol for caregivers to follow in selecting music to manage particular challenges to care, confirming the need for caregivers to be prepared to monitor and manage potential negative responses.

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INNOVATION AND TELEMEDICINE: AN APPLIED PROJECT

International Journal of Developmental and Educational Psychology Revista INFAD de psicología ◽

10.17060/ijodaep.2016.n2.v1.560 ◽

2016 ◽

Vol 1 (2) ◽

pp. 277

Author(s):

Loreto Gesualdo ◽

Valeria Caggiano ◽

Andrea Bellezza ◽

Claudio Mastropaolo

Keyword(s):

Quality Of Life ◽

World Health ◽

Expert Advice ◽

Care Hospital ◽

Long Distance ◽

Home Based ◽

Hospital At Home ◽

Home Based Care ◽

At Home

Abstract.Telemedicine, defined by the World Health Organization as ‘integrative part of telecommunication systems in the promotion of public health’, generates different positive results: more efficiency, less costs, better patient’s quality of life. Thanks to the advances in diagnostic technologies, information technologies, remote monitoring and long-distance care, telemedicine have increased the viability of home-based care, even for patients with serious conditions. At the same time we observe the increase in the elderly population suffering from pluripatologyand chronic diseases, that causes an increasing recourse to medical and hospital care; but prolonged hospital stay can determine loss of function and psychophysical disorders. Telemedicine is 'the investigation, monitoring and management of patients and education of patients and staff using systems which allow ready access to expert advice and patient information, no matter where the patient or relevant information is located'. We are empowering in different areas new biomedical and information technology as a support to clinical practice. The goal is to make a case study and to use for future analysis. In the experimental phase 4 patients were followed on hemodialysis and 4 in peritoneal dialysis, previously evaluated for clinical, social, logistical and psychological conditions. It is estimated that today there are 50.000 patients on dialysis and about 10.000 new cases a year only in Italy. Naturally there are threats to solve because users face difficulties, in terms of interaction with robots, in their usual context of life.The right methodology needs to coordinate the entire hospital, different professionals, patients, providing tools for care givers that follow patients, training technicians, aligning data collection and communication.The project reached great results in relation to the indicators: efficiency in dialysis, compliance with health protocols, impact on patient quality of life. Telemedicine and telecardiology projects are active at the ‘Hospital at Home Service of Bari’.Key words: health, telemedicine, home-based care,hospital at home, robotics, ict.

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Effectiveness of Home-Based Care on the Quality of Life of People Living with AIDS in Africa

The JBI Database of Systematic Reviews and Implementation Reports ◽

10.11124/01938924-200604051-00007 ◽

2006 ◽

Vol 4 (Supplement) ◽

pp. 1-9

Keyword(s):

Quality Of Life ◽

Home Based ◽

Home Based Care

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Factors Affecting Quality of Life of Family Caregivers of Home-based Care Stroke Patients using Day Care Services

Rigakuryoho Kagaku ◽

10.1589/rika.27.61 ◽

2012 ◽

Vol 27 (1) ◽

pp. 61-66

Author(s):

Seiichi TAKEMASA ◽

Ryoma NAKAGOSHI ◽

Masahito MURAKAMI ◽

Masayuki UESUGI ◽

Yuri INOUE ◽

...

Keyword(s):

Quality Of Life ◽

Family Caregivers ◽

Day Care ◽

Stroke Patients ◽

Factors Affecting ◽

Care Services ◽

Home Based ◽

Home Based Care

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The Effectiveness of Home-based Walking Program in Improving Quality of Life in Patients With Hemodialysis

Case Medical Research ◽

10.31525/ct1-nct03996811 ◽

2019 ◽

Author(s):

Keyword(s):

Quality Of Life ◽

Walking Program ◽

Home Based

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“Randomized trial of physical activity on quality of life and lung cancer biomarkers in patients with advanced stage lung cancer: a pilot study”

BMC Cancer ◽

10.1186/s12885-021-08084-0 ◽

2021 ◽

Vol 21 (1) ◽

Author(s):

Brett C. Bade ◽

Geliang Gan ◽

Fangyong Li ◽

Lingeng Lu ◽

Lynn Tanoue ◽

...

Keyword(s):

Quality Of Life ◽

Physical Activity ◽

Lung Cancer ◽

Randomized Trial ◽

Cancer Biomarkers ◽

Advanced Stage ◽

Home Based ◽

Advanced Stage Lung Cancer ◽

Stage Lung Cancer

Abstract Background Lung cancer survivors need more options to improve quality of life (QoL). It is unclear to what extent patients with advanced stage disease are willing to participate in home-based physical activity (PA) and if these interventions improve QoL. The goal of our study was to determine interest in participating in our 3-month home-based walking regimen in patients with advanced stage lung cancer. We used a randomized design to evaluate for potential benefit in PA and patient-reported outcomes. Methods We performed an open-label, 1:1 randomized trial in 40 patients with stage III/IV non-small cell lung cancer (NSCLC) evaluating enrollment rate, PA, QoL, dyspnea, depression, and biomarkers. Compared to usual care (UC), the intervention group (IG) received an accelerometer, in-person teaching session, and gain-framed text messages for 12 weeks. Results We enrolled 56% (40/71) of eligible patients. Participants were on average 65 years and enrolled 1.9 years from diagnosis. Most patients were women (75%), and receiving treatment (85%) for stage IV (73%) adenocarcinoma (83%). A minority of patients were employed part-time or full time (38%). Both groups reported low baseline PA (IG mean 37 (Standard deviation (SD) 46) vs UC 59 (SD 56) minutes/week; p = 0.25). The IG increased PA more than UC (mean change IG + 123 (SD 212) vs UC + 35 (SD 103) minutes/week; p = 0.051)). Step count in the IG was not statistically different between baseline (4707 step/day), week 6 (5605; p = 0.16), and week 12 (4606 steps/day; p = 0.87). The intervention improved EORTC role functioning domain (17 points; p = 0.022) with borderline improvement in dyspnea (− 13 points; p = 0.051) compared to UC. In patients with two blood samples (25%), we observed a significant increase in soluble PD-1 (219.8 (SD 54.5) pg/mL; p < 0.001). Conclusions Our pilot trial using a 3-month, home-based, mobile health intervention enrolled over half of eligible patients with stage III and IV NSCLC. The intervention increased PA, and may improve several aspects of QoL. We also identified potential biomarker changes relevant to lung cancer biology. Future research should use a larger sample to examine the effect of exercise on cancer biomarkers, which may mediate the association between PA and QoL. Clinical trial registration Clinicaltrials.gov (NCT03352245).

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Effect of mobile guided cardiac rehabilitation on quality of life – the EU-CaRE randomised clinical trial

European Heart Journal ◽

10.1093/ehjci/ehaa946.3105 ◽

2020 ◽

Vol 41 (Supplement_2) ◽

Author(s):

V Houben ◽

J.A Snoek ◽

E Prescott ◽

N Mikkelsen ◽

A.E Van Der Velde ◽

...

Keyword(s):

Quality Of Life ◽

Elderly Patients ◽

Cardiac Rehabilitation ◽

Control Group ◽

Funding Source ◽

Multi Centre Study ◽

Old Patients ◽

Home Based ◽

Significant Difference

Abstract Background and purpose Although participation in cardiac rehabilitation (CR) improves quality of life (QoL), participation in CR, especially among elderly, is limited. We conducted this study to assess whether mobile home-based CR (mCR) increases QoL in elderly (≥65 years old) patients with coronary artery disease (CAD) or a valvular intervention who decline participation in conventional CR. Methods It is designed as a randomised multi-centre study with two parallel arms. Randomisation assigned patients either to mCR or a control group. mCR Consisted of six months of home-based CR with telemonitoring and coaching. Control-group patients did not receive any form of CR throughout the study period. Quality of life was measured with the SF-36v2 questionnaire at 0, 6 and 12 months. Results A total of 179 patients were included in this study (90 control, 89 mCR). A flowchart of the trial is presented in Figure 1. Patients were predominantly male (81.1%). Baseline characteristics can be found in Table 1. Patients using mCR improved on physical QoL after 6 (p=0.026) and 12 (p=0.008) months. There was no difference on mental QoL for both groups (mCR 6 months p=0.563, 12 months p=0.945; control 6 months p=0.589, 12 months p=0.542). No difference existed in QoL between the mCR and control group (physical: 6 months p=0.070, 12 months p=0.150; mental: 6 months p=0.355, 12 months p=0.625). Conclusion Although there is no significant difference in QoL between the control and mCR group, mCR increases physical QoL after 6 and 12 months in elderly patients who decline participation in conventional CR. Therefore E-Health tools should be considered as an alternative for conventional CR when (elderly) patients decline to participate in conventional CR. Figure 1. Flow chart of all eligible patients Funding Acknowledgement Type of funding source: Public grant(s) – EU funding. Main funding source(s): European Union's Horizon 2020 research and innovation programme

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