Everyday Abilities Scale for India in Screening for Poststroke Dementia Among Young Stroke Survivors

<p>Research has shown that when people see young survivors of stroke, they often misattribute the person’s symptoms to other factors (Wainwright et al., 2013). Consequently, these stroke survivors may suffer feelings of resentment towards, and from their acquaintances. They may also struggle to obtain or retain a job. This thesis examines whether these misattributions for stroke survivors’ symptoms are affected by the information people have about the stroke survivor and the rapidity of the change in their behaviours. Experiment 1 investigated if the stroke survivor’s age (72, 32 or unstated) and the level of information (no information, implied stroke or explicit stroke) for their behaviours influenced people’s attributions. Experiment 1 showed that people attributed the behavioural changes to factors other than stroke when no additional information is present, and they attributed the behaviours to stroke when stroke was explicitly described. When stroke was implied, participants rated stroke as the best explanation but only when the target person was 72. Experiment 2 manipulated the rapidity of the stroke survivor’s behavioural changes to assess the effect on attributions. Experiment 2 showed that people attributed the behaviours to stroke more if only one week had passed, and if the target person was 72, but not when he was 32. It was concluded that young stroke survivors may need to disclose their stroke in order for others to correctly attribute their behaviours, as this could improve their rehabilitation.</p>

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Young Stroke Survivors' Preferred Methods of Meeting Their Unique Needs

Neurology ◽

10.1212/wnl.0000000000011647 ◽

2021 ◽

Vol 96 (13) ◽

pp. e1701-e1710

Author(s):

Jessica Keating ◽

Karen Borschmann ◽

Hannah Johns ◽

Leonid Churilov ◽

Julie Bernhardt

Keyword(s):

Health Care ◽

Health Care Professional ◽

Online Survey ◽

Care Setting ◽

Alternative Methods ◽

Stroke Survivors ◽

Face To Face ◽

Young Stroke ◽

Traditional Health ◽

Traditional Health Care

ObjectiveTo determine how young stroke survivors want their unmet needs to be addressed, we undertook an international online survey of people living with stroke.MethodsParticipants self-selected to complete an online survey that included a questionnaire on demographics and stroke-related characteristics, the Young Stroke Needs Screening Tool, and a questionnaire on how they wanted their needs to be met.ResultsOne hundred seventy-one responses were received (68% female respondents, mean age 45 years, interquartile range 36–51 years). Preferences for methods of meeting needs varied depending on the domain of need and participants' demographic and stroke-related characteristics. Face-to-face contact with a health care professional was a popular means of meeting needs, but methods outside of a traditional health care setting such as a succinct list of tips or peer support were widely acceptable and sometimes preferred.ConclusionThis work provides the impetus for developing alternative methods of meeting young stroke survivors' needs, many of which are not resource intensive or do not require an appointment with a health care professional.

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Development and initial validation of a patient centered stroke outcome measure in young stroke survivors

European Journal of Neurology ◽

10.1111/ene.15052 ◽

2021 ◽

Author(s):

Nishanth Kodumuri ◽

Amy Edmunds ◽

Amy Seidel ◽

Phil Fleming ◽

Alexandra Vezzetti ◽

...

Keyword(s):

Outcome Measure ◽

Stroke Survivors ◽

Stroke Outcome ◽

Patient Centered ◽

Young Stroke ◽

Initial Validation

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Stroke-Related Disease Comorbidity and Secondary Stroke Prevention Practices Among Young Stroke Survivors

Journal of Neuroscience Nursing ◽

10.1097/jnn.0000000000000313 ◽

2017 ◽

Vol 49 (5) ◽

pp. 296-301 ◽

Cited By ~ 5

Author(s):

Gayenell S. Magwood ◽

Brandi M. White ◽

Charles Ellis

Keyword(s):

Stroke Prevention ◽

Stroke Survivors ◽

Secondary Stroke Prevention ◽

Young Stroke ◽

Related Disease

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Young Women Stroke Survivors and Their Desire for Peer Support

ISRN Stroke ◽

10.1155/2014/231725 ◽

2014 ◽

Vol 2014 ◽

pp. 1-8

Author(s):

Sharon-Dale Stone

Keyword(s):

Peer Support ◽

Young Women ◽

Hemorrhagic Stroke ◽

Well Being ◽

Stroke Survivors ◽

Psychological Well Being ◽

Young Stroke ◽

Widespread Access

The concerns of young stroke survivors are not well known. The aim of this paper is to draw on data from a larger study to show that young women who survived a hemorrhagic stroke desire access to peer support, but there is not widespread access to peer support. Open-ended interviews were conducted with an international sample of 28 women to learn about their poststroke experiences and were analyzed qualitatively for common issues and themes. A prominent theme across the interviews was the significance of age-similar peer support. Participants discussed feeling alone and misunderstood and wanting to have access to peer support. In conclusion, peer support may help to enhance psychological well-being, but the survivor’s own understanding of her peers must be centrally considered.

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A Nationwide Multi-Center Questionnaire Survey on the Real-World State and Clinical Management of Poststroke Dementia in Japan

Journal of Alzheimer s Disease ◽

10.3233/jad-215006 ◽

2021 ◽

pp. 1-12

Author(s):

Kazuo Washida ◽

Erika Kitajima ◽

Tomotaka Tanaka ◽

Shuhei Ikeda ◽

Tetsuya Chiba ◽

...

Keyword(s):

Real World ◽

Questionnaire Survey ◽

Clinical Management ◽

Cognitive Rehabilitation ◽

Executive Dysfunction ◽

Stroke Survivors ◽

Stroke Management ◽

The Real ◽

World State ◽

Poststroke Dementia

Background: Poststroke dementia (PSD) is a serious problem for stroke survivors. However, there is still limited data on the real-world state and clinical management of PSD worldwide, and several countries already have a super-aged society. Objective: We conducted a nationwide questionnaire survey to examine the real-world state and management of PSD in Japan. Methods: A survey was conducted in the top 500 Japanese hospitals regarding the number of stroke patients treated between July 2018 and August 2019. Thirteen questions regarding PSD were mailed to doctors responsible for stroke management. Results: Responses were obtained from 251 hospitals (50.2%). The chief doctors responsible for stroke management answered the questionnaires. The median numbers of patients admitted annually with stroke in the departments of neurology and neurosurgery in the hospitals were 281.0 (interquartile range [IQR], 231.8–385.3) and 253.5 (IQR, 210.0–335.3), respectively, and most hospitals were acute care hospitals. Executive dysfunction was the most common cognitive dysfunction (10.9%), followed by amnesia (9.5%) and apathy (4.1%). Surprisingly, many stroke survivors lived alone at home (23.7%). Montreal Cognitive Assessment was significantly uncommon compared to Mini-Mental State Examination (p < 0.01). Furthermore, objective evaluation tests for behavioral and psychological symptoms of dementia were not often performed. Cognitive rehabilitation treatments were performed more often and earlier than drug treatments. The first drug of choice for PSD was predominantly donepezil (79.1%), followed by galantamine (6.1%), cilostazol (4.9%), memantine (2.5%), and rivastigmine (1.8%). Conclusion: Our study provides real-world evidence for the state of clinical practice related to PSD in Japan.

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