scholarly journals 10,000 Voices: service users’ experiences of adult safeguarding

2017 ◽  
Vol 19 (5) ◽  
pp. 236-246 ◽  
Author(s):  
Lorna Montgomery ◽  
Deborah Hanlon ◽  
Christine Armstrong
Keyword(s):  
Pilot Study ◽  
Northern Ireland ◽  
Service User ◽  
User Involvement ◽  
Pilot Project ◽  
User Feedback ◽  
Small Scale ◽  
Service Users ◽  
Content Type ◽  
Health And Social Care

Purpose The purpose of this paper is to describe a small scale pilot study undertaken in Northern Ireland to gather service user feedback from individuals who have been subject to adult safeguarding procedures. Design/methodology/approach The aims, methods and findings of the “Adult Safeguarding: 10,000 Voices” pilot project are presented. Findings The pilot project highlighted how an initiative which captures the experiences of patients, service users, carers and staff in the health and social care sector (10,000 Voices) could be successfully adapted for use in adult safeguarding, facilitating the collation of complex experiences and enabling insights to be gleaned and shared. Research limitations/implications The pilot study is limited by the small number of participants. The findings are preliminary. Practical implications For the first time in Northern Ireland the 10,000 Voices model was utilised in the context of a non-health related service, namely, adult safeguarding. Social implications This outline of the model and methodology for obtaining service user feedback can inform user involvement in other contexts. Originality/value This paper provides an accessible overview of an innovative approach to engaging service users in adult safeguarding, such approaches, to date have been limited.

Developing a training package

2017 ◽  
Vol 30 (5) ◽  
pp. 458-466
Author(s):  
Virginia Minogue ◽  
Anne-Laure Donskoy
Keyword(s):  
Service User ◽  
Research Training ◽  
Production Model ◽  
Working Relationships ◽  
Service Users ◽  
Research Experience ◽  
Content Type ◽  
Training Package ◽  
Health And Social Care ◽  
And Training

Purpose The purpose of this paper is to outline the development of a training package for service users and carers with an interest in NHS health and social care research. It demonstrates how the developers used their unique experience and expertise as service users and carers to inform their work. Design/methodology/approach Service users and carers, NHS Research and Development Forum working group members, supported by health professionals, identified a need for research training that was tailored to other service user and carer needs. After reviewing existing provision and drawing on their training and support experience, they developed a training package. Sessions from the training package were piloted, which evaluated positively. In trying to achieve programme accreditation and training roll-out beyond the pilots, the group encountered several challenges. Findings The training package development group formed good working relationships and a co-production model that proved sustainable. However, challenges were difficult to overcome owing to external factors and financial constraints. Practical implications Lessons learnt by the team are useful for other service users and carer groups working with health service professionals. Training for service users and carers should be designed to meet their needs; quality and consistency are also important. The relationships between service user and carer groups, and professionals are important to understanding joint working. Recognising and addressing challenges at the outset can help develop strategies to overcome challenges and ensure project success. Originality/value The training package was developed by service users and carers for other service users and carers. Their unique health research experience underpinned the group’s values and training development.

Tame clients: an evaluation of service users’ and trainee clinical psychologists’ perspective of service user involvement in teaching

2019 ◽  
Vol 14 (5) ◽  
pp. 327-338
Author(s):  
Carl Norwood ◽  
Anna Tickle ◽  
Danielle De Boos ◽  
Roberta Dewa
Keyword(s):  
Clinical Psychology ◽  
Service User ◽  
User Involvement ◽  
Clinical Psychologists ◽  
Psychology Training ◽  
Service Users ◽  
Service User Involvement ◽  
Clinical Psychology Training ◽  
Content Type ◽  
Competency Frameworks

Purpose The involvement of service users within clinical psychology training is written into policy. However, the practice of evaluating involvement from both trainees’ and service users’ viewpoint is minimal. The purpose of this paper is to evaluate recent service user involvement in psychometrics and formulation teaching on a clinical psychology training programme, from both service user and trainee perspectives. Design/methodology/approach Focus groups were held with service users (n=3) involved in the teaching, as well as trainees (n=3). Additional questionnaire data were captured from trainees (n=11). Service user and trainee data were analysed separately using thematic analysis. Themes generated for trainees were also mapped on to a competency framework for clinical psychologists. Findings Both parties found the teaching beneficial. Service users enjoyed supporting trainees and engaged positively in their roles. They identified relational aspects and reflections on their own therapy as other benefits. Trainees reported enhanced clinical preparedness, critical and personal reflection. Trainee anxiety was evident. Learning mapped well to competency frameworks. Research limitations/implications The samples were small and some data truncated. Findings speak to broader issues and may transfer to other involvement contexts. Practical implications A good degree of meaningful involvement can be achieved through such initiatives, to mutual benefit and enhanced learning. Originality/value Nature of the exercise and dual-aspect approach to evaluation described here helps to minimise tokenism. The mapping of findings to competency frameworks supports evaluative processes and helps to legitimise involvement initiatives that challenge the boundaries of existing practice.

From the service user association's perspective

2020 ◽  
Vol 28 (2) ◽  
pp. 53-63
Author(s):  
Charlotte Klinga ◽  
Johan Hansson ◽  
Henna Hasson ◽  
Magna Andreen Sachs ◽  
Carolina Wannheden
Keyword(s):  
Mental Health ◽  
Service User ◽  
Social Care ◽  
Service Users ◽  
Content Type ◽  
Care Services ◽  
Care And Support ◽  
Health And Social Care ◽  
The Individual ◽  
Integrated Mental Health

PurposeThe aim of this study was to identify key components of integrated mental health and social care services that contribute to value for service users in Sweden.Design/methodology/approachAn explorative research study design was used, based on data from four group interviews conducted in June and August 2017 with service user representatives.FindingsThe analysis resulted in eight subcategories reflecting components that were reported to contribute to value for service users. These subcategories were grouped into three main categories: (1) professionals who see and support the whole person, (2) organizational commitment to holistic care and (3) support for equal opportunities and active participation in society.Research limitations/implicationsThe findings are primarily transferable to integrated mental health and social care services, as they emphasize key components that contribute to value for service users in these specific settings.Practical implicationsThe complexity of integrated mental health and social care services requires coordination across the individual and organizational levels as well as ongoing dialogue and partnerships between service users, service user associations and health and social care organizations. In this integration, it is important that service users and service user associations not only are invited but also keen to participate in the design of care and support efforts.Originality/valueService User Associations (SUAs) can act as a bridge between county and municipal services through their participation in the development of local activities; at the regional and national levels, SUAs can help achieve more equitable integrated services. It is important that SUAs are not only invited but encouraged to actively participate in the design of such care and support efforts.

Developing and evaluating guidelines for patient and public involvement (PPI) in research

2015 ◽  
Vol 28 (2) ◽  
pp. 141-155 ◽  
Author(s):  
Katherine Pollard ◽  
Anne-Laure Donskoy ◽  
Pamela Moule ◽  
Christine Donald ◽  
Michelle Lima ◽  
...  
Keyword(s):  
Service User ◽  
Public Involvement ◽  
Good Practice ◽  
Patient And Public Involvement ◽  
Service Users ◽  
User Research ◽  
Content Type ◽  
Research Guidelines ◽  
Health And Social Care ◽  
Service User Research

Purpose – A growing literature reports the benefits and challenges of patient and public involvement (PPI) in research; nevertheless, understanding PPI in research design remains under-developed. The purpose of this paper is to report learning experiences from involving service users as research partners in two projects that developed and evaluated guidelines for good practice in this regard. The main objective was to evaluate these guidelines. Design/methodology/approach – PPI research guidelines were developed through five workshops involving service users/patients, carers, health and social care professionals/managers and academics. Using a participatory qualitative approach, these guidelines were evaluated through mapping them against the two service user research partners’ experience within another project. Findings – The guidelines were found to be fit for purpose, as they allowed problems to be easily identified and reassurance that required standards were being met. Both academic and service user research partners learned and gained relevant skills. Two service user research partners also found their daily living skills unexpectedly enhanced by project participation. Originality/value – The PPI guidelines, the authors developed were produced by consensus involving several stakeholders. Service users involved as research partners in the project experienced unanticipated personal benefits.

scholarly journals Experiences of user involvement in mental health research: exploring reflections from a service user researcher using auto-ethnography

2020 ◽  
Vol 25 (3) ◽  
pp. 281-294
Author(s):  
Joanna Fox
Keyword(s):  
Mental Health ◽  
Health Research ◽  
Service User ◽  
Best Practice ◽  
User Involvement ◽  
Mental Health Research ◽  
Power Sharing ◽  
Service Users ◽  
Content Type ◽  
Auto Ethnography

Purpose User involvement in research is entering the mainstream of traditional mental health research. In practice, there are diverse ways in which the process of involvement is experienced by mental health service user researchers. This paper aims to explore two diverse experiences of involvement by the researcher. Design/methodology/approach Auto-ethnography is the research methodology used in this study; it combines a process of reflective writing and critical analysis which enables the author to explore experiences of being both a service user and academic researcher. Two accounts of the author’s involvement in mental health research are presented: one which builds on a consultation model and the other based on co-production principles. Findings Experiences of power-sharing and collaborative decision-making, alongside disempowerment, are discussed, leading to exploration of the theoretical and practical processes for promoting participation of users in research. Research limitations/implications The research is limited because it is undertaken by one individual in a local setting, and is therefore is not generalisable; however, it provides useful insights into the diverse processes of involvement that many service users experience. Practical implications Recommendations are presented to support the involvement of service users in research, with final remarks offered considering the possible future implementation of this still emerging tradition. Originality/value This paper reflects on the experiences of one service user academic involved in research and highlights diverse experiences of both empowering and disempowering involvement, providing recommendations for best practice.

scholarly journals Psychiatric drugs: reconsidering their mode of action and the implications for service user involvement

2019 ◽  
Vol 24 (1) ◽  
pp. 1-10
Author(s):  
Marc Roberts
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Mental Health Service ◽  
Health Service ◽  
Service User ◽  
User Involvement ◽  
Service Users ◽  
Service User Involvement ◽  
Content Type ◽  
Psychiatric Drugs

Purpose The purpose of this paper is to examine two competing pharmacological models that have been used to understand how psychiatric drugs work: the disease-centred model and the drug-centred model. In addition, it explores the implications of these two models for mental health service users and the degree to which they are meaningfully involved in decisions about the use of psychiatric drugs. Design/methodology/approach The approach is a conceptual review and critical comparison of two pharmacological models used to understand the mode of action of psychiatric drugs. On the basis of this analysis, the paper also provides a critical examination, supported by the available literature, of the implications of these two models for service user involvement in mental health care. Findings The disease-centred model is associated with a tendency to view the use of psychiatric drugs as a technical matter that is to be determined by mental health professionals. In contrast, the drug-centred model emphasises the centrality of the individual experience of taking a psychiatric drug and implies a more equitable relationship between practitioners and mental health service users. Originality/value Although infrequently articulated, assumptions about how psychiatric drugs work have important consequences for service user involvement in mental health care. Critical consideration of these assumptions is an important aspect of seeking to maximise service user involvement in decisions about the use of psychiatric drugs as a response to their experience of mental distress.

scholarly journals Aims for service user involvement in mental health training: staying human

2016 ◽  
Vol 11 (4) ◽  
pp. 208-219 ◽  
Author(s):  
Laura Lea ◽  
Sue Holttum ◽  
Anne Cooke ◽  
Linda Riley
Keyword(s):  
Mental Health ◽  
Mental Health Professionals ◽  
Service User ◽  
User Involvement ◽  
Service Users ◽  
Mental Health Training ◽  
Service User Involvement ◽  
Health Training ◽  
Content Type ◽  
The Impact

Purpose The purpose of this paper is to examine the impact of service user involvement in mental health training but little is known about what staff, trainees and service users themselves want to achieve. Design/methodology/approach Three separate focus groups were held with service users, training staff and trainees associated with a clinical psychology training programme. Thematic analysis was used to identify aims for involvement. Findings All groups wanted to ensure that future professionals “remained human” in the way they relate to people who use services. Service user and carer involvement was seen as a way of achieving this and mitigating the problem of “them and us thinking”. The authors found that groups had some aims in common and others that were unique. Service users highlighted the aim of achieving equality with mental health professionals as an outcome of their involvement in teaching. Research limitations/implications The samples were small and from one programme. Practical implications Common aims can be highlighted to foster collaborative working. However, the findings suggest that service users and carers, staff and trainees may also have different priorities for learning. These need to be recognised and addressed by mental health educators. Originality/value This was the first study to explore in depth the differing aims of different stakeholder groups for service user involvement. Clarification of aims is a vital first step in developing any future measure of the impact of service user involvement on mental health practice.

Overcoming challenges in service user involvement in an older people’s mental health service

2020 ◽  
Vol 24 (3) ◽  
pp. 151-155
Author(s):  
Sophie Smith ◽  
Maria Abbas ◽  
Ariane Zegarra
Keyword(s):  
Mental Health ◽  
Mental Health Service ◽  
Health Service ◽  
Service User ◽  
User Involvement ◽  
Service Improvement ◽  
Service Users ◽  
Service User Involvement ◽  
Content Type ◽  
Group Members

Purpose The purpose of this paper is to describe how an older people’s mental health service involves service users in research and service improvement projects, the value of this work and the ways in which barriers to user-led research have been approached and handled. Design/methodology/approach The authors conducted a reflective review of their experiences of running “ResearchNet”, a group aimed at putting service users’ perspectives at the heart of service improvement projects, which benefits from and develops its members’ related skills. The authors explore overcoming barriers to service user involvement in research. Findings This paper identified the following key elements that enabled ResearchNet to overcome barriers which might be found in service user–led research: recruitment processes; identifying research projects; building confidence, sustaining motivation and overcoming setbacks; developing service user’s research skills; keeping multiple views in mind; involving people with dementia; being responsive to group members’ needs; and keeping the group safe. Practical implications Oxleas National Health Service is currently looking at integrating with the quality improvement team to provide further structure and training to group members. Originality/value This paper explores an under-represented area of research – service user inclusion in older adult mental health research and service improvement. It provides much needed clinical implications for clinicians seeking to increase clients’ involvement in research and service development projects.

Now they’re listening: involvement in clinical psychology training

2019 ◽  
Vol 23 (1) ◽  
pp. 23-29
Author(s):  
Laura Lea ◽  
Sue Holttum ◽  
Victoria Butters ◽  
Diana Byrne ◽  
Helen Cable ◽  
...  
Keyword(s):  
Mental Health ◽  
Mental Health Professionals ◽  
Clinical Psychology ◽  
Health Professionals ◽  
Service User ◽  
Health Workers ◽  
Psychology Training ◽  
Service Users ◽  
Clinical Psychology Training ◽  
Content Type

PurposeThe 2014/2015 UK requirement for involvement of service users and carers in training mental health professionals has prompted the authors to review the work of involvement in clinical psychology training in the university programme. Have the voices of service users and carers been heard? The paper aims to discuss this issue.Design/methodology/approachThe authors update the paper of 2011 in which the authors described the challenges of inclusion and the specific approaches the authors take to involvement. The authors do this in the context of the recent change to UK standards for service user and carer involvement, and recent developments in relation to partnership working and co-production in mental healthcare. The authors describe the work carried out by the authors – members of a service user involvement group at a UK university – to ensure the voices of people affected by mental health difficulties are included in all aspects of training.FindingsCareful work and the need for dedicated time is required to enable inclusive, effective and comprehensive participation in a mental health training programme. It is apparent that there is a group of service users whose voice is less heard: those who are training to be mental health workers.Social implicationsFor some people, involvement has increased. Trainee mental health professionals’ own experience of distress may need more recognition and valuing.Originality/valueThe authors are in a unique position to review a service-user-led project, which has run for 12 years, whose aim has been to embed involvement in training. The authors can identify both achievements and challenges.

A scoping review of the literature on the involvement of service users in personality disorder services

2014 ◽  
Vol 31 (4) ◽  
pp. 233-243
Author(s):  
L. Montgomery ◽  
M. Donnelly
Keyword(s):  
Health Policy ◽  
Personality Disorder ◽  
Scoping Review ◽  
Service User ◽  
Mental Health Policy ◽  
User Involvement ◽  
Service Users ◽  
Service User Involvement ◽  
Review Of The Literature ◽  
Policy Makers

BackgroundService user involvement is receiving increasing support from mental health policy makers, service planners and research commissioners. However, we lack a good understanding of the nature and extent to which service users are involved in personality disorder (PD) services and the effects of involvement in these services.ObjectivesTo review and appraise published sources; increase understanding about service user involvement in PD services; and highlight knowledge gaps and related issues.MethodsA scoping review methodology was adopted. Data were ‘charted’ to illustrate the landscape of writings and views and a qualitative analysis synthesized the results in terms of key emergent themes.ResultsOnly a small amount of published work was identified with significant gaps in the literature. Effects were reported mostly in terms processes and emotional and practical benefits for service users. Emergent themes were wellness and health, recruitment and support for service users.ConclusionsThis scoping review uncovered a lack of published work despite service user involvement being a key strand of health policy. There is a need for outcomes-focused research regarding service user involvement. Successful user involvement in PD services requires attention to be focused on the context, recruitment, support and ‘wellness’ of service users.

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