scholarly journals Specialist community teams for adults with learning disabilities: referrals to a countywide service in England

2019 ◽  
Vol 24 (2) ◽  
pp. 41-49
Author(s):  
Isabel C.H. Clare ◽  
Kelly A. Wade ◽  
Nadine Ranke ◽  
Sarah Whitson ◽  
Alison Lillywhite ◽  
...  
Keyword(s):  
Learning Disabilities ◽  
Living Arrangements ◽  
Care Management ◽  
Social Care ◽  
Care Staff ◽  
Content Type ◽  
Wide Range ◽  
Integrated Health ◽  
Adults With Learning Disabilities ◽  
The Uk

Purpose While “generic” community teams for adults with learning disabilities (CTs) are well-established in the UK, very little recent evidence is available about any aspect of their work. As part of a larger project about the role, structure and functioning of CTs, the purpose of this paper is to provide data about referrals. Design/methodology/approach Over three months, the authors obtained data about 270 consecutive new referrals to five CTs in a countywide integrated health (NHS) and care management (local authority) service. Findings The 270 referrals related to 255 individuals, mainly already service users, with almost a third (30 per cent, n=204) described as people with severe or profound disabilities. Consistent with the reported living arrangements (residential accommodation or with one or more family members (87 per cent, n=270)), referrals were most often made by social care staff, General Practitioners or carers. The referrals related to a wide range of issues including mental health and/or behavioural needs, physical health and skills, and independence. The major group, however, were requests about a person’s entitlement to specialist learning disability services and/or reviews of an existing social care package. Research limitations/implications The focus on new referrals and the exclusion of intra-team referrals mean that the data are not representative of a CT’s caseload and cannot be used as a basis for resourcing. Nevertheless, the findings emphasise the heterogeneity of the population, and the long-term and varied nature of their needs, meaning that CTs require access to a range of expertise and, often, an inter-agency approach. The implications for service design are considered. Originality/value This is the first empirical study of referrals to specialist integrated (health and care management) community learning disabilities teams in England.

scholarly journals Living arrangements of adults with learning disabilities across the UK

2017 ◽  
Vol 22 (1) ◽  
pp. 43-50 ◽  
Author(s):  
Chris Hatton
Keyword(s):  
Learning Disabilities ◽  
Northern Ireland ◽  
Nursing Care ◽  
Living Arrangements ◽  
Social Care ◽  
Content Type ◽  
Adults With Learning Disabilities ◽  
Trends Over Time ◽  
The Uk ◽  
Over Time

Purpose The purpose of this paper is to compare data from national social care statistics on the living situations of people with learning disabilities across England, Scotland, Wales and Northern Ireland. Design/methodology/approach National social care statistics (England, Scotland, Wales, Northern Ireland) reporting the living situations of adults with learning disabilities (residential and nursing care, living with family, other forms of accommodation) were accessed, with data extracted on trends over time and rate of service use. Findings There were substantial differences in the statistics collected across the UK. Overall, there were higher reported rates of adults with learning disabilities in residential/nursing accommodation in England than Scotland or Wales, but much lower reported rates of adults living in other forms of unsupported and supported accommodation and much lower reported rates of adults living with their families. In all three countries, trends over time suggest that reductions in residential care towards more independent living options may be stalling. In Northern Ireland reductions in currently extensive residential and nursing care services are continuing, unlike other parts of the UK. Social implications Despite similar policy ambitions across the four parts of the UK, statistics on the living situations of adults with learning disabilities report substantial differences. Originality/value This paper is a first attempt to compare national social care statistics concerning the living situations of adults with learning disabilities across the UK. With increasing divergence of health and social service systems, further comparative analyses of services for people with learning disabilities are needed.

scholarly journals Day services and home care for adults with learning disabilities across the UK

2017 ◽  
Vol 22 (2) ◽  
pp. 109-115 ◽  
Author(s):  
Chris Hatton
Keyword(s):  
Learning Disabilities ◽  
Northern Ireland ◽  
Home Care ◽  
Service Use ◽  
Social Care ◽  
Content Type ◽  
Adults With Learning Disabilities ◽  
Day Services ◽  
The Uk ◽  
Over Time

Purpose The purpose of this paper is to compare data from national social care statistics on day services and home care for people with learning disabilities across England, Scotland, Wales and Northern Ireland. Design/methodology/approach National social care statistics (England, Scotland, Wales and Northern Ireland) reporting the number of adults with learning disabilities accessing day services and home care were reviewed, with data extracted on trends over time and rate of service use. Findings Regarding day services, despite some variations in definitions, the number of adults with learning disabilities in England, Scotland and Wales (but not Northern Ireland) using building-based day services decreased over time. Data from Scotland also indicate that adults with learning disabilities are spending less time in building-based day services, with alternative day opportunities not wholly compensating for the reduction in building-based day services. Regarding home care, there are broadly similar rates of usage across the four parts of the UK, with the number of adults with learning disabilities using home care now staying static or decreasing. Social implications Similar policy ambitions across the four parts of the UK have resulted (with the exception of Northern Ireland) in similar trends in access to day services and home care. Originality/value This paper is a first attempt to compare national social care statistics concerning day services and home care for adults with learning disabilities across the UK. With increasing divergence of health and social service systems, further comparative analyses of services for people with learning disabilities are needed.

scholarly journals Health and social care access for adults with learning disabilities across the UK during the COVID-19 pandemic in 2020

2021 ◽  
Vol 26 (3) ◽  
pp. 174-179
Author(s):  
Samantha Flynn ◽  
Chris Hatton
Keyword(s):  
Learning Disabilities ◽  
Northern Ireland ◽  
Social Care ◽  
Family Carers ◽  
Content Type ◽  
Care Services ◽  
Health And Social Care ◽  
Adults With Learning Disabilities ◽  
The Uk ◽  
The Impact

Purpose This paper aims to present data about access to health and social care services during the COVID-19 pandemic for adults with learning disabilities across England, Northern Ireland, Scotland and Wales. Design/methodology/approach Data were collected directly from 621 adults with learning disabilities and through separate proxy reports by family carers and paid support staff of another 378 adults with learning disabilities. The data were collected between December 2020 and February 2021 and concerned the use of health and social care services since the start of the first COVID-19 national lockdown in March 2020. Findings Access to and use of health and social care services significantly reduced for adults with learning disabilities across the UK during the COVID-19 pandemic between March 2020 and February 2021, with many people not receiving any services at all during that period. Similar patterns were seen across England, Northern Ireland, Scotland and Wales. However, data suggest some variations between countries for some services. Practical implications Future pandemic planning must ensure that access to these essential services is not completely lost for adults with learning disabilities and their family carers, as it was in some cases during the COVID-19 pandemic in 2020. Originality/value This is the largest study about the impact of the COVID-19 pandemic on health and social care services for adults with learning disabilities in the UK. The authors primarily collected data directly from adults with learning disabilities, and worked with partner organisations of people with learning disabilities throughout the study.

scholarly journals The demographics of forced marriage of people with learning disabilities: findings from a national database

2020 ◽  
Vol 22 (2) ◽  
pp. 59-74
Author(s):  
Rachael Clawson ◽  
Anne Patterson ◽  
Rachel Fyson ◽  
Michelle McCarthy
Keyword(s):  
Learning Disabilities ◽  
Design Methodology ◽  
Social Care ◽  
Geographic Location ◽  
National Database ◽  
Forced Marriage ◽  
Content Type ◽  
The Uk ◽  
First Time ◽  
Practical Implications

Purpose The purpose of this study is to compare the UK demographics of forced marriage of people with learning disabilities and people without learning disabilities to inform effective safeguarding practice. Design/methodology/approach An analysis of all cases of forced marriage reported to the UK Government’s Forced Marriage Unit (FMU) between 2009 and 2015. Findings People with learning disabilities are at five times greater risk of forced marriage than people without learning disabilities. Men and women with learning disabilities are equally likely to be forced to marry, whereas amongst the general population, women are more likely than men to be forced to marry. Patterns of ethnicity, geographic location within the UK and reporters are the same for people with and without learning disabilities. Research limitations/implications The analysis is based on cases reported to the FMU, and for some cases, data held was incomplete. More importantly, many cases go unreported and so the FMU data does not necessarily reflect all cases of forced marriage in the UK. Practical implications Forced marriage of people with learning disabilities is a safeguarding issue. Practitioners across health, education, criminal justice and social care need to better understand the risk of forced marriage for people with learning disabilities. Links to practice resources developed as part of the wider project are provided. Originality/value This is the first time that researchers have been given access to FMU data and the first time that a statistical analysis of cases of forced marriage involving someone with a learning disability have been analysed.

scholarly journals Commissioning an ordinary life

2017 ◽  
Vol 22 (1) ◽  
pp. 38-42 ◽  
Author(s):  
Sarah Broadhurst
Keyword(s):  
Learning Disabilities ◽  
Social Care ◽  
Transformational Leaders ◽  
Care Programme ◽  
Content Type ◽  
Ordinary Life ◽  
The Past ◽  
Health And Social Care ◽  
The Uk ◽  
Inclusive Society

Purpose The purpose of this paper is to review the role and ability of commissioners to implement policy and be transformational leaders. Design/methodology/approach The role and ability of commissioners to implement policy is reviewed against the Institute of Public Care’s Commissioning Cycle and experience of working with commissioners across the UK over the past 29 years. Findings Empowering commissioners to be transformational leaders and enabling them to secure good outcomes for people with learning disabilities will require broadening the responsibilities for creating an inclusive society past commissioners of health and social care. Originality/value The Transforming Care Programme and the failure to meet targets illustrate that policy implementation in the arena of learning disabilities is still a pertinent issue. This commentary adds to the discussion by highlighting the challenges commissioners face when trying to implement policy and the need to take the conversation about inclusive communities wider than health and social care.

scholarly journals Paid employment amongst adults with learning disabilities receiving social care in England: trends over time and geographical variation

2018 ◽  
Vol 23 (2) ◽  
pp. 117-122 ◽  
Author(s):  
Chris Hatton
Keyword(s):  
Learning Disabilities ◽  
Social Care ◽  
Content Type ◽  
Self Employment ◽  
Paid Employment ◽  
Adults With Learning Disabilities ◽  
Working Age ◽  
Employment Rates ◽  
Over Time

Purpose The purpose of this paper is to examine trends over time and geographical variation in rates of paid employment amongst working age adults with learning disabilities receiving long-term social care in England. Design/methodology/approach Data were drawn from NHS Digital adult social care statistics examining paid/self-employment for working age (18-64 years) adults with learning disabilities known to social care (2008/2009 to 2013/2014) or receiving long-term social care (2014/2015 to 2016/2017). Findings In 2016/2017, councils reported that 5.7 per cent of working age adults (7,422 people) with learning disabilities receiving long-term social care were in paid/self-employment, with higher employment rates for men than women and most people working less than 16 hours per week. Paid employment rates seem to be slightly declining over time, and there is wide variation across councils in reported paid/self-employment rates. Social implications Despite good evidence for the cost effectiveness of supported employment support, employment rates for adults with learning disabilities receiving long-term social care remain extremely low. Originality/value This paper presents in one place statistics concerning the paid employment of working age adults with learning disabilities in England.

Commentary on “Assisting individuals ageing with learning disability: support worker perspectives”

2015 ◽  
Vol 20 (4) ◽  
pp. 223-227
Author(s):  
Martin Stevens
Keyword(s):  
Learning Disabilities ◽  
Older People ◽  
Social Care ◽  
Support Worker ◽  
Policy And Practice ◽  
Content Type ◽  
Care Services ◽  
Role Of The State ◽  
Health And Social Care ◽  
The Uk

Purpose – The purpose of this paper is to explore some of the themes identified by Wark et al.’s paper and to highlight commonalities and differences between the Australian and the UK social and health care regimes. It also points to evidence about other implications for policy and practice of the increasing numbers of people growing older who have learning disabilities. Design/methodology/approach – The commentary analyses some policy and practice documents and identifies a range of other research and commentary on this topic. Findings – Wark et al. have identified areas of importance for supporting older people with learning disabilities, particularly access to suitable and acceptable services and the importance of sufficient support worker time. They also identify gaps in the research on people’s needs and service responses. The commentary also highlights other factors for consideration in work with this group of people, particularly the implementation of personalisation policies in social care and integration between health and social care services. Research limitations/implications – There is a need for further research into developing policy and practice for health and social care for older people with learning disabilities. Some of the evidence supports the case for specialist involvement, particularly by nursing professionals. Originality/value – The paper and this commentary highlight the challenges associated with the increasing number of older people with learning disabilities in contemporary debates about the role of the state and professional specialists.

scholarly journals Social care for adults with learning disabilities in England: trends over time

2019 ◽  
Vol 24 (2) ◽  
pp. 94-100
Author(s):  
Chris Hatton
Keyword(s):  
Learning Disabilities ◽  
Social Services ◽  
Social Care ◽  
Content Type ◽  
Cent Increase ◽  
Adults With Learning Disabilities ◽  
The Face ◽  
Trends Over Time ◽  
Over Time

Purpose The purpose of this paper is to examine trends over time in social care usage and expenditure for adults with learning disabilities in England. Design/methodology/approach Returns from councils with social services responsibilities in England concerning social care usage and expenditure were analysed to examine the national picture and trends over time for adults with learning disabilities. Findings In 2017/2018, 147,915 adults with learning disabilities were receiving long-term social care, an increase of 5.7 per cent from 2014/2015. Social care expenditure increased by 10.2 per cent from 2014/2015 to £5.54bn in 2017/2018; adjusted for inflation this was a 2.7 per cent increase. For adults with learning disabilities who receive social care, increasing numbers of people are living with families or in supported accommodation/living, with gradual declines in the number of people living in residential or nursing care. The number of adults with learning disabilities in temporary accommodation is small but increasing. Social implications While councils appear to be attempting to protect social care for adults with learning disabilities in the face of cuts to council expenditure, social care expenditure and coverage are not keeping pace with likely increases in the number of adults with learning disabilities requiring social care. Originality/value This paper presents in one place statistics concerning long-term social care for adults with learning disabilities in England.

scholarly journals Working, living and dying in COVID times: perspectives from frontline adult social care workers in the UK

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Daniel Briggs ◽  
Luke Telford ◽  
Anthony Lloyd ◽  
Anthony Ellis
Keyword(s):  
Living Arrangements ◽  
Social Care ◽  
Mental Health Problems ◽  
Care Home ◽  
Health Problems ◽  
Care Homes ◽  
Data Set ◽  
Content Type ◽  
Care Workers ◽  
The Uk

Purpose This paper aims to explore 15 UK adult social care workers’ experiences during the COVID-19 pandemic. Design/methodology/approach This paper’s 15 open-ended interviews with adult social care workers are complemented by digital ethnography in COVID-19 social media forums. This data set is taken from a global mixed-methods study, involving over 2,000 participants from 59 different countries. Findings Workers reported a lack of planning, guidance and basic provisions including personal protective equipment. Work intensification brought stress, workload pressure and mental health problems. Family difficulties and challenges of living through the pandemic, often related to government restrictions, intensified these working conditions with precarious living arrangements. The workers also relayed a myriad of challenges for their residents in which, the circumstances appear to have exacerbated dementia and general health problems including dehydration, delirium and loneliness. Whilst COVID-19 was seen as partially responsible for resident deaths, the sudden disruptions to daily life and prohibitions on family visits were identified as additional contributing factors in rapid and sudden decline. Research limitations/implications Whilst the paper’s sample cohort is small, given the significance of COVID-19 at this present time the findings shed important light on the care home experience as well as act as a baseline for future study. Social implications Care homes bore the brunt of illness and death during the first and second COVID-19 waves in the UK, and many of the problems identified here have still yet to be actioned by the government. As people approach the summer months, an urgent review is required of what happened in care homes and this paper could act as some part of that evidence gathering. Originality/value This paper offers revealing insights from frontline care home workers and thus provides an empirical snapshot during this unique phase in recent history. It also builds upon the preliminary/emerging qualitative research evidence on how the COVID-19 pandemic impacted care homes, care workers and the residents.

scholarly journals Safeguarding people with learning disabilities from forced marriage: the role of Safeguarding Adult Boards

2016 ◽  
Vol 18 (5) ◽  
pp. 277-287 ◽  
Author(s):  
Rachael Clawson
Keyword(s):  
Learning Disabilities ◽  
Cultural Difference ◽  
National Policy ◽  
Voluntary Sector ◽  
Original Research ◽  
Forced Marriage ◽  
Content Type ◽  
Frontline Workers ◽  
Adults With Learning Disabilities ◽  
The Uk

Purpose The issue of forced marriage is typically located within debates on violence against women, immigration control and cultural difference and is rarely considered in relation to adults with learning disabilities. The purpose of this paper is to argue that this is an issue which needs to be addressed by Safeguarding Adult Boards. Design/methodology/approach This paper draws upon original research undertaken by the author in conjunction with the Ann Craft Trust, a voluntary sector organisation which supports statutory, independent and voluntary sector organisations across the UK to protect adults at risk. The project sought to establish the extent to which the issue of forced marriage of people with learning disabilities is recognised, understood and acted upon by Boards. Findings Although many Boards are aware of national policy guidelines, very few had incorporated these guidelines into their local practice. There were two key consequences of this. First, Boards were failing to monitor cases of forced marriage and were unable to plan preventative services. Second, frontline workers were not given necessary training and so were unable to develop effective skills of knowledge. The need for both better recognition of and improved responses to the problem of forced marriage of people with learning disabilities is highlighted, as is the need for the safeguarding workforce to be supported by more effective strategic planning and better training. Originality/value This paper draws upon original research which examined how Safeguarding Adult Boards are responding to the issue of forced marriage of people with learning disabilities – a problem currently very much under-represented in existing research and practice literature.

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