scholarly journals The impact of the COVID‐19 pandemic on people with diabetes and diabetes services: A pan‐European survey of diabetes specialist nurses undertaken by the Foundation of European Nurses in Diabetes survey consortium

2020 ◽  
Author(s):  
Rita Forde ◽  
Liga Arente ◽  
Davide Ausili ◽  
Kristin De Backer ◽  
Mette Due‐Christensen ◽  
...  
2017 ◽  
Vol 31 (7) ◽  
pp. 1148-1156 ◽  
Author(s):  
A.M. Forsea ◽  
P. Tschandl ◽  
I. Zalaudek ◽  
V. del Marmol ◽  
H.P. Soyer ◽  
...  

Author(s):  
Anne Scott ◽  
Alicia O’Cathain ◽  
Elizabeth Goyder

Abstract Background Type 1 diabetes is a complex chronic condition which requires lifelong treatment with insulin. Health outcomes are dependent on ability to self-manage the condition. Socioeconomic inequalities have been demonstrated in access to treatment and health outcomes for adults with type 1 diabetes; however, there is a paucity of research exploring how these disparities occur. This study explores the influence of socioeconomic factors in gaining access to intensive insulin regimens for adults with type 1 diabetes. Methods We undertook a qualitative descriptive study informed by a phenomenological perspective. In-depth face-to-face interviews were conducted with 28 patients and 6 healthcare professionals involved in their care. The interviews were analysed using a thematic approach. The Candidacy theory for access to healthcare for vulnerable groups framed the analysis. Results Access to intensive insulin regimens was through hospital-based specialist services in this sample. Patients from lower socioeconomic groups had difficulty accessing hospital-based services if they were in low paid work and because they lacked the ability to navigate the healthcare system. Once these patients were in the specialist system, access to intensive insulin regimens was limited by non-alignment with healthcare professional goals, poor health literacy, psychosocial problems and poor quality communication. These factors could also affect access to structured diabetes education which itself improved access to intensive insulin regimens. Contact with diabetes specialist nurses and attendance at structured diabetes education courses could ameliorate these barriers. Conclusions Access to intensive insulin regimens was hindered for people in lower socioeconomic groups by a complex mix of factors relating to the permeability of specialist services, ability to navigate the healthcare system and patient interactions with healthcare providers. Improving access to diabetes specialist nurses and structured diabetes education for vulnerable patients could lessen socioeconomic disparities in both access to services and health outcomes.


2018 ◽  
Vol 89 (10) ◽  
pp. A29.1-A29
Author(s):  
Hosty J ◽  
Kass-Iliyya L ◽  
Bell S ◽  
Barker L ◽  
Packwood S ◽  
...  

Natalizumab is one of the most effective therapies for relapsing-remitting Multiple Sclerosis. One complication is Progressive Multifocal Leucoencephalopathy (PML), a viral brain infection in patients already infected with JC virus. Monitoring of neurological symptoms, JC virus serology and regular brain imaging are required to ensure safe use of this therapy. Local audit data from 2015 indicated poor compliance with safety monitoring, with less than 25% of patients undergoing required investigations within the recommended time intervals. Subsequently a protocol was implemented to improve monitoring, with specialist nurses coordinating the requests for MRI scans and arranging JC virus serology, the frequency of which was determined according to the JC virus index. The records of all patients receiving Natalizumab at the centre were audited to assess the impact of this protocol (n=155). 99.2% of patients were appropriately tested for JC virus and 95.3% were imaged within the recommended interval. Additional work with the informatics and virology team ensured serology results became more easily accessible. The use of a standardised nurse-led operating procedure has resulted in marked improvement in the safety monitoring of Natalizumab.


2020 ◽  
pp. flgastro-2019-101354 ◽  
Author(s):  
Lisa Younge ◽  
Isobel Mason ◽  
Rukshana Kapasi

ObjectiveTo determine the impact to date of the ongoing Crohn’s & Colitis UK inflammatory bowel disease (IBD) clinical nurse specialists (CNS) campaign.MethodsA survey-based design was used. 2 questionnaires were sent to the UK IBD nursing community and promoted via nursing and clinical networks. Respondents were asked to provide data at both an individual and trust level about their nursing services.Results394 IBD CNS posts were identified across the UK, with a 32% increase in posts since the start of the campaign. 27% felt the campaign had been influential in securing new posts. Greater numbers of posts were reported in England when compared with the devolved nations. Most services remain below the UK standards recommendation of 2.5 IBD CNS per 250 000 patient population. Cross site working was reported in 59% of services. 45% of respondents were non-medical prescribers, with 13% educated to MSc level. High levels of stress were reported by IBD CNS associated with managing advice line services.ConclusionsCrohn’s & Colitis UK’s ‘More IBD Nurses–Better Care’ campaign has contributed to the numbers of CNS posts in IBD continuing to rise, but they remain lower than the recommended standard of 2.5 IBD CNS per 250 000. Educational and career pathways are not clearly defined, and aspects of the role such as advice line provision contribute to stress within the workforce. The ongoing aims of the charity campaign hope to address these issues by improving access to formal education pathways with peer support for IBD specialist nurses, and advice line training, in addition to supporting trusts and services throughout the UK to reduce the workforce deficit with effective business cases.


2013 ◽  
Vol 17 (4) ◽  
pp. 402-407 ◽  
Author(s):  
Tone Rustøen ◽  
Jenske I. Geerling ◽  
Theodora Pappa ◽  
Carina Rundström ◽  
Isolde Weisse ◽  
...  

Author(s):  
Chris Deighton

Influential guidelines on rheumatoid arthritis (RA) management agree on most key recommendations. Early diagnosis of persistent synovitis, and identification of poor prognostic markers, is essential. Rapid intervention is vital with drugs to suppress inflammation, slow down damaging disease components, and prevent disability. The label of RA covers a broad spectrum of disease severity, and there is controversy on: • whether the same interventions are needed for all patients • whether monotherapy or combination treatment is appropriate • the role of steroids in RA • the appropriate introduction of biological therapies. Treating to specified targets is optimal evidence-based practice, where patients are reviewed regularly for disease activity assessments, and inadequate control rectified. Aiming for remission is the ultimate goal, though for some patients minimal disease activity may be appropriate. Patient education addressing self-management is important, and the multidisciplinary team (MDT: specialist nurses, physiotherapists, occupational therapists, podiatrists, psychologists) needs to be involved from the start to minimize the impact on quality of life of the patient. For established disease, rapid access is important for flares, and to consider whether disease management could be improved. An intermittent overview of established disease is important with access to the MDT, and assessments for comorbidities such as ischaemic heart disease, osteoporosis, and depression, as well as complications of the disease itself such as cervical spine disease, vasculitis, and lung and eye complications. An informed patient needs to be central to all decision making.


2018 ◽  
Vol 4 (1) ◽  
Author(s):  
Nur’ain Balqis Haladin ◽  
Noor Aireen Ibrahim ◽  
Azizah Rajab

HIV counselling is a communication process between a trained nurse and patient to discuss HIV-related problems with a view to assist the patient to manage these problems adequately and appropriately. Lack of communication about HIV-related problems exists and the fact that nurses do not address these problems appropriately could be associated with the sensitive issues involved or the lack of knowledge as how to overcome these problems. Previous studies have identified the challenges health care workers face in disseminating HIV-related information. However, there is an apparent lack of research examining the challenges faced by HIV specialist nurses in Malaysia. Hence, this paper aims to explore the communication challenges faced by HIV specialist nurses in three general hospitals in Malaysia. Five focus group discussions (25 HIV specialist nurses) have been recorded, transcribed and translated. Thirteen communication challenges have been identified and contended for further research exploring communication during HIV counselling by focusing on the impact of these challenges towards HIV specialist nurses’ advice and information giving.


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