A qualitative study of cancer survivors’ responses to information on the long-term and late effects of pelvic radiotherapy 1-11 years post treatment

2015 ◽  
Vol 24 (5) ◽  
pp. 734-747 ◽  
Author(s):  
M. Boulton ◽  
E. Adams ◽  
A. Horne ◽  
L. Durrant ◽  
P. Rose ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Cancer Survivors ◽  
Late Effects ◽  
Post Treatment ◽  
Pelvic Radiotherapy

scholarly journals Cohort profile: an observational longitudinal data collection of health aspects in a cohort of female cancer survivors with a history of pelvic radiotherapy—a population-based cohort in the western region of Sweden

BMJ Open ◽  
2021 ◽  
Vol 11 (7) ◽  
pp. e049479
Author(s):  
Linda Åkeflo ◽  
Gail Dunberger ◽  
Eva Elmerstig ◽  
Viktor Skokic ◽  
Gunnar Steineck ◽  
...  
Keyword(s):  
Data Collection ◽  
Longitudinal Data ◽  
Cancer Survivors ◽  
Late Effects ◽  
Population Based ◽  
Study Cohort ◽  
Western Region ◽  
Pelvic Radiotherapy ◽  
Female Cancer Survivors

PurposeThe study ‘Health among women after pelvic radiotherapy’ was conducted in response to the need for more advanced and longitudinal data concerning long-term radiotherapy-induced late effects and chronic states among female cancer survivors. The objective of this paper is to detail the cohort profile and the study procedure in order to provide a sound basis for future analyses of the study cohort.ParticipantsSince 2011, and still currently ongoing, participants have been recruited from a population-based study cohort including all female patients with cancer, over 18 years of age, treated with pelvic radiotherapy with curative intent at Sahlgrenska University Hospital in Gothenburg, in the western region of Sweden, which covers 1.7 million of the Swedish population. The dataset presented here consists of baseline data provided by 605 female cancer survivors and 3-month follow-up data from 260 individuals with gynaecological, rectal or anal cancer, collected over a 6-year period.Findings to dateData have been collected from 2011 onwards. To date, three studies have been published using the dataset reporting long-term radiation-induced intestinal syndromes and late adverse effects affecting sexuality, the urinary tract, the lymphatic system and physical activity. These projects include the evaluation of interventions developed by and provided in a nurse-led clinic.Future plansThis large prospective cohort offers the possibility to study health outcomes in female pelvic cancer survivors undergoing a rehabilitation intervention in a nurse-led clinic, and to study associations between demographics, clinical aspects and long-term late effects. Analysis focusing on the effect of the interventions on sexual health aspects, preinterventions and postinterventions, is currently ongoing. The cohort will be expanded to comprise the entire data collection from 2011 to 2020, including baseline data and data from 3-month and 1-year follow-ups after interventions. The data will be used to study conditions and treatment-induced late effects preintervention and postintervention.

Quality of life in long-term childhood cancer survivors and the relation of late effects and subjective well-being

2004 ◽  
Vol 13 (1) ◽  
pp. 49-56 ◽  
Author(s):  
Sigrid Pemberger ◽  
Reinhold Jagsch ◽  
Eva Frey ◽  
Rosemarie Felder-Puig ◽  
Helmut Gadner ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Survivors ◽  
Childhood Cancer ◽  
Late Effects ◽  
Well Being ◽  
Childhood Cancer Survivors ◽  
Subjective Well Being

scholarly journals Cardiotoxicity screening of long‐term, breast cancer survivors—The CAROLE (Cardiac‐Related Oncologic Late Effects) Study

2021 ◽  
Author(s):  
Lindsay L. Puckett ◽  
Shahryar G. Saba ◽  
Sonia Henry ◽  
Stacey Rosen ◽  
Elise Rooney ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Cancer Survivors ◽  
Late Effects ◽  
Breast Cancer Survivors

scholarly journals Employment changes among Chinese family caregivers of long-term cancer survivors

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Siqi Liu ◽  
Mingzhu Su ◽  
Nengliang Yao ◽  
Nan Zhang ◽  
Jialin Wang ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Labor Force ◽  
Family Caregivers ◽  
Treatment Phase ◽  
Post Treatment ◽  
Limited Ability ◽  
Employment Patterns ◽  
Employment Hours ◽  
The Impact

Abstract Background Family caregivers (FCGs) play a key role in the plan of care provision for long-term cancer survivors, yet few studies have been conducted on the impact of long-term caregiving on FCGs and their employment patterns. This study aims to further our understanding of the effect that caregiving role has on FCGs by identifying what cancer-related characteristics influence reduction of employment hours among FCGs in the post-treatment phase in China. Methods A total of 1155 cancer survivors participated in this study. Patients reported changes in the employment patterns of their FCGs. Descriptive analysis looked at demographic and cancer-related characteristics of cancer survivors and types of FCGs’ employment changes in both primary- and post-treatment phases. Chi-square test was used to statistically test the association between survivors’ characteristics and changes in FCGs’ hours of labor force work in post-treatment phase. Separate multivariable logistic regression models were used to examine the relationship between cancer-related characteristics of participants and employment reduction patterns among FCGs in post-treatment phase while controlling for demographic factors. Results In the primary-treatment phase, 45.6% of all FCGs reduced their working hours and 17.4% stopped working altogether. In the post-treatment phase, 25.2% of FCGs worked fewer hours and 6.6% left the workforce completely. The results show that a higher probability of change in employment hours among FCGs is associated with the following patient characteristics: having comorbidities, receiving chemotherapy treatment, limited ability to perform physical tasks, limited ability to perform mental tasks, and diagnosis of stage II of cancer. Conclusions Care for cancer patients in both primary- and post- treatment phases may have substantial impacts on hours of formal employment of Chinese FCGs. Interventions helping FCGs balance caregiving duties with labor force work are warranted.

Incidence of late effects in long-term childhood cancer survivors.

2016 ◽  
Vol 34 (15_suppl) ◽  
pp. e22009-e22009
Author(s):  
Ronica H. Nanda ◽  
Rohit Gunan Ganju ◽  
Mary M Batcha ◽  
Natia Esiashvili
Keyword(s):  
Cancer Survivors ◽  
Childhood Cancer ◽  
Late Effects ◽  
Childhood Cancer Survivors

American Society of Clinical Oncology Clinical Evidence Review on the Ongoing Care of Adult Cancer Survivors: Cardiac and Pulmonary Late Effects

2007 ◽  
Vol 25 (25) ◽  
pp. 3991-4008 ◽  
Author(s):  
Joseph R. Carver ◽  
Charles L. Shapiro ◽  
Andrea Ng ◽  
Linda Jacobs ◽  
Cindy Schwartz ◽  
...  
Keyword(s):  
Cancer Survivors ◽  
Clinical Oncology ◽  
Late Effects ◽  
Pulmonary Toxicity ◽  
External Beam Radiation ◽  
Drug Discontinuation ◽  
Beam Radiation ◽  
Adult Cancer Survivors ◽  
American Society

Purpose To review the evidence on the incidence of long-term cardiac or pulmonary toxicity secondary to chemotherapy, radiotherapy, or trastuzumab in symptomatic and asymptomatic cancer survivors. Methods An American Society of Clinical Oncology Panel reviewed pertinent information from the literature through February 2006. Results Few studies directly addressing the benefits of screening for long-term cardiac or pulmonary toxicity in asymptomatic cancer survivors who received chemotherapy, radiotherapy, or trastuzumab were identified. The reviewed literature included primarily retrospective and cross-sectional studies describing the incidence of cardiac and pulmonary late effects. Anatomic and/or functional abnormalities have been associated with use of all currently available anthracyclines and their derivatives. Trastuzumab-related cardiac dysfunction rarely causes death, and in most cases is reversible with improvement in cardiac function on drug discontinuation and/or treatment with cardiac medications. The estimated aggregate incidence of radiation-induced cardiac disease is 10% to 30% by 5 to 10 years post-treatment, although the incidence may be lower with modern techniques. Radiation pneumonitis is reported in 5% to 15% of lung cancer patients receiving definitive external-beam radiation therapy. A minority of patients may develop progressive pulmonary fibrosis; late complications include cor pulmonale and respiratory failure. Bleomycin-induced pneumonitis is an acute rather than late effect of treatment. Late pulmonary complications in bone marrow or stem cell transplantation patients who develop interstitial pneumonitis include idiopathic pneumonia syndrome and bronchiolitis obliterans. Conclusion An increased incidence of cardiac and/or pulmonary dysfunction is observed in cancer survivors. Research is needed to identify high-risk patients, and to determine the optimal screening strategies and subsequent treatment.

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