Assessing psychological and supportive care needs in glioma patients - feasibility study on the use of the Supportive Care Needs Survey Short Form (SCNS-SF34-G) and the Supportive Care Needs Survey Screening Tool (SCNS-ST9) in clinical practice

Background and Purpose: The aim of this study is to explore the construct validity and reliability of the Turkish version of the 34-item Supportive Care Needs Survey–Short Form (SCNS-SF34), which was developed by Boyes, Girgis, and Lecathelinais (2009), to assess the needs of cancer patients in Turkey. Methods: The SCNS-SF34 has been translated and tested in various studies in other countries and cultures. The current study examined the validity and reliability of the Turkish adaptation of this survey among Turkish cancer patients. The instrument was translated using a back-translation technique, which includes the use of a panel of experts and interpreters to translate the items from the source language to the target language and then back-translate them into the source language. The study was conducted in Samsun, a city in north Turkey. A total of 573 cancer patients participated in this study. Statistical analyses were made using R program and SPSS, and included internal consistency, reliability, confirmatory and exploratory factor analyses. Results: Exploratory factor analysis adjusted a 5-factor structure (psychological, health systems and information, patient care and support, physical and daily living, and sexuality) explaining 74% of the variance. Cronbach’s α ranged from .71 to .90. Conclusion: Psychometric testing demonstrated satisfactory internal consistency and validity of the instrument for cancer patients. The Turkish version of the SCNS-SF34 can be used in planning and testing interventions to improve supportive care needs for cancer patients in Turkey.

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Implementation of a distress/supportive care screening tool in lung and head and neck cancer clinic.

Journal of Clinical Oncology ◽

10.1200/jco.2017.35.15_suppl.e21646 ◽

2017 ◽

Vol 35 (15_suppl) ◽

pp. e21646-e21646

Author(s):

Mary Pasquinelli ◽

Sandra Obilade ◽

David Rosenberg ◽

Zane Deliu ◽

Aakash Shah ◽

...

Keyword(s):

Supportive Care ◽

Cancer Patients ◽

Neck Cancer ◽

Screening Tool ◽

Supportive Care Needs ◽

Cancer Center ◽

Head Neck Cancer ◽

Cancer Type ◽

Care Needs ◽

Head Neck

e21646 Background: Identifying and addressing depression, anxiety, and supportive care needs in cancer patients is an emerging standard of care. The Coleman Foundation “Patient Screening Questions for Supportive Care” tool was used with demographic and diagnostic data to investigate the relationships between screening scores. Methods: Lung/head/neck cancer patients at the University of Illinois Cancer Center were screened using the Coleman Foundation tool. This screening tool identified needs in several categories including Patient Health Questionnaire 4 (PHQ-4) scores; practical, family/caregiver, nutritional, treatment, physical, and spiritual/faith/religious concerns; levels of pain, fatigue, physical activity to quantitatively assess patient distress/supportive care needs. Scores were compared with age, sex, race/ethnicity, insurance, cancer type, and cancer stage. Linear regression was used for statistical analysis. Results: We performed initial screening on 164 lung/head/neck patients ages 36-88 (mean 61), with stages IA to IVC (May 2016 to Jan. 2017). Our findings are summarized in below. We found a 1oeffect that racial/ethnic minority status was significantly correlated with higher scores. We found that lung cancer was correlated with higher screening scores than head & neck on initial screen. Medicare insurance was correlated with significantly lower screening scores. Conclusions: Patients with lung/head/neck cancer have significant needs and concerns that go beyond merely treating their cancer. Our findings show that certain demographic groups have especially high burdens in some specific dimensions and that these specific concerns may be predicted based on diagnostic and demographic information. Thus, these findings serve to inform providers as to where and how to focus supportive care for these patient populations. [Table: see text]

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Supportive care needs among Mexican young women with breast cancer.

Journal of Clinical Oncology ◽

10.1200/jco.2017.35.15_suppl.e21552 ◽

2017 ◽

Vol 35 (15_suppl) ◽

pp. e21552-e21552

Author(s):

C. Lizette Galvez ◽

Cynthia Villarreal-Garza ◽

Alejandro Mohar

Keyword(s):

Breast Cancer ◽

Supportive Care ◽

Health Systems ◽

Young Women ◽

Active Treatment ◽

Unmet Needs ◽

Short Form ◽

Unmet Need ◽

Supportive Care Needs ◽

Care Needs

e21552 Background: Despite high rates of breast cancer (BC) in young Mexican women, information about their particular needs and concerns is largely unknown. Understanding the patients individual needs in a population with unique socio-cultural features is essential to guide supportive care and improve their quality of life. We aim to describe the unmet needs of Mexican young women with breast cancer (YWBC). Methods: A cross-sectional study including women with stage I-III BC aged 40 years or younger at diagnosis was conducted at the National Cancer Institute in Mexico City. YWBC were invited to complete the Supportive Care Needs Survey, Short Form-34 (SCNS-SF34), a comprehensive tool that measures the perceived unmet needs of cancer patients. The survey was previously adapted and validated in our population for its use. Results: 81 consecutive patients with median age at diagnosis of 35.09 (SD 3.9) years were included. 45.7% were married and 29.2% completed secondary school. 92.6% had stage II-III BC. 70.4% were undergoing active treatment and 29.6% were either on hormonal therapy or surveillance. From a total standardized score of 100, the health systems and information domain had the highest mean score (39.3), followed by the psychological domain (36.3). The sexuality domain had the lowest mean score (27). The highest ranked items of unmet needs (by mean crude score) were: to be informed about cancer is under control or diminishing (2.9), to be informed about things you can do to help yourself get well (2.8), lack of energy and fatigue (2.7), and fear about the cancer spreading (2.7). Perceived needs among patients undergoing active treatment were greater compared to those in follow-up (z = -2.390 p = 0.017), predominantly in the sexuality domain (z = -2.084 p = 0.037). Conclusions: Mexican YWBC have specific needs that are currently not systematically addressed. The predominant unmet need regarding health systems and information should be a priority. Further research to understand the needs and concerns of this unique and understudied patient population will aid tailor clinical interventions and supportive care.

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Translation of Supportive Care Needs Survey Short Form 34 (SCNS-SF34) into Italian and cultural validation study

Supportive Care in Cancer ◽

10.1007/s00520-015-2852-0 ◽

2015 ◽

Vol 24 (2) ◽

pp. 843-848 ◽

Cited By ~ 8

Author(s):

Anita Zeneli ◽

Elisa Fabbri ◽

Elena Donati ◽

Grainne Tierney ◽

Stefania Pasa ◽

...

Keyword(s):

Supportive Care ◽

Validation Study ◽

Short Form ◽

Supportive Care Needs ◽

Care Needs ◽

Cultural Validation

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Reliability and validity of the Japanese version of the Short-form Supportive Care Needs Survey Questionnaire (SCNS-SF34-J)

Psycho-Oncology ◽

10.1002/pon.1482 ◽

2009 ◽

Vol 18 (9) ◽

pp. 1003-1010 ◽

Cited By ~ 39

Author(s):

Toru Okuyama ◽

Tatsuo Akechi ◽

Hiroko Yamashita ◽

Tatsuya Toyama ◽

Chiharu Endo ◽

...

Keyword(s):

Supportive Care ◽

Short Form ◽

Reliability And Validity ◽

Japanese Version ◽

Supportive Care Needs ◽

Survey Questionnaire ◽

Care Needs

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Supportive Care Needs Survey-Short Form-34--Japanese Version

PsycTESTS Dataset ◽

10.1037/t71556-000 ◽

2009 ◽

Author(s):

Toru Okuyama ◽

Tatsuo Akechi ◽

Hiroko Yamashita ◽

Tatsuya Toyama ◽

Chiharu Endo ◽

...

Keyword(s):

Supportive Care ◽

Short Form ◽

Japanese Version ◽

Supportive Care Needs ◽

Care Needs

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Supportive care needs of Mexican adult cancer patients: validation of the Mexican version of the Short-Form Supportive Care Needs Questionnaire (SCNS-SFM)

Supportive Care in Cancer ◽

10.1007/s00520-015-2634-8 ◽

2015 ◽

Vol 23 (9) ◽

pp. 2711-2719 ◽

Cited By ~ 13

Author(s):

Svetlana V. Doubova ◽

Rebeca Aguirre-Hernandez ◽

Marcos Gutiérrez-de la Barrera ◽

Claudia Infante-Castañeda ◽

Ricardo Pérez-Cuevas

Keyword(s):

Supportive Care ◽

Cancer Patients ◽

Short Form ◽

Supportive Care Needs ◽

Care Needs

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The Unmet Supportive Care Needs of Omani Women Diagnosed with Breast Cancer

Sultan Qaboos University Medical Journal [SQUMJ] ◽

10.18295/squmj.9.2021.135 ◽

2021 ◽

Author(s):

Mohammed Al-Azri ◽

Khalid Al-Bimani ◽

Al-Anoud Al-Maqbali ◽

Hala Al-Riyami ◽

Al-Kuthar Al-Shabnooti ◽

...

Keyword(s):

Breast Cancer ◽

Supportive Care ◽

Health System ◽

Short Form ◽

Unmet Need ◽

Supportive Care Needs ◽

University Teaching ◽

Care Process ◽

Sufficient Information ◽

Care Needs

Objectives: This study aimed to assess the unmet supportive care needs of Omani women with breast cancer (BC). Methods: This cross-sectional study was conducted from November 2020 to February 2021 among 250 adult Omani women diagnosed with BC at a university teaching hospital in Muscat, Oman. An Arabic version of the 34-item Supportive Care Needs Survey-Short Form tool was used to determine perceived unmet supportive care needs across five domains. Results: A total of 181 women participated in the study (response rate: 72.4%). The domain with the highest mean score per item was health system and information (mean score: 3.33), with the greatest unmet need in this domain being informed about things that the patient could do to help themselves get well (40.9%). The domain with the second highest mean score per item was patient care and support (mean score: 3.04), with the greatest unmet need being for clinicians to be more sincere with the patient (36.5%). Higher total mean scores were reported by women who had visited the hospital four times or more over the past two months (P = 0.045), those with stage 3 or 4 cancer (P = 0.047) and those who had recently undergone radiotherapy or chemotherapy (P = 0.014). Conclusion: Most unmet supportive care needs fell under the health system and information domain. Healthcare providers in Oman should explore patient concerns and provide sufficient information at various stages of the care process in order to decrease the anxiety associated with living with cancer. Keywords: Breast Neoplasms; Needs Assessment; Supportive Care; Women; Oman.

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