Supportive care needs of Mexican adult cancer patients: validation of the Mexican version of the Short-Form Supportive Care Needs Questionnaire (SCNS-SFM)

Background and Purpose: The aim of this study is to explore the construct validity and reliability of the Turkish version of the 34-item Supportive Care Needs Survey–Short Form (SCNS-SF34), which was developed by Boyes, Girgis, and Lecathelinais (2009), to assess the needs of cancer patients in Turkey. Methods: The SCNS-SF34 has been translated and tested in various studies in other countries and cultures. The current study examined the validity and reliability of the Turkish adaptation of this survey among Turkish cancer patients. The instrument was translated using a back-translation technique, which includes the use of a panel of experts and interpreters to translate the items from the source language to the target language and then back-translate them into the source language. The study was conducted in Samsun, a city in north Turkey. A total of 573 cancer patients participated in this study. Statistical analyses were made using R program and SPSS, and included internal consistency, reliability, confirmatory and exploratory factor analyses. Results: Exploratory factor analysis adjusted a 5-factor structure (psychological, health systems and information, patient care and support, physical and daily living, and sexuality) explaining 74% of the variance. Cronbach’s α ranged from .71 to .90. Conclusion: Psychometric testing demonstrated satisfactory internal consistency and validity of the instrument for cancer patients. The Turkish version of the SCNS-SF34 can be used in planning and testing interventions to improve supportive care needs for cancer patients in Turkey.

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Translation of Supportive Care Needs Survey Short Form 34 (SCNS-SF34) into Nepali Language with Cultural Validation

10.21203/rs.3.rs-213979/v1 ◽

2021 ◽

Author(s):

Kamala Dhakal ◽

Panpan Wang ◽

Joanes Faustine Mboineki ◽

Mikiyas Amare Getu ◽

Changying Chen ◽

...

Keyword(s):

Cervical Cancer ◽

Supportive Care ◽

Cancer Patients ◽

Content Validity ◽

Short Form ◽

Likert Scale ◽

Supportive Care Needs ◽

Care Needs ◽

Validity Index ◽

Content Validity Index

Abstract PurposeSupportive Care Needs Survey (SCNS) is one of the strongest and complete tools to assess the perceived supportive care needs of cancer patients. SCNS –SF34 has been translated into various other culture based languages, validated and established its psychometric properties. Till now no Nepali version, so we planned to assess the linguistic and cultural validity of Nepali version of the SCNS-SF34 in Nepali population.MethodsTranslation of Supportive Care Need Survey – Short Form 34 (SCNS-SF 34) was done by following Beaton’s guidelines in collaboration with a research team. Cultural adaptation was established through content validity assessment, clarity assessment of questionnaire and pretest. Content validity in terms of semantic, cultural and conceptual was assessed by 10 experts by using Likert scale and clarity of questionnaire was assessed among 15 cervical cancer patients by using Likert scale. The pretest was done among 34 cervical cancer patients to assess the feasibility and practicality of the tool. For reliability of tool test –retest method was used among 50 cervical cancer patients. ResultsThe Nepali version SCNS-SF 34 maintained the content validity (Item Content validity index (I-CVI) >0.78 in semantic, cultural and conceptual aspects and S-CVI (Scale Content Validity Index) was found,89.00% (0.89) 91.88 % (0.91) 90.00%(0.90) in semantic, cultural and conceptual aspects respectively. Content validity ratio (CVR) - 0.9 to 1) and construct validity (0.902) with 91.29 % clarity of questionnaire. This version had good internal consistency, with Cronbach’s alpha coefficients ranging from 0.89 to 0.91 with Composite Cronbach's Alpha 0.90. Correlation significant at the 0.01 level (2-tailed). More simple Nepali words were chosen as suggested by participants in items no 2,3,7, 9,10, 12, 18,19, 25, 27and 30 than the preliminary Nepali version along with the acceptance of all original items.ConclusionsThis finding shows that the SCNS-SF34 was translated and culturally adapted for use in Nepal with high practicality. This translated instrument can be used to assess the supportive care need and correlation between supportive care need and health related quality of life among cervical cancer patients.

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Reliability and validity of the Mandarin version of the Supportive Care Needs Survey Short-Form (SCNS-SF34) and the Head and Neck Cancer-specific Supportive Care Needs (SCNS-HNC) module

10.21203/rs.2.20861/v5 ◽

2020 ◽

Author(s):

Jianxia LYU ◽

Li Yin ◽

Ping Cheng ◽

Bin Li ◽

Shanshan Peng ◽

...

Keyword(s):

Factor Analysis ◽

Head And Neck Cancer ◽

Supportive Care ◽

Head And Neck ◽

Cancer Patients ◽

Neck Cancer ◽

Short Form ◽

Reliability And Validity ◽

Supportive Care Needs ◽

Care Needs

Abstract Background: This study aimed to translate the English version of the supportive care needs scale of head and neck cancer patients (SCNS-HNC) questionnaire into Mandarin and to test the reliability and validity of the SCNS-SF34 and SCNS-HNC module in head and neck cancer patients. Methods: The Mandarin version of the Supportive Care Needs Survey Short-Form (SCNS-SF34) and SCNS-HNC scales were used to assess 206 patients with head and neck cancer in Chengdu, China. Among them, 51 patients were re-tested 2 or 3 days after the first survey. The internal consistency of the scale was evaluated by Cronbach's alpha coefficient, the retest reliability of the scale was evaluated by retest correlation coefficient r, the structural validity of the scale was evaluated by exploratory factor analysis, and the ceiling and floor effects of the scale were evaluated. Results: The Mandarin version of the SCNS-HNC had Cronbach's alpha coefficients greater than 0.700 (0.737 ≤ 0.962) for all of the domains. Except for the psychological demand dimension (r=0.674) of the SCNS-SF34 scale, the retest reliability of the other domains was greater than 0.8. Three common factors were extracted by exploratory factor analysis, and the cumulative variance contribution rate was 64.39%. Conclusions: The Mandarin version of the SCNS-SF34 and SCNS-HNC demonstrated satisfactory reliability and validity and is able to measure the supportive care needs of Chinese patients with head and neck cancer.

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Reliability and validity of the mandarin version of the supportive care needs survey short-form (SCNS-SF34) and the head and neck cancer-specific supportive care needs (SCNS-HNC) module

BMC Health Services Research ◽

10.1186/s12913-020-05793-3 ◽

2020 ◽

Vol 20 (1) ◽

Author(s):

Jianxia Lyu ◽

Li Yin ◽

Ping Cheng ◽

Bin Li ◽

Shanshan Peng ◽

...

Keyword(s):

Factor Analysis ◽

Head And Neck Cancer ◽

Supportive Care ◽

Head And Neck ◽

Cancer Patients ◽

Neck Cancer ◽

Short Form ◽

Reliability And Validity ◽

Supportive Care Needs ◽

Care Needs

Abstract Background This study aimed to translate the English version of the supportive care needs scale of head and neck cancer patients (SCNS-HNC) questionnaire into Mandarin and to test the reliability and validity of the SCNS-SF34 and SCNS-HNC module in head and neck cancer patients. Methods The Mandarin version of the Supportive Care Needs Survey Short-Form (SCNS-SF34) and SCNS-HNC scales were used to assess 206 patients with head and neck cancer in Chengdu, China. Among them, 51 patients were re-tested 2 or 3 days after the first survey. The internal consistency of the scale was evaluated by Cronbach’s alpha coefficient, the retest reliability of the scale was evaluated by retest correlation coefficient r, the structural validity of the scale was evaluated by exploratory factor analysis, and the ceiling and floor effects of the scale were evaluated. Results The Mandarin version of the SCNS-HNC had Cronbach’s alpha coefficients greater than 0.700 (0.737 ≤ 0.962) for all of the domains. Except for the psychological demand dimension (r = 0.674) of the SCNS-SF34 scale, the retest reliability of the other domains was greater than 0.8. Three common factors were extracted by exploratory factor analysis, and the cumulative variance contribution rate was 64.39%. Conclusions The Mandarin version of the SCNS-SF34 and SCNS-HNC demonstrated satisfactory reliability and validity and is able to measure the supportive care needs of Chinese patients with head and neck cancer. Trial registration ChiCTR, ChiCTR1900026635. Registered 16 October 2019- Retrospectively registered.

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Psychometric Assessment of the Chinese Version of the Supportive Care Needs Survey Short-Form (SCNS-SF34-C) among Hong Kong and Taiwanese Chinese Colorectal Cancer Patients

PLoS ONE ◽

10.1371/journal.pone.0075755 ◽

2013 ◽

Vol 8 (10) ◽

pp. e75755 ◽

Cited By ~ 14

Author(s):

Wylie Wai Yee Li ◽

Wendy Wing Tak Lam ◽

Shiow-Ching Shun ◽

Yeur-Hur Lai ◽

Wai-Lun Law ◽

...

Keyword(s):

Colorectal Cancer ◽

Hong Kong ◽

Supportive Care ◽

Cancer Patients ◽

Short Form ◽

Chinese Version ◽

Supportive Care Needs ◽

Psychometric Assessment ◽

Care Needs ◽

Colorectal Cancer Patients

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The prevalence and nature of supportive care needs in lung cancer patients

Current Oncology ◽

10.3747/co.23.3012 ◽

2016 ◽

Vol 23 (4) ◽

pp. 258 ◽

Cited By ~ 20

Author(s):

M.E. Giuliani ◽

R.A. Milne ◽

M. Puts ◽

L.R. Sampson ◽

J.Y.Y. Kwan ◽

...

Keyword(s):

Lung Cancer ◽

Supportive Care ◽

Cancer Patients ◽

Information Needs ◽

Unmet Needs ◽

Short Form ◽

Multivariable Analysis ◽

Supportive Care Needs ◽

Care Needs ◽

Lung Cancer Patients

PurposeIn the present work, we set out to comprehensively describe the unmet supportive care and information needs of lung cancer patients.Methods This cross-sectional study used the Supportive Care Needs Survey Short Form 34 (34 items) and an informational needs survey (8 items). Patients with primary lung cancer in any phase of survivorship were included. Demographic data and treatment details were collected from the medical charts of participants. The unmet needs were determined overall and by domain. Univariable and multivariable regression analyses were performed to determine factors associated with greater unmet needs.Results From August 2013 to February 2014, 89 patients [44 (49%) men; median age: 71 years (range: 44–89 years)] were recruited. The mean number of unmet needs was 8 (range: 0–34), and 69 patients (78%) reported at least 1 unmet need. The need proportions by domain were 52% health system and information, 66% psychological, 58% physical, 24% patient care, and 20% sexuality. The top 2 unmet needs were “fears of the cancer spreading” [n = 44 of 84 (52%)] and “lack of energy/tiredness” [n = 42 of 88 (48%)]. On multivariable analysis, more advanced disease and higher MD Anderson Symptom Inventory scores were associated with increased unmet needs. Patients reported that the most desired information needs were those for information on managing symptoms such as fatigue (78%), shortness of breath (77%), and cough (63%).Conclusions Unmet supportive care needs are common in lung cancer patients, with some patients experiencing a very high number of unmet needs. Further work is needed to develop resources to address those needs.

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Psychometric validation of the Turkish version of the Supportive Care Needs Survey for Partners and Caregivers (SCNS‐P&C‐T) of cancer patients

European Journal of Cancer Care ◽

10.1111/ecc.13177 ◽

2019 ◽

Vol 29 (1) ◽

Author(s):

Mevlüde Ergen ◽

Fatma Arikan

Keyword(s):

Supportive Care ◽

Cancer Patients ◽

Supportive Care Needs ◽

Psychometric Validation ◽

Turkish Version ◽

Care Needs

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A qualitative approach in determining the patient-centered information and supportive care needs of cancer patients in Singapore

BMJ Open ◽

10.1136/bmjopen-2019-034178 ◽

2020 ◽

Vol 10 (2) ◽

pp. e034178

Author(s):

Gek Phin Chua ◽

Hiang Khoon Tan

Keyword(s):

Supportive Care ◽

Cancer Patients ◽

Quantitative Study ◽

Information Needs ◽

Supportive Care Needs ◽

Research Approach ◽

Detailed Knowledge ◽

Care Needs ◽

Treatment Unit ◽

Ambulatory Treatment

ObjectivesTo qualitatively interpret the information and supportive care needs perceived by cancer patients undergoing treatment in order to get a deeper appreciation of patients’ needs and concerns. The intended outcome is to provide baseline knowledge for improving patient-centred strategies to better meet the information and supportive needs of patients.DesignA qualitative research approach, based on conventional content analysis, was used throughout the research process. The three open-ended questions obtained from a previous quantitative study guided the researchers to explore the information and supportive care needs of patients. Data from patients’ responses were analysed and coded in themes.Participants and settingPatients attending the Ambulatory Treatment Unit of the National Cancer Centre Singapore were invited to participate in the study. We determined from these subjects the type of information that cancer patients need, and to measure the extent to which these information needs are met by measuring patients’ level of satisfaction. Included in the quantitative study were three open-ended questions designed to gain a deeper understanding of their needs and concerns. All subjects were aged 21 years and above and able to understand and communicate in English/Mandarin. They were also aware of their diagnosis, they were not cognitively impaired and were not at the end-of-life situation.ResultsA variety of information and supportive care needs were identified, and three specific areas of concerns were identified: (1) psychosocial and supportive care needs, (2) information needs and (3) information delivery by professionals.ConclusionThe information and supportive care needs expressed were consistent with issues of cancer patients undergoing treatment. The strategies to improve patients’ coping abilities through patient-centred care are discussed. Further studies assessing the barriers of information provision by healthcare professionals should provide more detailed knowledge about unmet information needs.

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