Translation of Supportive Care Needs Survey Short Form 34 (SCNS-SF34) into Italian and cultural validation study

2015 ◽  
Vol 24 (2) ◽  
pp. 843-848 ◽  
Author(s):  
Anita Zeneli ◽  
Elisa Fabbri ◽  
Elena Donati ◽  
Grainne Tierney ◽  
Stefania Pasa ◽  
...  
2011 ◽  
Author(s):  
A. Au ◽  
W. W. T. Lam ◽  
A. Kwong ◽  
D. Suen ◽  
J. Tsang ◽  
...  

2018 ◽  
Vol 26 (1) ◽  
pp. E16-E27
Author(s):  
Ilknur Aydin Avci ◽  
Hatice Kumcagiz

Background and Purpose: The aim of this study is to explore the construct validity and reliability of the Turkish version of the 34-item Supportive Care Needs Survey–Short Form (SCNS-SF34), which was developed by Boyes, Girgis, and Lecathelinais (2009), to assess the needs of cancer patients in Turkey. Methods: The SCNS-SF34 has been translated and tested in various studies in other countries and cultures. The current study examined the validity and reliability of the Turkish adaptation of this survey among Turkish cancer patients. The instrument was translated using a back-translation technique, which includes the use of a panel of experts and interpreters to translate the items from the source language to the target language and then back-translate them into the source language. The study was conducted in Samsun, a city in north Turkey. A total of 573 cancer patients participated in this study. Statistical analyses were made using R program and SPSS, and included internal consistency, reliability, confirmatory and exploratory factor analyses. Results: Exploratory factor analysis adjusted a 5-factor structure (psychological, health systems and information, patient care and support, physical and daily living, and sexuality) explaining 74% of the variance. Cronbach’s α ranged from .71 to .90. Conclusion: Psychometric testing demonstrated satisfactory internal consistency and validity of the instrument for cancer patients. The Turkish version of the SCNS-SF34 can be used in planning and testing interventions to improve supportive care needs for cancer patients in Turkey.


2017 ◽  
Vol 35 (15_suppl) ◽  
pp. e21552-e21552
Author(s):  
C. Lizette Galvez ◽  
Cynthia Villarreal-Garza ◽  
Alejandro Mohar

e21552 Background: Despite high rates of breast cancer (BC) in young Mexican women, information about their particular needs and concerns is largely unknown. Understanding the patients individual needs in a population with unique socio-cultural features is essential to guide supportive care and improve their quality of life. We aim to describe the unmet needs of Mexican young women with breast cancer (YWBC). Methods: A cross-sectional study including women with stage I-III BC aged 40 years or younger at diagnosis was conducted at the National Cancer Institute in Mexico City. YWBC were invited to complete the Supportive Care Needs Survey, Short Form-34 (SCNS-SF34), a comprehensive tool that measures the perceived unmet needs of cancer patients. The survey was previously adapted and validated in our population for its use. Results: 81 consecutive patients with median age at diagnosis of 35.09 (SD 3.9) years were included. 45.7% were married and 29.2% completed secondary school. 92.6% had stage II-III BC. 70.4% were undergoing active treatment and 29.6% were either on hormonal therapy or surveillance. From a total standardized score of 100, the health systems and information domain had the highest mean score (39.3), followed by the psychological domain (36.3). The sexuality domain had the lowest mean score (27). The highest ranked items of unmet needs (by mean crude score) were: to be informed about cancer is under control or diminishing (2.9), to be informed about things you can do to help yourself get well (2.8), lack of energy and fatigue (2.7), and fear about the cancer spreading (2.7). Perceived needs among patients undergoing active treatment were greater compared to those in follow-up (z = -2.390 p = 0.017), predominantly in the sexuality domain (z = -2.084 p = 0.037). Conclusions: Mexican YWBC have specific needs that are currently not systematically addressed. The predominant unmet need regarding health systems and information should be a priority. Further research to understand the needs and concerns of this unique and understudied patient population will aid tailor clinical interventions and supportive care.


2009 ◽  
Vol 18 (9) ◽  
pp. 1003-1010 ◽  
Author(s):  
Toru Okuyama ◽  
Tatsuo Akechi ◽  
Hiroko Yamashita ◽  
Tatsuya Toyama ◽  
Chiharu Endo ◽  
...  

2009 ◽  
Author(s):  
Toru Okuyama ◽  
Tatsuo Akechi ◽  
Hiroko Yamashita ◽  
Tatsuya Toyama ◽  
Chiharu Endo ◽  
...  

2015 ◽  
Vol 23 (9) ◽  
pp. 2711-2719 ◽  
Author(s):  
Svetlana V. Doubova ◽  
Rebeca Aguirre-Hernandez ◽  
Marcos Gutiérrez-de la Barrera ◽  
Claudia Infante-Castañeda ◽  
Ricardo Pérez-Cuevas

Author(s):  
Mohammed Al-Azri ◽  
Khalid Al-Bimani ◽  
Al-Anoud Al-Maqbali ◽  
Hala Al-Riyami ◽  
Al-Kuthar Al-Shabnooti ◽  
...  

Objectives: This study aimed to assess the unmet supportive care needs of Omani women with breast cancer (BC). Methods: This cross-sectional study was conducted from November 2020 to February 2021 among 250 adult Omani women diagnosed with BC at a university teaching hospital in Muscat, Oman. An Arabic version of the 34-item Supportive Care Needs Survey-Short Form tool was used to determine perceived unmet supportive care needs across five domains. Results: A total of 181 women participated in the study (response rate: 72.4%). The domain with the highest mean score per item was health system and information (mean score: 3.33), with the greatest unmet need in this domain being informed about things that the patient could do to help themselves get well (40.9%). The domain with the second highest mean score per item was patient care and support (mean score: 3.04), with the greatest unmet need being for clinicians to be more sincere with the patient (36.5%). Higher total mean scores were reported by women who had visited the hospital four times or more over the past two months (P = 0.045), those with stage 3 or 4 cancer (P = 0.047) and those who had recently undergone radiotherapy or chemotherapy (P = 0.014). Conclusion: Most unmet supportive care needs fell under the health system and information domain. Healthcare providers in Oman should explore patient concerns and provide sufficient information at various stages of the care process in order to decrease the anxiety associated with living with cancer. Keywords: Breast Neoplasms; Needs Assessment; Supportive Care; Women; Oman.


2021 ◽  
Author(s):  
Kamala Dhakal ◽  
Panpan Wang ◽  
Joanes Faustine Mboineki ◽  
Mikiyas Amare Getu ◽  
Changying Chen ◽  
...  

Abstract PurposeSupportive Care Needs Survey (SCNS) is one of the strongest and complete tools to assess the perceived supportive care needs of cancer patients. SCNS –SF34 has been translated into various other culture based languages, validated and established its psychometric properties. Till now no Nepali version, so we planned to assess the linguistic and cultural validity of Nepali version of the SCNS-SF34 in Nepali population.MethodsTranslation of Supportive Care Need Survey – Short Form 34 (SCNS-SF 34) was done by following Beaton’s guidelines in collaboration with a research team. Cultural adaptation was established through content validity assessment, clarity assessment of questionnaire and pretest. Content validity in terms of semantic, cultural and conceptual was assessed by 10 experts by using Likert scale and clarity of questionnaire was assessed among 15 cervical cancer patients by using Likert scale. The pretest was done among 34 cervical cancer patients to assess the feasibility and practicality of the tool. For reliability of tool test –retest method was used among 50 cervical cancer patients. ResultsThe Nepali version SCNS-SF 34 maintained the content validity (Item Content validity index (I-CVI) >0.78 in semantic, cultural and conceptual aspects and S-CVI (Scale Content Validity Index) was found,89.00% (0.89) 91.88 % (0.91) 90.00%(0.90) in semantic, cultural and conceptual aspects respectively. Content validity ratio (CVR) - 0.9 to 1) and construct validity (0.902) with 91.29 % clarity of questionnaire. This version had good internal consistency, with Cronbach’s alpha coefficients ranging from 0.89 to 0.91 with Composite Cronbach's Alpha 0.90. Correlation significant at the 0.01 level (2-tailed). More simple Nepali words were chosen as suggested by participants in items no 2,3,7, 9,10, 12, 18,19, 25, 27and 30 than the preliminary Nepali version along with the acceptance of all original items.ConclusionsThis finding shows that the SCNS-SF34 was translated and culturally adapted for use in Nepal with high practicality. This translated instrument can be used to assess the supportive care need and correlation between supportive care need and health related quality of life among cervical cancer patients.


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